Guest guest Posted July 4, 2012 Report Share Posted July 4, 2012 Her previous ENT didn't like the steroid sprays either but he felt for now it would benefit; he is a firm believer of the water pic adapter, and I will look into that. I will be heading to camp in a few days and will bring some Afrin for her to try. Do you find saline powder at the drug store? She has been making her own solution with warm water, kosher salt, 2 drops of baby shampoo...(the other ENT's solution). This dr said since she recently had a CT, he would see how she does with all of this for 10 days, then do CT if she's still having a lot of pain. Most impt he said the key is going to be her IgG levels and controlling her production of mucous. Her present immuno has really dropped the ball on checking any levels so we have been waiting to see a new immuno. Thanks Barbie for your helpful information - we both appreciate it! > > > > > Hi, I very seldom post as my daughter is no longer a ped (just turned 22) but I figured if anyone would have suggestions, this would be the place to find it! > > > > > > > > > > Her sinus infection started with horrible eye pain - no other symptoms; 3 days later, the entire side of her face was swollen with very severe facial pain; ER gave pain injections & referred her to an ENT (her's was out of town). She is on now 4th month of (2nd) antibiotic, & when ENT scoped her 2 wks ago he said she is still fully infected, prescribed 3 more months of antibiotics, then said he's out of answers, it's an immune issue. Friday, my daughter phoned from camp (where she's working all summer) to say she's feeling worse. I brought her home for the weekend, and, in retrospect, don't know what I was thinking any weekend dr or er would do for her when she hasn't been helped so far...she was switched her fm Biaxin to Bactrim and given Astelin nasal spray. I couldn't even get them to test her blood levels today and quite frankly, I doubt they would have known what to do with it in terms of PIDD... > > > > > > > > > > She aged out of her really good immuno at UCLA so we were trying one locally, but aside from prescribing 's Hizentra, she has gone a little radical, attributing the core of all allergy and immuno issues to Celiac disease and also encourages brewing " fresh " dandelion tea (so long as we don't use pesticides in our yard).. I believe holistic medicine has its place - we are vegetarian, try to eat certain foods organic, etc, but this is a persistant infection; my daughter is tremendously discouraged with health care practioners. We are trying to see an immuno at another university but he is booking into Oct. > > > > > > > > > > Any advice would be welcome and appreciated. Not sure whether to switch her to new antibiotic, seek another ENT, ? > > > > > > > > > > Thank you in advance for your help. > > > > > > > > > > > > > > > mom to (CVID, jra, hashimotos) > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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