Re: Chronic illness from being in school

[Guest guest]

Yes all the time. I pulled my daughter out of school this year and I am

doing hospital homebound. It was not convenient by far to do this but I had

to. She was always getting sick and the teacher this year after 1 week of

school called me and said the parents are sending their kids to school sick

and she can't send them home unless they are running a fever..grrrrr I am a

nursing student and I had to beg and plead with my teachers to let me do my

work from home. Thankfully they agreed then next semester I enrolled for

online coarse's so I won't have any worries. But since she has been home it

has been better. Also everywhere we go I make her wear a mask. Everywhere.

Before I pulled her out of school she wore it there too. My girl has been

sick all her life and is open about her illness though. Some kids are shy in

school and feel like they will be picked on if they wear a mask in school.

But it helped not eliminated illness but helped. I never thought I would be

home schooling but today I have comfort in it!! I hope this helps!!

Byrd

-- Chronic illness from being in school

I have a 13 year old boy with CVID, asthma, food and seasonal allergies, and

he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was diagnosed

Dec 2008.

When he goes to school after a few days he comes home with something, cold,

sinus problems etc.. Right now he has a sinus infection, its been going on

for a week now because the pediatrician gave him a mild antibiotic which

didn't work so now he is on a stronger one.

My question is do any of you experience that you sent your child to school

healthy he comes home with something and here we go again. Sorry for talking

so much.

Thanks

------------------------------------

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to: http://groups.

com/group//messages

[Guest guest]

Yes all the time. I pulled my daughter out of school this year and I am

doing hospital homebound. It was not convenient by far to do this but I had

to. She was always getting sick and the teacher this year after 1 week of

school called me and said the parents are sending their kids to school sick

and she can't send them home unless they are running a fever..grrrrr I am a

nursing student and I had to beg and plead with my teachers to let me do my

work from home. Thankfully they agreed then next semester I enrolled for

online coarse's so I won't have any worries. But since she has been home it

has been better. Also everywhere we go I make her wear a mask. Everywhere.

Before I pulled her out of school she wore it there too. My girl has been

sick all her life and is open about her illness though. Some kids are shy in

school and feel like they will be picked on if they wear a mask in school.

But it helped not eliminated illness but helped. I never thought I would be

home schooling but today I have comfort in it!! I hope this helps!!

Byrd

-- Chronic illness from being in school

I have a 13 year old boy with CVID, asthma, food and seasonal allergies, and

he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was diagnosed

Dec 2008.

When he goes to school after a few days he comes home with something, cold,

sinus problems etc.. Right now he has a sinus infection, its been going on

for a week now because the pediatrician gave him a mild antibiotic which

didn't work so now he is on a stronger one.

My question is do any of you experience that you sent your child to school

healthy he comes home with something and here we go again. Sorry for talking

so much.

Thanks

------------------------------------

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to: http://groups.

com/group//messages

[Guest guest]

We had that for years before IVIG, and limitedly now that he has been on

IVIG for 8 months. The year he was home schooled (we had a teacher coming to

the house 15 hours a week) was the healthiest year he has ever had. He had a

few infections, mostly what his brother brought home. is also 13.

Prior to IVIG, he would miss between 40-60 days of school a year.

One thing I did notice in the beginning of IVIG, it was like it wasn't

working. He saw the doctor in January, weighed 162, and by the time he had

his first infusion (and two infusions there after) he grew three inches and

gained 15 pounds. Puberty kicked in. Three months into IVIG the amount was

increased from 30/ml to 35/ml to compensate for his size/weight gain. By

July, he grew another four inches and 10 pounds and again they increased to

40/ml. By October he is almost 6 ft. and we will find out this afternoon if

we need to increase the dose based on his height/weight gain again. The

first increase was combined with lab work showing he was not quite in the

normal range for IgG, but much higher then when we started.

As far as school is concerned, your child legally is entitled to a 504 plan,

at the very least, and an IEP if his disability is impacting his

educational performance.

Some of the things we have written into our IEP for :

- All assignments are emailed to him each Monday, so if he misses school,

he still knows what work he has to complete.

- All loose (workbook) papers are faxed to his email.

- If he misses a day of school he is only responsible to complete

classwork (not homework) to demonstrate mastery of the skill.

- School notifies us if there is a student out ill in his class. If they

are informed of a major illness with another student on campus, they notify

us. This year the small campus (60 kids) has had bacterial meningitis, MRSA,

and 2 positive influenza A so far.

