Re: Re: Low white cell count

[Guest guest]

Dear Jeane, if the hematologist appt is over a week away, and she's ill, 

you may want to get the CBC repeated by the pediatrician or immunologist just to

make sure that WBC count hasn't dipped any lower.  Esp since she's ill......did

they do a WBC differential on the CBC....if so, what was her segs or granulocyte

# ?    You may also want to join the neutropenia group too....parents

of kids with low WBCs and the disorders that cause leukocytopenia (low

WBC)...very informative group and nice too.  

 

 I know this is scary, but try to hurry them up in scheduling the hematologist

appt......but remember, most hematologists are also oncologists, so they too

sometimes blow off a low white blood cell count, or postpone investigating

why....this happened to us also.....he said we'd watch it.....I believed him

that that would be OK and what a mistake that was......my son actually had a

serious bone marrow syndrome and his treatment was delayed because of this

attitude.

 

Until we went to a great hematologist at Cincinnati Children's, Dr

.....he is a bone marrow failure specialist, and so caring, wonderful

nurse too.  Then my son got adequate diagnosis and treatment...he was placed on

the severe/chronic neutropenia registry.  In my opinion, it's worth the trip to

Cincinnati.

 

please update, hugs to you and ..........Sue

 

From: Jeane <maryjeanedavis@...>

Subject: Re: Low white cell count

Date: Wednesday, February 3, 2010, 5:22 AM

 

Thanks so much for the detailed reply. We are in the process of making an

appointment with a pediatric hemotologist. You have shared some good

information, so I can go armed with some questions. Thanks again, I will let you

know what happens. Right now, is actually very sick, so I am very anxious

about all of this!

Jeane

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> From: Jeane <maryjeanedavis@ ...>

> Subject: Low white cell count

> groups (DOT) com

> Date: Monday, February 1, 2010, 8:13 AM

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> Hi,

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> I don't post very much at all because generally my daughter has done very well

with IVIG infusions. She has PID but the infusions have really done the trick

for her. She is quite hardy now and rarely get anything illness wise that

anti-biotics can't handle. Anyway, the question I have is that the last set of

labs she had drawn before her infusion showed that her white count was dropping

below her already low normal count. It has always been around 3300 but now is

about 2500. Out immunologist was alarmed by that and wants us to go see a

hemotologist. Anyone had experience with this happening? Does the wbc count run

low in kids with PID? Why would it all of the sudden start dropping? I am a

little scared about this and would love some insight from others that have dealt

with this.

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> Thanks,

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> Jeane

> Mom to andra 13 PID, FG syndrome

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