Guest guest Posted August 2, 2010 Report Share Posted August 2, 2010 Hi Tracey, Thanks for the information. The EEG scan result (done 2 months ago) came back today confirming that my son did not have epilepsy .....and the doctor assured me that the AED he precribed for my son (which I gave him for about 3 weeks) will have no side effect or does any harm to his body etc. Phew! One worry off the list! This misdiagnosis has caused unnecessary worries and wrong actions by the autority.... Regards, candice > > > > > > > > > > > > From: mysuperteach <mysuperteach@> > > > > > > Subject: Re: Brain inflammation > > > > squashing nerves to key organs/ muscles/ larynx > > > > > > To: Autism Treatment <Autism Treatment%40groups.\ com> > > > > > > Date: Thursday, July 8, 2010, 7:56 AM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I'm not sure that an MRI would measure the kind of brain > > > > inflammation common in autism. It can even miss the kind of > > > > inflammation that comes after some sort of head trauma like a car > > > > accident, so possibly not sensitive enough. > > > > > > > > > > > > > > > > > > > > > > > > Normally, I think that something like C Reactive Protein is > > > > measured, which doesn't say how much inflammation is in the brain, but > > > > in the body as a whole. I'm not familiar with the test, but I think > > > > the Ann Connolly (sp?) test measures brain inflammation. For us, we've > > > > not measured inflammation directly but ds has sky high oxidative > > > > stress markers on the test from Labbio. I can't remember which one it > > > > is right now. But, oxidative stress is one of the causes of > > > > inflammation and if someone has such high levels of os, it is a very > > > > safe bet that inflammation is also very high. > > > > > > > > > > > > > > > > > > > > > > > > Coincidentally to this thread, I have just started ds on very high > > > > levels of antioxidants and anti-inflammatories. I have long thought > > > > that his stimming and his lack of language are due to inflammation. A > > > > recent illness put his stimming through the roof--he even stimmed in > > > > his sleep. Just as bad as the stimming, his eyes look dead. So, rather > > > > than up things slowly I decided to just introduce and/or increase > > > > everything at once. DS is still stimming today, but I would say (and > > > > dh agrees, something he doesn't always do) that ds's stimming is down > > > > by nearly half. Too early to tell what, if anything, this might > > > > accomplish, but I am starting to think that some kids might need very, > > > > very high levels of antioxidants and anti-inflammatories to help break > > > > the cycle that they seem to be caught in. > > > > > > > > > > > > > > > > > > > > > > > > DS is taking vitamin E, C, and K2, melatonin, CLO and fish oil, > > > > pycnogenol, dmg, milk thistle, high levels of B2, zinc, ubiquinol, > > > > selenium, and probably a few others that aren't coming to mind right > > > > now. He eats a diet high in antioxidants too--lots of wild > > > > blueberries, cantelope, pecans, etc,. I had previously thought that > > > > his levels of antioxidant supplements was high enough but I think I > > > > was wrong and I'm going to investigate a few more that I've not tried. > > > > I'm also wondering if any of the anti-inflammatory enzymes might be > > > > helpful for our kids and am looking into that. > > > > > > > > > > > > > > > > > > > > > > > > There are some children who react to steroid tapers (which are > > > > powerful anti-inflammatories) or longer term steroid use by developing > > > > language. Brain inflammation is something that I would pretty much > > > > automatically assume in kids with no language. > > > > > > > > > > > > > > > > > > > > > > > > Another thought on this topic is that while there is inflammation, > > > > the immune system cannot react properly. I believe this is part of the > > > > vicious cycle that some kids, like perhaps mine, seem to be caught in. > > > > > > > > > > > > > > > > > > > > > > > > Anita > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > DISCLAIMER > > > > > No information contained in this post is to be construed as medical > > > > advice. If you need medical advice, please seek it from a suitably > > > > qualified practitioner. > > > > > Quote Link to comment Share on other sites More sharing options...
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