- He can turn in school work to his teacher via email

- He is not penalized for late work

- Medical notes for absences are not required (sometimes we keep him home

for his own protection)

- The school cleans his classroom daily, after school, with bleach based

products

- They have hand sanitizer everywhere, and encourage the students to use

it several times a day. carries his own in his pocket.

- He has an extra supply of his own objects at school that several people

may touch, such as pens, pencils, compasses.

- There are tissue boxes everywhere and students are encouraged to use

them.

- If he is absent for longer than a week, the school has a tutor

available after school when he returns to teach core concepts.

The school sent a notice out at the beginning of the year that there is a

student with a weak immune system, identified that it was something he was

born with, other students could not " catch it " and asked parents to keep

sick kids home and notify the school if students are sick. The same week

they also sent home a notice that there is a student with a peanut allergy

and asked not to bring peanut products to school. This has been VERY

effective. Parents are keeping their sick kids home.

This has worked so far, and he has only had a minor cold once.

Good luck!

On Tue, Oct 27, 2009 at 5:05 AM, tulip5blue <tulip5blue@...> wrote:

>

>

> I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

> and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

> diagnosed Dec 2008.

> When he goes to school after a few days he comes home with something, cold,

> sinus problems etc.. Right now he has a sinus infection, its been going on

> for a week now because the pediatrician gave him a mild antibiotic which

> didn't work so now he is on a stronger one.

> My question is do any of you experience that you sent your child to school

> healthy he comes home with something and here we go again. Sorry for talking

> so much.

> Thanks

>

>

>

>

[Guest guest]

We had that for years before IVIG, and limitedly now that he has been on

IVIG for 8 months. The year he was home schooled (we had a teacher coming to

the house 15 hours a week) was the healthiest year he has ever had. He had a

few infections, mostly what his brother brought home. is also 13.

Prior to IVIG, he would miss between 40-60 days of school a year.

One thing I did notice in the beginning of IVIG, it was like it wasn't

working. He saw the doctor in January, weighed 162, and by the time he had

his first infusion (and two infusions there after) he grew three inches and

gained 15 pounds. Puberty kicked in. Three months into IVIG the amount was

increased from 30/ml to 35/ml to compensate for his size/weight gain. By

July, he grew another four inches and 10 pounds and again they increased to

40/ml. By October he is almost 6 ft. and we will find out this afternoon if

we need to increase the dose based on his height/weight gain again. The

first increase was combined with lab work showing he was not quite in the

normal range for IgG, but much higher then when we started.

As far as school is concerned, your child legally is entitled to a 504 plan,

at the very least, and an IEP if his disability is impacting his

educational performance.

Some of the things we have written into our IEP for :

- All assignments are emailed to him each Monday, so if he misses school,

he still knows what work he has to complete.

- All loose (workbook) papers are faxed to his email.

- If he misses a day of school he is only responsible to complete

classwork (not homework) to demonstrate mastery of the skill.

- School notifies us if there is a student out ill in his class. If they

are informed of a major illness with another student on campus, they notify

us. This year the small campus (60 kids) has had bacterial meningitis, MRSA,

and 2 positive influenza A so far.

- He can turn in school work to his teacher via email

- He is not penalized for late work

- Medical notes for absences are not required (sometimes we keep him home

for his own protection)

- The school cleans his classroom daily, after school, with bleach based

products

- They have hand sanitizer everywhere, and encourage the students to use

it several times a day. carries his own in his pocket.

- He has an extra supply of his own objects at school that several people

may touch, such as pens, pencils, compasses.

- There are tissue boxes everywhere and students are encouraged to use

them.

- If he is absent for longer than a week, the school has a tutor

available after school when he returns to teach core concepts.

The school sent a notice out at the beginning of the year that there is a

student with a weak immune system, identified that it was something he was

born with, other students could not " catch it " and asked parents to keep

sick kids home and notify the school if students are sick. The same week

they also sent home a notice that there is a student with a peanut allergy

and asked not to bring peanut products to school. This has been VERY

effective. Parents are keeping their sick kids home.

This has worked so far, and he has only had a minor cold once.

Good luck!

On Tue, Oct 27, 2009 at 5:05 AM, tulip5blue <tulip5blue@...> wrote:

>

>

> I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

> and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

> diagnosed Dec 2008.

> When he goes to school after a few days he comes home with something, cold,

> sinus problems etc.. Right now he has a sinus infection, its been going on

> for a week now because the pediatrician gave him a mild antibiotic which

> didn't work so now he is on a stronger one.

> My question is do any of you experience that you sent your child to school

> healthy he comes home with something and here we go again. Sorry for talking

> so much.

