Re: Yet another new member

[Guest guest]

Hang in there just a setback ,sounds an awful lot like my case at one time

my SED rate was 150.Fevers and weightloss as well went from about 205lbs to 146

in like 6 months prior to diagnosis.The pred took care of the weightloss,i could

only wean down to 5 mgs I beleive my first try so congrats.Terrible the symtoms

are back though.Im doin well the last 3 plus years now knock on wood.Welcome to

the group as well as the other new Stilligans as well. d.Canada

Yet another new member

Hi all,

My name is . I recently joined the group and am looking forward

to getting to know all of you. I was diagnosed with Still's in May.

At that time I was getting fevers over 103, had lost 20 pounds, bad

joint pain, sed rate of 95 and ferritin of 3400. I started on 20 mg of

prednisone and recently have gotten down as far as 2mg, but this past

week started getting symptoms again.

Anyways, here's a little personal information about me, I'm 24 years

old, I live in Bloomington, IL, and I work as an actuary for State Farm

Insurance.

Hope everyone has a good weekend!

[Guest guest]

Hang in there just a setback ,sounds an awful lot like my case at one time

my SED rate was 150.Fevers and weightloss as well went from about 205lbs to 146

in like 6 months prior to diagnosis.The pred took care of the weightloss,i could

only wean down to 5 mgs I beleive my first try so congrats.Terrible the symtoms

are back though.Im doin well the last 3 plus years now knock on wood.Welcome to

the group as well as the other new Stilligans as well. d.Canada

Yet another new member

Hi all,

My name is . I recently joined the group and am looking forward

to getting to know all of you. I was diagnosed with Still's in May.

At that time I was getting fevers over 103, had lost 20 pounds, bad

joint pain, sed rate of 95 and ferritin of 3400. I started on 20 mg of

prednisone and recently have gotten down as far as 2mg, but this past

week started getting symptoms again.

Anyways, here's a little personal information about me, I'm 24 years

old, I live in Bloomington, IL, and I work as an actuary for State Farm

Insurance.

Hope everyone has a good weekend!

[Guest guest]

Hello , , and other new members,

Welcome to the group, I joined this great group last month. Since joining I have

came to terms that I'm not the only one who has this mysteries disease nobody is

familiar with. Hopefully you will also find comfort with our support.

I came down with Stills in February 2006. It appears there are different results

from blood test, and additional symptoms. After finally getting diagnosed rather

quickly compared to others. I was only hospitalized three times before a disease

specialist diagnosed me. Stills dominates my life for now, I have unfortunately

came down with other concerns " Stills related " With the usual inflammation,

fevers, arthritis, fatigue, muscle pain, etc and basically feeling crappy to say

the least. I now have developed extreme lower back and foot pain. Peripheral

neuropathy has put me on disability. However I'm going to do the best to be

strong and positive for my wife, four kids as myself. Keep a positive attitude,

do the best as you can to take care of yourself. As you will have your ups enjoy

them, and your downs learn to deal with them, I know it¢s hard. Do your homework

and get familiar with the disease. Hopefully you have a good doctor and take

your

medications. I take an enbrel shot and methotrexate once a week for joint

protection its very important, and prednisone for my flair ups, Vicodin for

pain. Oh, Praying does help...

Stay tough,

Jack Nicoll 47

Oxnard, Ca

________________________________________________________________________________\

____

Be a better pen pal.

Text or chat with friends inside Yahoo! Mail. See how.

http://overview.mail.yahoo.com/

[Guest guest]

Hello , , and other new members,

Welcome to the group, I joined this great group last month. Since joining I have

came to terms that I'm not the only one who has this mysteries disease nobody is

familiar with. Hopefully you will also find comfort with our support.

