Guest guest Posted May 30, 2012 Report Share Posted May 30, 2012 I am having so much difficulty in getting approval for Extra Help. I had a patient advocate at the HIV clinic I was assigned to help me fill out the application. What I didn't know at the time was that back pay from Social Security Disability payments should not, and are not to be used as resource for determination for approval. My patient " advocate " simply went ahead after a brief raising of the tone of his voice, and asking me how much money I had in my savings, whereby I hesitated, " you are making this much more difficult than it has to be " . So I told him that that was back pay from Social Security (voice tone becomes more gruff) " how much money do you have in the bank? " I said about $16,000 dollars. He put that down as a resource. Granted I was ignorant at the time about what could or couldn't be included as resources. He should have known ...being a patient advocate and now I have been denied Extra Help and must go through an appeal process. Now I have no way to pay for my HIV and other meds ...except for out of pocket. I have already spent over $10,000 dollars on out of pocket expenses for co-pay from my previous insurance company .. that canceld my policy as of May 18th. They said: it was because they were no longer going to provide major medical insurance .. yeah, right. Question: Anyone else have this problem? Does anyone know which insurance provider is the best for people on Part D and will cover their medications without a lot of hassle? My nerves are shot. I have talked to several " agents " from Social Security and Medicare. One agent, who I forgot to get her name, seemed to understand the situation and said she would correct the error made on the original application and resubmit it. They have no record of that conversation. Nothing .. and they become adamant when I mention it and refuse to look into it. Was this agent, who seemed to be so helpful, just telling me a bunch of crap to get me off the phone? It's all so disgusting that they have these incompetent people who don't even know a patients rights and play stupid when a relevant question is asked. If anyone has any ideas on how I can approach this problem I would be so grateful. I am also at blueeyes9455@... Quote Link to comment Share on other sites More sharing options...
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