Guest guest Posted April 4, 2010 Report Share Posted April 4, 2010 Mys son has CVID. He was on SubQ but it did not work as well as we hoped for and recently had a port put in. I live with an awful anxiety. This diagnosis has consumed me. I don't sleep as well as I used to because I feel the need to check on him at night. I'm always on the computer trying to find more information and educate myself as well as my husband and family. I think I've educated myself above and beyond. My husband also worries and I know he has his own anxieties but is usually trying to keep me calm. I sometimes feel bad because I feel like he's constantly keeping me calm but who's keeping him calm. I feel guilty. Last week we let him stay at his uncles house for the weekend when we went to drop something off they weren't there and I automatically started to panic. Then we couldn't reach them on cell, now I went into full panic mode complete anxiety attack. Started thinking what if he got sick, had to go to hospital,etc.. I felt sick to my stomach, I felt like I was going to faint. Then came the phone call, they were at the market.. I felt so stupid, embarrassed and rediculous. Not quite sure how to deal with disease but not let it consume my every thought. Dee mom of zach 11,cvid Quote Link to comment Share on other sites More sharing options...
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