New Member - hello!

[Guest guest]

Hi,

I've just joined the group, although having looked at the boards, I wish I'd

found it a year ago!

My son, , is 2 and was diagnosed with IGa deficiency about a year ago,

following a very difficult 18 months when he was constantly ill. Fortunately,

it was never anything really serious but it was all the time.

To cut a very long story short, he has recently been referred to the Royal

London hospital because he has had constant bowel problems as well as the

infections (which are much better now as he has been on daily Augmentin). The

consultant has found reflux and has tested clear for celiacs and cystic

fibrosis. Interestingly, his blood tests showed all of his IG levels, including

IGa to be normal.

Does that mean he has grown out of the PID or do the levels flucutate? He still

suffers from weeks of constipation followed by yellow or green diarrhoea (sorry

for the detail!).... We've got a follow up appointment on Monday and I'm trying

to get together some questions to ask.

Thanks for listening to that rather long ramble...

(Mum to Beth 4, and 2, IGa deficiency?)

[Guest guest]

Hi ! I want to welcome you to the group. You will find a whole lot of

wonderful wise people on this group to help with the many questions that can

arise.

My son also has IGA Def and was diagnosed at almost 2 years of age. He is

now 7 and clinically still has IGA Def but is doing really well as far as

not getting sick all the time. I don't know much but a few things came to

mind as I read your post. My son always had diarrhea after a bout of long

term antibiotic use. It is somewhat of a two edged sword because of the

benefit of not getting sick, yet it is hard on their little tummy's. That

is something you may want to speak to the doctor about. And as far as

growing out of the IGA Def..the age of 2 seems somewhat young, however not

impossible. I would request a follow-up test at some point to check levels

again.

I hope your appointment goes well on Monday and I hope your is

feeling better!

Amy

(mom to Bradley 7 IGA Def, and )

_____

From: [mailto: ] On Behalf Of

mariaandrew7

Sent: Thursday, September 10, 2009 3:39 AM

Subject: New Member - hello!

Hi,

I've just joined the group, although having looked at the boards, I wish I'd

found it a year ago!

My son, , is 2 and was diagnosed with IGa deficiency about a year ago,

following a very difficult 18 months when he was constantly ill.

Fortunately, it was never anything really serious but it was all the time.

To cut a very long story short, he has recently been referred to the Royal

London hospital because he has had constant bowel problems as well as the

infections (which are much better now as he has been on daily Augmentin).

The consultant has found reflux and has tested clear for celiacs and

cystic fibrosis. Interestingly, his blood tests showed all of his IG levels,

including IGa to be normal.

Does that mean he has grown out of the PID or do the levels flucutate? He

still suffers from weeks of constipation followed by yellow or green

diarrhoea (sorry for the detail!).... We've got a follow up appointment on

Monday and I'm trying to get together some questions to ask.

Thanks for listening to that rather long ramble...

(Mum to Beth 4, and 2, IGa deficiency?)