> Thanks

>

>

>

>

[Guest guest]

my son is also doing the K12 program . I think it is the same one but it is the

Virtual Academy in many states. So Wa is WAVA and in Oklahoma it is the OKVA.

The public school in WA did not want me to enroll my child into school due to

his immune disorder so they have been VERY supportive in helping us get WAVA

going. I would say the VA has not been very good about getting it set up. You do

it at your own pace so that helps but I am pretty uncomfortable that it has

taken months to get him going. We did another program last year called SOS by

AOP. It is www.aop.com. It was ok but very Bibilically oriented and my son was

not happy about that and so was even more resistant. I was able to modify it to

his needs and we too worked with the school district. I just could not handle

the homebound of picking up assignments with 5 teachers and keeping everyone

happy. So we had the school buy the software and send out a Special Ed teacher 3

hours per week to work

with him. I did it daily for a couple of hours and we were able to finish the

whole year in about 4-5 months. It is amazing how much time is wasted in school

just moving around and around. I also supplemented with LOTS of field trips

during the day when kids were in school so lots less germs. I am hoping by high

school next year he will be able to handle it all better.

Lucas nearly 14 ( I cannot believe it) I started with this group when he was 4.

CVID, Asthma, Gut issues, Bipolar, ODD, ADD, Anxiety and Depression.

BARBIE

________________________________

From: <bluetaelon@...>

Sent: Tue, October 27, 2009 10:25:38 AM

Subject: Re: Chronic illness from being in school

Yes and that's exactly so many of us choose to homeschool. From dealing with

quality of life issues from being sick all the time to lost education time

to dealing with the school getting tired of the child missing school. I

ended up enrolling my dd in public school at home by a wonderful free nation

wide program www.k12.com

Chronic illness from being in school

>I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

>and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

>diagnosed Dec 2008.

> When he goes to school after a few days he comes home with something,

> cold, sinus problems etc.. Right now he has a sinus infection, its been

> going on for a week now because the pediatrician gave him a mild

> antibiotic which didn't work so now he is on a stronger one.

> My question is do any of you experience that you sent your child to school

> healthy he comes home with something and here we go again. Sorry for

> talking so much.

> Thanks

>

>

>

>

> ------------ --------- --------- ------

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

> To unsubscribe -unsubscribe@ groups.

> To search group archives go to:

> http://groups. / group// messages

[Guest guest]

Yes and that's exactly so many of us choose to homeschool. From dealing with

quality of life issues from being sick all the time to lost education time

to dealing with the school getting tired of the child missing school. I

ended up enrolling my dd in public school at home by a wonderful free nation

wide program www.k12.com

Chronic illness from being in school

>I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

>and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

>diagnosed Dec 2008.

> When he goes to school after a few days he comes home with something,

> cold, sinus problems etc.. Right now he has a sinus infection, its been

> going on for a week now because the pediatrician gave him a mild

> antibiotic which didn't work so now he is on a stronger one.

> My question is do any of you experience that you sent your child to school

> healthy he comes home with something and here we go again. Sorry for

> talking so much.

> Thanks

>

>

>

>

> ------------------------------------

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to:

> /messages

[Guest guest]

Yes and that's exactly so many of us choose to homeschool. From dealing with

quality of life issues from being sick all the time to lost education time

to dealing with the school getting tired of the child missing school. I

ended up enrolling my dd in public school at home by a wonderful free nation

wide program www.k12.com

Chronic illness from being in school

>I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

>and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

>diagnosed Dec 2008.

> When he goes to school after a few days he comes home with something,

> cold, sinus problems etc.. Right now he has a sinus infection, its been

> going on for a week now because the pediatrician gave him a mild

> antibiotic which didn't work so now he is on a stronger one.

> My question is do any of you experience that you sent your child to school

> healthy he comes home with something and here we go again. Sorry for

> talking so much.

> Thanks

>

>

>

>

> ------------------------------------

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to:

> /messages

[Guest guest]

While it could be puberty its very common for kids to suddenly start growing

and gaining a lot of weight the 1st couple of months on IVIG then it evens

out into a normal growth pattern:)

Re: Chronic illness from being in school

> We had that for years before IVIG, and limitedly now that he has been on

> IVIG for 8 months. The year he was home schooled (we had a teacher coming

> to

> the house 15 hours a week) was the healthiest year he has ever had. He had

> a

> few infections, mostly what his brother brought home. is also 13.

>

> Prior to IVIG, he would miss between 40-60 days of school a year.

