Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 my son is 14 and we do 60cc in 2 sites. We use 6mm as well. We put our sites in the love handles and basically get a VERY small redness and short term small lump. But...., we have been doing it for several years. We did get a bigger lump originally but it has gotten better. My son REFUSES to use any other site since he says it hurts too much. just a thought to try a new site. ________________________________ From: knmb22 <knmb2@...> Sent: Thu, April 7, 2011 10:12:05 AM Subject: SubQ Needle size and Reactions... I am wondering what size needles most of you use for your SubQ? My son is 14, a small 100 lb. 14 year old. We were using 6mm needles at two sites, 25 ml total. He would get the same site reaction everyweek, same as day one. A golf ball at each site, hard...for the most part, gone by morning. A small lump will remain at each site for about 2 weeks. I mentioned this to the home care agency and the Dr. and it was suggested that he try a 9mm needle, that it may eliviate the site reaction and residual lump. NOT...site reaction was twice as bad and remained somewhat swollen into the next day. Could that be from the needle? I noticed when I filled the syringe, it was VERY bubbley. I get occasional bubbles when I fill the syringe, but this was bordering on foam. Could that be something with the meds causing the reaction or the needles. I am curious what others have experienced. We are doing this for a year now and I though the site reactions diminished...but they have not. Thanks for any input.... Kim, Mom to 14 - CVID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 He refused to move his site also. Likes the front of the belly, about 2 inches away from his naval, on each side. We move it around that area, but he will not move to a different site. I just don't know...the reaction is tolerable...I just thought it would have diminished by now. AND...and wondering if the more severe reaction this week was due to the needle change or the foamy meds?? Hmmmmm Thanks! ~Kim SubQ Needle size and Reactions... > > > I am wondering what size needles most of you use for your SubQ? > My son is 14, a > small 100 lb. 14 year old. We were using 6mm needles at two > sites, 25 ml total. > He would get the same site reaction everyweek, same as day one. > A golf ball at > each site, hard...for the most part, gone by morning. A small > lump will remain > at each site for about 2 weeks. I mentioned this to the home > care agency and > the Dr. and it was suggested that he try a 9mm needle, that it > may eliviate the > site reaction and residual lump. NOT...site reaction was twice > as bad and > remained somewhat swollen into the next day. Could that be from > the needle? I > noticed when I filled the syringe, it was VERY bubbley. I get > occasional > bubbles when I fill the syringe, but this was bordering on foam. > Could that be > something with the meds causing the reaction or the needles. I > am curious what > others have experienced. We are doing this for a year now and I > though the site > reactions diminished...but they have not. Thanks for any > input.... > > > Kim, Mom to 14 - CVID > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 My son Blake was using 6mm with the 6 needle set....he now uses the 9mm needles with 5 sites. He does his sub-q 3 days a week..he is on 10grams(30 grams total) Gammagard S/D with a10%solution , Mom to Blake SCID with complete T-Cell Dysfunction http://www.caringbridge.org/visit/thetalesofblake " Children are like butterflies in the wind. Some fly higher than others, BUT each one flies the best they can!!!! " From: knmb22 <knmb2@...> Subject: SubQ Needle size and Reactions... Date: Thursday, April 7, 2011, 1:12 PM  I am wondering what size needles most of you use for your SubQ? My son is 14, a small 100 lb. 14 year old. We were using 6mm needles at two sites, 25 ml total. He would get the same site reaction everyweek, same as day one. A golf ball at each site, hard...for the most part, gone by morning. A small lump will remain at each site for about 2 weeks. I mentioned this to the home care agency and the Dr. and it was suggested that he try a 9mm needle, that it may eliviate the site reaction and residual lump. NOT...site reaction was twice as bad and remained somewhat swollen into the next day. Could that be from the needle? I noticed when I filled the syringe, it was VERY bubbley. I get occasional bubbles when I fill the syringe, but this was bordering on foam. Could that be something with the meds causing the reaction or the needles. I am curious what others have experienced. We are doing this for a year now and I though the site reactions diminished...but they have not. Thanks for any input.... Kim, Mom to 14 - CVID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 My son is 11 and is 82 lbs (up from 72 in November when we started!) and uses 4 sites with the 27/9mm needles. He gets a lump, but it goes away pretty quickly. He gets 7g total which is about 37mls. I would maybe call CSL Bering and ask them about the foaming and reaction. Perhaps they would have a suggestion for you. Mom to Caelan 11 (CVID, specific antibody deficiency, on Hizentra) _____ From: [mailto: ] On Behalf Of s Sent: Thursday, April 07, 2011 1:12 PM Subject: Re: SubQ Needle size and Reactions... My son Blake was using 6mm with the 6 needle set....he now uses the 9mm needles with 5 sites. He does his sub-q 3 days a week..he is on 10grams(30 grams total) Gammagard S/D with a10%solution , Mom to Blake SCID with complete T-Cell Dysfunction http://www.caringbridge.org/visit/thetalesofblake " Children are like butterflies in the wind. Some fly higher than others, BUT each one flies the best they can!!!! " From: knmb22 <knmb2@... <mailto:knmb2%40optonline.net> > Subject: SubQ Needle size and Reactions... <mailto:%40> Date: Thursday, April 