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I think the reason they can choose between a state regulated plan and a self

insured plan is because company provided insurance is a fringe benefit and

not a requirement. Maybe has a better explanation since she has

been involved in this legislation.

Tonya

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of twinnfun

Sent: Saturday, September 01, 2007 9:13 PM

To: Texas-Autism-Advocacy

Subject: INSURANCE QUESTION

Could someone explain to me the reasoning behind the law that regulates

self-funded insurance?!? We are insured by United Healthcare through

Hewlett Packard which is therefore self funded and apparently regulated

by federal law rather than Texas State Law but I really do not

understand why the difference. If a company does business in a state,

any state, they need to comply with a host of state laws so why are

insurance companies excempt?!? For example Randall's is owned by

Safeway which is headquartered in Oakland, CA. HOWEVER, their stores

need to comply with health and safety codes, zoning laws, tax laws, and

any other applicable regulation etc. here in Texas if they want to do

business here in Texas - not just the federal law...So why does this

philosophy not apply to all types of businesses, including health

insurance?

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I think the reason they can choose between a state regulated plan and a self

insured plan is because company provided insurance is a fringe benefit and

not a requirement. Maybe has a better explanation since she has

been involved in this legislation.

Tonya

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of twinnfun

Sent: Saturday, September 01, 2007 9:13 PM

To: Texas-Autism-Advocacy

Subject: INSURANCE QUESTION

Could someone explain to me the reasoning behind the law that regulates

self-funded insurance?!? We are insured by United Healthcare through

Hewlett Packard which is therefore self funded and apparently regulated

by federal law rather than Texas State Law but I really do not

understand why the difference. If a company does business in a state,

any state, they need to comply with a host of state laws so why are

insurance companies excempt?!? For example Randall's is owned by

Safeway which is headquartered in Oakland, CA. HOWEVER, their stores

need to comply with health and safety codes, zoning laws, tax laws, and

any other applicable regulation etc. here in Texas if they want to do

business here in Texas - not just the federal law...So why does this

philosophy not apply to all types of businesses, including health

insurance?

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Share on other sites

I think the reason they can choose between a state regulated plan and a self

insured plan is because company provided insurance is a fringe benefit and

not a requirement. Maybe has a better explanation since she has

been involved in this legislation.

Tonya

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of twinnfun

Sent: Saturday, September 01, 2007 9:13 PM

To: Texas-Autism-Advocacy

Subject: INSURANCE QUESTION

Could someone explain to me the reasoning behind the law that regulates

self-funded insurance?!? We are insured by United Healthcare through

Hewlett Packard which is therefore self funded and apparently regulated

by federal law rather than Texas State Law but I really do not

understand why the difference. If a company does business in a state,

any state, they need to comply with a host of state laws so why are

insurance companies excempt?!? For example Randall's is owned by

Safeway which is headquartered in Oakland, CA. HOWEVER, their stores

need to comply with health and safety codes, zoning laws, tax laws, and

any other applicable regulation etc. here in Texas if they want to do

business here in Texas - not just the federal law...So why does this

philosophy not apply to all types of businesses, including health

insurance?

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There is a yahoo group: Autism_Insurance_Information that might be able to

answer this question for you.

twinnfun wrote:

Could someone explain to me the reasoning behind the law that

regulates

self-funded insurance?!? We are insured by United Healthcare through

Hewlett Packard which is therefore self funded and apparently regulated

by federal law rather than Texas State Law but I really do not

understand why the difference. If a company does business in a state,

any state, they need to comply with a host of state laws so why are

insurance companies excempt?!? For example Randall's is owned by

Safeway which is headquartered in Oakland, CA. HOWEVER, their stores

need to comply with health and safety codes, zoning laws, tax laws, and

any other applicable regulation etc. here in Texas if they want to do

business here in Texas - not just the federal law...So why does this

philosophy not apply to all types of businesses, including health

insurance?

Fran K.

atz99@...

Think Autism,Think Cure!

---------------------------------

Looking for a deal? Find great prices on flights and hotels with Yahoo!

FareChase.

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Insurance, like most things heavily regulated, is a maze of exceptions and

contradictory

rules that made sense when they were created, but have outlived their

usefulness or need

to be updated. Even updated rules can end up really screwy after they come

out of a

committee--ask any of the retired folks who are on Medicare and stuck in the

" doughnut " --

the name for the time during which their medication cost has exceeded their

allowable

coverage and when the supplemental medication plan picks up (I think thats

technically what

it is.)

I don't know the exact reasoning behind ERISA, the federal act that governs

large companies

who fund their own insurance plans BUT I do know that insurance is NOT the

only thing

covered under the law. ERISA also governs the rules. I bet if you google

" history of ERISA "

you will get some great info on it. BUT to date, the only people I know who

have gotten their

ABA programs fully funded for their kids with autism have ALL been under

ERISA plans.

So frankly, I don't really think the plans are bad--it what the company will

agree to pay for.

S.

Re: INSURANCE QUESTION

There is a yahoo group: Autism_Insurance_Information that might be able to

answer this question for you.

twinnfun wrote:

Could someone explain to me the reasoning behind the law that regulates

self-funded insurance?!? We are insured by United Healthcare through

Hewlett Packard which is therefore self funded and apparently regulated

by federal law rather than Texas State Law but I really do not

understand why the difference. If a company does business in a state,

any state, they need to comply with a host of state laws so why are

insurance companies excempt?!? For example Randall's is owned by

Safeway which is headquartered in Oakland, CA. HOWEVER, their stores

need to comply with health and safety codes, zoning laws, tax laws, and

any other applicable regulation etc. here in Texas if they want to do

business here in Texas - not just the federal law...So why does this

philosophy not apply to all types of businesses, including health

insurance?

Fran K.

atz99@...

Think Autism,Think Cure!

---------------------------------

Looking for a deal? Find great prices on flights and hotels with Yahoo!

FareChase.

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According to our human resources department, it's

" more cost effective. " In other words, it allows them

to not cover anything that they don't want to

cover.... As far as I know, all Houston area school

districts have self funded plans...

________________________________________________________________________________\

____

Yahoo! oneSearch: Finally, mobile search

that gives answers, not web links.

http://mobile.yahoo.com/mobileweb/onesearch?refer=1ONXIC

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According to our human resources department, it's

" more cost effective. " In other words, it allows them

to not cover anything that they don't want to

cover.... As far as I know, all Houston area school

districts have self funded plans...

________________________________________________________________________________\

____

Yahoo! oneSearch: Finally, mobile search

that gives answers, not web links.

http://mobile.yahoo.com/mobileweb/onesearch?refer=1ONXIC

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Share on other sites

According to our human resources department, it's

" more cost effective. " In other words, it allows them

to not cover anything that they don't want to

cover.... As far as I know, all Houston area school

districts have self funded plans...