I came down with Stills in February 2006. It appears there are different results

from blood test, and additional symptoms. After finally getting diagnosed rather

quickly compared to others. I was only hospitalized three times before a disease

specialist diagnosed me. Stills dominates my life for now, I have unfortunately

came down with other concerns " Stills related " With the usual inflammation,

fevers, arthritis, fatigue, muscle pain, etc and basically feeling crappy to say

the least. I now have developed extreme lower back and foot pain. Peripheral

neuropathy has put me on disability. However I'm going to do the best to be

strong and positive for my wife, four kids as myself. Keep a positive attitude,

do the best as you can to take care of yourself. As you will have your ups enjoy

them, and your downs learn to deal with them, I know it¢s hard. Do your homework

and get familiar with the disease. Hopefully you have a good doctor and take

your

medications. I take an enbrel shot and methotrexate once a week for joint

protection its very important, and prednisone for my flair ups, Vicodin for

pain. Oh, Praying does help...

Stay tough,

Jack Nicoll 47

Oxnard, Ca

________________________________________________________________________________\

____

Be a better pen pal.

Text or chat with friends inside Yahoo! Mail. See how.

http://overview.mail.yahoo.com/

[Guest guest]

Jack,

Sine Feb. 2006 when you were diagnosed,  'about' how many flare ups have you

had since  you were diagnosed...and how far apart were they?

I was diagnosed by an Infectious Control Dr. when I was in the hospital for the

first time this October.

Diane  42

Re: Yet another new member

Hello , , and other new members,

Welcome to the group, I joined this great group last month. Since joining I have

came to terms that I'm not the only one who has this mysteries disease nobody is

familiar with. Hopefully you will also find comfort with our support.

I came down with Stills in February 2006. It appears there are different results

from blood test, and additional symptoms. After finally getting diagnosed rather

quickly compared to others. I was only hospitalized three times before a disease

specialist diagnosed me. Stills dominates my life for now, I have unfortunately

came down with other concerns " Stills related " With the usual inflammation,

fevers, arthritis, fatigue, muscle pain, etc and basically feeling crappy to say

the least. I now have developed extreme lower back and foot pain. Peripheral

neuropathy has put me on disability. However I'm going to do the best to be

strong and positive for my wife, four kids as myself. Keep a positive attitude,

do the best as you can to take care of yourself. As you will have your ups enjoy

them, and your downs learn to deal with them, I know it¢s hard. Do your

homework

and get familiar with the disease. Hopefully you have a good doctor and take

your

medications. I take an enbrel shot and methotrexate once a week for joint

protection its very important, and prednisone for my flair ups, Vicodin for

pain. Oh, Praying does help...

Stay tough,

Jack Nicoll 47

Oxnard, Ca

________________________________________________________________________________\

____

Be a better pen pal.

Text or chat with friends inside Yahoo! Mail. See how.

http://overview.mail.yahoo.com/

[Guest guest]

Jack,

Sine Feb. 2006 when you were diagnosed,  'about' how many flare ups have you

had since  you were diagnosed...and how far apart were they?

I was diagnosed by an Infectious Control Dr. when I was in the hospital for the

first time this October.

Diane  42

Re: Yet another new member

Hello , , and other new members,

Welcome to the group, I joined this great group last month. Since joining I have

came to terms that I'm not the only one who has this mysteries disease nobody is

familiar with. Hopefully you will also find comfort with our support.

I came down with Stills in February 2006. It appears there are different results

from blood test, and additional symptoms. After finally getting diagnosed rather

quickly compared to others. I was only hospitalized three times before a disease

specialist diagnosed me. Stills dominates my life for now, I have unfortunately

came down with other concerns " Stills related " With the usual inflammation,

fevers, arthritis, fatigue, muscle pain, etc and basically feeling crappy to say

the least. I now have developed extreme lower back and foot pain. Peripheral

neuropathy has put me on disability. However I'm going to do the best to be

strong and positive for my wife, four kids as myself. Keep a positive attitude,

do the best as you can to take care of yourself. As you will have your ups enjoy

them, and your downs learn to deal with them, I know it¢s hard. Do your

homework

and get familiar with the disease. Hopefully you have a good doctor and take

your

medications. I take an enbrel shot and methotrexate once a week for joint

protection its very important, and prednisone for my flair ups, Vicodin for

pain. Oh, Praying does help...

Stay tough,

Jack Nicoll 47

Oxnard, Ca

________________________________________________________________________________\

____

Be a better pen pal.

