RE: Influnza A in school...

[Guest guest]

I would have done the same thing! I have pulled my son out of school when I

have heard of something going around the school.

The school should inform you. Do you have a 504 plan? If not, it would be

beneficial. However, that doesn't mean that they will call you. I would

talk with the teacher and reiterate the importance of you being called in

such circumstances.

Amy (mom to Bradley IGA Def)

_____

From: [mailto: ] On Behalf Of

Fletcher

Sent: Thursday, August 20, 2009 4:07 PM

Cc:

Subject: Re: Influnza A in school...

Hi all! My 2 1/2 year old twin boys have been diagnosed CVID and we

are very concerned about H1N1. I was told today that a child at my

daughters school has tested positive for influnza A. She has been out

of school all week but her sister has been at school and is in my

daughters class! This childs parents sent her to school all week

anyway! The school did tell me as soon as they knew, but we didn't

know until this morning. The only answer I could get from the boys

doctor was that it was a personal decision as to wether or not to pull

the girls out of school and wait to see what happens. They said that

they can't cause a panic by telling parents to keep their healthy kids

home. I picked my girls up and intend to keep them home for the next

few days just to be cautious. however the school does not seem to be

taking this seriously and have no intention to inform other parents of

the positive test. Nor do they intend to tell parents that they should

keep their kids home for the recomended 36 hours if ANYONE in their

family tests positive. Am I doing the right thing or am I being

paranoid? What have you all been told to do?

Thanks

Sent from my iPhone

On Aug 20, 2009, at 3:15 PM, <stacy171 (DOT)

<mailto:stacy171%40> com> wrote:

> That's sounds right too - my son can start running around the with

> the other kids for awhile but he can only keep up for about 1/2 the

> time that they're running. I guess that might be stamina rather

> than fatigue?

>

> ________________________________

> From: Derrick and <derrickandchristine

<mailto:derrickandchristine%40gmail.com> @gmail.com>

> groups (DOT) <mailto:%40> com

> Sent: Thursday, August 20, 2009 2:40:36 PM

> Subject: Re: IgG Subclass 1

>

>

> We also have lots of fatigue, but our immunologist refers to it as

> stamina.

> He is like a balloon that looses all of its air at the end of the day.

>

>

> On Thu, Aug 20, 2009 at 11:16 AM, <stacy171 (DOT) com> wrote:

>

> >

> >

> > Yeah, crud fits it well. My son seemed to get more crud from 0-3

> yo but

> > the crud it still there now. It's not as prominent so I don't

> notice it as

> > much. But he has lots of fatigue and GI issues. No IVIG yet. I

> need to

> > have a conversation with an immunologist about it all.

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: Derrick and <derrickandchristine

> @gmail.com<derrickandchristin e%40gmail. com>

> > >

> > groups (DOT) com <%40grou ps.com>

> > Sent: Thursday, August 20, 2009 12:32:05 PM

> > Subject: Re: IgG Subclass 1

> >

> >

> > Yes, there is the word. Sorry, yesterday I was typing from

> my phone.

> > And for us, if there was a virus or bacteria within a five foot

> radius he

> > would get sick. Not a dramatic in the hospital sick (although

> there has

> > been

> > a few of those) but just constant snot, sore throat, cough, low

> grade

> > fever,

> > etc. Most times it wasn't even enough (before being Dx'd) to see

> the doctor

> > for antibiotics. We termed it in our house " crud. "

> >

> >

> > On Thu, Aug 20, 2009 at 8:29 AM, <stacy171 (DOT) com> wrote:

> >

> > >

> > >

> > > Thank you, . I can't seem to find much information on Ig

> > subclass

> > > 1 deficiency. It seems like subclass 2 is much more common. Do

> you mean

> > > polysaccharide encapsulated bacteria? I think that fits your

> examples.

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: Derrick and <derrickandchristin e

> @gmail.com<derricka ndchristin

> > e%40gmail. com>

> > > >

> > > groups (DOT) com <%40grou ps.com>

> >

> > > Sent: Wednesday, August 19, 2009 6:20:33 PM

> > > Subject: Re: IgG Subclass 1

> > >

> > >

> > >

> > > We are below normal IgG overall, and IgG subclass 1 deficient

> only.

> > > Symptoms

> > > includes lots of bacterial infections, colds, flu- nothing big

> or huge,

> > but

> > > constant. We also had joint pain/swelling before/after infections.

> > > My understanding is IgG subclass 1 is capsule shaped bacteria and

> > > viruses-which is most of your colds, flu and immunizations. Also

> can be

> > > forms of meningitis. There is another name for capsule shaped

> (scientific

> > > name) but I don't remember it off of the top of my head.

> > >

> > >

> > >

> > > On Tue, Aug 18, 2009 at 10:03 AM, laura smith <iamlaurasmith@

> > hotmail.com

> > > >wrote:

> > >

> > > >

> > > >

> > > >

> > > > Hey ,

> > > >

> > > > My son is IgG1 and IgG2 deficient. Never thought to ask what

> each one

> > > does!

> > > > I'll be curious to see if anyone knows.