>

> One thing I did notice in the beginning of IVIG, it was like it wasn't

> working. He saw the doctor in January, weighed 162, and by the time he had

> his first infusion (and two infusions there after) he grew three inches

> and

> gained 15 pounds. Puberty kicked in. Three months into IVIG the amount

> was

> increased from 30/ml to 35/ml to compensate for his size/weight gain. By

> July, he grew another four inches and 10 pounds and again they increased

> to

> 40/ml. By October he is almost 6 ft. and we will find out this afternoon

> if

> we need to increase the dose based on his height/weight gain again. The

> first increase was combined with lab work showing he was not quite in the

> normal range for IgG, but much higher then when we started.

>

> As far as school is concerned, your child legally is entitled to a 504

> plan,

> at the very least, and an IEP if his disability is impacting his

> educational performance.

>

> Some of the things we have written into our IEP for :

>

> - All assignments are emailed to him each Monday, so if he misses

> school,

> he still knows what work he has to complete.

> - All loose (workbook) papers are faxed to his email.

> - If he misses a day of school he is only responsible to complete

> classwork (not homework) to demonstrate mastery of the skill.

> - School notifies us if there is a student out ill in his class. If they

> are informed of a major illness with another student on campus, they

> notify

> us. This year the small campus (60 kids) has had bacterial meningitis,

> MRSA,

> and 2 positive influenza A so far.

> - He can turn in school work to his teacher via email

> - He is not penalized for late work

> - Medical notes for absences are not required (sometimes we keep him

> home

> for his own protection)

> - The school cleans his classroom daily, after school, with bleach based

> products

> - They have hand sanitizer everywhere, and encourage the students to use

> it several times a day. carries his own in his pocket.

> - He has an extra supply of his own objects at school that several

> people

> may touch, such as pens, pencils, compasses.

> - There are tissue boxes everywhere and students are encouraged to use

> them.

> - If he is absent for longer than a week, the school has a tutor

> available after school when he returns to teach core concepts.

>

>

> The school sent a notice out at the beginning of the year that there is a

> student with a weak immune system, identified that it was something he was

> born with, other students could not " catch it " and asked parents to keep

> sick kids home and notify the school if students are sick. The same week

> they also sent home a notice that there is a student with a peanut allergy

> and asked not to bring peanut products to school. This has been VERY

> effective. Parents are keeping their sick kids home.

>

> This has worked so far, and he has only had a minor cold once.

>

> Good luck!

>

>

>

>

>

>

> On Tue, Oct 27, 2009 at 5:05 AM, tulip5blue <tulip5blue@...> wrote:

>

>>

>>

>> I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

>> and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

>> diagnosed Dec 2008.

>> When he goes to school after a few days he comes home with something,

>> cold,

>> sinus problems etc.. Right now he has a sinus infection, its been going

>> on

>> for a week now because the pediatrician gave him a mild antibiotic which

>> didn't work so now he is on a stronger one.

>> My question is do any of you experience that you sent your child to

>> school

>> healthy he comes home with something and here we go again. Sorry for

>> talking

>> so much.

>> Thanks

>>

>>

>>

>>

>

>

>

[Guest guest]

While it could be puberty its very common for kids to suddenly start growing

and gaining a lot of weight the 1st couple of months on IVIG then it evens

out into a normal growth pattern:)

Re: Chronic illness from being in school

> We had that for years before IVIG, and limitedly now that he has been on

> IVIG for 8 months. The year he was home schooled (we had a teacher coming

> to

> the house 15 hours a week) was the healthiest year he has ever had. He had

> a

> few infections, mostly what his brother brought home. is also 13.

>

> Prior to IVIG, he would miss between 40-60 days of school a year.

>

> One thing I did notice in the beginning of IVIG, it was like it wasn't

> working. He saw the doctor in January, weighed 162, and by the time he had

> his first infusion (and two infusions there after) he grew three inches

> and

> gained 15 pounds. Puberty kicked in. Three months into IVIG the amount

> was

> increased from 30/ml to 35/ml to compensate for his size/weight gain. By

> July, he grew another four inches and 10 pounds and again they increased

> to

> 40/ml. By October he is almost 6 ft. and we will find out this afternoon

> if

> we need to increase the dose based on his height/weight gain again. The

> first increase was combined with lab work showing he was not quite in the

> normal range for IgG, but much higher then when we started.

>

> As far as school is concerned, your child legally is entitled to a 504

> plan,

> at the very least, and an IEP if his disability is impacting his

> educational performance.

>

> Some of the things we have written into our IEP for :

>

> - All assignments are emailed to him each Monday, so if he misses

> school,

> he still knows what work he has to complete.

> - All loose (workbook) papers are faxed to his email.