________________________________________________________________________________\

____

Yahoo! oneSearch: Finally, mobile search

that gives answers, not web links.

http://mobile.yahoo.com/mobileweb/onesearch?refer=1ONXIC

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  • 4 years later...

I have a random insurance question...andra (CVID, FG Syndrome) is under

my husband's health insurance plan, since she is also a Regional client she

qualifies for Medi-Cal....I have never used the Medi-Cal option. Do any of

you have both private insurance and state insurance. I am wondering if

Medi-Cal would be more willing to finance referrals " outside of the

system " ....I have no idea about any of this but we are desperately trying

to get a referral to Cincinnati Children's. This has been dragging on for

well over a year (maybe longer....I've lost track) now and we really cannot

afford to finance the visit ourselves. Just wonder if anyone else has had

experience with this.

Thanks,

Jeane

Mom to andra 15

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Thanks for the input, Mindy....insurance is truly a blessing but there is

definitely a down side to it all!

On Mon, Jan 23, 2012 at 6:21 PM, <mindy@...> wrote:

> **

>

>

> My son has BCBS and Virginia Medicaid. THis works well in-state, because

> most of the time, Medicaid will cover our copays. We had to go

> out-of-state (to Atlanta) for testing last year, and the Medicaid didn't

> cover any of it. If you are going to a " border " city, the hospital may

> take your out-of-state Medicaid benefits, but you would have to actually

> ask the providers if they will take it. Sorry...

>

> Mindy, mom to , 9, CVID+

>

> > I have a random insurance question...andra (CVID, FG Syndrome) is

> > under

> > my husband's health insurance plan, since she is also a Regional client

> > she

> > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do any

> > of

> > you have both private insurance and state insurance. I am wondering if

> > Medi-Cal would be more willing to finance referrals " outside of the

> > system " ....I have no idea about any of this but we are desperately trying

> > to get a referral to Cincinnati Children's. This has been dragging on

> > for

> > well over a year (maybe longer....I've lost track) now and we really

> > cannot

> > afford to finance the visit ourselves. Just wonder if anyone else has had

> > experience with this.

> >

> > Thanks,

> >

> > Jeane

> > Mom to andra 15

> >

> >

> >

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Thanks for the input, Mindy....insurance is truly a blessing but there is

definitely a down side to it all!

On Mon, Jan 23, 2012 at 6:21 PM, <mindy@...> wrote:

> **

>

>

> My son has BCBS and Virginia Medicaid. THis works well in-state, because

> most of the time, Medicaid will cover our copays. We had to go

> out-of-state (to Atlanta) for testing last year, and the Medicaid didn't

> cover any of it. If you are going to a " border " city, the hospital may

> take your out-of-state Medicaid benefits, but you would have to actually

> ask the providers if they will take it. Sorry...

>

> Mindy, mom to , 9, CVID+

>

> > I have a random insurance question...andra (CVID, FG Syndrome) is

> > under

> > my husband's health insurance plan, since she is also a Regional client

> > she

> > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do any

> > of

> > you have both private insurance and state insurance. I am wondering if

> > Medi-Cal would be more willing to finance referrals " outside of the

> > system " ....I have no idea about any of this but we are desperately trying

> > to get a referral to Cincinnati Children's. This has been dragging on

> > for

> > well over a year (maybe longer....I've lost track) now and we really

> > cannot

> > afford to finance the visit ourselves. Just wonder if anyone else has had

> > experience with this.

> >

> > Thanks,

> >

> > Jeane

> > Mom to andra 15

> >

> >

> >

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Not sure on all that, but I wonder how so many get their kids to even qualify

for state stuff? Does BCMH (in Ohio) cover CVID? This question to anyone who

knows :)) I believe we make too much to qualify Makenzie for Medicaid (I think

that is what she would get?) so we have insurance, but pay ALL copays, etc etc

etc :((( and have for her whole 11 years, yes it gets very expensive, looking at

my checkbook normal people would crap lol,

Makenzie 11

22

>

> > **

> >

> >

> > My son has BCBS and Virginia Medicaid. THis works well in-state, because

> > most of the time, Medicaid will cover our copays. We had to go

> > out-of-state (to Atlanta) for testing last year, and the Medicaid didn't

> > cover any of it. If you are going to a " border " city, the hospital may

> > take your out-of-state Medicaid benefits, but you would have to actually

> > ask the providers if they will take it. Sorry...

> >

> > Mindy, mom to , 9, CVID+

> >

> > > I have a random insurance question...andra (CVID, FG Syndrome) is

> > > under

> > > my husband's health insurance plan, since she is also a Regional client

> > > she

> > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do any

> > > of

> > > you have both private insurance and state insurance. I am wondering if

> > > Medi-Cal would be more willing to finance referrals " outside of the

> > > system " ....I have no idea about any of this but we are desperately trying

> > > to get a referral to Cincinnati Children's. This has been dragging on

> > > for

> > > well over a year (maybe longer....I've lost track) now and we really

> > > cannot

> > > afford to finance the visit ourselves. Just wonder if anyone else has had

> > > experience with this.

> > >

> > > Thanks,

> > >

> > > Jeane

> > > Mom to andra 15

> > >

> > >

> > >

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Not sure on all that, but I wonder how so many get their kids to even qualify

for state stuff? Does BCMH (in Ohio) cover CVID? This question to anyone who

knows :)) I believe we make too much to qualify Makenzie for Medicaid (I think

that is what she would get?) so we have insurance, but pay ALL copays, etc etc

etc :((( and have for her whole 11 years, yes it gets very expensive, looking at

my checkbook normal people would crap lol,

Makenzie 11

22

>

> > **

> >

> >

> > My son has BCBS and Virginia Medicaid. THis works well in-state, because

> > most of the time, Medicaid will cover our copays. We had to go

> > out-of-state (to Atlanta) for testing last year, and the Medicaid didn't

> > cover any of it. If you are going to a " border " city, the hospital may

> > take your out-of-state Medicaid benefits, but you would have to actually

> > ask the providers if they will take it. Sorry...

> >

> > Mindy, mom to , 9, CVID+

> >

> > > I have a random insurance question...andra (CVID, FG Syndrome) is

> > > under

> > > my husband's health insurance plan, since she is also a Regional client

> > > she

> > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do any

> > > of

> > > you have both private insurance and state insurance. I am wondering if

> > > Medi-Cal would be more willing to finance referrals " outside of the

> > > system " ....I have no idea about any of this but we are desperately trying

> > > to get a referral to Cincinnati Children's. This has been dragging on

> > > for

> > > well over a year (maybe longer....I've lost track) now and we really

> > > cannot

> > > afford to finance the visit ourselves. Just wonder if anyone else has had

> > > experience with this.

