disability

[Guest guest]

gosh you guys have really been thru the wringer. then when the dr mentioned

my foot surgery and said " barring any problem " i just gave him a glare and

said you just don't know who you are dealing with here. now all the chest pains

dizzy ness. bp. i feel like i did many years ago and i gotta tell you.... i

don't like it!!! especially when you lose it at a styx concert. gee can't a

girl just have fun once and awhile!!! i kept thinking beach and cabana boys

when the took my bp today.

kathy in il

[Guest guest]

Deb,

I so wish things were better for you. It was almost four years ago that we

were encouraging each other to have surgery. I'm okay I have come to terms with

the eating

problems. It is better than what the alternative would have been. I live on

crackers, pretzels, veggies and soup. I can not dairy, meat or anything with

fat or grease

in it. Also anything heavy isn't a good thing to do. I most often feel ill

after eating. I was taking medicine for it but it made me tired so now I just

deal with

it. It passes after two hours or so.

How can disability make you pay money back. That is an awful thing for them to

do. Give them a dollar a week. Do they know how much you have been through?

I hope you can enjoy your daughters wedding. I had a nice time at my sons

weddings. Stressful but a nice day.

I hope you don't have to face more surgery. I know how scared you must be, I

know how I felt with the surgeries.

I graduated from Bucks Community College and I am planning on going to Temple.

I hope there will be enough money. I like to keep my mind busy. Graduation was

such

fun, I never thought I would do the graduation thing.

Anyway try to be well, I know all this is very trying. You remain always in my

prayers.

Lynn (MeMom)

BadKneesDebs@... wrote:

> Hi Me Mom,

>

> It does seem like the same path that we both took such a short time ago. I

> got approved last year and I had UNUM disability while SSI was being reviewed

> and since that time it has been nothing but PAYBACK. I new I had to return

> some money from the amount I received, but they claimed that I had to return

the

> back pay amount that I received for my 2 daughters and now I have received yet

> another bill for $13,000.00. They claim that my children were insured and

> receiving benefits for " being disabled " . Heck, I never even thought you could

> insure your kids like that!!!

> When our taxes were calculated, they claimed that there was a shortage of

> over $3,000.00. I wish I had never heard of SSI or UNUM.

>

> I just got home from the hospital on Wednesday due to a blood clot in my

> " bad " knee and the infection that was in the knee spread to my port a cath, so

> that had to come out and I am back home with central lines.

>

> 's wedding is on 7-9-05 and they are trying to keep me going until

> then at which time they are proposing an above the knee amputation. Golly,

> , the major surgeries we have been forced to endure with less than

" perfect "

> results. I am just petrified. How long has it been since you had your

> Whipple? I know that you are still probablly not feeling as good as you

should.

> My prayers are always with you dear friend. na graduated last night from

> high school, she will remain in the special needs program at the high school

> for at least another year.

>

> Be well, my dear friends.

>

> Gentle, tender, angel hugs..................

>

> Debs in FL

>

>

[Guest guest]

Deb,

I so wish things were better for you. It was almost four years ago that we

were encouraging each other to have surgery. I'm okay I have come to terms with

the eating

problems. It is better than what the alternative would have been. I live on

crackers, pretzels, veggies and soup. I can not dairy, meat or anything with

fat or grease

in it. Also anything heavy isn't a good thing to do. I most often feel ill

after eating. I was taking medicine for it but it made me tired so now I just

deal with

it. It passes after two hours or so.

How can disability make you pay money back. That is an awful thing for them to

do. Give them a dollar a week. Do they know how much you have been through?

I hope you can enjoy your daughters wedding. I had a nice time at my sons

weddings. Stressful but a nice day.

I hope you don't have to face more surgery. I know how scared you must be, I

know how I felt with the surgeries.

I graduated from Bucks Community College and I am planning on going to Temple.

I hope there will be enough money. I like to keep my mind busy. Graduation was

such

fun, I never thought I would do the graduation thing.

Anyway try to be well, I know all this is very trying. You remain always in my

prayers.

Lynn (MeMom)

BadKneesDebs@... wrote:

> Hi Me Mom,

>

> It does seem like the same path that we both took such a short time ago. I

> got approved last year and I had UNUM disability while SSI was being reviewed

> and since that time it has been nothing but PAYBACK. I new I had to return

> some money from the amount I received, but they claimed that I had to return

the

> back pay amount that I received for my 2 daughters and now I have received yet

> another bill for $13,000.00. They claim that my children were insured and

> receiving benefits for " being disabled " . Heck, I never even thought you could

> insure your kids like that!!!