> - If he misses a day of school he is only responsible to complete

> classwork (not homework) to demonstrate mastery of the skill.

> - School notifies us if there is a student out ill in his class. If they

> are informed of a major illness with another student on campus, they

> notify

> us. This year the small campus (60 kids) has had bacterial meningitis,

> MRSA,

> and 2 positive influenza A so far.

> - He can turn in school work to his teacher via email

> - He is not penalized for late work

> - Medical notes for absences are not required (sometimes we keep him

> home

> for his own protection)

> - The school cleans his classroom daily, after school, with bleach based

> products

> - They have hand sanitizer everywhere, and encourage the students to use

> it several times a day. carries his own in his pocket.

> - He has an extra supply of his own objects at school that several

> people

> may touch, such as pens, pencils, compasses.

> - There are tissue boxes everywhere and students are encouraged to use

> them.

> - If he is absent for longer than a week, the school has a tutor

> available after school when he returns to teach core concepts.

>

>

> The school sent a notice out at the beginning of the year that there is a

> student with a weak immune system, identified that it was something he was

> born with, other students could not " catch it " and asked parents to keep

> sick kids home and notify the school if students are sick. The same week

> they also sent home a notice that there is a student with a peanut allergy

> and asked not to bring peanut products to school. This has been VERY

> effective. Parents are keeping their sick kids home.

>

> This has worked so far, and he has only had a minor cold once.

>

> Good luck!

>

>

>

>

>

>

> On Tue, Oct 27, 2009 at 5:05 AM, tulip5blue <tulip5blue@...> wrote:

>

>>

>>

>> I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

>> and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

>> diagnosed Dec 2008.

>> When he goes to school after a few days he comes home with something,

>> cold,

>> sinus problems etc.. Right now he has a sinus infection, its been going

>> on

>> for a week now because the pediatrician gave him a mild antibiotic which

>> didn't work so now he is on a stronger one.

>> My question is do any of you experience that you sent your child to

>> school

>> healthy he comes home with something and here we go again. Sorry for

>> talking

>> so much.

>> Thanks

>>

>>

>>

>>

>

>

>

[Guest guest]

This is very good to know. He has always been in the 85%-95% for height and

weight- now he has jumped up past the 100% for height and weight. We come

from a tall family but wow, I didn't think it would kick in this early!

On Tue, Oct 27, 2009 at 8:29 AM, <bluetaelon@...> wrote:

>

>

> While it could be puberty its very common for kids to suddenly start

> growing

> and gaining a lot of weight the 1st couple of months on IVIG then it evens

> out into a normal growth pattern:)

>

>

>

>

> Re: Chronic illness from being in school

>

>

> >

> > One thing I did notice in the beginning of IVIG, it was like it wasn't

> > working. He saw the doctor in January, weighed 162, and by the time he

> had

> > his first infusion (and two infusions there after) he grew three inches

> > and

> > gained 15 pounds. Puberty kicked in. Three months into IVIG the amount

> > was

> > increased from 30/ml to 35/ml to compensate for his size/weight gain. By

> > July, he grew another four inches and 10 pounds and again they increased

> > to

> > 40/ml. By October he is almost 6 ft. and we will find out this afternoon

> > if

> > we need to increase the dose based on his height/weight gain again. The

> > first increase was combined with lab work showing he was not quite in the

> > normal range for IgG, but much higher then when we started.

>

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[Guest guest]

I guess everyones experience with VA is different. I applied in April. They sent

me paperwork to finish in August and we still have not received our coursework.

BARBIE

________________________________

From: <bluetaelon@...>

Sent: Tue, October 27, 2009 11:38:29 AM

Subject: Re: Chronic illness from being in school

How long did it take to get set up? The average time is 2-3 weeks once you

get your paperwork all turned in. We've gone though enrollment twice and

both times it was 3 weeks and yes were with CAVA, California Virtual

Academy. did all of 2nd grade in 3 months and was on grade level by

the time she was done. When we enrolled her the brick and mortar school was

threatening to fail her at the 1st quarter of 2nd for not reading/writing

well yet (they totally ignored the fact she was over a year ahead in math

and every other subject) and said she was reading on a pre-school level. We

just hit the 1 year mark with CAVA and she just scored a year ahead in

reading now. Honestly I think they need to do away with public schools and

offer everyone virtual education, its far superior imo and gets better

results in less time. We only spend about 2 hours a day if that on schooling

and we accomplish way more then the brick and mortar schools. Seriously,

they spend what, 6 hours a day there? They would send home all the work

missed and we would do it in 30-45 minutes. The other 5 hours at school is

spent wasted while the teacher teaches to the middle and does crowd control,

with CAVA were able to move at the pace my child is learning and hey, I like

being able to sleep in;) Right now its cold (40F), rainy, windy and just

generally nasty outside and the brick and mortar kids are all huddled trying

to stay warm as they walk by to school. My dd is still snug in bed, I'm only

up because I had to get the 3 yr old off to daycare (nurse picks her up on

her way to work at her daycare in the city, saves me a ton of driving) since

I have school today but otherwise I wouldn't be up until 8-9am when the kids

get up:)

Chronic illness from being in school

>

>>I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

>>and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

>>diagnosed Dec 2008.

