Re: coxsackie virus

[Guest guest]

3 weeks? OMG. I hope it doesnt take that long! You're right, though, it takes

our kiddos so much longer than typical kids to get over anything.

He's taken a little yogurt, a little pudding, and a few bites of chicken noodle

soup today. Certainly not enough, but at least he isn't dehydrated. Been pushing

juice and water....it just hurts him so much to swallow. I worry about

dehydration, bc it seems to hit him hard when it happens.

I havent seen him pee in a while, so.....

what I hate is that I literally CANT miss school....my phlebotomy teacher is

already threatening to fail me bc I have to miss next wednesday for IVIG...well,

what can I do about that? seriously. But I really hate leaving the boys home

sick. My husband is here, but he's not the one who does all this stuff....meds

dont get done on time, or he doesnt remember what time this or that happened,

YKWIM? I want to be here bc I know what Im doing, this has been my job for ten

years.

I am hoping his infusion helps him get over it. Unless they refuse to let me

bring him...if he's still contagious next week...wow, that would really suck.

thanks for sharing your story.

It is so hard not to worry.

valarie

mom to 3 w/cvid

>

> , 9, CVID, asthma, etc., had sackie TWICE last winter. It is

> miserable. The wheezing and coughing is bad (he had to take prednisone),

> but the pain in the throat and mouth is the worst. It took three

> weeks each time to be able to go back to his full diet. Push fluids with

> glucose, i.e pedialyte, if his food intake is low. Sorry you are having

> to deal with this.

>

> Mindy

>

> > So..it appears the Donovan (11, CVID, asthma) has coxsackie. It was

> > strange, bc I was worried about my younger son (9, cvid, asthma) when over

> > the weekend he developed that awful croupy cough and couldnt catch his

> > breath.

> > Sunday night, Donovan had a slight cough, so when I made an appt for

> > Brennan on Monday, I went ahead and made one for Donovan as well. At the

> > time I made the appt, he had a slight cough and complained of a lumpy

> > throat.

> > So I took both boys in yesterday, and while its sinopulmonary crap as

> > ususal for Brennan, the dr shined a light in Donovans throat to show

> > me....I dont know. Its the weirdest looking thing...like a bright red

> > petechaiel (sp?) rash all over the roof of his mouth and back of throat.

> > His temp went from nonexistant to 100 to 103 in less than 8 hours.

> > His throat is so incredibly swollen and painful he cannot swallow, and the

> > drs given him Tylenol #3 for the throat pain.

> >

> > If he breaks out in any other rash, or bleeds from anywhere, he needs to

> > go straight back in.

> >

> > He woke up this morning at 3, feeling dizzy and unable to swallow, great

> > drops of tears running down his face. I felt so sorry for him.

> >

> > I wish IVIG was this week, its not till the 15th.

> >

> > Im trying to keep him isolated in the bedroom, as I have two other kids

> > with CVID in this house and I cant imagine what it would be like if they

> > all got it.

> >

> > valarie

> > mom to 3 w/cvid

> >

> >

>