Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 I wanted to share that Conner and Kelsey were the same way. We originally started looking at wheelchairs and motorized scooters until our docs decided to do a trial of Synthroid (thyroid replacement) for both of them. Conner's TSH levels were at the high end of normal (still within range), but he tested positive for anti-thyroid antibodies (Hashimoto's or auto-immune thyroid disease). His docs decided to do a trial of Synthroid to see if it improved his energy level and overall health. It worked extremely well! In Kelsey's case, her thyroid levels were pointing to central hypothyroidism, but just borderline. Central hypothyroidism can be caused by inflammation and frequent infections within the body. We started her on Synthroid and not only did it improve her energy level, it pretty much ended her infections and she no longer suffers from joint pain! Our immunologist explained that the thyroid can effect immune function and if you are low on thyroid hormones you can see increased infections. He says that Synthroid is to the body, what oil is to a car, it helps things run smoother. Our kids' pediatric endocrinologist says that a lot of docs aren't comfortable in treating thyroid levels in kids that aren't extremely out of range and he doesn't really understand it. It's very safe and sometimes just a small boost in hormones can greatly improve quality of life. We've definitely seen that in our experience. I also have auto-immune thyroid disease, however I started having symptoms long before my labs were abnormal (which is common). I'm friends with our family doc and I talked him into doing a trial of meds. It helped me a lot. Sure enough, I eventually started producing antibodies and now have full blown Hashimoto's too. I would encourage you all to do some research. I'd be happy to share more info, just drop me an email. http://www.mayoclinic.com/health/hashimotos-disease/DS00567 (NEMO carrier) Mom to Hayden (15-unknown PID) Evan (15-unknown PID) Conner (15-NEMO; transplanted 8/17/07 - from an anonymous donor) Kelsey (14-unknown PID and NEMO carrier) Wife to (unknown PID) www.caringbridge.org/visit/smithkids Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 I will see if they have had THS levels done...Thanks for the info !!! > > I wanted to share that Conner and Kelsey were the same way. We originally started looking at wheelchairs and motorized scooters until our docs decided to do a trial of Synthroid (thyroid replacement) for both of them. Conner's TSH levels were at the high end of normal (still within range), but he tested positive for anti-thyroid antibodies (Hashimoto's or auto-immune thyroid disease). His docs decided to do a trial of Synthroid to see if it improved his energy level and overall health. It worked extremely well! In Kelsey's case, her thyroid levels were pointing to central hypothyroidism, but just borderline. Central hypothyroidism can be caused by inflammation and frequent infections within the body. We started her on Synthroid and not only did it improve her energy level, it pretty much ended her infections and she no longer suffers from joint pain! Our immunologist explained that the thyroid can effect immune function and if you are low on thyroid hormones you can see increased infections. He says that Synthroid is to the body, what oil is to a car, it helps things run smoother. Our kids' pediatric endocrinologist says that a lot of docs aren't comfortable in treating thyroid levels in kids that aren't extremely out of range and he doesn't really understand it. It's very safe and sometimes just a small boost in hormones can greatly improve quality of life. We've definitely seen that in our experience. I also have auto-immune thyroid disease, however I started having symptoms long before my labs were abnormal (which is common). I'm friends with our family doc and I talked him into doing a trial of meds. It helped me a lot. Sure enough, I eventually started producing antibodies and now have full blown Hashimoto's too. I would encourage you all to do some research. I'd be happy to share more info, just drop me an email. > > http://www.mayoclinic.com/health/hashimotos-disease/DS00567 > > > (NEMO carrier) > Mom to Hayden (15-unknown PID) > Evan (15-unknown PID) > Conner (15-NEMO; transplanted 8/17/07 - from an anonymous donor) > Kelsey (14-unknown PID and NEMO carrier) > Wife to (unknown PID) > www.caringbridge.org/visit/smithkids > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.