>> When he goes to school after a few days he comes home with something,

>> cold, sinus problems etc.. Right now he has a sinus infection, its been

>> going on for a week now because the pediatrician gave him a mild

>> antibiotic which didn't work so now he is on a stronger one.

>> My question is do any of you experience that you sent your child to

>> school

>> healthy he comes home with something and here we go again. Sorry for

>> talking so much.

>> Thanks

>>

>>

>>

>>

>> ------------ --------- --------- ------

>>

>> This forum is open to parents and caregivers of children diagnosed with a

>> Primary Immune Deficiency. Opinions or medical advice stated here are

>> the

>> sole responsibility of the poster and should not be taken as professional

>> advice.

>>

>> To unsubscribe -unsubscribe@ groups.

>> To search group archives go to:

>> http://groups. / group// messages

[Guest guest]

How long did it take to get set up? The average time is 2-3 weeks once you

get your paperwork all turned in. We've gone though enrollment twice and

both times it was 3 weeks and yes were with CAVA, California Virtual

Academy. did all of 2nd grade in 3 months and was on grade level by

the time she was done. When we enrolled her the brick and mortar school was

threatening to fail her at the 1st quarter of 2nd for not reading/writing

well yet (they totally ignored the fact she was over a year ahead in math

and every other subject) and said she was reading on a pre-school level. We

just hit the 1 year mark with CAVA and she just scored a year ahead in

reading now. Honestly I think they need to do away with public schools and

offer everyone virtual education, its far superior imo and gets better

results in less time. We only spend about 2 hours a day if that on schooling

and we accomplish way more then the brick and mortar schools. Seriously,

they spend what, 6 hours a day there? They would send home all the work

missed and we would do it in 30-45 minutes. The other 5 hours at school is

spent wasted while the teacher teaches to the middle and does crowd control,

with CAVA were able to move at the pace my child is learning and hey, I like

being able to sleep in;) Right now its cold (40F), rainy, windy and just

generally nasty outside and the brick and mortar kids are all huddled trying

to stay warm as they walk by to school. My dd is still snug in bed, I'm only

up because I had to get the 3 yr old off to daycare (nurse picks her up on

her way to work at her daycare in the city, saves me a ton of driving) since

I have school today but otherwise I wouldn't be up until 8-9am when the kids

get up:)

Chronic illness from being in school

>

>>I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

>>and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

>>diagnosed Dec 2008.

>> When he goes to school after a few days he comes home with something,

>> cold, sinus problems etc.. Right now he has a sinus infection, its been

>> going on for a week now because the pediatrician gave him a mild

>> antibiotic which didn't work so now he is on a stronger one.

>> My question is do any of you experience that you sent your child to

>> school

>> healthy he comes home with something and here we go again. Sorry for

>> talking so much.

>> Thanks

>>

>>

>>

>>

>> ------------ --------- --------- ------

>>

>> This forum is open to parents and caregivers of children diagnosed with a

>> Primary Immune Deficiency. Opinions or medical advice stated here are

>> the

>> sole responsibility of the poster and should not be taken as professional

>> advice.

>>

>> To unsubscribe -unsubscribe@ groups.

>> To search group archives go to:

>> http://groups. / group// messages

[Guest guest]

we just received an acceptance 2 weeks ago and we called daily for weeks. They

could not tell us why there was a problem. But still to this day no coursework.

BARBIE

________________________________

From: <bluetaelon@...>

Sent: Tue, October 27, 2009 12:24:51 PM

Subject: Re: Chronic illness from being in school

Thats totally unacceptable, call your PAL and raise hell. Go up the chain,

your experience is NOT normal for K12's enrollment dept. (there's 1 national

enrollement dept that handles everyone then once everything is done your

handed off to the local VA.

Chronic illness from being in school

>>

>>>I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

>>>and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

>>>diagnosed Dec 2008.