Text or chat with friends inside Yahoo! Mail. See how.

http://overview.mail.yahoo.com/

[Guest guest]

Welcome . Enjoy the group! </HTML>

[Guest guest]

Welcome . Enjoy the group! </HTML>

[Guest guest]

Hello Diane,

Basically the balance of 2006 I was consistently sick. Mostly inflammation,

arthritis, a lot of pressure around my eyes. I had the foggy brain syndrome all

the time. I kinda just got used to it. I was very difficult to work, and sleep,

I have a high stress job. 2007 I still have the same stuff, but during my flair

up I am unable to multitask, I get a little panicky. Then this last September

the intense spinal, sciatica, and foot pain occurred the doctor says its

peripheral neuropathy. (UCLA 2 weeks to confirm) apparently its autoimmune

related. The 2007 flair ups seemed to be every other week, but sense September

its consistent that's why I'm on disability. I will be in remission soon. (knock

on wood) It seems everyone is a little different with their symptoms. Sorry,

another symptom apparently is rambling conversations.

Jack

Re: Yet another new member

Hello , , and other new members,

Welcome to the group, I joined this great group last month. Since joining I have

came to terms that I'm not the only one who has this mysteries disease nobody is

familiar with. Hopefully you will also find comfort with our support.

I came down with Stills in February 2006. It appears there are different results

from blood test, and additional symptoms. After finally getting diagnosed rather

quickly compared to others. I was only hospitalized three times before a disease

specialist diagnosed me. Stills dominates my life for now, I have unfortunately

came down with other concerns " Stills related " With the usual inflammation,

fevers, arthritis, fatigue, muscle pain, etc and basically feeling crappy to say

the least. I now have developed extreme lower back and foot pain. Peripheral

neuropathy has put me on disability. However I'm going to do the best to be

strong and positive for my wife, four kids as myself. Keep a positive attitude,

do the best as you can to take care of yourself. As you will have your ups enjoy

them, and your downs learn to deal with them, I know it¢s hard. Do your homework

and get familiar with the disease. Hopefully you have a good doctor and take

your

medications. I take an enbrel shot and methotrexate once a week for joint

protection its very important, and prednisone for my flair ups, Vicodin for

pain. Oh, Praying does help...

Stay tough,

Jack Nicoll 47

Oxnard, Ca

____________ _________ _________ _________ _________ _________ _

Be a better pen pal.

Text or chat with friends inside Yahoo! Mail. See how. http://overview.

mail.yahoo. com/

[Guest guest]

Hello Diane,

Basically the balance of 2006 I was consistently sick. Mostly inflammation,

arthritis, a lot of pressure around my eyes. I had the foggy brain syndrome all

the time. I kinda just got used to it. I was very difficult to work, and sleep,

I have a high stress job. 2007 I still have the same stuff, but during my flair

up I am unable to multitask, I get a little panicky. Then this last September

the intense spinal, sciatica, and foot pain occurred the doctor says its

peripheral neuropathy. (UCLA 2 weeks to confirm) apparently its autoimmune

related. The 2007 flair ups seemed to be every other week, but sense September

its consistent that's why I'm on disability. I will be in remission soon. (knock

on wood) It seems everyone is a little different with their symptoms. Sorry,

another symptom apparently is rambling conversations.

Jack

Re: Yet another new member

Hello , , and other new members,

Welcome to the group, I joined this great group last month. Since joining I have

came to terms that I'm not the only one who has this mysteries disease nobody is

familiar with. Hopefully you will also find comfort with our support.

I came down with Stills in February 2006. It appears there are different results

from blood test, and additional symptoms. After finally getting diagnosed rather

quickly compared to others. I was only hospitalized three times before a disease

specialist diagnosed me. Stills dominates my life for now, I have unfortunately

came down with other concerns " Stills related " With the usual inflammation,

fevers, arthritis, fatigue, muscle pain, etc and basically feeling crappy to say

the least. I now have developed extreme lower back and foot pain. Peripheral

neuropathy has put me on disability. However I'm going to do the best to be

strong and positive for my wife, four kids as myself. Keep a positive attitude,

do the best as you can to take care of yourself. As you will have your ups enjoy

them, and your downs learn to deal with them, I know it¢s hard. Do your homework

and get familiar with the disease. Hopefully you have a good doctor and take

your

medications. I take an enbrel shot and methotrexate once a week for joint

protection its very important, and prednisone for my flair ups, Vicodin for

pain. Oh, Praying does help...

