Re: gluten/cassein diet help--- does it work? is it worth the hassle?

[Guest guest]

Faye:

We have been GFCF with our son for 5 years (he is 9 now). It helps him in

many ways. He is MUCH less hyper on the diet, and able to focus and pay

attention better. He has significant gut issues (on Pentasa for

inflammation of his gut, and had an ulcer at one point), and GFCF helps

with those issues as well. We have not seen any " miracle " results as far

as gaining speech, etc., but it is definitely worth it for our son to

maintain this diet. It is not very difficult to do, unless eating out.

There is a great guide to getting started at TACA web site, and another

good web site, GFCFDiet.com.

" Faye "

<altair005@...

m> To

Sent by: autism

autism@ya cc

hoogroups.com

Subject

gluten/cassein

04/17/2007 09:40 diet help--- does it work? is it

AM worth the hassle?

Please respond to

autism@ya

hoogroups.com

Hi, I am new to the group. I live in Rincon, outside of Savannah. I have

3.5 yr old girl dx with

PDD/NOS, non verbal but oh so sweet. Tried Risperdal for 4 months, and it

did NOT help. I

wll see developmental spec. this week and am going to ask to just go ahead

and try ritalin or

something like it.

But in the meantime, My husband is pushing me to start the gluten and dairy

free diet.... but I

am skeptical. It doesn't help that I come from a medical family. What are

your experiences

with it? should I wait and see what happens with the ritalin first, or just

jump feet first into

the diet?

Is it worth the effort?

thanks,

Faye

[Guest guest]

Hi i put my son on diet last august, he's 9. he spoke a little before, but definitely i see progress, slow, but he can contentrate and focus more and seems more connected. also, it is not such much hassle, specially if she's so young and you can change her eating habits. i also suggest you can do the test to check on her candida, go to great plains lab web page or great smoky mountains, they both do it. also, if you do not find a market near by, you can buy your products by internet. go ahead with the diet. patricia Faye <altair005@...> wrote: Hi, I am new to the group. I live in Rincon, outside of Savannah. I have 3.5 yr old girl dx with PDD/NOS, non verbal but oh so sweet. Tried Risperdal for 4 months, and it did NOT help. I wll see developmental spec. this week and am going to ask to just go ahead and try ritalin or something like it. But in the meantime, My husband is pushing me to start the gluten and dairy free diet.... but I am skeptical. It doesn't help that I come from a medical family. What are your experiences with it? should I wait and see what happens with the ritalin first, or just jump feet first into the diet? Is it worth the effort? thanks, Faye

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

What is the goal for putting her on Ritalin or Risperdol? What did the doctor feel you would

gain. Is there significant hyperactivity. I am just curious. Without having a lot of info I

just didn't understand the reason for that. I personally would try the diet because it can

not hurt and if you have gains which many people do then that is great. My son started the

diet at the same age as your daughter and he is almost six. He is still on it because I just

don't want to rock the boat at this point. He made enormous progress from healing his gut and

the diet, supplementation, chelation, and therapies made the difference. He really gained social

language for he had serious echolalia only w/speech with the Meythl B12 injections. It was a wow for

us! The diet was gradual and part of the process of healing. I do have a friend who started her 4 year old

on the diet and saw major behavioral changes, sleep changes, and more overall connected to others

right away. I was really shocked because I had only read of responses like that and never saw

with my own eyes. He also was only eating a few foods and after a week started to eat more and

different foods. It is really interesting. Didn't work that way for my son.

hth

Annemarie

On 4/17/07, Cowen <.Cowen@...> wrote:

Faye:We have been GFCF with our son for 5 years (he is 9 now). It helps him inmany ways. He is MUCH less hyper on the diet, and able to focus and payattention better. He has significant gut issues (on Pentasa for

inflammation of his gut, and had an ulcer at one point), and GFCF helpswith those issues as well. We have not seen any " miracle " results as faras gaining speech, etc., but it is definitely worth it for our son to

maintain this diet. It is not very difficult to do, unless eating out.There is a great guide to getting started at TACA web site, and anothergood web site, GFCFDiet.com. " Faye "

