Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Macey has been accepted as a patient at the NIH under a gut study that deals with CVID patients. Atlanta had delayed treatment until we heard if Macey was going to be brought in and now she is. She is going in for a week either beginning April 25th or May 9th. We are very hopeful that the GI doctors will be able to find something that explains the variant of inflammatory bowel Macey has and can find an easier treatment than the 6mp or Remicade we will have to go with otherwise. The case management dept got the chart today and the study nurse said we should have a more definite date on Monday. Ursula Mom to (17) and Macey (14) http://www.caringbridge.org/visit/maceyholleman Quote Link to comment Share on other sites More sharing options...
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