Re: Question for those who have home hospital teaching

[Guest guest]

we get 3 hours for every 5 days missed. So basically 3 hours per week.

Ursula

Mom to (17) and Macey (14)

Macey's Caringbridge site

Macey's Blog

________________________________

From: Madden <bluetaelon@...>

Sent: Mon, May 24, 2010 2:48:06 PM

Subject: Question for those who have home hospital teaching

I am beyond burnt out and have been talking to the public school about having a

public school teacher come in to teach dd but there telling me its only once a

week for an hour or so and more to collect assignments then actual teaching. I

could swear someone here said they have someone coming in daily to teach. I'm

already peeved about using the public schools mediocre materials but I also have

to admit that at this point virtual school is not working for us (we've been

doing it for 2 years) and I am just tired of fighting dd to do her work. Its

just one more power struggle going on that I'd like to remove. (yes I know,

don't engage in power struggles but when you have a child who is extremely

defiant on pretty much everything you get one whether you like it or not)

almost 10 with CVID and never been able to tolerate a classroom

environment and missed more days then attended due to illness.

[Guest guest]

Hi , The do only come 1 hour per week. It is a tough place to be and I

empathize with your struggle. My son also is VERY difficult to work with. Have

you looked at any Charter schools or other small schools? We have a parent

partnership program here that my son goes to 2 days a week. I do not know if

their might some kind of alternative program there for her as well. It did help

for us to have the teacher come in even once a week because she was the weekly

outsider that helped keep my son in line.

BARBIE

________________________________

From: Madden <bluetaelon@...>

Sent: Mon, May 24, 2010 11:48:06 AM

Subject: Question for those who have home hospital teaching

I am beyond burnt out and have been talking to the public school about having a

public school teacher come in to teach dd but there telling me its only once a

week for an hour or so and more to collect assignments then actual teaching. I

could swear someone here said they have someone coming in daily to teach. I'm

already peeved about using the public schools mediocre materials but I also have

to admit that at this point virtual school is not working for us (we've been

doing it for 2 years) and I am just tired of fighting dd to do her work. Its

just one more power struggle going on that I'd like to remove. (yes I know,

don't engage in power struggles but when you have a child who is extremely

defiant on pretty much everything you get one whether you like it or not)

almost 10 with CVID and never been able to tolerate a classroom

environment and missed more days then attended due to illness.

[Guest guest]

Blake is 18...he has been Hospital homebound since end of second grade after

spending that whole yr. in a hospital....he just could NOT attend school for

more than 3 days without being admitted 2 days later.... Blake has Severe

Combined Immunodeficiency with Complete T-Cell dysfunction.....so being in a

school/sunday school situation is totally out of thequestion.

 

we started out getting 50 Min.s a day...this is the Law requirements for

Homebound/homebased.

Homebound means that the child CAN go back to scool when the Dr. permits.  Home

Based means the child will be on a Medical Home Schooling though the District

for The entire school life of hte child(such as in Blake's case and we have 2

CF'ers here in our hometown that ate also homebased.

 

When Blake was to start Middles School....I woret what timing I wanted for

him....that includes giving him 2 hrs. a day. 5 days a week...he gets 10 hrs.

aday when his health permits.  I alos wrote as to what I expect from the

teacher and therapists that come into my home to tend to him......They HAVE to

wash their hands the minute the come in......if they have colds or flu like

symptoms...then they have to make up the day...or they can leave the school

workon my door step & leave.   If we are under the weather....we do the

same(except the teacher leaves the school work).

 

As far as the time.....It is is perfectly leagal to write & ask for your school

time to be extended....IF the school denies you, they HAVE to put it in writing

as to WHY they can not give you what you ask for.....If nsatisfactory to

you....then set up a meeting with the Distirct board & get answers.

 

Like I said we did the above & got the 2(10) hrs. with not hearing......

Blaek is now in 11th grade & on the All A's Honor Roll...he has worked really

hard & tries his best to do the school work every day...he tires out greatly &

more htan 2 hrs. would really make him worn to a frazzle...He is also Autistic,

so this shorter time & being out of the school has really worked for him & his

health!!!!

 

Hope this helps

Mom TO Blake( " Greenwood's Finest....Darth Blakester " ) SCID with Complete

T-Cell Dysfunction sub-q 2x's weekly;

Autisim...Moderate: and a RARE Blood Clotting Disorder that seems to be acting

up....

 

" Children are like butterflies in the wind.