<altair005@... m> To Sent by:

autism autism@ya cc hoogroups.com Subject gluten/cassein 04/17/2007 09:40 diet help--- does it work? is it AM worth the hassle? Please respond to autism@ya

hoogroups.com Hi, I am new to the group. I live in Rincon, outside of Savannah. I have3.5 yr old girl dx withPDD/NOS, non verbal but oh so sweet. Tried Risperdal for 4 months, and it

did NOT help. Iwll see developmental spec. this week and am going to ask to just go aheadand try ritalin orsomething like it.But in the meantime, My husband is pushing me to start the gluten and dairy

free diet.... but Iam skeptical. It doesn't help that I come from a medical family. What areyour experienceswith it? should I wait and see what happens with the ritalin first, or justjump feet first into

the diet?Is it worth the effort?thanks,Faye -- Annemarie Messerschmidt

[Guest guest]

What is the goal for putting her on Ritalin or Risperdol? What did the doctor feel you would

gain. Is there significant hyperactivity. I am just curious. Without having a lot of info I

just didn't understand the reason for that. I personally would try the diet because it can

not hurt and if you have gains which many people do then that is great. My son started the

diet at the same age as your daughter and he is almost six. He is still on it because I just

don't want to rock the boat at this point. He made enormous progress from healing his gut and

the diet, supplementation, chelation, and therapies made the difference. He really gained social

language for he had serious echolalia only w/speech with the Meythl B12 injections. It was a wow for

us! The diet was gradual and part of the process of healing. I do have a friend who started her 4 year old

on the diet and saw major behavioral changes, sleep changes, and more overall connected to others

right away. I was really shocked because I had only read of responses like that and never saw

with my own eyes. He also was only eating a few foods and after a week started to eat more and

different foods. It is really interesting. Didn't work that way for my son.

hth

Annemarie

On 4/17/07, Cowen <.Cowen@...> wrote:

Faye:We have been GFCF with our son for 5 years (he is 9 now). It helps him inmany ways. He is MUCH less hyper on the diet, and able to focus and payattention better. He has significant gut issues (on Pentasa for

inflammation of his gut, and had an ulcer at one point), and GFCF helpswith those issues as well. We have not seen any " miracle " results as faras gaining speech, etc., but it is definitely worth it for our son to

maintain this diet. It is not very difficult to do, unless eating out.There is a great guide to getting started at TACA web site, and anothergood web site, GFCFDiet.com. " Faye "

<altair005@... m> To Sent by:

autism autism@ya cc hoogroups.com Subject gluten/cassein 04/17/2007 09:40 diet help--- does it work? is it AM worth the hassle? Please respond to autism@ya

hoogroups.com Hi, I am new to the group. I live in Rincon, outside of Savannah. I have3.5 yr old girl dx withPDD/NOS, non verbal but oh so sweet. Tried Risperdal for 4 months, and it

did NOT help. Iwll see developmental spec. this week and am going to ask to just go aheadand try ritalin orsomething like it.But in the meantime, My husband is pushing me to start the gluten and dairy

free diet.... but Iam skeptical. It doesn't help that I come from a medical family. What areyour experienceswith it? should I wait and see what happens with the ritalin first, or justjump feet first into

the diet?Is it worth the effort?thanks,Faye -- Annemarie Messerschmidt

[Guest guest]

We started my son on the casein free diet, we are

slowly going to eliminate gluten. We also put him on a

multivitamin with magnesium and fish oil supplements.

We have seen amazing changes in his verbal ability

alone. He is 2 and was non-verbal. Now he has 3-4

words consistently. We had to do this gradually but it

has worked for us. Best of luck with your daughter.

Also to note: We did consult a nutritionist before

doing this.

Thanks!

--- patricia lanaspa <mpati02@...> wrote:

> Hi

> i put my son on diet last august, he's 9. he spoke

> a little before, but definitely i see progress,

> slow, but he can contentrate and focus more and

> seems more connected. also, it is not such much

> hassle, specially if she's so young and you can

> change her eating habits. i also suggest you can do

> the test to check on her candida, go to great plains

> lab web page or great smoky mountains, they both do

> it. also, if you do not find a market near by, you

> can buy your products by internet. go ahead with the

> diet.

