Going out during infusions

[Guest guest]

I was wondering what thoughts were on going to do errands or to social events

after infusion has been started. Is there any reason why I shouldn't take

Tristen out? I have before, but usually in her stroller to the store and only a

few times.

I'm asking because we infuse on Thursday mornings, since that's the time that

works best. But I may sign up for bible study on thursday mornings and would

take Tristen to the church child care. I would still like to infuse on Thursday

mornings since that's our routine, but haven't decided on how I feel about her

being with other kids during her infusion.

Any Thoughts?

le

Tristen 4 1/2, CVID SubQ

[Guest guest]

I wouldn't go it for several reasons, other kids could pull out the sites or

at the very least pull on the tubes and cause skin ripping. It advertises to

other children she is " weaker " and she may be teased about it. You also need

to keep an eye on your child in case of a severe allergic reaction and the

nursery staff has not been trained in having SCIG issues and I'm guessing

there liability insurance would not allow them to care for her duing an

infusion. Just change your infusion day, really, its not a big deal to move

it 3 days either side of your regular day.

Going out during infusions

>I was wondering what thoughts were on going to do errands or to social

>events after infusion has been started. Is there any reason why I

>shouldn't take Tristen out? I have before, but usually in her stroller to

>the store and only a few times.

>

> I'm asking because we infuse on Thursday mornings, since that's the time

> that works best. But I may sign up for bible study on thursday mornings

> and would take Tristen to the church child care. I would still like to

> infuse on Thursday mornings since that's our routine, but haven't decided

> on how I feel about her being with other kids during her infusion.

>

> Any Thoughts?

>

> le

> Tristen 4 1/2, CVID SubQ

>

>

>

> ------------------------------------

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to:

> /messages

[Guest guest]

I wouldn't go it for several reasons, other kids could pull out the sites or

at the very least pull on the tubes and cause skin ripping. It advertises to

other children she is " weaker " and she may be teased about it. You also need

to keep an eye on your child in case of a severe allergic reaction and the

nursery staff has not been trained in having SCIG issues and I'm guessing

there liability insurance would not allow them to care for her duing an

infusion. Just change your infusion day, really, its not a big deal to move

it 3 days either side of your regular day.

Going out during infusions

>I was wondering what thoughts were on going to do errands or to social

>events after infusion has been started. Is there any reason why I

>shouldn't take Tristen out? I have before, but usually in her stroller to

>the store and only a few times.

>

> I'm asking because we infuse on Thursday mornings, since that's the time

> that works best. But I may sign up for bible study on thursday mornings

> and would take Tristen to the church child care. I would still like to

> infuse on Thursday mornings since that's our routine, but haven't decided

> on how I feel about her being with other kids during her infusion.

>

> Any Thoughts?

>

> le

> Tristen 4 1/2, CVID SubQ

>

>

>

> ------------------------------------

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to:

> /messages

[Guest guest]

I would not! Especially if you were thinking of leaving her somewhere. I am SURE

the staff would not be willing to accept her while you are at Bible Study. It

would be unreasonable to even ask. This is a medical procedure and needs to be

looked at that way.  It is rare but sudden severe reactions can happen and that

is why you should have a EPI PEN with you. Also  other children could

accidentally pull out the infusion. A bad idea all around. Just change your day.

We do it 3 days either way with NO problems although it is good to have a

routine and it keeps the levels more steady.

BARBIE  

From: <bluetaelon@...>

Subject: Re: Going out during infusions

Date: Thursday, August 27, 2009, 10:42 PM

 

I wouldn't go it for several reasons, other kids could pull

out the sites or

at the very least pull on the tubes and cause skin ripping. It advertises to

other children she is " weaker " and she may be teased about it. You also need

to keep an eye on your child in case of a severe allergic reaction and the

nursery staff has not been trained in having SCIG issues and I'm guessing

there liability insurance would not allow them to care for her duing an

infusion. Just change your infusion day, really, its not a big deal to move

it 3 days either side of your regular day.

Going out during infusions

>I was wondering what thoughts were on going to do errands or to social

>events after infusion has been started. Is there any reason why I

>shouldn't take Tristen out? I have before, but usually in her stroller to

>the store and only a few times.

>

> I'm asking because we infuse on Thursday mornings, since that's the time

> that works best. But I may sign up for bible study on thursday mornings

> and would take Tristen to the church child care. I would still like to

> infuse on Thursday mornings since that's our routine, but haven't decided

> on how I feel about her being with other kids during her infusion.

>

> Any Thoughts?

>

> le

> Tristen 4 1/2, CVID SubQ

>

>

>

> ------------ --------- --------- ------

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

> To unsubscribe -unsubscribe@ groups.

> To search group archives go to:

> http://groups. / group// messages

[Guest guest]

I would not! Especially if you were thinking of leaving her somewhere. I am SURE

the staff would not be willing to accept her while you are at Bible Study. It

would be unreasonable to even ask. This is a medical procedure and needs to be

looked at that way.  It is rare but sudden severe reactions can happen and that

is why you should have a EPI PEN with you. Also  other children could

accidentally pull out the infusion. A bad idea all around. Just change your day.

We do it 3 days either way with NO problems although it is good to have a

routine and it keeps the levels more steady.

BARBIE  

From: <bluetaelon@...>

Subject: Re: Going out during infusions

Date: Thursday, August 27, 2009, 10:42 PM

 

I wouldn't go it for several reasons, other kids could pull

out the sites or

at the very least pull on the tubes and cause skin ripping. It advertises to

other children she is " weaker " and she may be teased about it. You also need

to keep an eye on your child in case of a severe allergic reaction and the

nursery staff has not been trained in having SCIG issues and I'm guessing

there liability insurance would not allow them to care for her duing an

infusion. Just change your infusion day, really, its not a big deal to move

it 3 days either side of your regular day.

Going out during infusions

>I was wondering what thoughts were on going to do errands or to social

>events after infusion has been started. Is there any reason why I

>shouldn't take Tristen out? I have before, but usually in her stroller to

>the store and only a few times.

>

> I'm asking because we infuse on Thursday mornings, since that's the time

> that works best. But I may sign up for bible study on thursday mornings

> and would take Tristen to the church child care. I would still like to

> infuse on Thursday mornings since that's our routine, but haven't decided

> on how I feel about her being with other kids during her infusion.

>

> Any Thoughts?

>

> le

> Tristen 4 1/2, CVID SubQ

>

>

>

> ------------ --------- --------- ------

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

> To unsubscribe -unsubscribe@ groups.

> To search group archives go to:

> http://groups. / group// messages