Re: Another question about treatment

[Guest guest]

We did up until her Crohn's was diagnosed two years ago.

Ursula mom to Macey 15, CVID

On Jan 21, 2011, at 2:15 PM, " beyeafamily " <debeyea@...> wrote:

> Does anyone still use prophylactic abx during cold and flu season, even though

their child receives IG therapy?

>

> We are doing it with one of my kids, and it has seemed to help a bit, but the

abx really bothers her stomach after these months of prolonged use. We are

trying to decide if we should continue or not.

>

> Thanks!

> a

>

>

[Guest guest]

We are supposed to be right now, but we had to quit because the stomach

issues were getting to be too much. He was doing well with it until that

awful stomach flu and then that was followed immediately by the next IVIG

reaction and we've been unable to get him back on them without major tummy

issues.

On Jan 21, 2011, at 2:15 PM, " beyeafamily " <debeyea@...

<mailto:debeyea%40verizon.net> > wrote:

> Does anyone still use prophylactic abx during cold and flu season, even

though their child receives IG therapy?

>

> We are doing it with one of my kids, and it has seemed to help a bit, but

the abx really bothers her stomach after these months of prolonged use. We

are trying to decide if we should continue or not.

>

> Thanks!

> a

>

>

[

[Guest guest]

We have just started doing this. We started SubQ in December and it's taking

awhile to build up, i guess. The baby had sinusitis, bronchitis, double ear

infections over and over again. We were on anitbiotic anyway because of all of

this so they just asked us to go on amoxi for the next three months. I agree

though about the tummy troubles....he has had diarrhea since we started it. We

are fighting a wicked diaper rash that we can't seem to get ahead of and now it

is yeast. We are still evaluating b/c he seems to finally have kicked the sinus

stuff, chest stuff and the ears finally cleared up.....so maybe it's a trade off

for him? We are still figuring this out! Kim

From: skgcifamily@...

Date: Fri, 21 Jan 2011 15:35:34 -0600

Subject: RE: Another question about treatment

We are supposed to be right now, but we had to quit because the stomach

issues were getting to be too much. He was doing well with it until that

awful stomach flu and then that was followed immediately by the next IVIG

reaction and we've been unable to get him back on them without major tummy

issues.ust sust s

On Jan 21, 2011, at 2:15 PM, " beyeafamily " <debeyea@...

<mailto:debeyea%40verizon.net> > wrote:

> Does anyone still use prophylactic abx during cold and flu season, even

though their child receives IG therapy?

>

> We are doing it with one of my kids, and it has seemed to help a bit, but

the abx really bothers her stomach after these months of prolonged use. We

are trying to decide if we should continue or not.

>

> Thanks!

> a

>

>

[

[Guest guest]

You can kill the yeast in 3 days flat by painting his butt purple with gentian

violet. Cost about $2 at a drug store, small little bottle. Just apply it with a

q-tip or cotton ball but be aware, it will stain what ever it touches including

skin for several days. Nystatin just feeds the yeast with its sugar base. We

fought horrible yeast rashes for months and once I found out about the GV and

tried it we switched. It knocked the yeast every time quickly (antibiotics would

cause the rashes).

________________________________

From: Steltz <kmay77@...>

Sent: Fri, January 21, 2011 2:54:53 PM

Subject: RE: Another question about treatment

We have just started doing this. We started SubQ in December and it's taking

awhile to build up, i guess. The baby had sinusitis, bronchitis, double ear

infections over and over again. We were on anitbiotic anyway because of all of

this so they just asked us to go on amoxi for the next three months. I agree

though about the tummy troubles....he has had diarrhea since we started it. We

are fighting a wicked diaper rash that we can't seem to get ahead of and now it

is yeast. We are still evaluating b/c he seems to finally have kicked the sinus

stuff, chest stuff and the ears finally cleared up.....so maybe it's a trade off

for him? We are still figuring this out! Kim

From: skgcifamily@...

Date: Fri, 21 Jan 2011 15:35:34 -0600

Subject: RE: Another question about treatment

We are supposed to be right now, but we had to quit because the stomach

issues were getting to be too much. He was doing well with it until that

awful stomach flu and then that was followed immediately by the next IVIG

reaction and we've been unable to get him back on them without major tummy

issues.ust sust s

On Jan 21, 2011, at 2:15 PM, " beyeafamily " <debeyea@...

