Guest guest Posted June 29, 2012 Report Share Posted June 29, 2012 Hi, my 6 year old daughter with CVID has been experiencing mouth ulcers for years. They are usually on her inner cheeks and go away rather quicly, but for the last several days she has two in her mouth along her lower gumline on the side. THey are very painful. Does anyone else experience these and what helps them go away quickly as well as keep the pain down. Would love some advice. Is this something common with CVID? THanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2012 Report Share Posted June 29, 2012 My son has CVID but also Chronic Neutropenia..... He suffered with those mouth sores for years.....we went to ENTs oral surgeons, GI, tried aloe vera, rinses with maalox/benadryl/steroids...nothing helped...they just got worse.. until the hematologist at the Bone Marrow Failure Clinic told us that they are a hallmark of Neutropenia! His bone marrow biopsy showed only 20% cellularity.....his WBC and ANC were terrible....he was started on Neupogen (Granulocyte-colony-stimulating -factor) The mouth ulcers were gone .....He gets them rarely if his ANC goes down, but nothing like the torture they gave him for so many years!.....look into neutropenia.......sue From: karen <kksilk526@...> Subject: mouth ulcers Date: Friday, June 29, 2012, 6:29 PM Â Hi, my 6 year old daughter with CVID has been experiencing mouth ulcers for years. They are usually on her inner cheeks and go away rather quicly, but for the last several days she has two in her mouth along her lower gumline on the side. THey are very painful. Does anyone else experience these and what helps them go away quickly as well as keep the pain down. Would love some advice. Is this something common with CVID? THanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2012 Report Share Posted June 29, 2012 My son has CVID but also Chronic Neutropenia..... He suffered with those mouth sores for years.....we went to ENTs oral surgeons, GI, tried aloe vera, rinses with maalox/benadryl/steroids...nothing helped...they just got worse.. until the hematologist at the Bone Marrow Failure Clinic told us that they are a hallmark of Neutropenia! His bone marrow biopsy showed only 20% cellularity.....his WBC and ANC were terrible....he was started on Neupogen (Granulocyte-colony-stimulating -factor) The mouth ulcers were gone .....He gets them rarely if his ANC goes down, but nothing like the torture they gave him for so many years!.....look into neutropenia.......sue From: karen <kksilk526@...> Subject: mouth ulcers Date: Friday, June 29, 2012, 6:29 PM Â Hi, my 6 year old daughter with CVID has been experiencing mouth ulcers for years. They are usually on her inner cheeks and go away rather quicly, but for the last several days she has two in her mouth along her lower gumline on the side. THey are very painful. Does anyone else experience these and what helps them go away quickly as well as keep the pain down. Would love some advice. Is this something common with CVID? THanks Quote Link to comment Share on other sites More sharing options...
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