>>> When he goes to school after a few days he comes home with something,

>>> cold, sinus problems etc.. Right now he has a sinus infection, its been

>>> going on for a week now because the pediatrician gave him a mild

>>> antibiotic which didn't work so now he is on a stronger one.

>>> My question is do any of you experience that you sent your child to

>>> school

>>> healthy he comes home with something and here we go again. Sorry for

>>> talking so much.

>>> Thanks

>>>

>>>

>>>

>>>

>>> ------------ --------- --------- ------

>>>

>>> This forum is open to parents and caregivers of children diagnosed with

>>> a

>>> Primary Immune Deficiency. Opinions or medical advice stated here are

>>> the

>>> sole responsibility of the poster and should not be taken as

>>> professional

>>> advice.

>>>

>>> To unsubscribe -unsubscribe@ groups.

>>> To search group archives go to:

>>> http://groups. / group// messages

[Guest guest]

we just received an acceptance 2 weeks ago and we called daily for weeks. They

could not tell us why there was a problem. But still to this day no coursework.

BARBIE

________________________________

From: <bluetaelon@...>

Sent: Tue, October 27, 2009 12:24:51 PM

Subject: Re: Chronic illness from being in school

Thats totally unacceptable, call your PAL and raise hell. Go up the chain,

your experience is NOT normal for K12's enrollment dept. (there's 1 national

enrollement dept that handles everyone then once everything is done your

handed off to the local VA.

Chronic illness from being in school

>>

>>>I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

>>>and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

>>>diagnosed Dec 2008.

>>> When he goes to school after a few days he comes home with something,

>>> cold, sinus problems etc.. Right now he has a sinus infection, its been

>>> going on for a week now because the pediatrician gave him a mild

>>> antibiotic which didn't work so now he is on a stronger one.

>>> My question is do any of you experience that you sent your child to

>>> school

>>> healthy he comes home with something and here we go again. Sorry for

>>> talking so much.

>>> Thanks

>>>

>>>

>>>

>>>

>>> ------------ --------- --------- ------

>>>

>>> This forum is open to parents and caregivers of children diagnosed with

>>> a

>>> Primary Immune Deficiency. Opinions or medical advice stated here are

>>> the

>>> sole responsibility of the poster and should not be taken as

>>> professional

>>> advice.

>>>

>>> To unsubscribe -unsubscribe@ groups.

>>> To search group archives go to:

>>> http://groups. / group// messages

[Guest guest]

Thats totally unacceptable, call your PAL and raise hell. Go up the chain,

your experience is NOT normal for K12's enrollment dept. (there's 1 national

enrollement dept that handles everyone then once everything is done your

handed off to the local VA.

Chronic illness from being in school

>>

>>>I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

>>>and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

>>>diagnosed Dec 2008.

>>> When he goes to school after a few days he comes home with something,

>>> cold, sinus problems etc.. Right now he has a sinus infection, its been

>>> going on for a week now because the pediatrician gave him a mild

>>> antibiotic which didn't work so now he is on a stronger one.

>>> My question is do any of you experience that you sent your child to

>>> school

>>> healthy he comes home with something and here we go again. Sorry for

>>> talking so much.

>>> Thanks

>>>

>>>

>>>

>>>

>>> ------------ --------- --------- ------

>>>

>>> This forum is open to parents and caregivers of children diagnosed with

>>> a

>>> Primary Immune Deficiency. Opinions or medical advice stated here are

>>> the

>>> sole responsibility of the poster and should not be taken as

>>> professional

>>> advice.

>>>

>>> To unsubscribe -unsubscribe@ groups.

>>> To search group archives go to:

>>> http://groups. / group// messages

[Guest guest]

He's a high schooler right? You should have had OLS access within 3 days of

acceptance, I would call again.

Chronic illness from being in school

>>>

>>>>I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

>>>>and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

>>>>diagnosed Dec 2008.

>>>> When he goes to school after a few days he comes home with something,

>>>> cold, sinus problems etc.. Right now he has a sinus infection, its been

>>>> going on for a week now because the pediatrician gave him a mild

>>>> antibiotic which didn't work so now he is on a stronger one.

>>>> My question is do any of you experience that you sent your child to

>>>> school

>>>> healthy he comes home with something and here we go again. Sorry for

>>>> talking so much.

>>>> Thanks

>>>>

>>>>

>>>>

>>>>

>>>> ------------ --------- --------- ------

>>>>

>>>> This forum is open to parents and caregivers of children diagnosed with

>>>> a

>>>> Primary Immune Deficiency. Opinions or medical advice stated here are

>>>> the

>>>> sole responsibility of the poster and should not be taken as

>>>> professional

>>>> advice.

