Guest guest Posted October 27, 2011 Report Share Posted October 27, 2011 Around Oct. 7, Brennan (9, cvid, asthma) had an apparant asthma flare. Slight runny nose, no temp, terrible, harsh coughing fits that did not get better with neb tx. On third day, took him to after hours clinic, they put him on pred for a week, and with rest, round the clock tx and pred he improved. Tuesday this week, the exact same symptoms returned. No symptoms, then suddenly, harsh, unrelenting cough that is not improved with tx. Wed was IVIG. Since the cough had started overnight and worsened so quickly and sounded so tight, his nurse called his ID dr. who came down, agreed something was up, but thought pulm should handle it, bc its in the lungs, so passed it to pulm office. Our pulm was out of town and the on call was supposed to come down, but became too busy so sent a nurse down to check on him. They were supposed to call in something. They didnt. Wanted to wait and see if he improved over the weekend (yeah, right). So just got home from pcp and she says pertussis is going around the area, cant tell for sure, but is starting him on abx and pred in case it is, bc some of the symptoms fit. Great!! he isnt making the whooping sound, but he is coughing so hard it catches his breath and makes his " brain " hurt. Tx is not improving it at all. None of my kids have ever had pertussis. Not knowing for sure makes it hard...like how long do I keep him home? should I contact family with babies we were in contact with last week? valarie mom to 3 w/cvid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2011 Report Share Posted October 27, 2011 Has he had level checks since on IVIG? He should have good immunity through his infusions and actually be better covered than most kids. Could be a change of season lung flare up. Ursula Mom to Macey(16,CVID) On Oct 27, 2011, at 4:48 PM, " osdbmom " <osdbmom@...> wrote: > Around Oct. 7, Brennan (9, cvid, asthma) had an apparant asthma flare. Slight runny nose, no temp, terrible, harsh coughing fits that did not get better with neb tx. On third day, took him to after hours clinic, they put him on pred for a week, and with rest, round the clock tx and pred he improved. Tuesday this week, the exact same symptoms returned. No symptoms, then suddenly, harsh, unrelenting cough that is not improved with tx. > Wed was IVIG. Since the cough had started overnight and worsened so quickly and sounded so tight, his nurse called his ID dr. who came down, agreed something was up, but thought pulm should handle it, bc its in the lungs, so passed it to pulm office. Our pulm was out of town and the on call was supposed to come down, but became too busy so sent a nurse down to check on him. They were supposed to call in something. They didnt. Wanted to wait and see if he improved over the weekend (yeah, right). > So just got home from pcp and she says pertussis is going around the area, cant tell for sure, but is starting him on abx and pred in case it is, bc some of the symptoms fit. > > Great!! he isnt making the whooping sound, but he is coughing so hard it catches his breath and makes his " brain " hurt. Tx is not improving it at all. > > None of my kids have ever had pertussis. Not knowing for sure makes it hard...like how long do I keep him home? should I contact family with babies we were in contact with last week? > > valarie > mom to 3 w/cvid > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2011 Report Share Posted October 28, 2011 That is good to know, thanks! Nick finally seems to be getting better. This is day 18, two rounds of antibiotics, one round oral steriods and I think finally upping his Advair dose is what is making him better. Amy From: Schulman Sent: Friday, October 28, 2011 1:43 AM Subject: Re: pertussis? Amy, sorry I'm late to this discussion (I'm going back to school and have too much on my plate.) Just wanted to share that, last year, there was a pertussis scare in my area. Our immuno tested my daughter's titers (she is on scig) for pertussis and her levels were inadequate. We were told that she does not have protective levels, even on IgG replacement. However, the doctor said that there is probably enough to prevent a major catastrophe -- but not enough to stop her from acquiring the bug. If there is a strong suspicion of pertussis, I can see why your doctor suggested antibiotics as this is the cure. mom to Dani, 10 CVID Gabe 2, blood is being checked right now. ________________________________ From: Amy Bolich <mailto:mom2lilnick%40windstream.net> mailto:%40 Sent: Thu, October 27, 2011 3:43:51 PM Subject: Re: pertussis? Nick has a cough that is just getting worse and worse. We just took him to the immuno yesterday and they ran some tests but told us that it couldn’t be whooping cough since he is on IVIG. Amy Mom to Nick, 8, CVID on IVIG since 18 months old. From: Ursula Holleman Sent: Thursday, October 27, 2011 4:32 PM mailto:%40 Subject: Re: pertussis? Has he had level checks since on IVIG? He should have good immunity through his infusions and actually be better covered than most kids. Could be a change of season lung flare up. Ursula Mom to Macey(16,CVID) Quote Link to comment Share on other sites More sharing options...
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