Guest guest Posted March 15, 2012 Report Share Posted March 15, 2012 Starting mid December, our 9 yo got a sinus infection that took 6 weeks of antibiotics to clear. She re-started Subq a month ago. 6 weeks ago, just after finishing antibiotics, we traded one problem for another. She has a problem with geographic tongue that her immunologist has attributed to her chronic neutropenia. I have not been so sure about this. 6 weeks ago, she started getting daily stomach aches, headaches and a sore throat that have persisted now every single day. By evening, she is miserable. She is also exhausted and her hair has been breaking off or falling out. She also has a lot of leg and hip pain. All of these things, with the exception of headaches, has existed for years, but it has never been and every day affair. The past few days, we realize we are going to have to take her to her GP as she has had enough. I CRINGE at taking our kids to the doc anymore with the myriad of odd symptoms they have that non-immunologists have not seen before and are at a loss to explain. 3 years ago, Maggie was scoped top to bottom and was found to have lymphoid hyperplasia and small bowel bacterial overgrowth. She was also severely neutropenic when she was scoped with a count of 1.9 and a WBC of 2.0.....both in critical range. We thought she might have celiacs as it runs in my family. She didn't have celiacs. They thought she had pernicious anemia and we never got a final ruling on this. She did have occult blood in her stool. For years, I have noticed a correlation between an increase in generalized symptoms when she eats a lot of sugar. Suffice it to say, it is girl scout cookie season and she has been eating her fair share of cookies. When we thought she might have celiacs, we put her on a gluten free diet and she had a huge improvement in symptoms. She has been tested for food allergies and has none. Her labs have shown that she has a low activated T cell count and an impaired response to mitogen stimulation for candida. We are taking her to her GP tomorrow. He is very open minded and excellent at communicating with our immunologist. But, in order to avoic stumping him, I emailed our immunologist (have not heard back yet) and did a little research. I found information about the whole T cell/stim studies for candida and exposure to antibiotics. The problems persists even without antibiotic exposure, but no where near as badly as it is now. We would like to try a candida diet and I wanted to see if ANYONE has recommendations for a good resource for this. Additionally, I know there are herbal and more natural ways to approach this without adding antifungals into her regimine and I am all over trying non-pharmaceutical approaches. We will still see the doc tomorrow, but I feel pretty sure we have figured it out. I read that candidiasis of the gut causes headaches because your body starts to absorb the pathogens from poor digestion....and that it causes hair loss because it affects the endocrine system. She has also had extremely smelly armpits and " firebutt " . I would love to hear if anyone else has experience with this and how they have addressed it. Also, if anyone can recommend a great source for information regarding dietary interventions, that would be great! Terri Mom and both daughters with combined immune deficiency Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2012 Report Share Posted March 15, 2012 I tend to culture yeast in my stool. I rarely need antibiotics so i can't blame them. My gi prescribes a diflucan (1 to 3 days depending). I haven't noticed headaches. I have always had brittle hair. I do have pernicious anemia but have been on meds almost a year. I do yogurt every day for breakfast. I haven't noticed a correlation to sugar. I do also have Crohn's. Hope any of that helps. Ursula On Mar 15, 2012, at 1:05 PM, " cerdaclan@... " <cerdaclan@...> wrote: > Starting mid December, our 9 yo got a sinus infection that took 6 weeks of antibiotics to clear. She re-started Subq a month ago. 6 weeks ago, just after finishing antibiotics, we traded one problem for another. She has a problem with geographic tongue that her immunologist has attributed to her chronic neutropenia. I have not been so sure about this. 6 weeks ago, she started getting daily stomach aches, headaches and a sore throat that have persisted now every single day. By evening, she is miserable. She is also exhausted and her hair has been breaking off or falling out. She also has a lot of leg and hip pain. All of these things, with the exception of headaches, has existed for years, but it has never been and every day affair. > > The past few days, we realize we are going to have to take her to her GP as she has had enough. I CRINGE at taking our kids to the doc anymore with the myriad of odd symptoms they have that non-immunologists have not seen before and are at a loss to explain. 