Re: Your Responses Are Noted (fundability & liable quality control)

[Guest guest]

In conclusion I have induced the following possibilities:

There is a narcisistic ego which desires to claim authority to autism.

Anyone claiming autism as there own collectively is objected to

regardless of the positive intention dispite the negative facts.

Autism sues in the title in your ego made you think I claimed

authority to you somehow, least with tom, with autism itself. (Just

like autism speaks the organization).

Indeed it's just a title to market, people with autism sue and the

story has to do with autism services, an autistic diagnosed with HFA

(not A.S) and the title worked. Untimately the problem lays in the

perception in which is not liked for unknown reasons.

Whatever I can at my disposal I will say within reasonable permiters

to advocate, servive and improve. I think the debate is not helpfull

to these things for me and ultimately counter active in harmfull ways.

So thus I have to defend myself from view points like yours for my own

protection.

Any relevent argument is not concerned but the more popular your

arguement becomes the more effective I am.

" ... <snip> ... You asked for opinions. She gave it to

> you. She has AS. I have AS. AS is different for the three of us. It

> will be different for EVERY autistic. That you don't like some opinions

> and like others is your right, but you ought to recognize that not

> everyone is going to agree with you, either outside of a courtroom, or

> inside of it. "

>

> wrote back: " ... <snip> ... It was accusational her opinon to

> state in anyway it was misleading. It's just negative reaction for

> past disagreements and neither of oyu should ethically argue against

> this. Both of you drive, you just have A.S and both of you are high

> functioning enough to adapt. It's not really either of your places

> honestly to jusge me nor anyone who does not have autism in a court

> room. It's deemed discrimination by anyone without autism ...

> <snip> ... "

>

> Here we go again, I see.

>

> Making an observation and then giving my opinion, based on how many

> Media Releases I put out in a year and most of which result in positive

> media coverage, is not being accusational. But I can see that you are

> going to continue to insist that it is, hoping that I will attack you

> as you are attacking me. That won't happen, .

>

> How can you be so dismissive of another's AS diagnosis? Do I ever post

> that you 'just have AS'? I do not. I would appreciate it if you would

> not attempt to lessen who I am by making dismissive comments such as

> the ones you have made about me in your post.

>

> Asperger Syndrome is Autism so I don't understand what you are going on

> about when you say that I do not have Autism.

>

> As for judging you, you asked for opinions and I gave you my opinion.

> It was not a judgment against you but rather observations on your Media

> Release. YOU made it personal because YOU do not like my opinion. I

> am not about to change my opinion so you can feel ok about the Media

> Release if I believe there are misleading components to your Media

> Release.

>

> You scream about discrimination against you as an Autistic but you

> obviously do not have any problems whatsoever with discrimination

> against Autistics who do not agree with YOUR line of reasoning.

>

> Raven

>

[Guest guest]

>

> " A.S is a seperate though relating condition. The developmental

> histologies differ in criterion. My expression should be endorced and

> not discrimated against for the adaptation which least in most

> respects neither of you qualify to relate to. "

>

> What's discriminatory is voiding our opinions because we do not have

> what you have. I am saying you have a right to your opinion, but I

> do not thingk you have a right to lump the rest of us in with this.

---I never implied that I did, I think your being selfish and blind

purposly not to see the good intention. Please get over it becuase

your are being distructive to the protective purpose your to selfish

to see.

>

> Here is what I see as being the main issue:

>

> These people were under contract to drive you in a smoke free

> vehicle. They did not. Therefore, they owe you money because they

> voided the terms and conditions of that contract.

>

> Because the contract would have been in effect whether or not you

> had autism, there is no point in bringing the autism into it.

The issue is a unique one. IT has to do with autism transportion

services funded by the government. Therefore its for autistics. Why

don't you just let it go and see the potential in the effect.

>

> That you are sensitive to smoke IS relevant in that it causes you

> distress. But secondhand smoke causes people who do NOT have autism

> distress too.

>

This does not validate becuase of differenciations. IT's just

marketing that your having issues with becuase you didnt think of the

idea first. Perhaps to see in intelect of it would benifit your view

point enough so that you will realizw that your objection is harmfull

itself.

> Just that you were caused distress ought to be enough to win the

> case. I just don't see the need to turn this into an autism thing.

Autism self-advotes need to attach to autism for adaption reasons.

This is a special needs political issue and not a mainstream typical

issue. It is directly relevent to both to purpose and mission of the

service provider to service those with autism and that of myself. It's

why the business transaction took place under contralled contractual

circumstances that were meant to protect those with " autism " and other

developmental disabilities.

It's police, it's marketing and it grabbed enough attention to be

effective. That's all that matters and that's what made the title so

good to protect those with autism and others with developmental

disabilities.

>

> Tom

> Administrator

>

[Guest guest]

" ... <snip> ... The regional center nor the

> transporation service provider offer services to people with A.S. "

>

> That's because people with AS are routinely discriminated against and

> as such, fare much worse than people who are diagnosed HFA when it

> comes to being able to secure appropriate resources and services.

