Guest guest Posted April 4, 2012 Report Share Posted April 4, 2012 Hi my 6 year old daughter Madeline had her 5 month follow up after beginning IVIG for 3 months and then moving to SCIG Hizentra. Maddy has CVID with antibody deficiency and poor memory b cell response. Her IGG levels are low and her avidity testing showed what reponses she did make for her pneumovax were not even functioning. She has been doing well as far as illness considering we made it through the winter with only 1 antibiotic vs. monthly hospitalizations and living on RX! No asthma/prednisone issues either. Anyway, she just had her lab tests drawn to check her trough level and see if we need to adjust any medication doses. It showed they were close to 1000 which is where they should be on the SCIG, but her labs did show she had a decrease in her IGM (which was normal before) and her total population for memory B cells had also decreased. I was told that they would watch this and if that it stayed the same of went lower they would put her back on the prophylactic antibiotics to prevent serious infections. (she had been on them in the past prior to IVIG and SCIG and they didn't stop any infections from coming on through). So my questions are if anyone else has experienced this and what it means. I thought the IVIG/SCIG should increase everything because it is replacing what she is missing. It increased her IGG trough levels but her IGM's went down and the memory b cell population decreased. A litte confused and worried. Any advice is appreciated Thanks, Quote Link to comment Share on other sites More sharing options...
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