> > >

> > > Thanks,

> > >

> > > Jeane

> > > Mom to andra 15

> > >

> > >

> > >

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-

BCMH does cover CVID. My son was just diagnosed and his therapy will be covered

at 100%. Be sure the patient sees a BCMH provider...

Re: Insurance Question

Not sure on all that, but I wonder how so many get their kids to even qualify

for state stuff? Does BCMH (in Ohio) cover CVID? This question to anyone who

knows :)) I believe we make too much to qualify Makenzie for Medicaid (I think

that is what she would get?) so we have insurance, but pay ALL copays, etc etc

etc :((( and have for her whole 11 years, yes it gets very expensive, looking at

my checkbook normal people would crap lol,

Makenzie 11

22

>

> > **

> >

> >

> > My son has BCBS and Virginia Medicaid. THis works well in-state, because

> > most of the time, Medicaid will cover our copays. We had to go

> > out-of-state (to Atlanta) for testing last year, and the Medicaid didn't

> > cover any of it. If you are going to a " border " city, the hospital may

> > take your out-of-state Medicaid benefits, but you would have to actually

> > ask the providers if they will take it. Sorry...

> >

> > Mindy, mom to , 9, CVID+

> >

> > > I have a random insurance question...andra (CVID, FG Syndrome) is

> > > under

> > > my husband's health insurance plan, since she is also a Regional client

> > > she

> > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do any

> > > of

> > > you have both private insurance and state insurance. I am wondering if

> > > Medi-Cal would be more willing to finance referrals " outside of the

> > > system " ....I have no idea about any of this but we are desperately trying

> > > to get a referral to Cincinnati Children's. This has been dragging on

> > > for

> > > well over a year (maybe longer....I've lost track) now and we really

> > > cannot

> > > afford to finance the visit ourselves. Just wonder if anyone else has had

> > > experience with this.

> > >

> > > Thanks,

> > >

> > > Jeane

> > > Mom to andra 15

> > >

> > >

> > >

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-

BCMH does cover CVID. My son was just diagnosed and his therapy will be covered

at 100%. Be sure the patient sees a BCMH provider...

Re: Insurance Question

Not sure on all that, but I wonder how so many get their kids to even qualify

for state stuff? Does BCMH (in Ohio) cover CVID? This question to anyone who

knows :)) I believe we make too much to qualify Makenzie for Medicaid (I think

that is what she would get?) so we have insurance, but pay ALL copays, etc etc

etc :((( and have for her whole 11 years, yes it gets very expensive, looking at

my checkbook normal people would crap lol,

Makenzie 11

22

>

> > **

> >

> >

> > My son has BCBS and Virginia Medicaid. THis works well in-state, because

> > most of the time, Medicaid will cover our copays. We had to go

> > out-of-state (to Atlanta) for testing last year, and the Medicaid didn't

> > cover any of it. If you are going to a " border " city, the hospital may

> > take your out-of-state Medicaid benefits, but you would have to actually

> > ask the providers if they will take it. Sorry...

> >

> > Mindy, mom to , 9, CVID+

> >

> > > I have a random insurance question...andra (CVID, FG Syndrome) is

> > > under

> > > my husband's health insurance plan, since she is also a Regional client

> > > she

> > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do any

> > > of

> > > you have both private insurance and state insurance. I am wondering if

> > > Medi-Cal would be more willing to finance referrals " outside of the

> > > system " ....I have no idea about any of this but we are desperately trying

> > > to get a referral to Cincinnati Children's. This has been dragging on

> > > for

> > > well over a year (maybe longer....I've lost track) now and we really

> > > cannot

> > > afford to finance the visit ourselves. Just wonder if anyone else has had

> > > experience with this.

> > >

> > > Thanks,

> > >

> > > Jeane

> > > Mom to andra 15

> > >

> > >

> > >

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I'm not sure if this is relevant to you, but just to avoid sticker shock.  We

have two forms of Blue Cross/Blue Shield, primary is of California, secondary is

of Alabama.  Our first day visit with Dr. Bleesing was billed at $20,000.  He

drew 22 vials of blood and much of that was to cover those lab tests.  There

was also a very expensive Gallbladder study on that day.  They bill the

insurance at the end of the day and they do not use line itemizations for each

test, just an overall bill for the day.  Now, having scared you to death with

that bill, my primary Blue Cross covered almost all of the bill.  Whatever

agreement CCH has with Blue Cross, they are getting paid well.  I don't know

yet what our out of pocket will be as the secondary is still outstanding.

Hope that helps,

Vickie

From: Kookoo <nalla70@...>

Subject: Re: Insurance Question

Date: Tuesday, January 24, 2012, 9:13 AM

 

Not sure on all that, but I wonder how so many get their kids to even

qualify for state stuff? Does BCMH (in Ohio) cover CVID? This question to anyone

who knows :)) I believe we make too much to qualify Makenzie for Medicaid (I

think that is what she would get?) so we have insurance, but pay ALL copays, etc

etc etc :((( and have for her whole 11 years, yes it gets very expensive,

looking at my checkbook normal people would crap lol,

Makenzie 11

22

>

> > **

> >

> >

> > My son has BCBS and Virginia Medicaid. THis works well in-state, because

> > most of the time, Medicaid will cover our copays. We had to go

> > out-of-state (to Atlanta) for testing last year, and the Medicaid didn't

> > cover any of it. If you are going to a " border " city, the hospital may

> > take your out-of-state Medicaid benefits, but you would have to actually

> > ask the providers if they will take it. Sorry...

> >

> > Mindy, mom to , 9, CVID+

> >

> > > I have a random insurance question...andra (CVID, FG Syndrome) is

> > > under

> > > my husband's health insurance plan, since she is also a Regional client

> > > she

> > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do any

> > > of

> > > you have both private insurance and state insurance. I am wondering if

> > > Medi-Cal would be more willing to finance referrals " outside of the

> > > system " ....I have no idea about any of this but we are desperately trying

> > > to get a referral to Cincinnati Children's. This has been dragging on

> > > for

> > > well over a year (maybe longer....I've lost track) now and we really

> > > cannot

> > > afford to finance the visit ourselves. Just wonder if anyone else has had

> > > experience with this.