> When our taxes were calculated, they claimed that there was a shortage of

> over $3,000.00. I wish I had never heard of SSI or UNUM.

>

> I just got home from the hospital on Wednesday due to a blood clot in my

> " bad " knee and the infection that was in the knee spread to my port a cath, so

> that had to come out and I am back home with central lines.

>

> 's wedding is on 7-9-05 and they are trying to keep me going until

> then at which time they are proposing an above the knee amputation. Golly,

> , the major surgeries we have been forced to endure with less than

" perfect "

> results. I am just petrified. How long has it been since you had your

> Whipple? I know that you are still probablly not feeling as good as you

should.

> My prayers are always with you dear friend. na graduated last night from

> high school, she will remain in the special needs program at the high school

> for at least another year.

>

> Be well, my dear friends.

>

> Gentle, tender, angel hugs..................

>

> Debs in FL

>

>

[Guest guest]

I wish that were true.

I signed up in 93 for disability, well in time from working as a secretary for

the required number of years...I was denied because lyme " wasnt on the list " of

debilitating illnesses. Tho I had 7 definitive diagnoses at that time, AND a

positive test.

A doctors statement " that my condition would continue indefinitely and/or result

in death' meant nothing to them.

I fought for ten more years before giving up. Was denied FOUR times, tho the

laws changed and it DID become a qualilfying condition. They said, first denial

must be right, so we wont change it. As if that means anything. I have

meningitis to top it all off, and am untreated for 9 years now since the last

pos test (during pregnancy). This is ludicrous!

At my LAST denial, they refused a spinal xray showing severe scoliosis, because

a CHIROPRACTOR took the xray. Whatta joke.

Connie Siese <Cslyme@...> wrote:

Don't wait to sign up for disabiity. Your time will expire and you will be

out of luck. You do not need a definitive diagnosis. You can sign up

because you cannot do your job anymore. Call a SS lawyer there or we have a

good on in MI.. " Lyme " is not in the SS book. so SS goes on all the other

symptoms you have..........DO NOT WAIT.

Hugs,

Connie

[ ] reference info

>I have had an IFA and a immunoblot come up positive

> for lyme. But since then the neurologist that I am

> seeing along with two infectious disease specialists,

> and others are telling me I do not have lyme. Because

> it is not in the State of Tennessee.

>

> I am very aggravated at this point. I have severe

> migraine headaches, lost my vision twice, have

> tremors, cognitive dysfunction, as well as many other

> problems that we all know too well unfortunately.

>

> Does anyone know where I may get something supporting

> the fact that a western blot or an elisa will not have

> a correct result if the patient is on antibiotics?

>

> I have been continuously on doxy since Sept 2003, and

> have went off twice. The first time for two weeks and

> lost my vision again. The second time less than two

> weeks and had a bad episode of dementia. The

> neurologist has checked me twice for lyme, don't know

> the lab but it is not Igenx (unfortunately) and I can

> not get them to send the blood or Cerebral Spinal

> Fluid to them. He has also checked me for Multiple

> Sclerosis which came back negative, due to brain

> lesions. I know with all my heart that I have lyme,

> and have been unable to work for quite awhile now,

> and am trying to sign up for disability but can't get

> a definite diagnosis. Does anyone have any advice?

>

> Take Care and God Bless You All,

> Beverly

>

>

[Guest guest]

Lymie girl,

When did lyme become listed as a disability to SS? I

keep checking the web site and can not find it

anywhere. I looked under neuro problems, under

infectious disease (ie..aids), autoimmune. I cannot

find it anywhere. I was turned down when I signed up

before (while I was blind) and did not know it until

late last year when I was going to sign my 7 year old

up for sensoineural hearing loss in both ears which is

causing a learning disablity. They told me I was

denied in October of 2003, but was never notified by

the case worker. I did go back to work for about a

year after I was diagnosed with lyme and got on the

antibiotics I felt better but still could only work

part time. Now I can not even work one eight hour

shift a week. I have worked as a secretary and can no

longer type because of the tremors, the cognitive

stuff. I waa a medical insurance biller, and a legal

secretary I can't remember the things I need to. And

so then when I went back to work it was in a

restaurant working as a waitress, because the

scheduling is more lenient. And with this illness you

never know when you can get out of bed. Now, I can't

do that because of the tremors either. I left work

around Oct or Nov. of last year. I did not know there

was a time limit. I though that you had to prove that

this lasted at least one year. Is that wrong?

