Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 Hi All, It has been a while since I was here, but I need some advice. My son Jordan is 2 years old and has low IGG (specifically IGG2), IGA & IGM. He also is anemic and has Celiacs Disease. Since I last emailed we thought we had gotten good news, but I am finding out that it is really just more frustrating. Basically, our local Immunologist hadn't treated a child as young as Jordan before and wanted to start him on IVIG, but before doing so, he suggested a trip to a Pediatric Immunologist. We were referred to UCSF's Dr. Wara. We were really impressed with her. She really put our nerves at ease and basically told us that Jordan's numbers were not that bad. She expects that over the next few years they will improve and therefore decided to do nothing but retest him in 1 year. Our pediatrician also agreed that his numbers weren't that bad and that we will work with her to get him " supported " (she is a western trained MD but practices mostly holistic med). I have been doing all she advised and also giving him donated breast milk to help. What I am struggling with is when Jordan gets sick, it is worse than the rest of us and quite often, but he doesn't end up in the hospital. However, the poor kid is ALWAYS sick, with a fever, croup, diarrhea and ear infections. Over the last three months he has been sick more than healthy. He has become very clingy and attached to me and it is completely wearing me out. I was never really that afraid of germs before, but now I think about it all the time. Where ever we go, I worry about what is he going to pick up. I feel like because he was " boring " to the doctors he is suffering more than he needs too. It so far hasn't affected his development, but I can tell that is starting to affect his trust and security levels. Any recommendation would be much appreciated. Does anyone do the treatments on their kids like this. Would we really see an improvement? Would it cause more trauma to him then necessary? sorry for the long email and thanks in advance for your help Quote Link to comment Share on other sites More sharing options...
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