> > >

> > > Thanks,

> > >

> > > Jeane

> > > Mom to andra 15

> > >

> > >

> > >

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I'm not sure if this is relevant to you, but just to avoid sticker shock.  We

have two forms of Blue Cross/Blue Shield, primary is of California, secondary is

of Alabama.  Our first day visit with Dr. Bleesing was billed at $20,000.  He

drew 22 vials of blood and much of that was to cover those lab tests.  There

was also a very expensive Gallbladder study on that day.  They bill the

insurance at the end of the day and they do not use line itemizations for each

test, just an overall bill for the day.  Now, having scared you to death with

that bill, my primary Blue Cross covered almost all of the bill.  Whatever

agreement CCH has with Blue Cross, they are getting paid well.  I don't know

yet what our out of pocket will be as the secondary is still outstanding.

Hope that helps,

Vickie

From: Kookoo <nalla70@...>

Subject: Re: Insurance Question

Date: Tuesday, January 24, 2012, 9:13 AM

 

Not sure on all that, but I wonder how so many get their kids to even

qualify for state stuff? Does BCMH (in Ohio) cover CVID? This question to anyone

who knows :)) I believe we make too much to qualify Makenzie for Medicaid (I

think that is what she would get?) so we have insurance, but pay ALL copays, etc

etc etc :((( and have for her whole 11 years, yes it gets very expensive,

looking at my checkbook normal people would crap lol,

Makenzie 11

22

>

> > **

> >

> >

> > My son has BCBS and Virginia Medicaid. THis works well in-state, because

> > most of the time, Medicaid will cover our copays. We had to go

> > out-of-state (to Atlanta) for testing last year, and the Medicaid didn't

> > cover any of it. If you are going to a " border " city, the hospital may

> > take your out-of-state Medicaid benefits, but you would have to actually

> > ask the providers if they will take it. Sorry...

> >

> > Mindy, mom to , 9, CVID+

> >

> > > I have a random insurance question...andra (CVID, FG Syndrome) is

> > > under

> > > my husband's health insurance plan, since she is also a Regional client

> > > she

> > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do any

> > > of

> > > you have both private insurance and state insurance. I am wondering if

> > > Medi-Cal would be more willing to finance referrals " outside of the

> > > system " ....I have no idea about any of this but we are desperately trying

> > > to get a referral to Cincinnati Children's. This has been dragging on

> > > for

> > > well over a year (maybe longer....I've lost track) now and we really

> > > cannot

> > > afford to finance the visit ourselves. Just wonder if anyone else has had

> > > experience with this.

> > >

> > > Thanks,

> > >

> > > Jeane

> > > Mom to andra 15

> > >

> > >

> > >

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From experience and from working with National Patient Advocacy Foundation I can

tell you that a Medicaid plan will not pay for out of state care. The GREAT

purpose for medicare would be to pick up your deductibles and copays in Ca that

your primary insurance does not pay. A provider cannot charge you beyond what

your primary insurance pays if you show them your medical card. You may be able

to get your primary insurance to pay if you can prove to them that the care is

not available in your state but I do not think they will believe that in a state

like California with the level of care available there at UCLA, Stanford and

other BIG University Hospitals. Sadly with the way our system is right now the

ability to get care in other states is almost impossible. It is all about saving

money and so if you have the financial resources is the only way to get the

care out of state except for a consultation. It might be worthwhile to contact

IDF to help you find a specialist to help you for the problems you are having

specifically. There may be someone better aware of how to deal with her needs on

a consultant basis even in an out of state institution. It would take working

with someone to advocate for you or having the labs etc drawn in CA and having

someone consult from out of state such as at the Cleveland Clinic. Is there

a Pediatrician or Immunologist that could help you get the answers you are

seeking?

Barbie

Lucas with CVID, Bipolar etc

 

BARBIE  

>________________________________

> From: Kookoo <nalla70@...>

>

>Sent: Tuesday, January 24, 2012 9:13 AM

>Subject: Re: Insurance Question

>

>

>

> 

>

>Not sure on all that, but I wonder how so many get their kids to even qualify

for state stuff? Does BCMH (in Ohio) cover CVID? This question to anyone who

knows :)) I believe we make too much to qualify Makenzie for Medicaid (I think

that is what she would get?) so we have insurance, but pay ALL copays, etc etc

etc :((( and have for her whole 11 years, yes it gets very expensive, looking at

my checkbook normal people would crap lol,

>

>Makenzie 11

> 22

>

>

>>

>> > **

>> >

>> >

>> > My son has BCBS and Virginia Medicaid. THis works well in-state, because

>> > most of the time, Medicaid will cover our copays. We had to go

>> > out-of-state (to Atlanta) for testing last year, and the Medicaid didn't

>> > cover any of it. If you are going to a " border " city, the hospital may

>> > take your out-of-state Medicaid benefits, but you would have to actually

>> > ask the providers if they will take it. Sorry...

>> >

>> > Mindy, mom to , 9, CVID+

>> >

>> > > I have a random insurance question...andra (CVID, FG Syndrome) is

>> > > under

>> > > my husband's health insurance plan, since she is also a Regional client

>> > > she

>> > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do any

>> > > of

>> > > you have both private insurance and state insurance. I am wondering if

>> > > Medi-Cal would be more willing to finance referrals " outside of the

>> > > system " ....I have no idea about any of this but we are desperately trying

>> > > to get a referral to Cincinnati Children's. This has been dragging on

>> > > for

>> > > well over a year (maybe longer....I've lost track) now and we really

>> > > cannot

>> > > afford to finance the visit ourselves. Just wonder if anyone else has had

>> > > experience with this.

>> > >

>> > > Thanks,

>> > >

>> > > Jeane

>> > > Mom to andra 15

>> > >

>> > >

>> > >

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Share on other sites

From experience and from working with National Patient Advocacy Foundation I can

tell you that a Medicaid plan will not pay for out of state care. The GREAT

purpose for medicare would be to pick up your deductibles and copays in Ca that

your primary insurance does not pay. A provider cannot charge you beyond what

your primary insurance pays if you show them your medical card. You may be able

to get your primary insurance to pay if you can prove to them that the care is

not available in your state but I do not think they will believe that in a state

like California with the level of care available there at UCLA, Stanford and

other BIG University Hospitals. Sadly with the way our system is right now the

ability to get care in other states is almost impossible. It is all about saving

money and so if you have the financial resources is the only way to get the

care out of state except for a consultation. It might be worthwhile to contact

IDF to help you find a specialist to help you for the problems you are having

specifically. There may be someone better aware of how to deal with her needs on

a consultant basis even in an out of state institution. It would take working

with someone to advocate for you or having the labs etc drawn in CA and having

someone consult from out of state such as at the Cleveland Clinic. Is there

a Pediatrician or Immunologist that could help you get the answers you are

seeking?