Any help would be so much appreciated.

God Bless us All,

Beverly

--- lymie girl <lymielemon@...> wrote:

> I wish that were true.

>

> I signed up in 93 for disability, well in time from

> working as a secretary for the required number of

> years...I was denied because lyme " wasnt on the

> list " of debilitating illnesses. Tho I had 7

> definitive diagnoses at that time, AND a positive

> test.

>

> A doctors statement " that my condition would

> continue indefinitely and/or result in death' meant

> nothing to them.

>

> I fought for ten more years before giving up. Was

> denied FOUR times, tho the laws changed and it DID

> become a qualilfying condition. They said, first

> denial must be right, so we wont change it. As if

> that means anything. I have meningitis to top it all

> off, and am untreated for 9 years now since the last

> pos test (during pregnancy). This is ludicrous!

>

> At my LAST denial, they refused a spinal xray

> showing severe scoliosis, because a CHIROPRACTOR

> took the xray. Whatta joke.

>

> Connie Siese <Cslyme@...> wrote:

> Don't wait to sign up for disabiity. Your time will

> expire and you will be

> out of luck. You do not need a definitive

> diagnosis. You can sign up

> because you cannot do your job anymore. Call a SS

> lawyer there or we have a

> good on in MI.. " Lyme " is not in the SS book. so SS

> goes on all the other

> symptoms you have..........DO NOT WAIT.

>

> Hugs,

> Connie

> [ ] reference info

>

>

> >I have had an IFA and a immunoblot come up positive

> > for lyme. But since then the neurologist that I

> am

> > seeing along with two infectious disease

> specialists,

> > and others are telling me I do not have lyme.

> Because

> > it is not in the State of Tennessee.

> >

> > I am very aggravated at this point. I have severe

> > migraine headaches, lost my vision twice, have

> > tremors, cognitive dysfunction, as well as many

> other

> > problems that we all know too well unfortunately.

> >

> > Does anyone know where I may get something

> supporting

> > the fact that a western blot or an elisa will not

> have

> > a correct result if the patient is on antibiotics?

> >

> > I have been continuously on doxy since Sept 2003,

> and

> > have went off twice. The first time for two weeks

> and

> > lost my vision again. The second time less than

> two

> > weeks and had a bad episode of dementia. The

> > neurologist has checked me twice for lyme, don't

> know

> > the lab but it is not Igenx (unfortunately) and I

> can

> > not get them to send the blood or Cerebral Spinal

> > Fluid to them. He has also checked me for

> Multiple

> > Sclerosis which came back negative, due to brain

> > lesions. I know with all my heart that I have

> lyme,

> > and have been unable to work for quite awhile now,

> > and am trying to sign up for disability but can't

> get

> > a definite diagnosis. Does anyone have any

> advice?

> >

> > Take Care and God Bless You All,

> > Beverly

> >

> >

>

>

>

>

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

[Guest guest]

good gosh, did you have a lawyer to help you?

Connie, MI

[ ] reference info

>

>

>>I have had an IFA and a immunoblot come up positive

>> for lyme. But since then the neurologist that I am

>> seeing along with two infectious disease specialists,

>> and others are telling me I do not have lyme. Because

>> it is not in the State of Tennessee.

>>

>> I am very aggravated at this point. I have severe

>> migraine headaches, lost my vision twice, have

>> tremors, cognitive dysfunction, as well as many other

>> problems that we all know too well unfortunately.

>>

>> Does anyone know where I may get something supporting

>> the fact that a western blot or an elisa will not have

>> a correct result if the patient is on antibiotics?

>>

>> I have been continuously on doxy since Sept 2003, and

>> have went off twice. The first time for two weeks and

>> lost my vision again. The second time less than two

>> weeks and had a bad episode of dementia. The

>> neurologist has checked me twice for lyme, don't know

>> the lab but it is not Igenx (unfortunately) and I can

>> not get them to send the blood or Cerebral Spinal

>> Fluid to them. He has also checked me for Multiple

>> Sclerosis which came back negative, due to brain

>> lesions. I know with all my heart that I have lyme,

>> and have been unable to work for quite awhile now,

>> and am trying to sign up for disability but can't get

>> a definite diagnosis. Does anyone have any advice?