> patricia

>

> Faye <altair005@...> wrote:

>

> Hi, I am new to the group. I live in Rincon, outside

> of Savannah. I have 3.5 yr old girl dx with

> PDD/NOS, non verbal but oh so sweet. Tried Risperdal

> for 4 months, and it did NOT help. I

> wll see developmental spec. this week and am going

> to ask to just go ahead and try ritalin or

> something like it.

>

> But in the meantime, My husband is pushing me to

> start the gluten and dairy free diet.... but I

> am skeptical. It doesn't help that I come from a

> medical family. What are your experiences

> with it? should I wait and see what happens with the

> ritalin first, or just jump feet first into

> the diet?

>

> Is it worth the effort?

>

> thanks,

> Faye

>

>

>

>

>

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Autos.

__________________________________________________

[Guest guest]

We started my son on the casein free diet, we are

slowly going to eliminate gluten. We also put him on a

multivitamin with magnesium and fish oil supplements.

We have seen amazing changes in his verbal ability

alone. He is 2 and was non-verbal. Now he has 3-4

words consistently. We had to do this gradually but it

has worked for us. Best of luck with your daughter.

Also to note: We did consult a nutritionist before

doing this.

Thanks!

--- patricia lanaspa <mpati02@...> wrote:

> Hi

> i put my son on diet last august, he's 9. he spoke

> a little before, but definitely i see progress,

> slow, but he can contentrate and focus more and

> seems more connected. also, it is not such much

> hassle, specially if she's so young and you can

> change her eating habits. i also suggest you can do

> the test to check on her candida, go to great plains

> lab web page or great smoky mountains, they both do

> it. also, if you do not find a market near by, you

> can buy your products by internet. go ahead with the

> diet.

> patricia

>

> Faye <altair005@...> wrote:

>

> Hi, I am new to the group. I live in Rincon, outside

> of Savannah. I have 3.5 yr old girl dx with

> PDD/NOS, non verbal but oh so sweet. Tried Risperdal

> for 4 months, and it did NOT help. I

> wll see developmental spec. this week and am going

> to ask to just go ahead and try ritalin or

> something like it.

>

> But in the meantime, My husband is pushing me to

> start the gluten and dairy free diet.... but I

> am skeptical. It doesn't help that I come from a

> medical family. What are your experiences

> with it? should I wait and see what happens with the

> ritalin first, or just jump feet first into

> the diet?

>

> Is it worth the effort?

>

> thanks,

> Faye

>

>

>

>

>

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Autos.

__________________________________________________

[Guest guest]

Wow thanks for the responses! The reason we tried risperdal, was because my

daughter is hyperactive and in her own world, often. My main concern these days

is with

maximizing her ability to receive input, whether at school (PSI) or at home. I

mean, I can't

even sit and read a book to her because she just won't even look at the pages.

So, I asked

dev. specialist about ritalin and she wanted to try Risperdal first. The reason

I am

considering the gulten/casein free diet is for calming those hyperactive

symptoms.

Sorry, I didn't give so much detail earlier so to spare your from my ramblings.

But, I am

glad to see that it really has worked for all of you.

> >

> > Hi, I am new to the group. I live in Rincon, outside

> > of Savannah. I have 3.5 yr old girl dx with

> > PDD/NOS, non verbal but oh so sweet. Tried Risperdal

> > for 4 months, and it did NOT help. I

> > wll see developmental spec. this week and am going

> > to ask to just go ahead and try ritalin or

> > something like it.

> >

> > But in the meantime, My husband is pushing me to

> > start the gluten and dairy free diet.... but I

> > am skeptical. It doesn't help that I come from a

> > medical family. What are your experiences

> > with it? should I wait and see what happens with the

> > ritalin first, or just jump feet first into

> > the diet?

> >

> > Is it worth the effort?

> >

> > thanks,

> > Faye

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Ahhh...imagining that irresistible " new car " smell?

> > Check outnew cars at Autos.

>

>

> __________________________________________________

>

[Guest guest]

Wow thanks for the responses! The reason we tried risperdal, was because my

daughter is hyperactive and in her own world, often. My main concern these days

is with

maximizing her ability to receive input, whether at school (PSI) or at home. I

mean, I can't

even sit and read a book to her because she just won't even look at the pages.

