andra and the low white count saga

[Guest guest]

Hi there,

I posted a few weeks ago about our daughter andra and her low white

count and low neutrophil count. We finally made it in to see the

hematologist yesterday. I was armed with questions and was determined to

make sure I left his office satisfied that we were both on the same page

about . The Dr. was really quite amazing.he answered all my

questions.he said yes she has very severe neutropenia.he wants to continue

to watch her blood counts for another three months.if they do not improve,

he wants to do a bone marrow biopsy.depending on what that reveals he talked

about starting her on the GCSF (stimulates the neutrophil production).

All of this sounds very scary to me, I hate the thoughts of putting her

through more medical procedures.wondering about the GCSF.he said that it is

subcutaneously administered about three times a week.now that sounds really

awful.how are you suppose to do that??? Sue.you mentioned that your son

uses this drug..how do you do it??? What are the side effect? I read that

it causes bone pain. Would love some input.

Thanks,

Jeane

Mom to andra 14 FG Syndrome, PID