>>

>> Take Care and God Bless You All,

>> Beverly

>>

>>

>

>

>

>

>

> Questions and/or comments can be directed to the list owner at

> -Owner

>

>

[Guest guest]

Connie:

No I did not have an attorney. I think deep down

inside I was in denial. I did not know I had lyme

disease at the time I signed up. I just was having

daily migraines. They sent me to one neuro that

turned the questions he asked me around to sound like

I was a drug seeker. For example: He asked me what

medication did they give me that helped the headaches

and I told him percocet. He wrote a letter to my

doctor at the time (have since got a new doc) that I

went in there demanding to be seen, and demanding

percocet. I did call his office worried because one

side of my face was numb and I could not feel anything

on that side. He never mentioned that in the letter

though. I have since seen a new neuro that says there

is no lyme in the state of Tennessee, so therefore I

do not have lyme. They have done an ELISA and a

western blot, one I know from Quest lab. They done a

spinal tap almost four weeks ago and I was called the

other day telling me that I do not have lyme or as he

suspected Multiple Sclerosis. So I have to see him on

Wednesday to " figure out where to go from here " I have

tried to explain to him that testing while on

antibiotics is not accurate. And that the test should

be sent to Igenx. But they send it to whoever they

want to. If I want a special lab I will have to pay

out of my pocket at a price of $100.00 or more. My

husband is the only one working making 7.00 an hour

and we have 2 kids I can't afford that extra money.

The only reason we have internet right now is because

my husband uses it for work related things. I was

able to go back to work waiting tables about two

months or so after going on antibiotics because I

started feeling so much better. I worked for almost a

year and could not do it anymore. Social Security

keeps saying that according to their job expert I

could still work as a waitress. My boss there said

that I was a great employee, the only problem he had

was I had to miss so many days due to illnesses. I was

so angry when I took my daughter up to sign her up and

was told I was turned down due to medical reasons

without ever receiving notification. My daughter has

had 6 surgeries since then and things have went from

bad to worse so I have not reapplied yet. I am

getting information about lawyers in my area to see if

maybe they can get the date I originally applied

opened back up due to the fact I was never notified of

their decision. The guy at social security told me no

letter was ever sent. And the worker I had

specifically told me to never contact her. And I was

calling to notify her of another physician and

diagnosis. She was a real witch. My brain is so slow

that it takes me weeks to fill out paper work for

anything. A friend of mine signed up with a lawyer

and they charged her fees for their fees (postage,

phone calls, etc) through out her case. I can't

afford to do that. I have had to have people come to

my house and stay with me, to help when I was blind

and again when I was so sick I could hardly get out of

bed to go to the bathroom. I am going to have her

write a letter about the things she done for me and

how she has watched me deteriorate in the past 5

years, and turn it in with my application. Does anyone

know if your spouse can be one of two people to give

information regarding your condition? I am sorry to

ramble on.

God Bless you all,

Beverly

--- Connie Siese <Cslyme@...> wrote:

> good gosh, did you have a lawyer to help you?

>

> Connie, MI

>

__________________________________________________

[Guest guest]

Bev.

You can reapply on all your symptoms. The reasons you cannot work. You

don't need a lyme diagnosis. A frriend of mine didn't get hers for a long

time because they lost the claim. Your best bet is an attorney who doesn't

charge unless you win. You will have to pay for incidental stuff, but not

unless you win.......at least that is what I have to do. I bet your case

was thrown away. Will your doctor work with you? Does he/she know that

lyme is a clinical diagnosis. You know what I would take the MS diagnosis

to get SS. then keep looking for someone to treat you for lyme.Thank you for

telling me your story.

hugs,

connie, MI

Re: [ ] disability

>

> Connie:

>

> No I did not have an attorney. I think deep down

> inside I was in denial. I did not know I had lyme

> disease at the time I signed up. I just was having

> daily migraines. They sent me to one neuro that

> turned the questions he asked me around to sound like

> I was a drug seeker. For example: He asked me what

> medication did they give me that helped the headaches

> and I told him percocet. He wrote a letter to my

> doctor at the time (have since got a new doc) that I

> went in there demanding to be seen, and demanding

> percocet. I did call his office worried because one

> side of my face was numb and I could not feel anything

> on that side. He never mentioned that in the letter

> though. I have since seen a new neuro that says there

> is no lyme in the state of Tennessee, so therefore I

> do not have lyme. They have done an ELISA and a

> western blot, one I know from Quest lab. They done a

> spinal tap almost four weeks ago and I was called the

> other day telling me that I do not have lyme or as he

> suspected Multiple Sclerosis. So I have to see him on

> Wednesday to " figure out where to go from here " I have

> tried to explain to him that testing while on

> antibiotics is not accurate. And that the test should

> be sent to Igenx. But they send it to whoever they

> want to. If I want a special lab I will have to pay

> out of my pocket at a price of $100.00 or more. My

> husband is the only one working making 7.00 an hour

> and we have 2 kids I can't afford that extra money.

> The only reason we have internet right now is because

> my husband uses it for work related things. I was

> able to go back to work waiting tables about two

> months or so after going on antibiotics because I

> started feeling so much better. I worked for almost a

> year and could not do it anymore. Social Security

> keeps saying that according to their job expert I

> could still work as a waitress. My boss there said

> that I was a great employee, the only problem he had

> was I had to miss so many days due to illnesses. I was

> so angry when I took my daughter up to sign her up and

> was told I was turned down due to medical reasons

> without ever receiving notification. My daughter has

> had 6 surgeries since then and things have went from

> bad to worse so I have not reapplied yet. I am

> getting information about lawyers in my area to see if

> maybe they can get the date I originally applied

> opened back up due to the fact I was never notified of

> their decision. The guy at social security told me no

> letter was ever sent. And the worker I had

> specifically told me to never contact her. And I was

> calling to notify her of another physician and

> diagnosis. She was a real witch. My brain is so slow

> that it takes me weeks to fill out paper work for

> anything. A friend of mine signed up with a lawyer

> and they charged her fees for their fees (postage,

> phone calls, etc) through out her case. I can't

> afford to do that. I have had to have people come to

> my house and stay with me, to help when I was blind

> and again when I was so sick I could hardly get out of

> bed to go to the bathroom. I am going to have her

> write a letter about the things she done for me and

> how she has watched me deteriorate in the past 5

> years, and turn it in with my application. Does anyone

> know if your spouse can be one of two people to give

> information regarding your condition? I am sorry to

> ramble on.

>

> God Bless you all,

> Beverly

> --- Connie Siese <Cslyme@...> wrote:

>

>> good gosh, did you have a lawyer to help you?

>>

>> Connie, MI

>>

>

> __________________________________________________

>

[Guest guest]

I was accepted for permanent SSD first try. Talk about a total shocker!

The 'key' is to baffle them with bs LOL Not meaning lie to them, but write

down every single little incidental thing. Write down all you side

diagnosis, migraines, joint pain, FMS, MS etc even though they are

probably all covered under the Lyme umbrella, it still looks better. Write

out all you daily activities, what you could do way back when and how your

life is changed. If you are female and have those really bad 2 weeks a

month and cant move but the rest you are semi-ok , write that down, dont

know of any business that would let you work a week here or there. Just be

as detailed as you can be.

[Guest guest]

dear bev,

i'm sorry that things have been so very challenging for you and your child.

i was fortunate to have private disability insurance thru my employer, but

after one year the private insurance threatened to stop benefits unless i

applied for soc sec disability. because they could save lots of money if i

got ss, they hired an advocate to help me.

Disability Services, Inc./SSDC corp.

Phone: (800-374-9950)

www.ssdcdsi.com

this service could be cheaper than a lawyer. they had a person on staff who

used to work for ss reviewing claims, so she knew first hand what they look

for.

at the time i was only beginning to suspect i had lyme, and only had a neg

elisa test. i included every diagnosis that docs had given since i could no

longer work, including fibromyalgia, etc. everyone told me that esp with

fibro, i'd get rejected and need to be prepared for many appeals. i was

totally surprised to get approved on first application.

here is one of recent court cases that might help support your case.

article from fm online newsletter,

april 20, 2004, on Fibromyalgia and Long Term Disability Insurance -

Recent Developments, by Mark D. DeBofsky.

http://www.fmaware.org/fmOnlineNewsletter/2004/vol4_no4/article_longTerm.htm

it relates to a case where someone went back to work while ill and then had

to quit again:

" A desperate person might force himself to work despite an illness that

everyone agreed was totally disabling. ... Yet even a desperate person might

not be able to maintain the necessary level of effort indefinitely. "

may clear light & deep peace guide your healing journey.

kendra

[Guest guest]

Thank you so much Kendra at this point I am willing to

try anything. Our income is so low and since i have

lost my Tenncare, no medical insurance and no pharmacy

insurance. I can't even get my meds. This scares me so

bad. I am going to send copies of all kinds of info

about lyme disease and what I can find about the co

infections (have not been tested for them though)

probably would be negative since fortunately I still

have a few doxy left. I am going to talk to my doctor

when I go again at the end of August. Thankfully, she

has agreed to see me without insurance and told me not

to worry about her bill. She agreed that I was unable

to work. I need to ask her if she will fill out the

ss papers to that effect. And make sure she has down

all of the diagnosis' that will help. I really

appreciate your help. You have no idea how much.

God Bless you and may you have a speedy recovery and

many, many pain free days,

Beverly

--- kendra <kendraz@...> wrote:

> dear bev,

> i'm sorry that things have been so very challenging

> for you and your child.

> i was fortunate to have private disability insurance

> thru my employer, but

> after one year the private insurance threatened to

> stop benefits unless i

> applied for soc sec disability. because they could

> save lots of money if i

> got ss, they hired an advocate to help me.

> Disability Services, Inc./SSDC corp.

> Phone: (800-374-9950)

> www.ssdcdsi.com

> this service could be cheaper than a lawyer. they

> had a person on staff who

> used to work for ss reviewing claims, so she knew

> first hand what they look

> for.

>

> at the time i was only beginning to suspect i had

> lyme, and only had a neg

> elisa test. i included every diagnosis that docs had

> given since i could no

> longer work, including fibromyalgia, etc. everyone

> told me that esp with

> fibro, i'd get rejected and need to be prepared for

> many appeals. i was

> totally surprised to get approved on first

> application.

>

> here is one of recent court cases that might help

> support your case.

> article from fm online newsletter,

> april 20, 2004, on Fibromyalgia and Long Term

> Disability Insurance -

> Recent Developments, by Mark D. DeBofsky.

>

http://www.fmaware.org/fmOnlineNewsletter/2004/vol4_no4/article_longTerm.htm

> it relates to a case where someone went back to work

> while ill and then had

> to quit again:

> " A desperate person might force himself to work

> despite an illness that

> everyone agreed was totally disabling. ... Yet even

> a desperate person might

> not be able to maintain the necessary level of

> effort indefinitely. "

>

> may clear light & deep peace guide your healing

> journey.

> kendra

>

>

>

>

>

>

>

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

[Guest guest]

,

Thanks for the compliment, appreciate it!

I agree we need to focus on getting well. The only value I see in exploring the

coverup theory is that IF these critters were genetically altered, and it was

uncovered HOW they'd been genetically altered, this might provide important info

for scientists, researchers, etc. toward affecting not only a cure but a

vaccination against further infections, yes?

If there's one thing I learned from being in law enforcement, it's that a guilty

party, when their misdeed is exposed, immediately does everything within its

power to suddenly make itself appear innocent by " righting the wrong " so to

speak. (Lawyers have it figured out...it's called " plea bargaining " ) And if

several guilty parties are involved, 99.9% of the time they squeal on each other

louder than a pen full of pigs! It's a most expeditious way of obtaining

valuable information you might not otherwise get.

Now apply this to the scale you and I were talking about....you'd have so many

fingers pointing every which way your head would be spinning like Blair's

on the Excorcist...and a whole lot of squealing going on. Watergate, Enron, Area

51, etc. etc. etc. There's always a " leak " , once the heat is cranked up.

[ ] Re: disability (reply)

Pat,

GREAT Web site. GREAT information. THANKS!

Since I learned about this disease I have always been suspicious

that this is a man made form of bio-warfare. It probably has around

for thousands of years, but it may have been recently (past 40

years) altered to be an effective weapon.