<mailto:debeyea%40verizon.net> > wrote:

> Does anyone still use prophylactic abx during cold and flu season, even

though their child receives IG therapy?

>

> We are doing it with one of my kids, and it has seemed to help a bit, but

the abx really bothers her stomach after these months of prolonged use. We

are trying to decide if we should continue or not.

>

> Thanks!

> a

>

>

[

[Guest guest]

Thanks! I have not heard of this! We will head to the drug store tomorrow! I

can get it at like a regular CVS? Is this considered homeopathic (what aisle?

vitamins, meds etc)? Kim

From: bluetaelon@...

Date: Fri, 21 Jan 2011 15:46:02 -0800

Subject: Re: Another question about treatment

You can kill the yeast in 3 days flat by painting his butt purple with

gentian

violet. Cost about $2 at a drug store, small little bottle. Just apply it with a

q-tip or cotton ball but be aware, it will stain what ever it touches including

skin for several days. Nystatin just feeds the yeast with its sugar base. We

fought horrible yeast rashes for months and once I found out about the GV and

tried it we switched. It knocked the yeast every time quickly (antibiotics would

cause the rashes).

________________________________

From: Steltz <kmay77@...>

Sent: Fri, January 21, 2011 2:54:53 PM

Subject: RE: Another question about treatment

We have just started doing this. We started SubQ in December and it's taking

awhile to build up, i guess. The baby had sinusitis, bronchitis, double ear

infections over and over again. We were on anitbiotic anyway because of all of

this so they just asked us to go on amoxi for the next three months. I agree

though about the tummy troubles....he has had diarrhea since we started it. We

are fighting a wicked diaper rash that we can't seem to get ahead of and now it

is yeast. We are still evaluating b/c he seems to finally have kicked the sinus

stuff, chest stuff and the ears finally cleared up.....so maybe it's a trade off

for him? We are still figuring this out! Kim

From: skgcifamily@...

Date: Fri, 21 Jan 2011 15:35:34 -0600

Subject: RE: Another question about treatment

We are supposed to be right now, but we had to quit because the stomach

issues were getting to be too much. He was doing well with it until that

awful stomach flu and then that was followed immediately by the next IVIG

reaction and we've been unable to get him back on them without major tummy

issues.ust sust s

On Jan 21, 2011, at 2:15 PM, " beyeafamily " <debeyea@...

<mailto:debeyea%40verizon.net> > wrote:

> Does anyone still use prophylactic abx during cold and flu season, even

though their child receives IG therapy?

>

> We are doing it with one of my kids, and it has seemed to help a bit, but

the abx really bothers her stomach after these months of prolonged use. We

are trying to decide if we should continue or not.

>

> Thanks!

> a

>

>

[

[Guest guest]

we do not use them at all but keep my sons levels up and he does not need them

with Sub Q.

BARBIE

________________________________

From: beyeafamily <debeyea@...>

Sent: Fri, January 21, 2011 11:15:42 AM

Subject: Another question about treatment

Does anyone still use prophylactic abx during cold and flu season, even though

their child receives IG therapy?

We are doing it with one of my kids, and it has seemed to help a bit, but the

abx really bothers her stomach after these months of prolonged use. We are

trying to decide if we should continue or not.

Thanks!

a

[Guest guest]

The pharmacy will order it for you, if they don't have it. It is usually

behind the counter.

We have lots of pictures of our kids with the purple mouths when they were

young

**and the stains DO NOT COME OUT** dark-colored or old clothes work

well!!! because when the skin gets damp again, the stains continue to

come off for quite awhile.