Barbie

Lucas with CVID, Bipolar etc

 

BARBIE  

>________________________________

> From: Kookoo <nalla70@...>

>

>Sent: Tuesday, January 24, 2012 9:13 AM

>Subject: Re: Insurance Question

>

>

>

> 

>

>Not sure on all that, but I wonder how so many get their kids to even qualify

for state stuff? Does BCMH (in Ohio) cover CVID? This question to anyone who

knows :)) I believe we make too much to qualify Makenzie for Medicaid (I think

that is what she would get?) so we have insurance, but pay ALL copays, etc etc

etc :((( and have for her whole 11 years, yes it gets very expensive, looking at

my checkbook normal people would crap lol,

>

>Makenzie 11

> 22

>

>

>>

>> > **

>> >

>> >

>> > My son has BCBS and Virginia Medicaid. THis works well in-state, because

>> > most of the time, Medicaid will cover our copays. We had to go

>> > out-of-state (to Atlanta) for testing last year, and the Medicaid didn't

>> > cover any of it. If you are going to a " border " city, the hospital may

>> > take your out-of-state Medicaid benefits, but you would have to actually

>> > ask the providers if they will take it. Sorry...

>> >

>> > Mindy, mom to , 9, CVID+

>> >

>> > > I have a random insurance question...andra (CVID, FG Syndrome) is

>> > > under

>> > > my husband's health insurance plan, since she is also a Regional client

>> > > she

>> > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do any

>> > > of

>> > > you have both private insurance and state insurance. I am wondering if

>> > > Medi-Cal would be more willing to finance referrals " outside of the

>> > > system " ....I have no idea about any of this but we are desperately trying

>> > > to get a referral to Cincinnati Children's. This has been dragging on

>> > > for

>> > > well over a year (maybe longer....I've lost track) now and we really

>> > > cannot

>> > > afford to finance the visit ourselves. Just wonder if anyone else has had

>> > > experience with this.

>> > >

>> > > Thanks,

>> > >

>> > > Jeane

>> > > Mom to andra 15

>> > >

>> > >

>> > >

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Share on other sites

Yikes! $20,000....Well, we do have the option with our insurance to choose

a PPO with Blue Cross but the premiums are staggering....about $1000 more a

month than what we are paying now, since my husband works for a healthcare

company that self-insures they really try to make it undesirable to choose

Blue Cross over the company insurance....soooo frustrating! Well, paying

out of pocket sounds a little daunting, if not impossible for us.

Thanks for the heads up on the cost of a Cincinnati visit!

Jeane

On Tue, Jan 24, 2012 at 10:37 AM, Vickie

<victoriatfoster@...>wrote:

> **

>

>

> I'm not sure if this is relevant to you, but just to avoid sticker shock.

> We have two forms of Blue Cross/Blue Shield, primary is of California,

> secondary is of Alabama. Our first day visit with Dr. Bleesing was billed

> at $20,000. He drew 22 vials of blood and much of that was to cover those

> lab tests. There was also a very expensive Gallbladder study on that day.

> They bill the insurance at the end of the day and they do not use line

> itemizations for each test, just an overall bill for the day. Now, having

> scared you to death with that bill, my primary Blue Cross covered almost

> all of the bill. Whatever agreement CCH has with Blue Cross, they are

> getting paid well. I don't know yet what our out of pocket will be as the

> secondary is still outstanding.

> Hope that helps,

> Vickie

>

>

>

> From: Kookoo <nalla70@...>

> Subject: Re: Insurance Question

>

> Date: Tuesday, January 24, 2012, 9:13 AM

>

>

>

> Not sure on all that, but I wonder how so many get their kids to even

> qualify for state stuff? Does BCMH (in Ohio) cover CVID? This question to

> anyone who knows :)) I believe we make too much to qualify Makenzie for

> Medicaid (I think that is what she would get?) so we have insurance, but

> pay ALL copays, etc etc etc :((( and have for her whole 11 years, yes it

> gets very expensive, looking at my checkbook normal people would crap lol,

>

>

>

> Makenzie 11

>

> 22

>

>

>

> >

>

> > > **

>

> > >

>

> > >

>

> > > My son has BCBS and Virginia Medicaid. THis works well in-state,

> because

>

> > > most of the time, Medicaid will cover our copays. We had to go

>

> > > out-of-state (to Atlanta) for testing last year, and the Medicaid

> didn't

>

> > > cover any of it. If you are going to a " border " city, the hospital may

>

> > > take your out-of-state Medicaid benefits, but you would have to

> actually

>

> > > ask the providers if they will take it. Sorry...

>

> > >

>

> > > Mindy, mom to , 9, CVID+

>

> > >

>

> > > > I have a random insurance question...andra (CVID, FG Syndrome) is

>

> > > > under

>

> > > > my husband's health insurance plan, since she is also a Regional

> client

>

> > > > she

>

> > > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do

> any

>

> > > > of

>

> > > > you have both private insurance and state insurance. I am wondering

> if

>

> > > > Medi-Cal would be more willing to finance referrals " outside of the

>

> > > > system " ....I have no idea about any of this but we are desperately

> trying

>

> > > > to get a referral to Cincinnati Children's. This has been dragging on

>

> > > > for

>

> > > > well over a year (maybe longer....I've lost track) now and we really

>

> > > > cannot

>

> > > > afford to finance the visit ourselves. Just wonder if anyone else

> has had

>

> > > > experience with this.

>

> > > >

>

> > > > Thanks,

>

> > > >

>

> > > > Jeane

>

> > > > Mom to andra 15

>

> > > >

>

> > > >

>

> > > >

Link to comment
Share on other sites

Yikes! $20,000....Well, we do have the option with our insurance to choose

a PPO with Blue Cross but the premiums are staggering....about $1000 more a

month than what we are paying now, since my husband works for a healthcare

company that self-insures they really try to make it undesirable to choose

Blue Cross over the company insurance....soooo frustrating! Well, paying

out of pocket sounds a little daunting, if not impossible for us.

Thanks for the heads up on the cost of a Cincinnati visit!

Jeane

On Tue, Jan 24, 2012 at 10:37 AM, Vickie

<victoriatfoster@...>wrote:

> **

>

>

> I'm not sure if this is relevant to you, but just to avoid sticker shock.

> We have two forms of Blue Cross/Blue Shield, primary is of California,

> secondary is of Alabama. Our first day visit with Dr. Bleesing was billed

> at $20,000. He drew 22 vials of blood and much of that was to cover those

> lab tests. There was also a very expensive Gallbladder study on that day.

> They bill the insurance at the end of the day and they do not use line

> itemizations for each test, just an overall bill for the day. Now, having

> scared you to death with that bill, my primary Blue Cross covered almost

> all of the bill. Whatever agreement CCH has with Blue Cross, they are

> getting paid well. I don't know yet what our out of pocket will be as the

> secondary is still outstanding.