7, 2011, 1:12 PM I am wondering what size needles most of you use for your SubQ? My son is 14, a small 100 lb. 14 year old. We were using 6mm needles at two sites, 25 ml total. He would get the same site reaction everyweek, same as day one. A golf ball at each site, hard...for the most part, gone by morning. A small lump will remain at each site for about 2 weeks. I mentioned this to the home care agency and the Dr. and it was suggested that he try a 9mm needle, that it may eliviate the site reaction and residual lump. NOT...site reaction was twice as bad and remained somewhat swollen into the next day. Could that be from the needle? I noticed when I filled the syringe, it was VERY bubbley. I get occasional bubbles when I fill the syringe, but this was bordering on foam. Could that be something with the meds causing the reaction or the needles. I am curious what others have experienced. We are doing this for a year now and I though the site reactions diminished...but they have not. Thanks for any input.... Kim, Mom to 14 - CVID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 I use an adapter to draw mine up rather than a needle. I used the needle for years and then found this. I will have to get the name. but it pierces the bottle and is a luer lock that draws out the solution. It is GREAT not more bubble and fast. BARBIE ________________________________ From: Herzberg <skgcifamily@...> Sent: Thu, April 7, 2011 11:21:18 AM Subject: RE: SubQ Needle size and Reactions... My son is 11 and is 82 lbs (up from 72 in November when we started!) and uses 4 sites with the 27/9mm needles. He gets a lump, but it goes away pretty quickly. He gets 7g total which is about 37mls. I would maybe call CSL Bering and ask them about the foaming and reaction. Perhaps they would have a suggestion for you. Mom to Caelan 11 (CVID, specific antibody deficiency, on Hizentra) _____ From: [mailto: ] On Behalf Of s Sent: Thursday, April 07, 2011 1:12 PM Subject: Re: SubQ Needle size and Reactions... My son Blake was using 6mm with the 6 needle set....he now uses the 9mm needles with 5 sites. He does his sub-q 3 days a week..he is on 10grams(30 grams total) Gammagard S/D with a10%solution , Mom to Blake SCID with complete T-Cell Dysfunction http://www.caringbridge.org/visit/thetalesofblake " Children are like butterflies in the wind. Some fly higher than others, BUT each one flies the best they can!!!! " From: knmb22 <knmb2@... <mailto:knmb2%40optonline.net> > Subject: SubQ Needle size and Reactions... <mailto:%40> Date: Thursday, April 7, 2011, 1:12 PM I am wondering what size needles most of you use for your SubQ? My son is 14, a small 100 lb. 14 year old. We were using 6mm needles at two sites, 25 ml total. He would get the same site reaction everyweek, same as day one. A golf ball at each site, hard...for the most part, gone by morning. A small lump will remain at each site for about 2 weeks. I mentioned this to the home care agency and the Dr. and it was suggested that he try a 9mm needle, that it may eliviate the site reaction and residual lump. NOT...site reaction was twice as bad and remained somewhat swollen into the next day. Could that be from the needle? I noticed when I filled the syringe, it was VERY bubbley. I get occasional bubbles when I fill the syringe, but this was bordering on foam. Could that be something with the meds causing the reaction or the needles. I am curious what others have experienced. We are doing this for a year now and I though the site reactions diminished...but they have not. Thanks for any input.... Kim, Mom to 14 - CVID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 I would think about the fact that the skin by the belly button is taught and has no where to swell due to the navel being static. The hip has move to move out and absorb better. My son is 14 and has special needs so he is stubborn too but I would encourage him to try because from what my son says it is MUCH less painful and again we use the Gammagard SD 10% and only 2 sites for the 60cc. NO problems with it. BARBIE ________________________________ From: " knmb2@... " <knmb2@...> Sent: Thu, April 7, 2011 10:31:17 AM Subject: Re: SubQ Needle size and Reactions... He refused to move his site also. Likes the front of the belly, about 2 inches away from his naval, on each side. We move it around that area, but he will not move to a different site. I just don't know...the reaction is tolerable...I just thought it would have diminished by now. AND...and wondering if the more severe reaction this week was due to the needle change or the foamy meds?? Hmmmmm Thanks! ~Kim SubQ Needle size and Reactions... > > > I am wondering what size needles most of you use for your SubQ? > My son is 14, a > small 100 lb. 14 year old. We were using 6mm needles at two > sites, 25 ml total. > He would get the same site reaction everyweek, same as day one. > A golf ball at > each site, hard...for the most part, gone by morning. A small > lump will remain > at each site for about 2 weeks. I mentioned this to the home > care agency and > the Dr. and it was suggested that he try a 9mm needle, that it > may eliviate the > site reaction and residual lump. NOT...site reaction was twice > as bad and > remained somewhat swollen into the next day. Could that be from > the needle? I > noticed when I filled the syringe, it was VERY bubbley. I get > occasional > bubbles when I fill the syringe, but this was bordering on foam. > Could that be > something with the meds causing the reaction or the needles. I > am curious what > others have experienced. We are doing this for a year now and I > though the site > reactions diminished...but they have not. Thanks for any > input.... > > > Kim, Mom to 14 - CVID > > > > > Quote Link to comment Share on other sites More sharing options...
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