Some fly higher than others, BUT

each one flies the best they can!!!! "

From: Madden <bluetaelon@...>

Subject: Question for those who have home hospital teaching

Date: Monday, May 24, 2010, 2:48 PM

 

I am beyond burnt out and have been talking to the public school about having a

public school teacher come in to teach dd but there telling me its only once a

week for an hour or so and more to collect assignments then actual teaching. I

could swear someone here said they have someone coming in daily to teach. I'm

already peeved about using the public schools mediocre materials but I also have

to admit that at this point virtual school is not working for us (we've been

doing it for 2 years) and I am just tired of fighting dd to do her work. Its

just one more power struggle going on that I'd like to remove. (yes I know,

don't engage in power struggles but when you have a child who is extremely

defiant on pretty much everything you get one whether you like it or not)

almost 10 with CVID and never been able to tolerate a classroom

environment and missed more days then attended due to illness.

[Guest guest]

Blake is 18...he has been Hospital homebound since end of second grade after

spending that whole yr. in a hospital....he just could NOT attend school for

more than 3 days without being admitted 2 days later.... Blake has Severe

Combined Immunodeficiency with Complete T-Cell dysfunction.....so being in a

school/sunday school situation is totally out of thequestion.

 

we started out getting 50 Min.s a day...this is the Law requirements for

Homebound/homebased.

Homebound means that the child CAN go back to scool when the Dr. permits.  Home

Based means the child will be on a Medical Home Schooling though the District

for The entire school life of hte child(such as in Blake's case and we have 2

CF'ers here in our hometown that ate also homebased.

 

When Blake was to start Middles School....I woret what timing I wanted for

him....that includes giving him 2 hrs. a day. 5 days a week...he gets 10 hrs.

aday when his health permits.  I alos wrote as to what I expect from the

teacher and therapists that come into my home to tend to him......They HAVE to

wash their hands the minute the come in......if they have colds or flu like

symptoms...then they have to make up the day...or they can leave the school

workon my door step & leave.   If we are under the weather....we do the

same(except the teacher leaves the school work).

 

As far as the time.....It is is perfectly leagal to write & ask for your school

time to be extended....IF the school denies you, they HAVE to put it in writing

as to WHY they can not give you what you ask for.....If nsatisfactory to

you....then set up a meeting with the Distirct board & get answers.

 

Like I said we did the above & got the 2(10) hrs. with not hearing......

Blaek is now in 11th grade & on the All A's Honor Roll...he has worked really

hard & tries his best to do the school work every day...he tires out greatly &

more htan 2 hrs. would really make him worn to a frazzle...He is also Autistic,

so this shorter time & being out of the school has really worked for him & his

health!!!!

 

Hope this helps

Mom TO Blake( " Greenwood's Finest....Darth Blakester " ) SCID with Complete

T-Cell Dysfunction sub-q 2x's weekly;

Autisim...Moderate: and a RARE Blood Clotting Disorder that seems to be acting

up....

 

" Children are like butterflies in the wind.

Some fly higher than others, BUT

each one flies the best they can!!!! "

From: Madden <bluetaelon@...>

Subject: Question for those who have home hospital teaching

Date: Monday, May 24, 2010, 2:48 PM

 

I am beyond burnt out and have been talking to the public school about having a

public school teacher come in to teach dd but there telling me its only once a

week for an hour or so and more to collect assignments then actual teaching. I

could swear someone here said they have someone coming in daily to teach. I'm

already peeved about using the public schools mediocre materials but I also have

to admit that at this point virtual school is not working for us (we've been

doing it for 2 years) and I am just tired of fighting dd to do her work. Its

just one more power struggle going on that I'd like to remove. (yes I know,

don't engage in power struggles but when you have a child who is extremely

defiant on pretty much everything you get one whether you like it or not)

almost 10 with CVID and never been able to tolerate a classroom

environment and missed more days then attended due to illness.

[Guest guest]

I wish we had regular charters here but we only have the parent choice home

schooling ones that occasionally has 6 week long classes for students (we

actually tried the school for 1st and HATED it). We've been doing K12 for the

past 2 years and they do have a weekly community day that would help keep her on

track but its 50 miles from us and were now carless and call me lazy but its 1.5

hours on the bus just to get to the city then you still have the regular city

bus. Not worth 4 hours of schooling and we don't know anyone locally that uses

the program to catch a ride with. If I thought I could afford it I would just

hire a tutor for LA and math a couple days a week for 2 hours since thats where

our main battle with school is.

________________________________

From: Barbara Jimenez <mother5590@...>

Sent: Mon, May 24, 2010 12:23:07 PM

Subject: Re: Question for those who have home hospital teaching

Hi , The do only come 1 hour per week. It is a tough place to be and I

empathize with your struggle. My son also is VERY difficult to work with. Have

you looked at any Charter schools or other small schools? We have a parent

partnership program here that my son goes to 2 days a week. I do not know if

their might some kind of alternative program there for her as well. It did help

for us to have the teacher come in even once a week because she was the weekly

outsider that helped keep my son in line.

