Good News

[Guest guest]

In a message dated 11/16/2005 7:05:03 P.M. Eastern Standard Time,

@... writes:

More good news today. This morning I got a call from my LLMD that

my blood had come back negative for Lyme or co-infections for a

second straight time (tested 6 weeks apart). My doctor is keeping

me on the antibiotics until next time as I still have some minor

symptoms. I was dx'd in December of 2004 and I have been on abx

since. I believe that I have had Lyme for 5 - 10 years.

I am battling the flu today and yesterday. Sore throat, fever and

deep coughing. But I feel much better today then I did yesterday.

I got a lot of rest, stayed in bed most of the time. The good news

is that I haven't felt any of the Lyme symptoms return.

My wife has been off of the antibiotics for over 1 month now and is

feeling good. My son continues to be bright eyed and energetic. He

has hit all of his milestones except speech. He is 17 months old

and says about 5 words (Mommy, Daddy...). We have heard that

typically boys talk later then girls so we aren't too concerned but

we are keeping an eye on his development. I'd be interested in

hearing any input from the group about this.

I truely know how it feels to start on the path to recovery. That

is why I post our good news. I don't minimize the challenge or

feelings that we all go through. I just remember when I joined the

group all of the postings were about the challenges of recovery, not

many about the recovery. I have met and read about many people that

have recovered from Lyme yet we don't hear their stories. I think

it helps to hear the good news as well as the challenges.

I believe that we can all recover.

Be well,

DEAR KEVIN !!! THIS NEWS IS JUST FANTASTIC !!!! AMAZING AND WONDERFUL ...I

WISH YOU AND YOUR FAMILY CONTINUED GOOD HEALTH !!! and ..don't worry so much

about the kid ...I have one of each ...and they both did everything opposite

...now they are both full grown adults and just fine ;-) ! God Bless ...Kat

[Guest guest]

More good news today. This morning I got a call from my LLMD that

my blood had come back negative for Lyme or co-infections for a

second straight time (tested 6 weeks apart). My doctor is keeping

me on the antibiotics until next time as I still have some minor

symptoms. I was dx'd in December of 2004 and I have been on abx

since. I believe that I have had Lyme for 5 - 10 years.

I am battling the flu today and yesterday. Sore throat, fever and

deep coughing. But I feel much better today then I did yesterday.

I got a lot of rest, stayed in bed most of the time. The good news

is that I haven't felt any of the Lyme symptoms return.

My wife has been off of the antibiotics for over 1 month now and is

feeling good. My son continues to be bright eyed and energetic. He

has hit all of his milestones except speech. He is 17 months old

and says about 5 words (Mommy, Daddy...). We have heard that

typically boys talk later then girls so we aren't too concerned but

we are keeping an eye on his development. I'd be interested in

hearing any input from the group about this.

I truely know how it feels to start on the path to recovery. That

is why I post our good news. I don't minimize the challenge or

feelings that we all go through. I just remember when I joined the

group all of the postings were about the challenges of recovery, not

many about the recovery. I have met and read about many people that

have recovered from Lyme yet we don't hear their stories. I think

it helps to hear the good news as well as the challenges.

I believe that we can all recover.

Be well,

> > >

> > > All,

> > >

> > > I just wanted to share some good news on my family's recovery

> from

> > > Lyme. My wife has come off of abx since her test have come

back

> > > negative and she hasn't had any major symptoms in a while.

She

> > has

> > > been off of the abx for a week and feels great. She joined

> Weight

> > > Watchers 2 weeks ago and has lost 10 lbs. We will be keeping

a

> > > close eye on her. She has a checkup scheduled to do another

> blood

> > > test in November.

> > >

> > > My son's battle is going well. He is still on abx

(amoxicillan)

> > but

> > > his energy level is high and he has never shown any major

> > symptoms.

> > > His doctor said he will be on the abx for a year to be sure

that

> > the

> > > Lyme is erraticated from his system.

> > >

> > > I have been doing very well. Energy level high and no major

> > > symptoms. My tests still show Lyme but the Lyme levels have

> come

> > > down dramatically. I'm still on Ceftin after breakfast and

> after

> > > dinner. Other then that our lives are back to normal. THANK

> GOD!