>>>>

>>>> To unsubscribe -unsubscribe@ groups.

>>>> To search group archives go to:

>>>> http://groups. / group// messages

[Guest guest]

We went through those years and seemed to constantly be on 3 week courses of

antibiotics, nasal irrigations, neb treatments and steroids. She could not

maintain her levels with IVIG so she's been on Subq for 4-5 years now. No

troughs, levels are good for her (around 1100) and she gets the occasional cold

that everyone else in the house gets. Her biggest problem is her GI tract and

that can't be blamed on anything at school. I really think the constant levels

in her system help.

Also she's on Singulair 10 mg daily which is the higher dose for a kid but has

been found to do wonders long term for sinus and lung patients.

Ursula Holleman

mom to (16) and Macey (14)

www.caringbridge.org/visit/maceyholleman

From: tulip5blue@...

Date: Tue, 27 Oct 2009 12:05:12 +0000

Subject: Chronic illness from being in school

I have a 13 year old boy with CVID, asthma, food and seasonal allergies, and he

is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was diagnosed Dec

2008.

When he goes to school after a few days he comes home with something, cold,

sinus problems etc.. Right now he has a sinus infection, its been going on for a

week now because the pediatrician gave him a mild antibiotic which didn't work

so now he is on a stronger one.

My question is do any of you experience that you sent your child to school

healthy he comes home with something and here we go again. Sorry for talking so

much.

Thanks

[Guest guest]

We went through those years and seemed to constantly be on 3 week courses of

antibiotics, nasal irrigations, neb treatments and steroids. She could not

maintain her levels with IVIG so she's been on Subq for 4-5 years now. No

troughs, levels are good for her (around 1100) and she gets the occasional cold

that everyone else in the house gets. Her biggest problem is her GI tract and

that can't be blamed on anything at school. I really think the constant levels

in her system help.

Also she's on Singulair 10 mg daily which is the higher dose for a kid but has

been found to do wonders long term for sinus and lung patients.

Ursula Holleman

mom to (16) and Macey (14)

www.caringbridge.org/visit/maceyholleman

From: tulip5blue@...

Date: Tue, 27 Oct 2009 12:05:12 +0000

Subject: Chronic illness from being in school

I have a 13 year old boy with CVID, asthma, food and seasonal allergies, and he

is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was diagnosed Dec

2008.

When he goes to school after a few days he comes home with something, cold,

sinus problems etc.. Right now he has a sinus infection, its been going on for a

week now because the pediatrician gave him a mild antibiotic which didn't work

so now he is on a stronger one.

My question is do any of you experience that you sent your child to school

healthy he comes home with something and here we go again. Sorry for talking so

much.

Thanks

[Guest guest]

I just heard that his class started today. Seems a bit late. He is coming to

Oklahoma for a visit in November so it is going to be pretty chopped up. Then I

going to house sit in Seattle. My mom is going to be out of town for several

months. it is the only way that I get to parent my son since he cannot receive

health care here in OK. I have not seen him for 4 months. OK does not give kids

on SS health care. They are one of 3 states in the US. It is majorly different

in every state.

BARBIE

________________________________

From: <bluetaelon@...>

Sent: Tue, October 27, 2009 12:52:58 PM

Subject: Re: Chronic illness from being in school

He's a high schooler right? You should have had OLS access within 3 days of

acceptance, I would call again.

Chronic illness from being in school

>>>

>>>>I have a 13 year old boy with CVID, asthma, food and seasonal allergies,

>>>>and he is receiving IVIG at CHOP in Philadelphia every 3 weeks. He was

>>>>diagnosed Dec 2008.

>>>> When he goes to school after a few days he comes home with something,

>>>> cold, sinus problems etc.. Right now he has a sinus infection, its been

>>>> going on for a week now because the pediatrician gave him a mild

>>>> antibiotic which didn't work so now he is on a stronger one.

>>>> My question is do any of you experience that you sent your child to

>>>> school

>>>> healthy he comes home with something and here we go again. Sorry for

>>>> talking so much.

>>>> Thanks

>>>>

>>>>

>>>>

>>>>

>>>> ------------ --------- --------- ------

>>>>

>>>> This forum is open to parents and caregivers of children diagnosed with

>>>> a

>>>> Primary Immune Deficiency. Opinions or medical advice stated here are

>>>> the

>>>> sole responsibility of the poster and should not be taken as

>>>> professional

>>>> advice.

>>>>

>>>> To unsubscribe -unsubscribe@ groups.

>>>> To search group archives go to:

>>>> http://groups. / group// messages