>

> Raven

>

[Guest guest]

" ... <snip> ... The regional center nor the

> transporation service provider offer services to people with A.S. "

>

> That's because people with AS are routinely discriminated against and

> as such, fare much worse than people who are diagnosed HFA when it

> comes to being able to secure appropriate resources and services.

>

> Raven

>

[Guest guest]

" ... <snip> ... The regional center nor the

> transporation service provider offer services to people with A.S. "

>

> That's because people with AS are routinely discriminated against and

> as such, fare much worse than people who are diagnosed HFA when it

> comes to being able to secure appropriate resources and services.

>

> Raven

>

[Guest guest]

>

> You are correct!!!! Low pay attracts oftentimes those with

questionable motives. They can hold a licence and this makes them

worthy of pay. In my area there are several pushes to pay better

wages to those that serve the disabled, also more accountability.

when you hire anyone you get just that. some do not speak the

language and may not even be legal residents, others may have been

let go from prior positions because of violence.

I get something called PCA hours. The state pays for 12 hours weekly

10;43 an hr. For a personal care attendant. when i used this

service I paid out of pocket 5 additional dollars an hr so I could

hire a young teacher or college student that would teach Ravi skills,

or take him to places. One year I used my PCA hours to support him in

typical day camp, where one on one was unavailable and I wanted him

to participate. In any case it is hard to find someone willing to

forgoe the attraction of a better paying job, to do this work. i

would suggest however that you may benefit from finding a stay at

home mom who may just find this supplementary, as she might be home

anyway.

If you could do your own hiring as in my case I had choice and could

hire anyone. they just paid for only so many hrs a week. Do they

have PCA's in Calif?

[Guest guest]

>

> The irony here is that workers these days perform so poorly and

> companies take such big losses because of it, that the companies

> themselves are cutting pay and benefits to the workers.

>

> It is also ironic that such a civilized country as America is slowly

> becoming uncivilized in terms of pay and benefits when compared with

> Europe, mostly because people have poor work ethics here.

>

> Tom

> Administrator

>

Tom while this is true should be able to choose who

effectively " works for him " If he were a smoker and chose a smoker

than there would be no issue. It is because his rights are violated by

the very program parameters that discourse is assured. was

denied choice, and that disables him further

[Guest guest]

>

>

> I don't see how not having transportation somewhere imperils future

> quality of life.

>

> Tom

> Administrator

>

This statement makes no sense. transportation and access to it can

restrict opportunity and therefore directly impact quality of live.

many business ceases to be viable without transport. While on-line

courses exsist not all are offered all the time. Many years ago when

i left home I was carless (homeless to but that is another story)

During the used car buying process, we would arrive on bikes, with

our scant bit of money and try to make an offer. this process took 4

times longer than if we had a car. People precieved us as unreliable

because we were industrious and arrived on our own power. there was

an incident that a father drove his son to arrive just before us slow

bike riders to whip out a checkbook and buy his son a car. We really

needed transportation. (my daughter lived with my mother at the time)

in part because we didn't have transportation. In addition our

ability to obtain employment was also in jepordy based on not having

instant transpotation. opportunity doesn't always wait for travel

plans and taking 15 min Vs. and hour may mean getting or not getting

something

Did I mention my life has been very colorful??

[Guest guest]

>

> Alright. My point was merely that when you say " Autism sues... " you

> are making a blamket statement that the " difference " itself sues, and

> I, as an autistic, do not have your particular brand of autism.

> Therefore, to lump ME, and anyother autistic that is not like you,

> into your suit by proxy is unfair.

>

> Tom

> Administrator

>

Perhaps I will be slammed for this but here goes. Disability is part

of the case here and we all have an investment in the outcome. The

brand of disability is not an issue. CP,AS,ASD,Bi-

Polar,Downs,Cognitively challanged et al. do not deserve to have their

rights downplayed. As a splinter group what we allow to befall one of

our group simply seeks us out next, and allows society to blanket us

with preconceptions. Austics are violent, developmentally delayed,

socially backward. It induces fissures, and fragments us further. If

we stand up and say we want what is right for all of our brothers and

sisters, mothers and fathers, aunts and uncles regardless of color or

ability. they have the right to preform, exsist and partake as the

rest, then we show strength, and support each other.

For years i accepted that because i was female and not horrid loking(or

to be corse had holes in the right places) I had to accept that men

would abuse me. (sometime within my own extended family. I buyed into

it because it was all around me and within my own culture. It is only

now in my near 40's that I will stand for my daughter and fight tooth

and nail that because of gender that none shall suffer. Still I view

myself as less valuable and will eagerly run over any boy that hurts my

girls. However i do educate my girls to be realistic, not over expect

and be clear. We must teach our brothers to fish, and stand for their

right to learn how

[Guest guest]

>

I agree with you in theroy mostly but not always application.