BARBIE

________________________________

From: Madden <bluetaelon@...>

Sent: Mon, May 24, 2010 11:48:06 AM

Subject: Question for those who have home hospital teaching

I am beyond burnt out and have been talking to the public school about having a

public school teacher come in to teach dd but there telling me its only once a

week for an hour or so and more to collect assignments then actual teaching. I

could swear someone here said they have someone coming in daily to teach. I'm

already peeved about using the public schools mediocre materials but I also have

to admit that at this point virtual school is not working for us (we've been

doing it for 2 years) and I am just tired of fighting dd to do her work. Its

just one more power struggle going on that I'd like to remove. (yes I know,

don't engage in power struggles but when you have a child who is extremely

defiant on pretty much everything you get one whether you like it or not)

almost 10 with CVID and never been able to tolerate a classroom

environment and missed more days then attended due to illness.

[Guest guest]

We used http://www.time4learning.com and see if she would do the online

fun math there. It is $20 per month and goes to 8th grade. It would work for

your math and it might be a change of pace for you. It is much less dry than

the K12 program you have been doing. I could not do it here with my son. TOO

much regular school feel and too many hours. I do not remember CA law but you

should be able to do whatever curriculum you want until high school. There is no

need for the school to be accredited.

BARBIE

________________________________

From: Madden <bluetaelon@...>

Sent: Mon, May 24, 2010 12:44:50 PM

Subject: Re: Question for those who have home hospital teaching

I need to call our local SN FRC and find out what the law is out here so I have

a starting point. I keep forgetting to ask, I thought SCID was curable? Don't

remember the details only that it was curable or highly treatable so they lived

a totally normal life. Feel free to educate me if I'm wrong:)

________________________________

From: s <momtoboywholoveshisgoats@...>

Sent: Mon, May 24, 2010 12:37:39 PM

Subject: Re: Question for those who have home hospital teaching

Blake is 18...he has been Hospital homebound since end of second grade after

spending that whole yr. in a hospital....he just could NOT attend school for

more than 3 days without being admitted 2 days later.... Blake has Severe

Combined Immunodeficiency with Complete T-Cell dysfunction.....so being in a

school/sunday school situation is totally out of thequestion.

we started out getting 50 Min.s a day...this is the Law requirements for

Homebound/homebased.

Homebound means that the child CAN go back to scool when the Dr. permits. Home

Based means the child will be on a Medical Home Schooling though the District

for The entire school life of hte child(such as in Blake's case and we have 2

CF'ers here in our hometown that ate also homebased.

When Blake was to start Middles School....I woret what timing I wanted for

him....that includes giving him 2 hrs. a day. 5 days a week...he gets 10 hrs.

aday when his health permits. I alos wrote as to what I expect from the teacher

and therapists that come into my home to tend to him......They HAVE to wash

their hands the minute the come in......if they have colds or flu like

symptoms...then they have to make up the day...or they can leave the school

workon my door step & leave. If we are under the weather....we do the

same(except the teacher leaves the school work).

As far as the time.....It is is perfectly leagal to write & ask for your school

time to be extended....IF the school denies you, they HAVE to put it in writing

as to WHY they can not give you what you ask for.....If nsatisfactory to

you....then set up a meeting with the Distirct board & get answers.

Like I said we did the above & got the 2(10) hrs. with not hearing......

Blaek is now in 11th grade & on the All A's Honor Roll...he has worked really

hard & tries his best to do the school work every day...he tires out greatly &

more htan 2 hrs. would really make him worn to a frazzle...He is also Autistic,

so this shorter time & being out of the school has really worked for him & his

health!!!!

Hope this helps

Mom TO Blake( " Greenwood's Finest....Darth Blakester " ) SCID with Complete T-Cell

Dysfunction sub-q 2x's weekly;

Autisim...Moderate: and a RARE Blood Clotting Disorder that seems to be acting

up....

" Children are like butterflies in the wind.

Some fly higher than others, BUT

each one flies the best they can!!!! "

From: Madden <bluetaelon@...>

Subject: Question for those who have home hospital teaching

Date: Monday, May 24, 2010, 2:48 PM

I am beyond burnt out and have been talking to the public school about having a

public school teacher come in to teach dd but there telling me its only once a

week for an hour or so and more to collect assignments then actual teaching. I

could swear someone here said they have someone coming in daily to teach. I'm

already peeved about using the public schools mediocre materials but I also have

to admit that at this point virtual school is not working for us (we've been

doing it for 2 years) and I am just tired of fighting dd to do her work. Its

just one more power struggle going on that I'd like to remove. (yes I know,

don't engage in power struggles but when you have a child who is extremely

defiant on pretty much everything you get one whether you like it or not)

almost 10 with CVID and never been able to tolerate a classroom

environment and missed more days then attended due to illness.