3 years ago, Maggie was scoped top to bottom and was found to have lymphoid hyperplasia and small bowel bacterial overgrowth. She was also severely neutropenic when she was scoped with a count of 1.9 and a WBC of 2.0.....both in critical range. We thought she might have celiacs as it runs in my family. She didn't have celiacs. They thought she had pernicious anemia and we never got a final ruling on this. She did have occult blood in her stool. > > For years, I have noticed a correlation between an increase in generalized symptoms when she eats a lot of sugar. Suffice it to say, it is girl scout cookie season and she has been eating her fair share of cookies. When we thought she might have celiacs, we put her on a gluten free diet and she had a huge improvement in symptoms. She has been tested for food allergies and has none. Her labs have shown that she has a low activated T cell count and an impaired response to mitogen stimulation for candida. > > We are taking her to her GP tomorrow. He is very open minded and excellent at communicating with our immunologist. But, in order to avoic stumping him, I emailed our immunologist (have not heard back yet) and did a little research. I found information about the whole T cell/stim studies for candida and exposure to antibiotics. The problems persists even without antibiotic exposure, but no where near as badly as it is now. > > We would like to try a candida diet and I wanted to see if ANYONE has recommendations for a good resource for this. Additionally, I know there are herbal and more natural ways to approach this without adding antifungals into her regimine and I am all over trying non-pharmaceutical approaches. We will still see the doc tomorrow, but I feel pretty sure we have figured it out. I read that candidiasis of the gut causes headaches because your body starts to absorb the pathogens from poor digestion....and that it causes hair loss because it affects the endocrine system. She has also had extremely smelly armpits and " firebutt " . > > I would love to hear if anyone else has experience with this and how they have addressed it. Also, if anyone can recommend a great source for information regarding dietary interventions, that would be great! > > Terri > Mom and both daughters with combined immune deficiency > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2012 Report Share Posted March 15, 2012 Hi There, my son has similar GI issues... and he has chronic C-Dif (Clostridium difficile). As soon as he goes on antibiotics... sure enough he has C-Dif. just thought i woudl mention... Terrimom to , 4 (XLA) To: From: uahollem@... Date: Thu, 15 Mar 2012 13:14:50 -0400 Subject: Re: GI Candida? I tend to culture yeast in my stool. I rarely need antibiotics so i can't blame them. My gi prescribes a diflucan (1 to 3 days depending). I haven't noticed headaches. I have always had brittle hair. I do have pernicious anemia but have been on meds almost a year. I do yogurt every day for breakfast. I haven't noticed a correlation to sugar. I do also have Crohn's. Hope any of that helps. Ursula On Mar 15, 2012, at 1:05 PM, " cerdaclan@... " <cerdaclan@...> wrote: > Starting mid December, our 9 yo got a sinus infection that took 6 weeks of antibiotics to clear. She re-started Subq a month ago. 6 weeks ago, just after finishing antibiotics, we traded one problem for another. She has a problem with geographic tongue that her immunologist has attributed to her chronic neutropenia. I have not been so sure about this. 6 weeks ago, she started getting daily stomach aches, headaches and a sore throat that have persisted now every single day. By evening, she is miserable. She is also exhausted and her hair has been breaking off or falling out. She also has a lot of leg and hip pain. All of these things, with the exception of headaches, has existed for years, but it has never been and every day affair. > > The past few days, we realize we are going to have to take her to her GP as she has had enough. I CRINGE at taking our kids to the doc anymore with the myriad of odd symptoms they have that non-immunologists have not seen before and are at a loss to explain. 3 years ago, Maggie was scoped top to bottom and was found to have lymphoid hyperplasia and small bowel bacterial overgrowth. She was also severely neutropenic when she was scoped with a count of 1.9 and a WBC of 2.0.....both in critical range. We thought she might have celiacs as it runs in my family. She didn't have celiacs. They thought she had pernicious anemia and we never got a final ruling on this. She did have occult blood in her stool. > > For years, I have noticed a correlation between an increase in generalized symptoms when she eats a lot of sugar. Suffice it to say, it is girl scout cookie season and she has been eating her fair share of cookies. When we thought she might have celiacs, we put her on a gluten free diet and she had a huge improvement in symptoms. She has been tested for food allergies and has none. Her labs have shown that she has a low activated T cell count and an impaired response to mitogen stimulation for candida. > > We are taking her to her GP tomorrow. He is very open minded and excellent at communicating with our immunologist. But, in order to avoic stumping him, I emailed our immunologist (have not heard back yet) and did a little research. I found information about the whole T cell/stim studies for candida and exposure to antibiotics. The problems persists even without antibiotic exposure, but no where near as