It strikes me that you very much deal with preconceptions that

downplay your right to humanity. this may make you lashout. I don't

always agree with the lashing, but often I agree with the premise. i

do not know how how well your caregivers understand your needs or

discuss matters with you. It must seem like often you are under

attack and so you strike back, wishing to no longer participate in

your victimization. I can imagine constant defence is tiring,

especially when you are looked at as an adult child and so others may

not be honest or explain things in a kind way. In this forum you

seem capable of high level cognition, and i believe that throws

people off. It may be hard to see why things are difficult for you.

Although no doubt they are because as you have said you qualify for

services that others do not. Are there no ARC's that might help you

in self advocacy? Help you to define what is unjust, and state it in

a more pragmatic and less arguementitive way.

Negitivity usually makes people less willing to agree or listen. I

am not advocating that you cry but developing a more refined less

emotionally charged arguement makes people at least neutral and less

predisposed to deny you

[Guest guest]

>

> I have already talked to the media here and they take my story very

> seriously. In fact the health editor I was told would possible

> investigate.

>

> My father writes for the media and I was already offered a letter to

> the editor which at the time I declined. I believe it effective,

> reasonable, eye grabbing and I don't believe it rational to believe it

> was intended to be misleading or it is at all misleading.

I have the same problem in that I need others to validate my rightness

in a thing. I am simply too shy to ever actually consult with the

media, and I have no ability to produce anything attention grabbing as

I offer the solution with the problem and thus urgency is removed. i

am not sensational

[Guest guest]

Mmmmmmmmmmmm interesting - I have never owned a car. I have to rely

on either taxi's, public transport, my legs or bicycle - I tend to

walk a lot :-) I wouldn't say my quality of life is less, if anything

I think the walking is good for me and my son.

Yes I can imagine that in the business world having a car could be

percieved as having an edge on those without - but it is still

possible to succede without, just takes careful planning.

> >

> >

> > I don't see how not having transportation somewhere imperils

future

> > quality of life.

> >

> > Tom

> > Administrator

> >

> This statement makes no sense. transportation and access to it can

> restrict opportunity and therefore directly impact quality of

live.

> many business ceases to be viable without transport. While on-line

> courses exsist not all are offered all the time. Many years ago

when

> i left home I was carless (homeless to but that is another story)

> During the used car buying process, we would arrive on bikes, with

> our scant bit of money and try to make an offer. this process took

4

> times longer than if we had a car. People precieved us as

unreliable

> because we were industrious and arrived on our own power. there

was

> an incident that a father drove his son to arrive just before us

slow

> bike riders to whip out a checkbook and buy his son a car. We

really

> needed transportation. (my daughter lived with my mother at the

time)

> in part because we didn't have transportation. In addition our

> ability to obtain employment was also in jepordy based on not

having

> instant transpotation. opportunity doesn't always wait for travel

> plans and taking 15 min Vs. and hour may mean getting or not

getting

> something

>

> Did I mention my life has been very colorful??

>

[Guest guest]

My new service will show me how to use the bus. I know how to get to the mall but I don't like that place. Where I am moving in 6 or so months will be right next to a grocery store. It's a low income and disability apartment complex but of quality. So I will likely spend most of my life there.Also the bus stop is just outside of it. So then I can goto college which is on the same bus as the one that goes to the mall. I don't like the bus, it's to noisy and I just don't like it. When living in Fresno I could not figure out the bus at all to goto the grocery store. For some time I had not enough food.This new service becuase the last owners of the previous did what they did will also take me places. They originally took me to the customized employeement sceminar for dev disabilities and self-employment which was for teachers and social workers and so on. I decided then to do the candles as a business.greebohere

<julie.stevenson16@...> wrote: Mmmmmmmmmmmm interesting - I have never owned a car. I have to rely on either taxi's, public transport, my legs or bicycle - I tend to walk a lot :-) I wouldn't say my quality of life is less, if anything I think the walking is good for me and my son. Yes I can imagine that in the business world having a car could be percieved as having an edge on those without - but it is still possible to succede without, just takes careful planning. > > > > > > I don't see how not having transportation somewhere imperils future > > quality of life. > > > > Tom > > Administrator > > > This statement makes no sense. transportation and access to it can > restrict opportunity and therefore directly impact quality of live. > many business ceases to be viable without transport. While on-line > courses exsist not all are offered all the time. Many years ago when > i left home I was carless (homeless to but that is another story) > During the used car buying process,

we would arrive on bikes, with > our scant bit of money and try to make an offer. this process took 4 > times longer than if we had a car. People precieved us as unreliable > because we were industrious and arrived on our own power. there was > an incident that a father drove his son to arrive just before us slow > bike riders to whip out a checkbook and buy his son a car. We really > needed transportation. (my daughter lived with my mother at the time) > in part because we didn't have transportation. In addition our > ability to obtain employment was also in jepordy based on not having > instant transpotation. opportunity doesn't always wait for travel > plans and taking 15 min Vs. and hour may mean getting or not getting > something > > Did I mention my life has been very colorful?? >

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