Mindy

> Yep CVS will have it, it varies where you find it. I usually end up asking

> the

> pharmacist but be aware they like to scare you with it but its safe. The

> mayoclinc has good info on using it

> http://www.mayoclinic.com/health/drug-information/DR600723 and just so you

> know

> what to expect lots of images of purple faces of babies with thrush (its

> good

> for mouths and butts and will even kill a yeast infection fast in a women)

> as

> well as pics of the bottles so you know what your looking for

>

http://www.google.com/images?hl=en & client=firefox-a & hs=XE7 & rls=org.mozilla:en-US\

:official & q=gentian+violet & um=1 & ie=UTF-8 & source=univ & ei=6SA6TZHQOo34sAP_8smfAw & s\

a=X & oi=image_result_group & ct=title & resnum=6 & ved=0CEUQsAQwBQ & biw=1024 & bih=578

>

>

>

>

>

>

>

> ________________________________

> From: Steltz <kmay77@...>

>

> Sent: Fri, January 21, 2011 4:01:49 PM

> Subject: RE: Another question about treatment

>

>

> Thanks! I have not heard of this! We will head to the drug store

> tomorrow! I

> can get it at like a regular CVS? Is this considered homeopathic (what

> aisle?

> vitamins, meds etc)? Kim

>

>

> From: bluetaelon@...

> Date: Fri, 21 Jan 2011 15:46:02 -0800

> Subject: Re: Another question about treatment

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> You can kill the yeast in 3 days flat by painting his butt purple

> with

> gentian

>

>

> violet. Cost about $2 at a drug store, small little bottle. Just apply it

> with a

>

>

> q-tip or cotton ball but be aware, it will stain what ever it touches

> including

>

> skin for several days. Nystatin just feeds the yeast with its sugar base.

> We

>

> fought horrible yeast rashes for months and once I found out about the GV

> and

>

> tried it we switched. It knocked the yeast every time quickly (antibiotics

> would

>

>

> cause the rashes).

>

>

>

>

>

>

>

> ________________________________

>

> From: Steltz <kmay77@...>

>

>

>

> Sent: Fri, January 21, 2011 2:54:53 PM

>

> Subject: RE: Another question about treatment

>

>

>

> We have just started doing this. We started SubQ in December and it's

> taking

>

> awhile to build up, i guess. The baby had sinusitis, bronchitis, double

> ear

>

> infections over and over again. We were on anitbiotic anyway because of

> all of

>

> this so they just asked us to go on amoxi for the next three months. I

> agree

>

> though about the tummy troubles....he has had diarrhea since we started

> it. We

>

> are fighting a wicked diaper rash that we can't seem to get ahead of and

> now it

>

> is yeast. We are still evaluating b/c he seems to finally have kicked the

> sinus

>

>

> stuff, chest stuff and the ears finally cleared up.....so maybe it's a

> trade off

>

>

> for him? We are still figuring this out! Kim

>

>

>

>

>

> From: skgcifamily@...

>

> Date: Fri, 21 Jan 2011 15:35:34 -0600

>

> Subject: RE: Another question about treatment

>

>

>

> We are supposed to be right now, but we had to quit because the stomach

>

>

>

> issues were getting to be too much. He was doing well with it until that

>

>

>

> awful stomach flu and then that was followed immediately by the next IVIG

>

>

>

> reaction and we've been unable to get him back on them without major tummy

>

>

>

> issues.ust sust s

>

>

>

>

>

>

>

> On Jan 21, 2011, at 2:15 PM, " beyeafamily " <debeyea@...

>

>

>

> <mailto:debeyea%40verizon.net> > wrote:

>

>

>

>> Does anyone still use prophylactic abx during cold and flu season, even

>

>

>

> though their child receives IG therapy?

>

>

>

>>

>

>

>

>> We are doing it with one of my kids, and it has seemed to help a bit,

>> but

>

>

>

> the abx really bothers her stomach after these months of prolonged use. We

>

>

>

> are trying to decide if we should continue or not.

>

>

>

>>

>

>

>

>> Thanks!

>

>

>

>> a

>

>

>

>>

>

>

>

>>

>

>

>

> [

>

>

>

>

[Guest guest]

It does come off skin... eventually lol:) I did figure out that Softscrub with

bleach toilet cleaner will take it off counter tops and porcelain sinks. My

youngest dumped out a whole bottle all over the bathroom. Friend suggested the

toilet cleaner and it works. Might work on clothes too, never tried it but

guessing it would bleach them so that would be just as bad.

________________________________

From: " mindy@... " <mindy@...>

Sent: Fri, January 21, 2011 5:35:35 PM

Subject: Re: Another question about treatment

The pharmacy will order it for you, if they don't have it. It is usually

behind the counter.

We have lots of pictures of our kids with the purple mouths when they were

young

**and the stains DO NOT COME OUT** dark-colored or old clothes work

well!!! because when the skin gets damp again, the stains continue to

come off for quite awhile.

