Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Ok, so I'm looking for a little help here. My 8 year old son started Vivaglobin (SCIG) 9 months ago and we are having problems getting him to understand that this is something he may have to be on for awhile. He is doing very well these days and in his little 8 yr old mind, that means that he shouldn't have to do " the shots " anymore OR the daily antibiotic! We've tried explaining to him that the reason he feels so good, infection free is BECAUSE he's on the " shots " and antibiotic. It's not working! He gets the infusions twice a week and has for 9 months now and STILL everytime, he cries and tries to " fight " us. We are the parents, so he DOES get the shot but man is it a hassle! Just looking for some input...I know I'm not the only one that has had this problem so I'm looking for " tactics " or something to make him understand so that it goes smoother. He still thinks there is " an end in sight " , but truth be known...there may never be! How do you get an 8 yr old to understand this??? We actually got his IgG labs done yesterday and they came back high enough to where we may be able to back the infusion down to once a week or so. We, as his parents were VERY happy to hear this but when we told him, he started to cry and said... " but that means it will take longer " ! We weren't sure what he was thinking with that comment but then we figured out that he thinks he has an " alotted amount of infusions " , and if we go to once a week, it will take longer to " go through them " . How in the world do you explain this in 8-yr-old terms? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 > > Ok, so I'm looking for a little help here. My 8 year old son started Vivaglobin (SCIG) 9 months ago and we are having problems getting him to understand that this is something he may have to be on for awhile. He is doing very well these days and in his little 8 yr old mind, that means that he shouldn't have to do " the shots " anymore OR the daily antibiotic! We've tried explaining to him that the reason he feels so good, infection free is BECAUSE he's on the " shots " and antibiotic. It's not working! He gets the infusions twice a week and has for 9 months now and STILL everytime, he cries and tries to " fight " us. We are the parents, so he DOES get the shot but man is it a hassle! Just looking for some input...I know I'm not the only one that has had this problem so I'm looking for " tactics " or something to make him understand so that it goes smoother. He still thinks there is " an end in sight " , but truth be known...there may never be! How do you get an 8 yr old to understand this??? > > We actually got his IgG labs done yesterday and they came back high enough to where we may be able to back the infusion down to once a week or so. We, as his parents were VERY happy to hear this but when we told him, he started to cry and said... " but that means it will take longer " ! We weren't sure what he was thinking with that comment but then we figured out that he thinks he has an " alotted amount of infusions " , and if we go to once a week, it will take longer to " go through them " . How in the world do you explain this in 8-yr-old terms? > Hi , we have been there and are still there at 131/2. My son does fine some infusions and then others he just freaks out. He is angry particularly with God for making him this way. He wants it to ALL go away. I would encourage you to get some counseling to help him to work through the powerlessness of having a chronic disease. It may take him some time but hopefully he will eventually realize that we are all different and have different things that we deal with in life. And that some things we can change and others we cannot and that we have to find ways to live with these things and let them empower us to have an especially good life. I had chronic health issues as a teenager and it has taken a very long to time for me to come full circle and realize that my illness are a part of who I am and it allows me to have understanding and empathy and perseverance and so many other things that I may not have if I had not been through what I have in my life. It is a process and can be a very good out come if you can help him work through it. It is amazing that some kids just accept this stuff and others are really challenged by it. Keep the dialogue open and help him to have as many choices as you can around the infusions. It makes sense to go to once a week. I had not heard of them doing them 2x a week but the good thing is that he is doing better. BARBIE <\Mom to Lucas 13, CVID and all the other wonder coexisting things( asthma etc) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 > > Ok, so I'm looking for a little help here. My 8 year old son started Vivaglobin (SCIG) 9 months ago and we are having problems getting him to understand that this is something he may have to be on for awhile. He is doing very well these days and in his little 8 yr old mind, that means that he shouldn't have to do " the shots " anymore OR the daily antibiotic! We've tried explaining to him that the reason he feels so good, infection free is BECAUSE he's on the " shots " and antibiotic. It's not working! He gets the infusions twice a week and has for 9 months now and STILL everytime, he cries and tries to " fight " us. We are the parents, so he DOES get the shot but man is it a hassle! Just looking for some input...I know I'm not the only one that has had this problem so I'm looking for " tactics " or something to make him understand so that it goes smoother. He still thinks there is " an end in sight " , but truth be known...there may never be! How do you get an 8 yr old to understand this??? > > We actually got his IgG labs done yesterday and they came back high enough to where we may be able to back the infusion down to once a week or so. We, as his parents were VERY happy to hear this but when we told him, he started to cry and said... " but that means it will take longer " ! We weren't sure what he was thinking with that comment but then we figured out that he thinks he has an " alotted amount of infusions " , and if we go to once a week, it will take longer to " go through them " . How in the world do you explain this in 8-yr-old terms? > Hi , we have been there and are still there at 131/2. My son does fine some infusions and then others he just freaks out. He is angry particularly with God for making him this way. He wants it to ALL go away. I would encourage you to get some counseling to help him to work through the powerlessness of having a chronic disease. It may take him some time but hopefully he will eventually realize that we are all different and have different things that we deal with in life. And that some things we can change and others we cannot and that we have to find ways to live with these things and let them empower us to have an especially good life. I had chronic health issues as a teenager and it has taken a very long to time for me to come full circle and realize that my illness are a part of who I am and it allows me to have understanding and empathy and perseverance and so many other things that I may not have if I had not been through what I have in my life. It is a process and can be a very good out come if you can help him work through it. It is amazing that some kids just accept this stuff and others are really challenged by it. Keep the dialogue open and help him to have as many choices as you can around the infusions. It makes sense to go to once a week. I had not heard of them doing them 2x a week but the good thing is that he is doing better. BARBIE <\Mom to Lucas 13, CVID and all the other wonder coexisting things( asthma etc) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.