Guest guest Posted April 18, 2010 Report Share Posted April 18, 2010 I do not know what to do. We lose our cobra insurance in a couple of weeks, and will be left with only our state insurance. We have an opportunity through my husbands work to get new insurance, but no home care angency's take both the new insurance and my secondary state insurance. If I don't put him on our new insurance then I can use our current home agency of 3 years, but it is a scary thought to only have medicaid for him, and not two insurances for him like we have always had. If we put him on our new insurance then it will be considered our primary insurance and not one home care agency takes it and also our secondary insurance so we would be forced to cover the rest. Did all that make sense? We get IVIG every month and could never afford to pay the rest anyway. I just do not know what to do. I am assuming that the hospitals take both insurances, but we used to do our infusions at the hospital and it was nightmarish! My son has a metabolic disorder also, and is nonverbal with autism, and he refuses to eat when we go to the hospital and his blood sugar drops and they also can never get his vein (he is a hard stick), and it takes 8 hours compared to 1 1/2 when we do it at home. It really is very stressful for him to not have it at home. They also will not guarentee he will get his brand of IVIG that he needs, and he has had severe reactions to other brands, so this is not even an option for us. Any ideas? We have to make a decision by the end of the month. Thanks Carie mom to Kreed 12 CVID, SCAD, hypothyroidism, epilepsy, colitis, gastritis, autism, possible NIPBL, and mito. Quote Link to comment Share on other sites More sharing options...
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