> > >

> > > We are all cautiously optimistic that the suffering from this

> > > terrible disease is behind us. We continue to be dilgent

about

> > our

> > > treatments and are now focusing on our general health (mind,

> body

> > > and spirit).

> > >

> > > It's been over a year since we started down the dark path of

> Lyme

> > > Disease, but we can now see the light at the end of the tunnel.

> > >

> > > Be well,

> > >

> > > and family

> > >

> >

>

[Guest guest]

I'm so very, very happy for you all and thanks for posting this- yes

it is so wonderful to hear the good.

thanks Rose Maire

>

> More good news today. This morning I got a call from my LLMD that

> my blood had come back negative for Lyme or co-infections for a

> second straight time (tested 6 weeks apart).

[Guest guest]

Hi ,

Good to hear you so excited!

Keep it up.

With love,

Loes, The Netherlands

From:

[mailto: ]

On Behalf Of bsmyers3999@...

Sent: woensdag 23 november 2005

19:09

liver problems

Subject: [ ] Good

News

I have something to be very thankful for this year and I am

so excited.

As most of you know I had a biopsy in October that said I was going into stage

4 AIH.

I went to my G.I. yesterday and he said that I hve a better chance of getting

hit by a car than have to need a transplant. I am doing so much better on just

Imuran without prednisone that he couldn't believe the change in me.

I have lost weight. have more energy, and am alot more chipper. He said I look

so healthy now that if he sent me to be preregistered they would say no way.

I was so excited by his attitude that I grinned all the way home.

I have already gotten all my Christmas decorations up, Christmas cards done and

for the first time in years I am making Thanksgiving dinner.

I am very thankful and happy and wanted to share with all of you.'

I pray that all of you who celebrate Thanksgiving have a beautiful and

wonderful day.

BRenda the WV hillbilly

p.s. we are supposed to get a big snow storm so hope I don't loose electric

before the turkey is done.LOL

[Guest guest]

, You have had your share of feeling bad, so I am glad that this holiday you and your family can be truly Happy with a "Happy Thanksgiving". To feel good and have energy is what we all cherish, and wish for.

I am grateful that I too am feeling pretty good at least with the liver condition, but there is always something. Now I am struggling with feelings of dizziness, short of breath, racing heart, throbbing veins on the side of my head. All very indicative of highblood pressure, But I do not have high blood pressure. at least not THAT high. 155/80. Last week it was 155/50 and the doctor took me off of ENALAPRIL MALEATE 5MG , which is supposed to be good for the heart for diabetics (which I am but under control with Actos), I am feeling a bit better.

It could also be stress related, although I cannot identify the STRESS. I have always lived my life on high adrenelin. Why change now? The doctor says it could be because my husband died unexpectedly last June(2005). True, it was shocking and I still get mad at him everyso often, but that is not new either. And it does not make my heart stress out. Whenever I have these symptoms, it seems totally unrelated to anything. Sitting and writing sstuff at the computer and all of a sudden my heart races, or watching television in bed and the carotid artery throbs in my ear ( had a carotic artery test, it is not blocked, good gflow!) Had a echocardiogram yesterday, and am waiting for the results. Oh well! I am going to have a great Thanksgiving with all kinds of family and lots and lots of different foods, as everyone brings something!

HAPPY TURKEY DAY TO ALL! And I will be giving thanks for all the good folks on this forum.

Clara

[ ] Good News

I have something to be very thankful for this year and I am so excited.As most of you know I had a biopsy in October that said I was going into stage 4 AIH.I went to my G.I. yesterday and he said that I hve a better chance of getting hit by a car than have to need a transplant. I am doing so much better on just Imuran without prednisone that he couldn't believe the change in me.I have lost weight. have more energy, and am alot more chipper. He said I look so healthy now that if he sent me to be preregistered they would say no way. I was so excited by his attitude that I grinned all the way home. I have already gotten all my Christmas decorations up, Christmas cards done and for the first time in years I am making Thanksgiving dinner.I am very thankful and happy and wanted to share with all of you.'I pray that all of you who celebrate Thanksgiving have a beautiful and wonderful day.BRenda the WV hillbillyp.s. we are supposed to get a big snow storm so hope I don't loose electric before the turkey is done.LOL

[Guest guest]

Clara sometimes when we think we are relaxed our mind sends a different message to our bodies.

