Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 Has anyone successfully dealt with growth issues? Or, have experience to share? My daughter is almost 10 yrs old and, in past two years, has been dropping percentiles for stature. (Dropped from 70th to 50th). She is still a normal size child but my husband and I are both " tall " and, today, her ped expressed concern. Any thoughts? Mom to Dani, CVID, 9 Sent from my Sprint® BlackBerry ~~~~~~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 Thanks, Sue. This makes sense. Its very weird for my daughter b/c she has been stable. Like you're son, she's being followed by endo now due to autoantibodies against thyroid... Thanks againt for insight. Sent from my Sprint® BlackBerry ~~~~~~~~~~~~~~~~~~~~~~ Growth Date: Monday, May 9, 2011, 11:15 PM Has anyone successfully dealt with growth issues? Or, have experience to share? My daughter is almost 10 yrs old and, in past two years, has been dropping percentiles for stature. (Dropped from 70th to 50th). She is still a normal size child but my husband and I are both " tall " and, today, her ped expressed concern. Any thoughts? Mom to Dani, CVID, 9 Sent from my Sprint® BlackBerry ~~~~~~~~~~~~~~~~~~~~~~ ------------------------------------ This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 Hi .....so your daughter has developed autoantibodies against her thyroid?! wow.... It's amazing to me that our kids can't develop enough antibodies against invading micro-organisms, but they can sure develop antibodies against their own cells!! ugh! My son has autoimmune anti-platelet antibodies....the hematologist told me this is not a rare occurrence, for people with immune deficiencies to develop antibodies against their own tissues. Pardon my language, but that sucks! I mean, don't they go through enough?!!! hugs to you and your daughter.....sue From: dietdoc@... <dietdoc@...> Subject: Growth Date: Monday, May 9, 2011, 11:15 PM Has anyone successfully dealt with growth issues? Or, have experience to share? My daughter is almost 10 yrs old and, in past two years, has been dropping percentiles for stature. (Dropped from 70th to 50th). She is still a normal size child but my husband and I are both " tall " and, today, her ped expressed concern. Any thoughts? Mom to Dani, CVID, 9 Sent from my Sprint® BlackBerry ~~~~~~~~~~~~~~~~~~~~~~ ------------------------------------ This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 Hi .....so your daughter has developed autoantibodies against her thyroid?! wow.... It's amazing to me that our kids can't develop enough antibodies against invading micro-organisms, but they can sure develop antibodies against their own cells!! ugh! My son has autoimmune anti-platelet antibodies....the hematologist told me this is not a rare occurrence, for people with immune deficiencies to develop antibodies against their own tissues. Pardon my language, but that sucks! I mean, don't they go through enough?!!! hugs to you and your daughter.....sue From: dietdoc@... <dietdoc@...> Subject: Growth Date: Monday, May 9, 2011, 11:15 PM Has anyone successfully dealt with growth issues? Or, have experience to share? My daughter is almost 10 yrs old and, in past two years, has been dropping percentiles for stature. (Dropped from 70th to 50th). She is still a normal size child but my husband and I are both " tall " and, today, her ped expressed concern. Any thoughts? Mom to Dani, CVID, 9 Sent from my Sprint® BlackBerry ~~~~~~~~~~~~~~~~~~~~~~ ------------------------------------ This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 , My son was treated with IVIG as a toddler for immune deficiency (low IgG,IgA and IgM; specific antibody deficiency and specific t-cell issues). Anyway, then he was off of IVIG from 3.5 to age 11. For years we treated with antibiotics, both maintenance and long courses. He steadily maintained 75% for height and weight. Then starting around age 9, he stopped growing much and by age 11 had lost 10 pounds since his 10 year check and barely grown in height. He went from 75% for height down to 50% or so and then for weight dropped from 75% down to 30th. That is when we rechecked all of his immune studies and decided to go back on IVIG. His antibiotics weren't helping in terms of maintenance and he was constantly on 21+ day rounds of heavy duty antibiotic therapy. Since starting the IVIG and now the sub-Q, he has gained 12lbs and grown 1/4 " and that is just since November this past fall. So, I think we are on the right track. Our immuno said that kids who are sick constantly will tend to have growth issues and that was definitely the case for us. Mom to Caelan 11 (on Hizentra sub-Q) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.