> Hope that helps,

> Vickie

>

>

>

> From: Kookoo <nalla70@...>

> Subject: Re: Insurance Question

>

> Date: Tuesday, January 24, 2012, 9:13 AM

>

>

>

> Not sure on all that, but I wonder how so many get their kids to even

> qualify for state stuff? Does BCMH (in Ohio) cover CVID? This question to

> anyone who knows :)) I believe we make too much to qualify Makenzie for

> Medicaid (I think that is what she would get?) so we have insurance, but

> pay ALL copays, etc etc etc :((( and have for her whole 11 years, yes it

> gets very expensive, looking at my checkbook normal people would crap lol,

>

>

>

> Makenzie 11

>

> 22

>

>

>

> >

>

> > > **

>

> > >

>

> > >

>

> > > My son has BCBS and Virginia Medicaid. THis works well in-state,

> because

>

> > > most of the time, Medicaid will cover our copays. We had to go

>

> > > out-of-state (to Atlanta) for testing last year, and the Medicaid

> didn't

>

> > > cover any of it. If you are going to a " border " city, the hospital may

>

> > > take your out-of-state Medicaid benefits, but you would have to

> actually

>

> > > ask the providers if they will take it. Sorry...

>

> > >

>

> > > Mindy, mom to , 9, CVID+

>

> > >

>

> > > > I have a random insurance question...andra (CVID, FG Syndrome) is

>

> > > > under

>

> > > > my husband's health insurance plan, since she is also a Regional

> client

>

> > > > she

>

> > > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do

> any

>

> > > > of

>

> > > > you have both private insurance and state insurance. I am wondering

> if

>

> > > > Medi-Cal would be more willing to finance referrals " outside of the

>

> > > > system " ....I have no idea about any of this but we are desperately

> trying

>

> > > > to get a referral to Cincinnati Children's. This has been dragging on

>

> > > > for

>

> > > > well over a year (maybe longer....I've lost track) now and we really

>

> > > > cannot

>

> > > > afford to finance the visit ourselves. Just wonder if anyone else

> has had

>

> > > > experience with this.

>

> > > >

>

> > > > Thanks,

>

> > > >

>

> > > > Jeane

>

> > > > Mom to andra 15

>

> > > >

>

> > > >

>

> > > >

Link to comment
Share on other sites

Thanks, Barbie for the information....I guess we will go back to the

drawing board....unfortunately our pediatrician has washed her hands of

helping me. We are currently trying to find another one. She was the one

who struck the final death blow to our request to go to Cincinnati, she

withdrew her support and told the insurance company that andra did not

have a bone marrow failure issue, that her counts were stable (despite the

evidence of all the CBC's/BMB that have been done). Our immunologist is

the one pushing us to go for more opinions but when it comes right down to

us getting a letter of support for this referral he has never produced one

and has never been available to talk to the insurance company....the list

goes on and on. I feel like I'm beating my head against the wall!

Jeane

On Tue, Jan 24, 2012 at 1:21 PM, Barbara Jimenez <mother5590@...>wrote:

> **

>

>

> From experience and from working with National Patient Advocacy Foundation

> I can

> tell you that a Medicaid plan will not pay for out of state care. The

> GREAT

> purpose for medicare would be to pick up your deductibles and copays in Ca

> that

> your primary insurance does not pay. A provider cannot charge you beyond

> what

> your primary insurance pays if you show them your medical card. You may be

> able

> to get your primary insurance to pay if you can prove to them that the

> care is

> not available in your state but I do not think they will believe that in a

> state

> like California with the level of care available there at UCLA, Stanford

> and

> other BIG University Hospitals. Sadly with the way our system is right now

> the

> ability to get care in other states is almost impossible. It is all about

> saving

> money and so if you have the financial resources is the only way to get

> the

> care out of state except for a consultation. It might be worthwhile to

> contact

> IDF to help you find a specialist to help you for the problems you are

> having

> specifically. There may be someone better aware of how to deal with her

> needs on

> a consultant basis even in an out of state institution. It would take

> working

> with someone to advocate for you or having the labs etc drawn in CA and

> having

> someone consult from out of state such as at the Cleveland Clinic. Is

> there

> a Pediatrician or Immunologist that could help you get the answers you are

> seeking?

> Barbie

> Lucas with CVID, Bipolar etc

>

>

> BARBIE

>

> >________________________________

> > From: Kookoo <nalla70@...>

> >

> >Sent: Tuesday, January 24, 2012 9:13 AM

> >Subject: Re: Insurance Question

> >

> >

> >

> >

> >

> >Not sure on all that, but I wonder how so many get their kids to even

> qualify for state stuff? Does BCMH (in Ohio) cover CVID? This question to

> anyone who knows :)) I believe we make too much to qualify Makenzie for

> Medicaid (I think that is what she would get?) so we have insurance, but

> pay ALL copays, etc etc etc :((( and have for her whole 11 years, yes it

> gets very expensive, looking at my checkbook normal people would crap lol,

> >

> >Makenzie 11

> > 22

> >

> >

> >>

> >> > **

> >> >

> >> >

> >> > My son has BCBS and Virginia Medicaid. THis works well in-state,

> because

> >> > most of the time, Medicaid will cover our copays. We had to go

> >> > out-of-state (to Atlanta) for testing last year, and the Medicaid

> didn't

> >> > cover any of it. If you are going to a " border " city, the hospital may

> >> > take your out-of-state Medicaid benefits, but you would have to

> actually

> >> > ask the providers if they will take it. Sorry...

> >> >

> >> > Mindy, mom to , 9, CVID+

> >> >

> >> > > I have a random insurance question...andra (CVID, FG Syndrome)

> is

> >> > > under

> >> > > my husband's health insurance plan, since she is also a Regional

> client

> >> > > she

> >> > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do

> any

> >> > > of

> >> > > you have both private insurance and state insurance. I am wondering

> if

> >> > > Medi-Cal would be more willing to finance referrals " outside of the

> >> > > system " ....I have no idea about any of this but we are desperately

> trying

> >> > > to get a referral to Cincinnati Children's. This has been dragging

> on

> >> > > for

> >> > > well over a year (maybe longer....I've lost track) now and we really

> >> > > cannot

> >> > > afford to finance the visit ourselves. Just wonder if anyone else

> has had

> >> > > experience with this.