When my Daughter died I also had "unexplained" episodes like you mentioned and I was finally diagnosed with Post Traumatic Stress Syndrome. I was put on Paxil and it helped for a while. I am now on Lexapro in the morning and Elavyl at night. I am doing alot better but I still can't be in crowds and sometimes I still get episodes.

I know about the anger and it does get better. If you need someone to talk to I am here. Email me privatly if you want.

[Guest guest]

Thanks Loes it's always a good day if we can get out of bed!!!!!

Hope all is well with you

[Guest guest]

Thanks, ,

I am sorry to hear about your daughter and thanks for the encouragement.

I am taking Zanax at night before I go to sleep ( so I can go to sleep) maybe it helps all day too. I stopped taking it, hoping to wean myself off. Maybe I cannot get off it yet. In the meantime, I am following through with the doctors. I cannot imagine how the pressure in my head ( when I bend over) can be psychological! But maybe I'll go see a shrink too!

I want to resolve this issue, I am feeling too good to allow a little stress send me spinning. ( my foot that hurt for 2 years froman injury stopped hurting lately. My arthritic thumb joint is under control with a brace, I am not cuaghing with my asthma, my stomach ulcers are controlled by Aciphex, and I am not itching like I used to, etc. I cannot allow this little head thing to take over my life! Clara From OR

Re: [ ] Good News

Clara sometimes when we think we are relaxed our mind sends a different message to our bodies.When my Daughter died I also had "unexplained" episodes like you mentioned and I was finally diagnosed with Post Traumatic Stress Syndrome. I was put on Paxil and it helped for a while. I am now on Lexapro in the morning and Elavyl at night. I am doing alot better but I still can't be in crowds and sometimes I still get episodes.I know about the anger and it does get better. If you need someone to talk to I am here. Email me privatly if you want.

[Guest guest]

Fantastic ! I am so happy for you!!!!!!

Debby

[ ] Good News

I have something to be very thankful for this year and I am so excited.As most of you know I had a biopsy in October that said I was going into stage 4 AIH.I went to my G.I. yesterday and he said that I hve a better chance of getting hit by a car than have to need a transplant. I am doing so much better on just Imuran without prednisone that he couldn't believe the change in me.I have lost weight. have more energy, and am alot more chipper. He said I look so healthy now that if he sent me to be preregistered they would say no way. I was so excited by his attitude that I grinned all the way home. I have already gotten all my Christmas decorations up, Christmas cards done and for the first time in years I am making Thanksgiving dinner.I am very thankful and happy and wanted to share with all of you.'I pray that all of you who celebrate Thanksgiving have a beautiful and wonderful day.BRenda the WV hillbillyp.s. we are supposed to get a big snow storm so hope I don't loose electric before the turkey is done.LOL

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.8/183 - Release Date: 11/25/2005

[Guest guest]

Thanks Debby I am alittle behind but am trying to get caught up.

Hope you had a good Thanksgiving

[Guest guest]

Congratulations Grandma!!!!

What a big boy, I know he's beautiful! Spoil him, that is what were

here for:)Tawny

--- In , " bureau97504 " <bureau97504@y...>

wrote:

>

> It was wonderful news for Ken to be home safe and sound because of

all

> of our prayers...............and i also want to thank all of my RA

> family for their love and support during my daughter-in-law's

> pregnancy. Evan Alvarez was born yesterday weighing in at

8lbs

> 6oz and 20 inches and a very healthy baby. Thank you for all of

your

> prayers..........I feel very blessed to have another wonderful

> grandson and such wonderful friends.

>

> Love and hugs to all

> Pat in so Ore.