> > > >

> > > >

> > > >

> > > >

> > > > groups (DOT) com <%40grou ps.com>

> > > > From: stacy171 (DOT) com <stacy171%40. com>

> > > > Date: Tue, 18 Aug 2009 01:30:56 +0000

> > > > Subject: IgG Subclass 1

> > > >

> > > >

> > > > My son has CVID (low IgM and total IgG). We got his IgG

> subclasses and

> > he

> > > > is low in IgG subclass 1 and 4. I've read that it could take

> awhile for

> > > IgG

> > > > subclass 4 to increase, so it might still be normal. Does

> anyone have

> > any

> > > > information at all on subclass 1 deficiency? Are there

> specific issues

> > > > associated with it? Just curious...

> > > >

> > > >

> > > > 5yo CVID

> > > >

> > > > ____________ _________ _________ _________ _________ _________ _

> > > > Windows Live: Keep your friends up to date with what you do

> online.

> > > >

> > > > http://windowslive. com/Campaign/ SocialNetworking ?

> ocid=PID23285:

> > > :T:WLMTAGL: ON:WL:en- US:SI_SB_ online:082009

> > > >

> > > >

[Guest guest]

You are in no way wrong. I work in the field of education, and have a child

with PID. Your local health department AND your school District have the

obligation to tell parents that there is an infected child (once they have

tested positive) on the campus. The school District also has the obligation

to enforce the sibling staying home. They open themselves up to huge

liability should they choose not too.

Unfortunately, the choice of your District is political. These are hard

economic times, and most Districts are concerned that if they release this

information it will create absences, and they will loose ADA dollars because

lack of attendance. In federal dollars alone, if 50% of one school misses

one day it could " cost " the District thousands of dollars.

But that is not an excuse to not give other parents an informed opportunity

to decide what is best for their child.

I think you are doing the right thing. If I had someone at my sons class

test positive I would keep them home until that other student had clearance

to return.

My son is on an IEP (he qualified for special education) but even with a 504

plan you can require the school to give you notice when a teacher suspects a

students has an active infection and has come to school. We keep a positive

relationship with the school, open lines of communication, ensure his

classroom is bleached down each school day (after school) and allow the

school to contact me the easiest way possible (usually they choose email) to

notify me of other students illnesses.

Our doctor has given us Tamiflu and Z-Pacs to use at our discretion, and to

notify him when we do. We have also signed a release for him to communicate

with the school and they know they can fax him questions anytime, and he is

happy to respond. Lastly, we have him fill out a health form (usually used

on students with diabetes or asthma) on how to address my sons health

issues, and had him provide input into the IEP.

My two cents.

On Thu, Aug 20, 2009 at 3:07 PM, Fletcher <tinuviel44@...>wrote:

>

>

> Hi all! My 2 1/2 year old twin boys have been diagnosed CVID and we

> are very concerned about H1N1. I was told today that a child at my

> daughters school has tested positive for influnza A. She has been out

> of school all week but her sister has been at school and is in my

> daughters class! This childs parents sent her to school all week

> anyway! The school did tell me as soon as they knew, but we didn't

> know until this morning. The only answer I could get from the boys

> doctor was that it was a personal decision as to wether or not to pull

> the girls out of school and wait to see what happens. They said that

> they can't cause a panic by telling parents to keep their healthy kids

> home. I picked my girls up and intend to keep them home for the next

> few days just to be cautious. however the school does not seem to be

> taking this seriously and have no intention to inform other parents of

> the positive test. Nor do they intend to tell parents that they should

> keep their kids home for the recomended 36 hours if ANYONE in their

> family tests positive. Am I doing the right thing or am I being

> paranoid? What have you all been told to do?

>

> Thanks

>

>

> Sent from my iPhone

>

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[Guest guest]

> > > >

> > > > >

> > > > >

> > > > >

> > > > > Hey ,

> > > > >

> > > > > My son is IgG1 and IgG2 deficient. Never thought to ask what

> > each one

> > > > does!

> > > > > I'll be curious to see if anyone knows.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > groups (DOT) com <%40grou ps.com>

> > > > > From: stacy171 (DOT) com <stacy171%40. com>

> > > > > Date: Tue, 18 Aug 2009 01:30:56 +0000

> > > > > Subject: IgG Subclass 1

> > > > >

> > > > >

> > > > > My son has CVID (low IgM and total IgG). We got his IgG

> > subclasses and

> > > he

> > > > > is low in IgG subclass 1 and 4. I've read that it could take

> > awhile for

> > > > IgG

> > > > > subclass 4 to increase, so it might still be normal. Does

> > anyone have

> > > any

> > > > > information at all on subclass 1 deficiency? Are there

> > specific issues

> > > > > associated with it? Just curious...

> > > > >

> > > > >

> > > > > 5yo CVID

> > > > >

> > > > > ____________ _________ _________ _________ _________ _________ _

> > > > > Windows Live: Keep your friends up to date with what you do

> > online.

> > > > >

> > > > > http://windowslive. com/Campaign/ SocialNetworking ?

> > ocid=PID23285:

> > > > :T:WLMTAGL: ON:WL:en- US:SI_SB_ online:082009

> > > > >

> > > > >