Re: Brodie Abscess or other issue?

November 22, 2011

My daughter has CVID and is 14. When she was little like that, she would have

foot and leg pain that would wake her up at night, screaming in such a way I

often thought something was broken. Repeated trips to dr for xrays showed

nothing.

We would just treat with motrin and ice packs or heating pad.

This lasted years.

Now she doesnt do it so much. We never figured out why. I always thought she

might turn up with some kind of arthritis, but not so far. Its awful, I know,

when your child hurts and you cant fix it.

valarie

>

> I have posted already a few times on this board with various questions about

my 3 year old who is being worked up (still) for PID. SHe has a history of

multiple pneumonias, pansinusitis, hospitalizations etc. She was diagnosed

with pansinusitis in March (hospitalized) and since she has complained of foot

pain. I have been charting her symptoms and the foot pain seems to occur most

frequently when she is acutely ill. The foot pain happens day or night and at

times, the pain is so severe she cries/screams, wakes in the night etc. Motrin

usually makes it better. When I look at her foot there is no swelling, redness

or anything unusual. In May I brought her in to have it x-rayed and it was

normal. Rheumatoid has been ruled out I think (they did some blood test for it

a couple of weeks ago). It is not correlated with dehydration.

>

> She is on a host of anti-inflammatory type medications excluding prednisolone

to help calm any inflammation she might have. She has not been febrile for 3

weeks now but has had symptoms that have included sore throat, nasal congestion,

headache etc. Along with these symptoms, on most days, she has complained of

this foot pain. She comes to me while playing and will lop her foot on my lap

and say it hurts. She appears to get relief when I press as hard as I can on

her toe but not always. She can be sitting in the car or falling asleep or

asleep and start complaining or screaming. Because of her age, I cannot get a

description of the pain nor the exact location of her pain which makes this even

more frustrating.

>

> After doing some reading, I'm wondering if she has something like a Brodie

Abscess? Has anyone ever had this (or their kid)?

>

> Thank you!

>

November 22, 2011

My son has had muscle and joint pain without swelling for three years (he

is 9 1/2). It started in his feet and was/is excruciating at times. Now

it is most specifically hands, thighs, calves and feet. He has extensive

neurological symptoms, so we were all confused as to what could be the

source of his pain. He had a muscle biopsy this past summer (because of

his neuro issues, your dd doesn't need it!), but the rheumatologist was

hopeful it would give her info, too. It did, as it was determined to be

autoimmune...he has now been diagnosed with " CVID-related arthralgias and

myalgias " . It is worse when he is sick, or when he is on the down cycle

before his dose of IVIG (we have figured when his IgG is less that 800, it

is worse, and we have to treat the pain more aggressively). When his foot

pain first began, his CVID was undiagnosed. His rheumatologist has one

other CVID patient whose has a similar diagnosis. This is termed as

" autoimmune, other " under list of diagnoses. No ANA or RA was done, as

they are unreliable in children (or we were told by at least two different

physicians).

It took us three years to arrive at a diagnosis for this one problem that

our son has. Has your daughter seen a rheumatologist? Autoimmune disease

is more common in children with CVID that the general population.

I do want to note that a few medications can also induce worsened pain in

my son, for him, Singulair and Hizentra, but there was also a notable

pattern after administration that clued us in on it, i.e. 30 minutes after

administration of Singulair is when he would be struck by severe foot

pain.

Hope you gets some answers!

Mindy, mom to , 9, CVID, autism, autoimmune disease, and progression

of unknown neurological disease.

P.S. Aspercreme in addition to the oral anti-inflammatories is very

helpful for my son. Just check with your doctor to see if it is suitable

to try.

> I have posted already a few times on this board with various questions

> about my 3 year old who is being worked up (still) for PID. SHe has a

> history of multiple pneumonias, pansinusitis, hospitalizations etc. She

> was diagnosed with pansinusitis in March (hospitalized) and since she has

> complained of foot pain. I have been charting her symptoms and the foot

> pain seems to occur most frequently when she is acutely ill. The foot

> pain happens day or night and at times, the pain is so severe she

> cries/screams, wakes in the night etc. Motrin usually makes it better.

> When I look at her foot there is no swelling, redness or anything unusual.

> In May I brought her in to have it x-rayed and it was normal. Rheumatoid

> has been ruled out I think (they did some blood test for it a couple of

> weeks ago). It is not correlated with dehydration.

>

> She is on a host of anti-inflammatory type medications excluding

> prednisolone to help calm any inflammation she might have. She has not

> been febrile for 3 weeks now but has had symptoms that have included sore

> throat, nasal congestion, headache etc. Along with these symptoms, on

> most days, she has complained of this foot pain. She comes to me while

> playing and will lop her foot on my lap and say it hurts. She appears to

> get relief when I press as hard as I can on her toe but not always. She

> can be sitting in the car or falling asleep or asleep and start

> complaining or screaming. Because of her age, I cannot get a description

> of the pain nor the exact location of her pain which makes this even more

> frustrating.

>

> After doing some reading, I'm wondering if she has something like a Brodie

> Abscess? Has anyone ever had this (or their kid)?

>

> Thank you!

>

November 23, 2011

Hey All ~ I sent this to my mom because she is over 60 and she only got

diagnosed last year or so with CVID because of my son getting diagnosed with

Brutons. they never tested her for her immune system, they attributed

everything to her juvenile rhemutoid arthritis. This was her response:

Constantly when I was younger. Thought it weas leg cramps, that's how it was

treated. Get it now, unexplained leg pain, burning, type of cramping.

the question I have is - what is this condition considered ? does it have a

name? has had this all his life and they sared out attributting it to

growing pains, regular leg cramps (I always had leg cramps as a kid), etc... I

am really sorry if i missed a previous post or misread things. Thank you for