>

[Guest guest]

As have the others I am following your posts and feel deeply your

pain. In your last one I noticed something positive that is worth

emphasizing. You said that you communicated what you called a " no

nonsense " tone or attitude to your husband. No matter what any of us

are going through the overwhelming fear comes from feeling out of

control, feeling like a victim. As many of the ladies mentioned,

getting counselling even if just for yourself will help with that,

as will taking care of your health. Keep moving forward even if in

little steps...action conquers fear. Finances can make you feel out

of control and afraid, but you are finding a way around that, a safe

haven it seems if it is your father. We all have to use whatever

resourses we have, and you are very fortunate to be able to turn to

him...more importantly, however, is the fact that you are now

thinking more clearly, focusing on what needs to be done and doing

it. Gaining strength. You will find that the more you do that the

more in control you will feel and while it can be a roller coaster

ride, you are on the right track. May God bless you and your family.

You may have heard all this from many others, but it can't be said

enough. I am woman; hear me roar...Ha! Charlotte

>

> The financial consultant from Dr Kolbs office said they found out

my

> military insurance should pay for the removal of my lymph nodes,

this

> is GREAT news because it will save us 1400 dollars!!!

> As for everything else, I greatly appreciate all the suggestions

and

> will definetly do some counceling to see how I can handle the

emotions

> and effects of this explant and then get help for my marriage. My

> husband has really started to come around since I told him I was

going

> to get a loan for my dad and pay it back myself and also just the

fact

> I had a no nonsense attitude when I told him might have had an

impact.

> Thank you so much for all your support!

>

>

>

>

[Guest guest]

GOOD NEWS!! That's great .

I am so glad to hear both that military insurance will help and that your

husband is coming

around.

--- In , " swtlilblonde31 " <swtlilblonde31@y...>

wrote:

>

> The financial consultant from Dr Kolbs office said they found out my

> military insurance should pay for the removal of my lymph nodes, this

> is GREAT news because it will save us 1400 dollars!!!

> As for everything else, I greatly appreciate all the suggestions and

> will definetly do some counceling to see how I can handle the emotions

> and effects of this explant and then get help for my marriage. My

> husband has really started to come around since I told him I was going

> to get a loan for my dad and pay it back myself and also just the fact

> I had a no nonsense attitude when I told him might have had an impact.

> Thank you so much for all your support!

>

>

>

>

[Guest guest]

Charlotte . . .

Something you said really struck a chord . . .

" victim " . . . Long ago, when I first got involved in

implant support groups, that word came up . . . We

discussed the feelings that go with the word " victim "

and decided not to use that word.

While we truly have been victimized, describing

ourselves is very demoralizing and debilitating.

Instead, we need to see ourselves as " survivors " . . .

It's a much more powerful way to see ourselves so we

can move past a horrible experience.

Hugs,

Rogene

[Guest guest]

,

I'm thrilled for you . . . Everything will work out .

.. . one step at a time. Your hubby is going to come

around completely in time. Keep being loving towards

him. . . He needs your support as much as you need

his!

One things that drives men crazy is the feeling they

are helpless to help you when you are sick. With my

hubby, as time as gone by, he's come to see these

things as temporary and knows that all he needs to do

is to be supportive when I need it. (Eating his

cooking is enough to make me want to get well quickly

anyway!) Our marriage keeps getting stronger and

stronger. . . We had some rough times when I was

implanted too.

You're going to get through this and be all the

stronger for the experience!

Is there any chance the military will pay for your

explant?

Hugs and prayers,

Rogene

[Guest guest]

Nope the military won't pay for explant or a lift. They will put the

damn things in a woman but they wash their hands as soon as there is

a problem. Now I didn't have mine put in by the military nor would I

ever trust them enough to do so.

But the military insurance will pay for my lymphnode removal because

it is medically necessary and not considered a cosmetic surgery. I

don't know if anyone is aware of this but Dr Kolb was a Major in the

airforce, She has delt with the military insurance and knows how it

all works, she and her staff are working very hard at trying to get

all the help they can for me.

As for my husband and I, we will get through it.It is just so hard

on us and I am so emotional. He has been quite mean, however, I

think by me telling him that I will pay for the loan from my dad on

my own he finally sees the I don't expect him to pay for my mistake

and that I am taking charge. he told me he felt like the only

reason I was with him anymore is because he was a " paycheck " , that

is when I realised he felt taken for granted. I sat him down and had

a long talk with him but I really believe the one thing that brought

him out of his cave was me telling him I was going to pay the loan

off and that I would contribute from now on to the retirement fund.