> >> > >

> >> > > Thanks,

> >> > >

> >> > > Jeane

> >> > > Mom to andra 15

> >> > >

> >> > >

> >> > >

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Share on other sites

The good thing is that the immunologist is the one that is concerned. I would

ask for a case manager with the insurance. Then.... I would explain the

situation to the case manager and then..... I would ask the insurance what they

need to follow the requests from the Immunologist. I would then.... go back to

the Immunologist and ask VERY specifically what he thinks he needs for her

care. If it is a referral to a specific place then he needs to write a letter. I

would ask when you can pick it up etc. You will then find out if he is just

talking or really feels you need to get more care somewhere else. Either way I

would get a second opinion somewhere at a University setting or Childrens

Hospital. YOU will have to be the one to orchestrate this because no one else

will do it. IF..... the Care Manager does not seem to know what they are doing

then I would go to the head of the department usually an RN. Then you go to the

Medical Director. I have done this with several cases over the years and it will

work. I am an RN as well as have worked with insurance companies. The last thing

they want to do is have her get sicker. They may come back with an alternative

place to be seen but that is OK just do it. I would appeal everything in writing

following their guidelines. They will take it up the ladder since there is a

process by law for appeals that go up the ladder. Feel free to contact me

directly if I can help. Barbie

>

> From: maryjeanedavis@...

> Date: Tue, 24 Jan 2012 15:30:07 -0800

> Subject: Re: Re: Insurance Question

>

> Thanks, Barbie for the information....I guess we will go back to the

> drawing board....unfortunately our pediatrician has washed her hands of

> helping me. We are currently trying to find another one. She was the one

> who struck the final death blow to our request to go to Cincinnati, she

> withdrew her support and told the insurance company that andra did not

> have a bone marrow failure issue, that her counts were stable (despite the

> evidence of all the CBC's/BMB that have been done). Our immunologist is

> the one pushing us to go for more opinions but when it comes right down to

> us getting a letter of support for this referral he has never produced one

> and has never been available to talk to the insurance company....the list

> goes on and on. I feel like I'm beating my head against the wall!

>

> Jeane

>

> On Tue, Jan 24, 2012 at 1:21 PM, Barbara Jimenez <mother5590@...>wrote:

>

> > **

> >

> >

> > From experience and from working with National Patient Advocacy Foundation

> > I can

> > tell you that a Medicaid plan will not pay for out of state care. The

> > GREAT

> > purpose for medicare would be to pick up your deductibles and copays in Ca

> > that

> > your primary insurance does not pay. A provider cannot charge you beyond

> > what

> > your primary insurance pays if you show them your medical card. You may be

> > able

> > to get your primary insurance to pay if you can prove to them that the

> > care is

> > not available in your state but I do not think they will believe that in a

> > state

> > like California with the level of care available there at UCLA, Stanford

> > and

> > other BIG University Hospitals. Sadly with the way our system is right now

> > the

> > ability to get care in other states is almost impossible. It is all about

> > saving

> > money and so if you have the financial resources is the only way to get

> > the

> > care out of state except for a consultation. It might be worthwhile to

> > contact

> > IDF to help you find a specialist to help you for the problems you are

> > having

> > specifically. There may be someone better aware of how to deal with her

> > needs on

> > a consultant basis even in an out of state institution. It would take

> > working

> > with someone to advocate for you or having the labs etc drawn in CA and

> > having

> > someone consult from out of state such as at the Cleveland Clinic. Is

> > there

> > a Pediatrician or Immunologist that could help you get the answers you are

> > seeking?

> > Barbie

> > Lucas with CVID, Bipolar etc

> >

> >

> > BARBIE

> >

> > >________________________________

> > > From: Kookoo <nalla70@...>

> > >

> > >Sent: Tuesday, January 24, 2012 9:13 AM

> > >Subject: Re: Insurance Question

> > >

> > >

> > >

> > >

> > >

> > >Not sure on all that, but I wonder how so many get their kids to even

> > qualify for state stuff? Does BCMH (in Ohio) cover CVID? This question to

> > anyone who knows :)) I believe we make too much to qualify Makenzie for

> > Medicaid (I think that is what she would get?) so we have insurance, but

> > pay ALL copays, etc etc etc :((( and have for her whole 11 years, yes it

> > gets very expensive, looking at my checkbook normal people would crap lol,

> > >

> > >Makenzie 11

> > > 22

> > >

> > >

> > >>

> > >> > **

> > >> >

> > >> >

> > >> > My son has BCBS and Virginia Medicaid. THis works well in-state,

> > because

> > >> > most of the time, Medicaid will cover our copays. We had to go

> > >> > out-of-state (to Atlanta) for testing last year, and the Medicaid

> > didn't

> > >> > cover any of it. If you are going to a " border " city, the hospital may

> > >> > take your out-of-state Medicaid benefits, but you would have to

> > actually

> > >> > ask the providers if they will take it. Sorry...

> > >> >

> > >> > Mindy, mom to , 9, CVID+

> > >> >

> > >> > > I have a random insurance question...andra (CVID, FG Syndrome)

> > is

> > >> > > under

> > >> > > my husband's health insurance plan, since she is also a Regional

> > client

> > >> > > she

> > >> > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do

> > any

> > >> > > of

> > >> > > you have both private insurance and state insurance. I am wondering

> > if

> > >> > > Medi-Cal would be more willing to finance referrals " outside of the

> > >> > > system " ....I have no idea about any of this but we are desperately

> > trying

> > >> > > to get a referral to Cincinnati Children's. This has been dragging

> > on

> > >> > > for

> > >> > > well over a year (maybe longer....I've lost track) now and we really

> > >> > > cannot

> > >> > > afford to finance the visit ourselves. Just wonder if anyone else

> > has had

> > >> > > experience with this.

> > >> > >

> > >> > > Thanks,

> > >> > >

> > >> > > Jeane

> > >> > > Mom to andra 15

> > >> > >

> > >> > >

> > >> > >

Link to comment
Share on other sites

My son's Medicaid pays 100% of his out of state care- doctors and

hospitalizations and procedures.  Sue

From: Barbara Jimenez <mother5590@...>

Subject: Re: Re: Insurance Question

" " < >

Date: Tuesday, January 24, 2012, 9:21 PM

 

From experience and from working with National Patient Advocacy Foundation

I can

tell you that a Medicaid plan will not pay for out of state care. The GREAT

purpose for medicare would be to pick up your deductibles and copays in Ca that

your primary insurance does not pay. A provider cannot charge you beyond what

your primary insurance pays if you show them your medical card. You may be able

to get your primary insurance to pay if you can prove to them that the care is

not available in your state but I do not think they will believe that in a state

like California with the level of care available there at UCLA, Stanford and

other BIG University Hospitals. Sadly with the way our system is right now the

ability to get care in other states is almost impossible. It is all about saving

money and so if you have the financial resources is the only way to get the

care out of state except for a consultation. It might be worthwhile to contact

IDF to help you find a specialist to help you for the problems you are having

specifically. There may be someone better aware of how to deal with her needs on

a consultant basis even in an out of state institution. It would take working

with someone to advocate for you or having the labs etc drawn in CA and having

someone consult from out of state such as at the Cleveland Clinic. Is there

a Pediatrician or Immunologist that could help you get the answers you are

seeking?

