Walk Being Planned for Di Syndrome (VCFS) MN

[Guest guest]

We are planning a walk for Di Syndrome. Anyone wanting to help can by

emailing be directly. We will be having planning commitee meeting's coming up.

Walk is being planned for Sept 18th at 5p in Fergus Falls MN. We will also be

walking in memory of those that have lost their life to DGS(VCFS) and other CVID

disorders. All money raised going to the U of MN Di Clinic at Moose Tower

in Minneapolis, to benefit family's traveling for appt's from long distances.

in MN

Mom to Matt 10(VCFS, ADHD, OCD,Bipolar Disorder.)

Meghan 8 (VCFS, cogenital heart disease, CVID, was G Tube fed up until a yr ago

now on thickit.) Carly 7 (VCFS, CVID, ADHD)