I really do have great respect for all you ladies in helping me

through this and I hope after explant I can still lean on this board

for support.

HUGS,

>

> ,

>

> I'm thrilled for you . . . Everything will work out .

> . . one step at a time. Your hubby is going to come

> around completely in time. Keep being loving towards

> him. . . He needs your support as much as you need

> his!

>

> One things that drives men crazy is the feeling they

> are helpless to help you when you are sick. With my

> hubby, as time as gone by, he's come to see these

> things as temporary and knows that all he needs to do

> is to be supportive when I need it. (Eating his

> cooking is enough to make me want to get well quickly

> anyway!) Our marriage keeps getting stronger and

> stronger. . . We had some rough times when I was

> implanted too.

>

> You're going to get through this and be all the

> stronger for the experience!

>

> Is there any chance the military will pay for your

> explant?

>

> Hugs and prayers,

>

> Rogene

>

[Guest guest]

,

Congratulations! Where there's a will, there's a way!! I'm really

proud of you, you're taking so many steps in the right direction.

You're not a victim, you're victorious!!

Sis

>

> The financial consultant from Dr Kolbs office said they found out

my

> military insurance should pay for the removal of my lymph nodes,

this

> is GREAT news because it will save us 1400 dollars!!!

> As for everything else, I greatly appreciate all the suggestions

and

> will definetly do some counceling to see how I can handle the

emotions

> and effects of this explant and then get help for my marriage. My

> husband has really started to come around since I told him I was

going

> to get a loan for my dad and pay it back myself and also just the

fact

> I had a no nonsense attitude when I told him might have had an

impact.

> Thank you so much for all your support!

>

>

>

>

[Guest guest]

Congradulations on taking charge of your health and

your life, !

With your determination, I know you will work

everything out with your implants, AND your husband! .

.. . It won't be a straight line, but you'll get there.

I'm really proud of you!

Hugs and prayers,

Rogene

[Guest guest]

...I AM SO HAPPY FOR YOU! What a relief to know that some of

it is covered. You deserve it girl! Hugs..

Jenna

>

> The financial consultant from Dr Kolbs office said they found out

my

> military insurance should pay for the removal of my lymph nodes,

this

> is GREAT news because it will save us 1400 dollars!!!

> As for everything else, I greatly appreciate all the suggestions

and

> will definetly do some counceling to see how I can handle the

emotions

> and effects of this explant and then get help for my marriage. My

> husband has really started to come around since I told him I was

going

> to get a loan for my dad and pay it back myself and also just the

fact

> I had a no nonsense attitude when I told him might have had an

impact.

> Thank you so much for all your support!

>

>

>

>

[Guest guest]

Yeah, I agree. The feeling of being a victim can be so

immobilizing. I heard once, " there are no victims, only

volunteers " ...and I guess in some ways it's true. Didn't we all put

ourselves in a position to have to reconstruct our lives no matter

how temporarily (or not)? And for some of us the " volunteering "

pattern continues until we get it right. But that's moving into a

conversation far off of the subject of putting out toxic fires. We

need to be able to clear away that which overwhelms us and those

steps come one at a time - clearing up our bodies has to be

paramount. Good feedback. Charlotte

>

> Charlotte . . .

>

> Something you said really struck a chord . . .

> " victim " . . . Long ago, when I first got involved in

> implant support groups, that word came up . . . We

> discussed the feelings that go with the word " victim "

> and decided not to use that word.

>

> While we truly have been victimized, describing

> ourselves is very demoralizing and debilitating.

>

> Instead, we need to see ourselves as " survivors " . . .

> It's a much more powerful way to see ourselves so we

> can move past a horrible experience.

>

> Hugs,

>

> Rogene

>

[Guest guest]

Charlotte,

I'm tossing in my two cents again . . .

There are too many people out there who see us as

volunteers for the implant experience. I've been told

flat out that women got what they were asking for when

they got sick from breast implants!

We didn't ask to be lied to . . .or to be treated so

shabbily when we begged for help . . . or to be denied

care by indifferent doctors!

There is a huge amount of money funding the breast

implant business. The last thing they care about is

what implants do to women (or to their unborn

children). . . All they want is their money . . .