[Guest guest]

Thank you for answering my question, every time I've seen your post for the past

few years I've always kinda scratched my head wondering why he didn't get the

treatment but never remembered to be nosy enough to ask:) I hope your able to

get that clot busted quickly, clots hurt! I developed a huge clot that attached

to my PICC line when was I was pregnant and man that thing hurt.

________________________________

From: s <momtoboywholoveshisgoats@...>

Sent: Mon, May 24, 2010 2:18:47 PM

Subject: Re: Question for those who have home hospital teaching

.... It is curable through a bone marrow transplant........

Bu in Blake's case this IS NOT Possible,,,,,,We looked at it, but with Blake but

hte risks for him far out weigh doing IgG Therapy...Not to mention Blake has a

VERY Rare blood clotting disorder......He doesn't make natural heparin(produced

by the liver)he is on life long threapy blood tinner through shots.

We discussed the Transplant options at length with his Hem/Onc & they agree. we

have a greater chnance to lose Blake faster than doing what we are doing for him

now.

We just went to his Pediatrician & found out that Blake has a hugh blood clot in

his Medial Cephalic Vein..it circles down his arm from the elbow to his

wrist..... as long as blake has an active blood clot we can do NO surgery or

dental work on him ...He is i so much pain from the clot & the inflammation plus

he was scheduled to have his wisdome teeth & part of his bottom jaw bone removed

this week....Sooooo not happening. The Ped. is worried, blake has NO IV access

any where except the groin area(not a nice place for teen boys!!!)

I hope you get the homeschool answer you need!!! Me being the only advocate for

Blake, is one reason I pushed for the longer school time...he has a great

teacher & all of it is considered actual school time....

Mom Of Blake(Greenwood's Finest.......Darth Blakester)

" Children are like butterflies in the wind.

Some fly higher than others, BUT

each one flies the best they can!!!! "

From: Madden <bluetaelon@...>

Subject: Question for those who have home hospital teaching

Date: Monday, May 24, 2010, 2:48 PM

I am beyond burnt out and have been talking to the public school about having a

public school teacher come in to teach dd but there telling me its only once a

week for an hour or so and more to collect assignments then actual teaching. I

could swear someone here said they have someone coming in daily to teach. I'm

already peeved about using the public schools mediocre materials but I also have

to admit that at this point virtual school is not working for us (we've been

doing it for 2 years) and I am just tired of fighting dd to do her work. Its

just one more power struggle going on that I'd like to remove. (yes I know,

don't engage in power struggles but when you have a child who is extremely

defiant on pretty much everything you get one whether you like it or not)

almost 10 with CVID and never been able to tolerate a classroom

environment and missed more days then attended due to illness.

[Guest guest]

I just looked it up and NCLB has two laws relating to students who are not

taught at school. If you are independent studies, you must see a teacher a

minimum of 1 hour per week. The teacher gives you assignments, and you

return them completed. There is no teaching involved by the District.

If you are on home hospital- H/H for short and in general ed they must give

you a minimum of 5 hours a week of a teacher- this is the teacher coming

into the home to teacher. Again, you are given assignments, and return them

each week to the teacher assigned. The five hours must be used for direct

instruction- in other words, teaching time- it can not be used to organize

and review work (unless it is teaching what was wrong) scheduling,

teacher prepping, grading, etc. Home hospital requires a physicians note.

As I said earlier, if your child has an 504. but can not attend school due

to health reasons, they really meet the criteria for special education and

need to be switched to an IEP.

With an IEP, the IEP team determines how many direct instruction teacher

hours based on the goals and objectives in the IEP. For us, he needed 18

hrs/week to meet his goals and learn the current curriculum. I have clients

who are on H/H and have teachers teaching in the home 25 hours a week.

When the the child is on home hospital, the parent really should sit back

and let the teacher teach. It is not the parents job to teach the student-

only to reinforce what has been taught, via homework, etc.

Regardless if it is independent studies or H/H, it is the districts job to

educate the child- and parents should enforce the district to do their job.

In NCLB for H/H and independent studies the law said minimum hours- so if a

child needed it, you could always request more. For a sp ed student, the 3

of hours comes as a decision from the IEP team, however as a rule of thumb,

the more goals in the IEP, the more teacher hours are necessary.

If you are considering homeschooling your child, you must fill out a private

school affidavit and keep track of hours, attendance, etc so that if you are

audited there is not an issue of truancy. In California you can only submit

those to the state department every October.

For us, H/H with an IEP was the best solution, because he received more

teaching hours and I just got to be the parent.