badly as it is now. > > We would like to try a candida diet and I wanted to see if ANYONE has recommendations for a good resource for this. Additionally, I know there are herbal and more natural ways to approach this without adding antifungals into her regimine and I am all over trying non-pharmaceutical approaches. We will still see the doc tomorrow, but I feel pretty sure we have figured it out. I read that candidiasis of the gut causes headaches because your body starts to absorb the pathogens from poor digestion....and that it causes hair loss because it affects the endocrine system. She has also had extremely smelly armpits and " firebutt " . > > I would love to hear if anyone else has experience with this and how they have addressed it. Also, if anyone can recommend a great source for information regarding dietary interventions, that would be great! > > Terri > Mom and both daughters with combined immune deficiency > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2012 Report Share Posted March 15, 2012 Hi There, my son has similar GI issues... and he has chronic C-Dif (Clostridium difficile). As soon as he goes on antibiotics... sure enough he has C-Dif. just thought i woudl mention... Terrimom to , 4 (XLA) To: From: uahollem@... Date: Thu, 15 Mar 2012 13:14:50 -0400 Subject: Re: GI Candida? I tend to culture yeast in my stool. I rarely need antibiotics so i can't blame them. My gi prescribes a diflucan (1 to 3 days depending). I haven't noticed headaches. I have always had brittle hair. I do have pernicious anemia but have been on meds almost a year. I do yogurt every day for breakfast. I haven't noticed a correlation to sugar. I do also have Crohn's. Hope any of that helps. Ursula On Mar 15, 2012, at 1:05 PM, " cerdaclan@... " <cerdaclan@...> wrote: > Starting mid December, our 9 yo got a sinus infection that took 6 weeks of antibiotics to clear. She re-started Subq a month ago. 6 weeks ago, just after finishing antibiotics, we traded one problem for another. She has a problem with geographic tongue that her immunologist has attributed to her chronic neutropenia. I have not been so sure about this. 6 weeks ago, she started getting daily stomach aches, headaches and a sore throat that have persisted now every single day. By evening, she is miserable. She is also exhausted and her hair has been breaking off or falling out. She also has a lot of leg and hip pain. All of these things, with the exception of headaches, has existed for years, but it has never been and every day affair. > > The past few days, we realize we are going to have to take her to her GP as she has had enough. I CRINGE at taking our kids to the doc anymore with the myriad of odd symptoms they have that non-immunologists have not seen before and are at a loss to explain. 3 years ago, Maggie was scoped top to bottom and was found to have lymphoid hyperplasia and small bowel bacterial overgrowth. She was also severely neutropenic when she was scoped with a count of 1.9 and a WBC of 2.0.....both in critical range. We thought she might have celiacs as it runs in my family. She didn't have celiacs. They thought she had pernicious anemia and we never got a final ruling on this. She did have occult blood in her stool. > > For years, I have noticed a correlation between an increase in generalized symptoms when she eats a lot of sugar. Suffice it to say, it is girl scout cookie season and she has been eating her fair share of cookies. When we thought she might have celiacs, we put her on a gluten free diet and she had a huge improvement in symptoms. She has been tested for food allergies and has none. Her labs have shown that she has a low activated T cell count and an impaired response to mitogen stimulation for candida. > > We are taking her to her GP tomorrow. He is very open minded and excellent at communicating with our immunologist. But, in order to avoic stumping him, I emailed our immunologist (have not heard back yet) and did a little research. I found information about the whole T cell/stim studies for candida and exposure to antibiotics. The problems persists even without antibiotic exposure, but no where near as badly as it is now. > > We would like to try a candida diet and I wanted to see if ANYONE has recommendations for a good resource for this. Additionally, I know there are herbal and more natural ways to approach this without adding antifungals into her regimine and I am all over trying non-pharmaceutical approaches. We will still see the doc tomorrow, but I feel pretty sure we have figured it out. I read that candidiasis of the gut causes headaches because your body starts to absorb the pathogens from poor digestion....and that it causes hair loss because it affects the endocrine system. She has also had extremely smelly armpits and " firebutt " . > > I would love to hear if anyone else has experience with this and how they have addressed it. Also, if anyone can recommend a great source for information regarding dietary interventions, that would be great! > > Terri > Mom and both daughters with combined immune deficiency > > Quote Link to comment Share on other sites More sharing options...
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