Guest guest Posted November 12, 2009 Report Share Posted November 12, 2009 Name: Ursula General Location/state/city: Middle Georgia Pid Pumpkin: Macey Age: 14 Grade: 9 School Status: full time but paperwork submitted for Hospital Homebound SIblings & Ages: (17, today) Diagnosis: CVID How Long Since Diagnosis: 1997 Treatment: Subq. 32 gms (50 cc) Viva every week Additional Health Concerns: Narcolepsy, Diabetes Insipidus, CVID variant Crohn's, arthralgia, COPD Best Website for dealing with all this PI stuff: IDF, IPOPI, Modell's, group Best resource you've found: our pediatrician, our pharmacist, our bible Best PI Tip: go with your gut. Macey's having a great PID year but not so great gut year. Unfortunately they both tend to influence each other. She marched in the band until this week and then had to quit marching but will continue in band class. When homebound starts I'm not sure how that will be handled. www.caringbridge.org/visit/maceyholleman Quote Link to comment Share on other sites More sharing options...
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