The way I see it is that the only thing we are guilty

of is trusting the FDA when they either approved

breast implants, or gave their tacit approval by

allowing them on the market under so called studies! .

.. . And for trusting the doctors who told us breast

implants are safe.

After fourty years, there still aren't any

comprehensive studies on women or children made ill by

breast implants. Is that criminal or not?

How words are used is a very powerful thing (note how

the administration chooses its words and slogans very

carefully!) . . . We must be very careful too . . . We

need to chose words that offer hope and not despair!

In my opinion, NONE of us volunteered to be made ill

by these dangerous devices . . . Nor are we victims

even though we've been victimized.

We are survivors! We will survive. And we will tell

the world that there are people out there who would

take everything away from anyone for their own selfish

gain! We will name names, and they will be the ones

who know shame! Their money will turn to blood on

their hands!

Hugs and prayers,

Rogene

[Guest guest]

Rogene,

Good morning. Your words always inspire. Have a good day.

Charlotte

>

> Charlotte,

>

> I'm tossing in my two cents again . . .

>

> There are too many people out there who see us as

> volunteers for the implant experience. I've been told

> flat out that women got what they were asking for when

> they got sick from breast implants!

>

> We didn't ask to be lied to . . .or to be treated so

> shabbily when we begged for help . . . or to be denied

> care by indifferent doctors!

>

> There is a huge amount of money funding the breast

> implant business. The last thing they care about is

> what implants do to women (or to their unborn

> children). . . All they want is their money . . .

>

> The way I see it is that the only thing we are guilty

> of is trusting the FDA when they either approved

> breast implants, or gave their tacit approval by

> allowing them on the market under so called studies! .

> . . And for trusting the doctors who told us breast

> implants are safe.

>

> After fourty years, there still aren't any

> comprehensive studies on women or children made ill by

> breast implants. Is that criminal or not?

>

> How words are used is a very powerful thing (note how

> the administration chooses its words and slogans very

> carefully!) . . . We must be very careful too . . . We

> need to chose words that offer hope and not despair!

>

> In my opinion, NONE of us volunteered to be made ill

> by these dangerous devices . . . Nor are we victims

> even though we've been victimized.

>

> We are survivors! We will survive. And we will tell

> the world that there are people out there who would

> take everything away from anyone for their own selfish

> gain! We will name names, and they will be the ones

> who know shame! Their money will turn to blood on

> their hands!

>

> Hugs and prayers,

>

> Rogene

>

[Guest guest]

Wow you make thus far several times of day (that my internal as well as physical) WELL being needs to stay focused and at arms length from the abyss this tends to lend itself to. You have your wing's fluffed by me, indubitably for ALL you do to inspire, encourage and your incredible drive to help! I took you with me when I went shopping w/my 12 yr old! So hard only able to give a couple of hrs when I still relish when I was ABLE to participate more. I realize this WILL increase, well I pray it will but I must admit that "the being in the NOW" of things leaves me feeling useless to my otherwise previous capacity. It sure is a "roller coaster" for this woman that has always avoided them. The pull from the toes to not feel guilty, a victim & most days here in ole Murrieta, Ca. ALONE can be a minute to minute struggle. I have suited up & shown up for every test, surg, rejection, ignorance etc

for soooo many yrs now and have not availed myself to feeling or sharing my grief and the never ending need to NEVER let em see or hear my sometimes near suicidal internal and physical pain. I'm the Polly , Magoo, Lucy persona & guard myself from dismissal but criticism for those moments "it" peeks out and is judged for not being more encouraging, positive and supportive. With what YOU avail US and others within this group along with soooo many avenues that weave us ALL closer to recognition & making a DIFFERENCE~ IS the "not quiting 5 minutes before the Miracle" I have (bones and all) ached for!!!!!!!! I PRAY the darkness I allowed to hit the page is left only to my having "a moment" where otherwise I am UPRIGHT and HOPEFUL! Love, Charlotte <chiandjoe@...> wrote: Rogene, Good morning. Your words always inspire. Have a good day. Charlotte > > Charlotte, > > I'm tossing in my two cents again . . . > > There are too many people out there who see us as > volunteers for the implant experience. I've been told > flat out that women got what they were asking for when > they got sick from breast implants! > > We didn't ask to be lied to . . .or to be treated so > shabbily when we begged for help . . . or to be denied > care by indifferent doctors! > > There is a huge amount of money funding the breast > implant business. The last thing they care about is > what implants do to women (or to their unborn > children). . . All they want is their money . . . > > The way I see it is that the only thing we