Stay tough,

Jack Nicoll 47

Oxnard, Ca

____________ _________ _________ _________ _________ _________ _

Be a better pen pal.

Text or chat with friends inside Yahoo! Mail. See how. http://overview.

mail.yahoo. com/

[Guest guest]

Wow - you are a great traveler! So engaged in your world. I find women

and men like you inspirational! Many of my Sierra Club hiking buddies are over

60! They are awesome! Glad to know you are on this journey with me. - cheers,

RJ

" In my

mind,

> this is my last-ditch effort. "

>

> To me, the fact that you are starting again now is the sign that... there's no

> limit on starting again.

>

>

>

> Thank you for joining us.

>

>

>

>

>

>

> ________________________________

> From: scalhounsousie <calmclam@...>

> weightloss

> Sent: Sat, August 7, 2010 2:00:11 AM

> Subject: Yet another new member

>

>

> Another yo-yo who wants the string to break!

>

> The latest up/down cycle began in 2008. I spent a year in Mexico to study

> Spanish and while I was there lost 40 pounds. I did a lot of walking and the

> food was not always to my liking. And because I was living with a family my

> binging opportunities were limited. Gained it all back with more. Now I have

> been in the Dominican Republic since March 3 - same story, have lost 40

pounds.

> However, I'm heading back to the States in a couple of weeks and have a FEAR

of

> gaining it all back...again... So I'm trying to learn more about myself and

> better ways of facing food & fears.

>

> Discovered IOWL just this week and for the first time in YEARS feel there is

> hope. I'm listening carefully and using the new workbook - plus making my own

> notes so I have a quick summary that is very personal so I can remind myself

> frequently what I don't want and what I do want.

>

> In my mind, this is my last-ditch effort. I just turned 70 and believe, make

> that KNOW, that if I don't follow through this time my life may be shorter and

> for sure it won't have the quality that I want.

>

>

> 's guided imagery and questions seem to have been written for me. What a

> refreshing and hopeful approach.

>

>

>

>

>

>

>

[Guest guest]

Morning Susie!

What I want to know is - how do you get to go on these great trips and live with

families? I want to do that!

In terms of the weight loss I would look at it like this: What is so different

about living overseas that is dropping the weight off of you? And is it

something that you can easily keep up when you get home? If living with a

family keeps you from binging then I guess that won't work once you get home.

You said you are walking a lot, can you continue to use walking as your main

mode of transport when you come home? At the very least the walking will

prevent or slow down the gaining of pounds if you do go back to binge eating.

There is also the possibility that the walking will become a new way of stress

relief for you (which may prevent binging) and you will get to see your home in

a whole new way, up close in personal, that driving keeps us from. You may feel

more connected to your community, neighborhood etc... s have a whole

culture!

>

> Another yo-yo who wants the string to break!

>

> The latest up/down cycle began in 2008. I spent a year in Mexico to study

Spanish and while I was there lost 40 pounds. I did a lot of walking and the

food was not always to my liking. And because I was living with a family my

binging opportunities were limited. Gained it all back with more. Now I have

been in the Dominican Republic since March 3 - same story, have lost 40 pounds.

However, I'm heading back to the States in a couple of weeks and have a FEAR of

gaining it all back...again... So I'm trying to learn more about myself and

better ways of facing food & fears.

>

> Discovered IOWL just this week and for the first time in YEARS feel there is

hope. I'm listening carefully and using the new workbook - plus making my own

notes so I have a quick summary that is very personal so I can remind myself

frequently what I don't want and what I do want.

>

> In my mind, this is my last-ditch effort. I just turned 70 and believe, make

that KNOW, that if I don't follow through this time my life may be shorter and

for sure it won't have the quality that I want.

