Re: Re: Bloodwork results-help! Ursula and all

[Guest guest]

Has Shwachman Diamond been mentioned? PI and neutropenia are the hallmarks...

www.shwachman-diamond.org

On Apr 16, 2012, at 8:06 PM, " buttrfluttr " <buttrfluttr@...> wrote:

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> s lipase has been elevated in the past but this time both lipase ans

amylase were in range. He is on Creon 10000 with oral intake for pancratic

insufficiency and I have always believed these series of awful abdominal pain

are pancreatic/billiary related but bloodwork, CT and u/s all came in normal for

pancreas this time round.

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> Bulky spleen and slightly enlarged liver with high bilirubin were the only

findings, aside from the other bloodwork results as mentioned previously.

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> I did forget to mention the u/s also showed enlarged abdominal lymph nodes.

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> Stool culture was negative.

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> I've had no medical training but cant help wondering if this is a mechanical

issue- if can vomit seed calculus, surely that indicates some issue with

valves along the billiary tract?

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> Sue, I know from years of bloodwork results that is often neutropenic,

which has never been investigated. Why he was neutropeninc this time around was

never looked into or discussed with me by the hospital doctors. It seems it was

a fluke I found out the results at all. I feel so frustrated with the system

here!

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