So, I asked

dev. specialist about ritalin and she wanted to try Risperdal first. The reason

I am

considering the gulten/casein free diet is for calming those hyperactive

symptoms.

Sorry, I didn't give so much detail earlier so to spare your from my ramblings.

But, I am

glad to see that it really has worked for all of you.

> >

> > Hi, I am new to the group. I live in Rincon, outside

> > of Savannah. I have 3.5 yr old girl dx with

> > PDD/NOS, non verbal but oh so sweet. Tried Risperdal

> > for 4 months, and it did NOT help. I

> > wll see developmental spec. this week and am going

> > to ask to just go ahead and try ritalin or

> > something like it.

> >

> > But in the meantime, My husband is pushing me to

> > start the gluten and dairy free diet.... but I

> > am skeptical. It doesn't help that I come from a

> > medical family. What are your experiences

> > with it? should I wait and see what happens with the

> > ritalin first, or just jump feet first into

> > the diet?

> >

> > Is it worth the effort?

> >

> > thanks,

> > Faye

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Ahhh...imagining that irresistible " new car " smell?

> > Check outnew cars at Autos.

>

>

> __________________________________________________

>

[Guest guest]

Hi,

We had my son on the diet (gfcf) for 1 year, some time ago.

Since then, more products have become available in stores and it's much easier to find food for your child to eat than it used to be. You might find that it's not as difficult as you may think to put your daughter on it. And even though it only made marginal improvements for my son, it did make some improvements and kept him off pharmaceuticals for a longer time. What have you got to lose?

Jeanne

--- Re: gluten/cassein diet help--- does it

work?is it worth the hassle?From: "Faye" <altair005@...>Date: Tue, April 17, 2007 3:02 pmautism

Wow thanks for the responses! The reason we tried risperdal, was because

my

daughter is hyperactive and in her own world, often. My main concern

these days is with

maximizing her ability to receive input, whether at school (PSI) or at

home. I mean, I can't

even sit and read a book to her because she just won't even look at the

pages. So, I asked

dev. specialist about ritalin and she wanted to try Risperdal first. The

reason I am

considering the gulten/casein free diet is for calming those hyperactive

symptoms.

Sorry, I didn't give so much detail earlier so to spare your from my

ramblings. But, I am glad to see that it really has worked for all of you. > > > > Hi, I am new to the group. I live in Rincon, outside> > of Savannah. I have 3.5 yr old girl dx with > > PDD/NOS, non verbal but oh so sweet. Tried Risperdal> > for 4 months, and it did NOT help. I > > wll see developmental spec. this week and am going> > to ask to just go ahead and try ritalin or > > something like it. > > > > But in the meantime, My husband is pushing me to> > start the gluten and dairy free diet.... but I > > am skeptical. It doesn't help that I come from a> > medical family. What are your experiences > > with it? should I wait and see what happens with the> > ritalin first, or just jump feet first into > > the diet? > > > > Is it worth the effort? > > > > thanks, > > Faye> > > > > > > > > > > > > > ---------------------------------> > Ahhh...imagining that irresistible "new car" smell?> > Check outnew cars at Autos.> > > __________________________________________________>

[Guest guest]

I would suggest that if you are going to try the diet that sooner is better than later. We tried it with our son a few years ago ( when he was approx. 8 yrs old ). It was alittle difficult (not impossible, but definately hard) since he was soooo set in his ways concerning what he likes and doesn't like with foods.....we stuck with it for 3 months. He ended up losing 9 lbs because he just refused to eat some of the foods (and 9 lbs is ALOT when you only weigh 60 lbs to begin with) -- and at that point we didn't see enough of a change to keep with it. We have kept up a mostly casein free diet though. Anyway -- my point is...i'm not trying to discourage you from trying the diet...I think you should try everything as long as it doesn't hurt your child...I am saying that try it when they are young and not so set in their ways regarding food choices!! Good luck!

Lou

RE: Re: gluten/cassein diet help--- does it work? is it worth the hassle?

