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Re: DADS public comment

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Thanks . Liz.

On 7/1/04 6:04 AM, " Singleton " <cmtssingleton@...> wrote:

> Hi--

> Just to let you know for those who couldn't make it to one of the DADS

> (Department of Aging and Disability Services) public comment forums, you can

> comment online.

>

> The website is www.dads.state.tx.us/feedback

>

> There were no questions asked about creating a separate deparment for

> autism. There were also no questions asked about the disparity in per

> capita funding of county versus the rest of the state. There were

> LOTS of questions about the waiting list,but very few related to autism.

>

>

>

>

> Texas Autism Advocacy

>

>

> Unlocking Autism

> www.UnlockingAutism.org

>

> Autism-Awareness-Action

> Worldwide internet group for parents who have a

> child with AUTISM.

>

> SeekingJoyinDisability - Prayer support for those touched by Disability:

> SeekingJoyinDisability/

>

>

>

>

>

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are they still taking public comments? Liz

On 7/1/04 6:04 AM, " Singleton " <cmtssingleton@...> wrote:

> Hi--

> Just to let you know for those who couldn't make it to one of the DADS

> (Department of Aging and Disability Services) public comment forums, you can

> comment online.

>

> The website is www.dads.state.tx.us/feedback

>

> There were no questions asked about creating a separate deparment for

> autism. There were also no questions asked about the disparity in per

> capita funding of county versus the rest of the state. There were

> LOTS of questions about the waiting list,but very few related to autism.

>

>

>

>

> Texas Autism Advocacy

>

>

> Unlocking Autism

> www.UnlockingAutism.org

>

> Autism-Awareness-Action

> Worldwide internet group for parents who have a

> child with AUTISM.

>

> SeekingJoyinDisability - Prayer support for those touched by Disability:

> SeekingJoyinDisability/

>

>

>

>

>

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are they still taking public comments? Liz

On 7/1/04 6:04 AM, " Singleton " <cmtssingleton@...> wrote:

> Hi--

> Just to let you know for those who couldn't make it to one of the DADS

> (Department of Aging and Disability Services) public comment forums, you can

> comment online.

>

> The website is www.dads.state.tx.us/feedback

>

> There were no questions asked about creating a separate deparment for

> autism. There were also no questions asked about the disparity in per

> capita funding of county versus the rest of the state. There were

> LOTS of questions about the waiting list,but very few related to autism.

>

>

>

>

> Texas Autism Advocacy

>

>

> Unlocking Autism

> www.UnlockingAutism.org

>

> Autism-Awareness-Action

> Worldwide internet group for parents who have a

> child with AUTISM.

>

> SeekingJoyinDisability - Prayer support for those touched by Disability:

> SeekingJoyinDisability/

>

>

>

>

>

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Everyone on this list needs to submit a public comment via the website that

has provided the link for. They SHOULD be deluged with comments from the

autism community. This is a chance for EVERYONE to participate by sending in

comments. I posted the below comments on the site:

" Now that autism spectrum disorders occur in 1 of every 166 children (per CDC),

DADS needs to create a portion of the department that is specifically geared

toward serving individuals with autism spectrum disorders, with or without

comorbid mental retardation. Almost half of individuals with autism DO NOT have

MR...yet currently Texas has NO services for these individuals who are just as

disabled by their autism (probably more so) than individuals with mild mental

retardation. There are currently no Medicaid waiver programs that meet the needs

of this population, either. Soon, they will be the MAJORITY of disabled persons

in Texas, since in Texas over the last 10 years the population of individuals

with autism has grown 475% compared to about 29% for all other disabilities

COMBINED.

DADS needs a separate division that will meet the unique needs of all

individuals along the autism spectrum. Texas also needs to develop a specific

waiver program that fits the needs of individuals on the autism spectrum. What

works for people with MR or cerebral palsy does NOT necessarily work for people

with autism. Autism is more complex than other disabilities. "

nna

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My child has HCS and refuses to go to Day Hab because of the way that they

treat him. It is the same that he was treated in school and he doesn't go

there either. Throw a tatrum and receive positive reinforcement. We really

do need a program just for our kids and adults.

He is twelve today and has let me know in more ways that one that he

shouldn't have to work.

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