Re: Digest Number 5219

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Thank you, Sue. I needed to hear that. She has seen 4 drs for this now, two

different ENT drs. Non ent's were dismissive, ENT's had tunnel vision. I am

upset with myself I didn't go with my instincts and keep going from Dr to Dr

till I was satisfied with their answers. The whole fungal issue is something I

am not too familiar with but it sounds like I need to question about a

willingness to culture when I call to first schedule her. My first priority

tomorrow morning is calling ENT's from some of the large hospitals in L.A.

I appreciate your input so very much.

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Subject: Digest Number 5219

Sent: Sun, Jul 1, 2012 10:25:58 AM



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2 New Messages

Digest #5219

1a

sinus infection wont clear by " nancy barnes " nancyb315

1b

Re: sinus infection wont clear by " Sue Bordelon " sudubo

1a

sinus infection wont clear

Sun Jul 1, 2012 12:26 am (PDT) . Posted by: " nancy barnes " nancyb315

Hi, I very seldom post as my daughter is no longer a ped  (just turned 22) but

I figured if anyone would have suggestions, this would be the place to find

it! 

Her sinus infection started with horrible eye pain - no other symptoms; 3 days

later, the entire side of her face was swollen with very severe facial pain; ER

gave pain injections & referred her to an ENT (her's was out of town).  She is

on now 4th month of (2nd) antibiotic, & when ENT scoped her 2 wks ago he said

she is still fully infected, prescribed 3 more months of antibiotics, then said

he's out of answers, it's an immune issue. Friday, my daughter phoned from camp

(where she's working all summer) to say she's feeling worse.  I brought her

home for the weekend, and, in retrospect, don't know what I was thinking any

weekend dr or er would do for her when she hasn't been helped so far...she was

switched her fm Biaxin to Bactrim and given Astelin nasal spray.  I couldn't

even get them to test her blood levels today and quite frankly, I doubt they

would have known what to do with it in terms of PIDD...

She aged out of her really good immuno at UCLA so we were trying one locally,

but aside from prescribing 's Hizentra, she has gone a little radical,

attributing the core of all allergy and immuno issues to Celiac disease and also

encourages brewing " fresh " dandelion tea (so long as we don't use pesticides in

our yard).. I believe holistic medicine has its place - we are vegetarian, try

to eat certain foods organic, etc, but this is a persistant infection; my

daughter is tremendously discouraged with health care practioners.  We are

trying to see an immuno at another university but he is booking into Oct. 

Any advice would be welcome and appreciated.  Not sure whether to switch her to

new antibiotic, seek another ENT, ? 

Thank you in advance for your help.

mom to (CVID, jra, hashimotos)