Hi,

We had my son on the diet (gfcf) for 1 year, some time ago. Since then, more products have become available in stores and it's much easier to find food for your child to eat than it used to be. You might find that it's not as difficult as you may think to put your daughter on it. And even though it only made marginal improvements for my son, it did make some improvements and kept him off pharmaceuticals for a longer time. What have you got to lose?

Jeanne

--- Re: gluten/cassein diet help--- does it work?

is it worth the hassle?

From: "Faye" <altair005aol>

Date: Tue, April 17, 2007 3:02 pm

autism

Wow thanks for the responses! The reason we tried risperdal, was because my

daughter is hyperactive and in her own world, often. My main concern these days is with

maximizing her ability to receive input, whether at school (PSI) or at home. I mean, I can't

even sit and read a book to her because she just won't even look at the pages. So, I asked

dev. specialist about ritalin and she wanted to try Risperdal first. The reason I am

considering the gulten/casein free diet is for calming those hyperactive symptoms.

Sorry, I didn't give so much detail earlier so to spare your from my ramblings. But, I am

glad to see that it really has worked for all of you.

> >

> > Hi, I am new to the group. I live in Rincon, outside

> > of Savannah. I have 3.5 yr old girl dx with

> > PDD/NOS, non verbal but oh so sweet. Tried Risperdal

> > for 4 months, and it did NOT help. I

> > wll see developmental spec. this week and am going

> > to ask to just go ahead and try ritalin or

> > something! like it .

> >

> > But in the meantime, My husband is pushing me to

> > start the gluten and dairy free diet.... but I

> > am skeptical. It doesn't help that I come from a

> > medical family. What are your experiences

> > with it? should I wait and see what happens with the

> > ritalin first, or just jump feet first into

> > the diet?

> >

> > Is it worth the effort?

> >

> > thanks,

> > Faye

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Ahhh...imagining that irresistible "new car" smell?

> > Check outnew cars at Autos.

>

>

> __________________________________________________

>

[Guest guest]

My daughter is now 6 years old & we began the CF part of the diet a

month before she was diagnosed which was a week after she turned 2.

Within a week we noticed normal BM which was huge since she had been

suffering from constipation for over a year. At the time she wasn't

speaking, but we had been trying to teach her sign language with the

help of our S.T. In the second week of the diet she began using the

few signs we had taught her on her own to communicate. Before then

the only time she would make the signs is when we prompted her to do

so. So we knew right away that it was working. A few months later

we did some testing & found out even on the CF diet she was scoring

in the high range of normal for casein, basically if she had not been

on the diet her numbers would have been higher. As for the gluten

she scored in the normal range so we didn't have to do that part of

the diet. After being on the diet for about a year we began using

enzymes. We also noticed marked improvement after starting enzymes.

We slowly began introducing casein back into her diet after being on

enzymes for a year, but kept her on the enzymes. She did great &

eventually we were able to go off the diet.

So my suggestion is try the diet, it will not harm her & it's really

not as hard as you think once you get the hang of it. Today it's

easier to find cf/gf foods. You may also want to consider a peptide

test before you start the diet to see if her levels are elevated.

Not everyone responds to the diet, but it's worth a shot if it means

you can help your child without long term prescription drugs.

Wendie

> > >

> > > Hi, I am new to the group. I live in Rincon, outside

> > > of Savannah. I have 3.5 yr old girl dx with

> > > PDD/NOS, non verbal but oh so sweet. Tried Risperdal

> > > for 4 months, and it did NOT help. I

> > > wll see developmental spec. this week and am going

> > > to ask to just go ahead and try ritalin or

> > > something like it.

> > >

> > > But in the meantime, My husband is pushing me to

> > > start the gluten and dairy free diet.... but I

> > > am skeptical. It doesn't help that I come from a

> > > medical family. What are your experiences

> > > with it? should I wait and see what happens with the

> > > ritalin first, or just jump feet first into

> > > the diet?

> > >

> > > Is it worth the effort?

> > >

> > > thanks,

> > > Faye

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Ahhh...imagining that irresistible " new car " smell?

> > > Check outnew cars at Autos.

> >

> >

> > __________________________________________________

> >