>

> 's guided imagery and questions seem to have been written for me. What a

refreshing and hopeful approach.

>

>

>

[Guest guest]

Hi Kisha - I got started on my adventures by attending a school in

Mexico to study Spanish and that has opened a whole new world for me.

Now I look for volunteer opportunities that don't cost an arm and a leg

(many do). Speaking another language is like having a magic wand - I can

create opportunities by helping Spanish speakers in VA (where I usually

live) and they tell me about places I can go, who to contact, etc and

even invite me to " go home " with them. I LOVE it.

What's different about living overseas... Mainly the food - some is

wonderful but almost all is unfamiliar and not so tasty to me. When I

binge it's not just about the quantity it's also about the taste,

texture and temperature of the food. Plus, living with a family, my

" favorite " foods are not readily available. Here, in the Dominican

Republic, the electricity is unreliable - it goes on/off all day long

(and night). Almost everyone has a system of special batteries so they

can have light when the power is off. This, however, is not sufficient

to run a refrigerator so keeping a supply of tasty goodies is not

feasible. Sometimes I think that I am following the same eating pattern

as someone who has had lap-band surgery - very small meals several times

a day - without the surgery!

Anyway, I do love food and that's my fear; when I get home I will have a

refrigerator that functions and a cupboards that are full of my favorite

flavors. I am making progress - I've only listened to the first five

podcasts (0-4) but have made friends with my stomach - that's the part

that was trying to comfort me and all the time I thought it was my

enemy! I've even named it and talk to it several times a day - asking

what it might want and asking permission to eat certain things. It's

amazing. It's name is " Lily " - the meaning of " " is a lily.

You must have been reading my mind about walking. It's one of the few

exercises that I can enjoy. I live near a National Civil War Battlefield

which is a quiet pleasant place to walk. For a long time I have wanted

to try walking with Nordic

Walking Sticks but... but what? Didn't want to spend the money... Didn't

know if I'd like them... Looking for an excuse not to walk... Anyway

last night I ORDERED A PAIR! And, I can " see " myself enjoying the added

movement and strength building exercise they will provide. I return to

the States next Friday and they should be waiting for me.

(www.boomyah.com)

Another thing I'm doing is checking the calorie count of some of my

favorite dishes. I don't eat a lot of packaged foods, I love to cook and

like my own food. By being conscious of the food value of my favorite

things I can plan portion sizes - this way I can eat what I " want " and

keep it reasonable. By doing this now when I can't give in and just go

fix something to eat - I will have the information I need to eat

sensibly when I do get home.

If you don't have 's workbook I recommend that you get it.

Basically it's a written copy of the early podcasts and having it helps

me focus on parts that I might have " overlooked " (as in didn't want to

hear!) and reminds me of the questions I need to ask myself. I saved a

copy of the workbook so I could make my notes right in it - in a

different font - so it has become my journal.

Wow, I'm long-winded or is it " long-fingered? "

Good luck on YOUR journey.

& Lily ;-))

> >

> > Another yo-yo who wants the string to break!

> >

> > The latest up/down cycle began in 2008. I spent a year in Mexico to

study Spanish and while I was there lost 40 pounds. I did a lot of

walking and the food was not always to my liking. And because I was

living with a family my binging opportunities were limited. Gained it

all back with more. Now I have been in the Dominican Republic since

March 3 - same story, have lost 40 pounds. However, I'm heading back to

the States in a couple of weeks and have a FEAR of gaining it all

back...again... So I'm trying to learn more about myself and better ways

of facing food & fears.

> >

> > Discovered IOWL just this week and for the first time in YEARS feel

there is hope. I'm listening carefully and using the new workbook - plus

making my own notes so I have a quick summary that is very personal so I

can remind myself frequently what I don't want and what I do want.

> >

> > In my mind, this is my last-ditch effort. I just turned 70 and

believe, make that KNOW, that if I don't follow through this time my

life may be shorter and for sure it won't have the quality that I want.

> >

> > 's guided imagery and questions seem to have been written for

me. What a refreshing and hopeful approach.

> >

> >

> >

>