Barbie

Lucas with CVID, Bipolar etc

 

BARBIE  

>________________________________

> From: Kookoo <nalla70@...>

>

>Sent: Tuesday, January 24, 2012 9:13 AM

>Subject: Re: Insurance Question

>

>

>

> 

>

>Not sure on all that, but I wonder how so many get their kids to even qualify

for state stuff? Does BCMH (in Ohio) cover CVID? This question to anyone who

knows :)) I believe we make too much to qualify Makenzie for Medicaid (I think

that is what she would get?) so we have insurance, but pay ALL copays, etc etc

etc :((( and have for her whole 11 years, yes it gets very expensive, looking at

my checkbook normal people would crap lol,

>

>Makenzie 11

> 22

>

>

>>

>> > **

>> >

>> >

>> > My son has BCBS and Virginia Medicaid. THis works well in-state, because

>> > most of the time, Medicaid will cover our copays. We had to go

>> > out-of-state (to Atlanta) for testing last year, and the Medicaid didn't

>> > cover any of it. If you are going to a " border " city, the hospital may

>> > take your out-of-state Medicaid benefits, but you would have to actually

>> > ask the providers if they will take it. Sorry...

>> >

>> > Mindy, mom to , 9, CVID+

>> >

>> > > I have a random insurance question...andra (CVID, FG Syndrome) is

>> > > under

>> > > my husband's health insurance plan, since she is also a Regional client

>> > > she

>> > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do any

>> > > of

>> > > you have both private insurance and state insurance. I am wondering if

>> > > Medi-Cal would be more willing to finance referrals " outside of the

>> > > system " ....I have no idea about any of this but we are desperately trying

>> > > to get a referral to Cincinnati Children's. This has been dragging on

>> > > for

>> > > well over a year (maybe longer....I've lost track) now and we really

>> > > cannot

>> > > afford to finance the visit ourselves. Just wonder if anyone else has had

>> > > experience with this.

>> > >

>> > > Thanks,

>> > >

>> > > Jeane

>> > > Mom to andra 15

>> > >

>> > >

>> > >

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It must be some special arrangements that has been put together between the

states or the specific care is not available in your state. I am glad to hear

that it has been available for you. They refused to pay since I could have

surgery in our state even though the level of experience was vastly different. I

went to the Mayo clinic and paid out of pocket and then waited the 5 months for

my Medicare to kick in so I could finally have the surgery to take the pressure

off of the cord. I had letters from my doctors about how rare my injury was and

how serious it was but NO WAY with multiple appeals. I think I would be in a

wheelchair if I had not gone to the more experienced surgery since the surgery

has had poor outcomes for many.

From: sudubo@...

Date: Tue, 24 Jan 2012 20:56:27 -0800

Subject: Re: Re: Insurance Question

My son's Medicaid pays 100% of his out of state care- doctors and

hospitalizations and procedures. Sue

From: Barbara Jimenez <mother5590@...>

Subject: Re: Re: Insurance Question

" " < >

Date: Tuesday, January 24, 2012, 9:21 PM

From experience and from working with National Patient Advocacy Foundation I can

tell you that a Medicaid plan will not pay for out of state care. The GREAT

purpose for medicare would be to pick up your deductibles and copays in Ca that

your primary insurance does not pay. A provider cannot charge you beyond what

your primary insurance pays if you show them your medical card. You may be able

to get your primary insurance to pay if you can prove to them that the care is

not available in your state but I do not think they will believe that in a state

like California with the level of care available there at UCLA, Stanford and

other BIG University Hospitals. Sadly with the way our system is right now the

ability to get care in other states is almost impossible. It is all about saving

money and so if you have the financial resources is the only way to get the

care out of state except for a consultation. It might be worthwhile to contact

IDF to help you find a specialist to help you for the problems you are having

specifically. There may be someone better aware of how to deal with her needs on

a consultant basis even in an out of state institution. It would take working

with someone to advocate for you or having the labs etc drawn in CA and having

someone consult from out of state such as at the Cleveland Clinic. Is there

a Pediatrician or Immunologist that could help you get the answers you are

seeking?

Barbie

Lucas with CVID, Bipolar etc

BARBIE

>________________________________

> From: Kookoo <nalla70@...>

>

>Sent: Tuesday, January 24, 2012 9:13 AM

>Subject: Re: Insurance Question

>

>

>

>

>

>Not sure on all that, but I wonder how so many get their kids to even qualify

for state stuff? Does BCMH (in Ohio) cover CVID? This question to anyone who

knows :)) I believe we make too much to qualify Makenzie for Medicaid (I think

that is what she would get?) so we have insurance, but pay ALL copays, etc etc

etc :((( and have for her whole 11 years, yes it gets very expensive, looking at

my checkbook normal people would crap lol,

>

>Makenzie 11

> 22

>

>

>>

>> > **

>> >

>> >

>> > My son has BCBS and Virginia Medicaid. THis works well in-state, because

>> > most of the time, Medicaid will cover our copays. We had to go

>> > out-of-state (to Atlanta) for testing last year, and the Medicaid didn't

>> > cover any of it. If you are going to a " border " city, the hospital may

>> > take your out-of-state Medicaid benefits, but you would have to actually

>> > ask the providers if they will take it. Sorry...

>> >

>> > Mindy, mom to , 9, CVID+

>> >

>> > > I have a random insurance question...andra (CVID, FG Syndrome) is

>> > > under

>> > > my husband's health insurance plan, since she is also a Regional client

>> > > she

>> > > qualifies for Medi-Cal....I have never used the Medi-Cal option. Do any

>> > > of

>> > > you have both private insurance and state insurance. I am wondering if

>> > > Medi-Cal would be more willing to finance referrals " outside of the

>> > > system " ....I have no idea about any of this but we are desperately trying

>> > > to get a referral to Cincinnati Children's. This has been dragging on

>> > > for

>> > > well over a year (maybe longer....I've lost track) now and we really

>> > > cannot

>> > > afford to finance the visit ourselves. Just wonder if anyone else has had

>> > > experience with this.

>> > >

>> > > Thanks,

>> > >

>> > > Jeane

>> > > Mom to andra 15

>> > >

>> > >

>> > >

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