Mindy

> Yep CVS will have it, it varies where you find it. I usually end up asking

> the

> pharmacist but be aware they like to scare you with it but its safe. The

> mayoclinc has good info on using it

> http://www.mayoclinic.com/health/drug-information/DR600723 and just so you

> know

> what to expect lots of images of purple faces of babies with thrush (its

> good

> for mouths and butts and will even kill a yeast infection fast in a women)

> as

> well as pics of the bottles so you know what your looking for

>http://www.google.com/images?hl=en & client=firefox-a & hs=XE7 & rls=org.mozilla:en-U\

S:official & q=gentian+violet & um=1 & ie=UTF-8 & source=univ & ei=6SA6TZHQOo34sAP_8smfAw & \

sa=X & oi=image_result_group & ct=title & resnum=6 & ved=0CEUQsAQwBQ & biw=1024 & bih=578

>8

>

>

>

>

>

>

>

> ________________________________

> From: Steltz <kmay77@...>

>

> Sent: Fri, January 21, 2011 4:01:49 PM

> Subject: RE: Another question about treatment

>

>

> Thanks! I have not heard of this! We will head to the drug store

> tomorrow! I

> can get it at like a regular CVS? Is this considered homeopathic (what

> aisle?

> vitamins, meds etc)? Kim

>

>

> From: bluetaelon@...

> Date: Fri, 21 Jan 2011 15:46:02 -0800

> Subject: Re: Another question about treatment

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> You can kill the yeast in 3 days flat by painting his butt purple

> with

> gentian

>

>

> violet. Cost about $2 at a drug store, small little bottle. Just apply it

> with a

>

>

> q-tip or cotton ball but be aware, it will stain what ever it touches

> including

>

> skin for several days. Nystatin just feeds the yeast with its sugar base.

> We

>

> fought horrible yeast rashes for months and once I found out about the GV

> and

>

> tried it we switched. It knocked the yeast every time quickly (antibiotics

> would

>

>

> cause the rashes).

>

>

>

>

>

>

>

> ________________________________

>

> From: Steltz <kmay77@...>

>

>

>

> Sent: Fri, January 21, 2011 2:54:53 PM

>

> Subject: RE: Another question about treatment

>

>

>

> We have just started doing this. We started SubQ in December and it's

> taking

>

> awhile to build up, i guess. The baby had sinusitis, bronchitis, double

> ear

>

> infections over and over again. We were on anitbiotic anyway because of

> all of

>

> this so they just asked us to go on amoxi for the next three months. I

> agree

>

> though about the tummy troubles....he has had diarrhea since we started

> it. We

>

> are fighting a wicked diaper rash that we can't seem to get ahead of and

> now it

>

> is yeast. We are still evaluating b/c he seems to finally have kicked the

> sinus

>

>

> stuff, chest stuff and the ears finally cleared up.....so maybe it's a

> trade off

>

>

> for him? We are still figuring this out! Kim

>

>

>

>

>

> From: skgcifamily@...

>

> Date: Fri, 21 Jan 2011 15:35:34 -0600

>

> Subject: RE: Another question about treatment

>

>

>

> We are supposed to be right now, but we had to quit because the stomach

>

>

>

> issues were getting to be too much. He was doing well with it until that

>

>

>

> awful stomach flu and then that was followed immediately by the next IVIG

>

>

>

> reaction and we've been unable to get him back on them without major tummy

>

>

>

> issues.ust sust s

>

>

>

>

>

>

>

> On Jan 21, 2011, at 2:15 PM, " beyeafamily " <debeyea@...

>

>

>

> <mailto:debeyea%40verizon.net> > wrote:

>

>

>

>> Does anyone still use prophylactic abx during cold and flu season, even

>

>

>

> though their child receives IG therapy?

>

>

>

>>

>

>

>

>> We are doing it with one of my kids, and it has seemed to help a bit,

>> but

>

>

>

> the abx really bothers her stomach after these months of prolonged use. We

>

>

>

> are trying to decide if we should continue or not.

>

>

>

>>

>

>

>

>> Thanks!

>

>

>

>> a

>

>

>

>>

>

>

>

>>

>

>

>

> [

>

>

>

>