Guest guest Posted April 4, 2012 Report Share Posted April 4, 2012 JB, Yes, many of us face this kind of experience. We live in a nation with a bizarre, convoluted, barrier-ridden healthcare system. Everything is a moving target with change always a factor. The silver lining is that HIV is just about the only disease that has its own national healthcare plan for low income individuals in the U.S. It's not perfect, but there are way more options for us. - - - There are various levels and kins of " extra help " for Medicare Part D insurance. It sounds like you are a bit confused about the qualifications. In general, you are eligible unless your income exceeds 150% of the federal poverty level. Even partial extra help is a big amount. The rule you refer to actually says " You may qualify [for extra help] if you have up to $16,755 in yearly income ($22,695 for a married couple) and up to $13,070 in resources ($26,120 for a married couple). " Don't confuse " income " (what comes in regularly in pay or benefits) and " resources " (combined savings, investments, and real estate EXCLUDING the home you live in, vehicles, personal possessions, burial plots, irrevocable burial contracts or back payments from Social Security or SSI). You can also qualify if you already get SSI (not SSDI) or Medicaid. You can also qualify if you are eligible for certain state assistance programs (to apply, go to your state's equivalent of the department of human services and say you want to apply for everything for which you are eligible, including Medicaid, foodstamps and help with Medicare premiums.) If you haven't already, I highly recommend getting the guidance of a qualified case manager to help you. If it becomes absolutely certain that you do not qualify for extra help, your many states' White programs have benefits that help pay for part or all of out of pocket Medicare Part D expenses. If yours does not, you can apply for the help of pharmaceutical assistance programs. Do not, I repeat, DO NOT let anyone tell you these programs don't assist people who have Medicare Part D. Most (and particularly those for HIV meds) absolutely do. Applying successfully requires persistance, and having help from someone with experience can make a difference. Good luck! mark Mark Hubbard Nashville TN > > Hey everyone. I just recently applied for Medicare Part D. I have applied for the special assistance .. I just cannot afford the co-pay on these expensive HIV meds. I was told you could not have more than roughly 16,000 in assets, meaning savings, checking and/or any other income. I am fretting over them denying this help. I found out there is a waiting list for ADAP, with a thousand already on the list. My private insurance is canceling my policy as of May 18th. Anyone else go through this experience? > Quote Link to comment Share on other sites More sharing options...
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