are guilty > of is trusting the FDA when they either approved > breast implants, or gave their tacit approval by > allowing them on the market under so called studies! . > . . And for trusting the doctors who told us breast > implants are safe. > > After fourty years, there still aren't any > comprehensive studies on women or children made ill by > breast implants. Is that criminal or not? > > How words are used is a very powerful thing (note how > the administration chooses its words and slogans very > carefully!) . . . We must be very careful too . . . We > need to chose words that offer hope and not despair! > > In my opinion, NONE of us volunteered to be made ill > by these dangerous devices . . . Nor are we victims > even though we've been victimized. > > We are survivors! We will survive. And we will tell > the world that there are people out there who would > take everything away from anyone for their own selfish > gain! We will name names, and they will be the ones > who know shame! Their money will turn to blood on > their hands! > > Hugs and prayers, > > Rogene > __________________________________________________

[Guest guest]

,

I'm so glad you found this group . . . You are by no

means alone. There are tens of thousands - if not

hundreds of thousand - of women who are sharing your

experience. . . I'm sure there are many there in

Murrieta - if only they will share their experience.

Because of the way we've been treated, we fill guilty

and ashamed that were duped and made ill IF we even

make sense of the health problems we have experienced.

Just KNOW that there is much to hope for. I've been

active in implant support since 1994 - Lynda has been

around even longer - and Lea has been around about the

same time. I think they would agree that none of us

have ever seen a woman who failed to get better after

her implants were removed IF they are removed properly

- and if she has not experienced the kind of

extracapsular rupture common before the early

nineties.

You may not recover 100% of your health. But, you can

reach the point where life is good again and you can

enjoy all it has to offer. For myself, I had silicone

gel implants for 16 years. I began having problems

within months. It took almost 16 years to make the

connection - and even then, it was only my sister who

connected the dots! By that time, I had lost my job, I

couldn't think straight, couldn't do the simplest job

right. I hurt all the time and was taking multiple

medications. There were no support groups! If a woman

had breast implants, it was her secret. IMHO, that's

where they got us!

Twelve years after having my implants out, I am doing

really well as long as I follow my " program " . . .

i.e., eat right, get enough sleep, avoid stress, don't

overdo exercise - and get enough exercise. . . I see

my health as walking a balance beam. As long as I keep

everything in balance, I do fine. Nobody would know I

had a problem. However, unlike others, if I cheat on

my program, I fall off the beam. Sometimes it's really

hard to climb back on! . . . My goal is to make that

beam as wide and as close to the ground as possible.

They've found a clear correlation between the amount

of time women have silicone gel implants and how sick

they are . . . After 13 years, it can be assumed they

will be quite ill. I don't think anyone is paying much

attention to what's going on with saline implants -

since they are FDA " approved " , so no further studies

are required.

It appears there are several factors at work . . .

Some women appear to be sensitive to the materials . .

.. sometimes the implants are contaminated before being

placed, and for others, they become contaminated over

time as body fluids are exchanged with the contents of

the implants. Regardless, over time, the silicone

shell is going to deteriorate. Minute particles of the

implants are going to be distributed throughout the

body. Where these particles land, and the bodies

reaction to them results in a host of symptoms that

mimic numerous serious diseases.

Getting well is something every woman has to do for

herself. It's hard! . . . It takes committment,

discipline (lots), and patience. There are no magic

pills, or quick fixes. It's up to each woman to learn

to listen to her body. To figure out what helps and

what doesn't. We're all different, so there's no

formula to wellness.

Something that can help immeasurably is to start

keeping a journal about how you feel and what you're

doing. You may not feel like you're making progress,

but when those down days come later on, you'll be able

to look back and see how far you've come. That will

provide the motivation to keep moving forward because

there is a light at the end of the tunnel!

Hugs and prayers,

Rogene

[Guest guest]

great news!!! good luck and god bless!!!

love

shari