My logic is simple. We know that there are no winners in a Nuclear

war, but in a Conventional war China, Russia or China and Russia

combined may have the capabilities to defeat us. They also have

very intelligent Scientists. If we were to develop a bio weapon

that kills quickly they would be able to develop counter measures to

contain it and quickly eradicate the threat. But, as stated in the

article, if we could slowly debilitate their populations then over

time they would be more vulnerable! Now, I'm sure there are many

diseases that cause slow incapacitations (ALS, MS, Parkinson's...);

but this disease has so many surreptitious, debilitating attributes

that it appears to me to be designed to be designed to " fly under

the radar " spreading itself. I have to believe that it has been

altered/designed by man. Along with our own government cover-ups

regarding Lyme and insurance conspiracies I would have to say that

there is a covert operation at work.

Please, this is just my speculation and an " off the cuff " theory. I

have done no research nor do I care to. I'm just thinking out

loud. Please feel free to email me privately with any comments.

Finally I have to say that I see little value in focusing too much

on this conspiracy theory. I recommend spending all of our energies

focusing on getting well.

Be well,

[Guest guest]

Pat,

Agreed. There is much to learn from the history of any disease.

Possible including the secrets to the cure!

I applaud your efforts and the information on your site is GREAT!

I'm sure if the Scientist knew how this disease was put together it

would help them to develop a cure. But if this conspiricy theory is

correct then there is already a cure, no super power develops a

weapon like this without having a cure to protect themselves.

Weighing all of the challenges that each one of us face,

unfortunetly I would set any efforts to uncovering this mystery at a

very low priority because of the chance of success vs. the work that

would be required. There is always a chance of tripping over a

meaninfull piece of evidence; but if that doesn't happen I believe

you would need a focused task force, an army of investigator's, a

team of top notch Scientists, people with a high level of national

influence, the patience to follow this through for perhaps decades

and ton's of money on the side of the Lyme consipricy effort to turn

the heat up enough to get someone to spill the beans. Remember what

would be at risk from the government's side and to what lengths they

would go to protect that secret. This would be a matter of National

Security to which they would spare no effort or expense to protect.

This is true not only because of the National Security but because

every Senior person involved would be at risk and that would make it

personal to them.

So aside from some sharing some interesting ideas on this I think we

should do everything we can to help find a cure for all of us!

Be well,

> ,

> Thanks for the compliment, appreciate it!

> I agree we need to focus on getting well. The only value I see in

exploring the coverup theory is that IF these critters were

genetically altered, and it was uncovered HOW they'd been

genetically altered, this might provide important info for

scientists, researchers, etc. toward affecting not only a cure but a

vaccination against further infections, yes?

> If there's one thing I learned from being in law enforcement, it's

that a guilty party, when their misdeed is exposed, immediately does

everything within its power to suddenly make itself appear innocent

by " righting the wrong " so to speak. (Lawyers have it figured

out...it's called " plea bargaining " ) And if several guilty parties

are involved, 99.9% of the time they squeal on each other louder

than a pen full of pigs! It's a most expeditious way of obtaining

valuable information you might not otherwise get.

> Now apply this to the scale you and I were talking about....you'd

have so many fingers pointing every which way your head would be

spinning like Blair's on the Excorcist...and a whole lot of

squealing going on. Watergate, Enron, Area 51, etc. etc. etc.

There's always a " leak " , once the heat is cranked up.

> [ ] Re: disability (reply)

>

>

> Pat,

>

> GREAT Web site. GREAT information. THANKS!

>

> Since I learned about this disease I have always been suspicious

> that this is a man made form of bio-warfare. It probably has

around

> for thousands of years, but it may have been recently (past 40

> years) altered to be an effective weapon.

>

> My logic is simple. We know that there are no winners in a

Nuclear

> war, but in a Conventional war China, Russia or China and Russia

> combined may have the capabilities to defeat us. They also have

> very intelligent Scientists. If we were to develop a bio weapon

> that kills quickly they would be able to develop counter

measures to

> contain it and quickly eradicate the threat. But, as stated in

the

> article, if we could slowly debilitate their populations then

over

> time they would be more vulnerable! Now, I'm sure there are

many

> diseases that cause slow incapacitations (ALS, MS,

Parkinson's...);

> but this disease has so many surreptitious, debilitating

attributes

> that it appears to me to be designed to be designed to " fly

under

> the radar " spreading itself. I have to believe that it has been

> altered/designed by man. Along with our own government cover-

ups

> regarding Lyme and insurance conspiracies I would have to say

that

> there is a covert operation at work.

>

> Please, this is just my speculation and an " off the cuff "

theory. I

> have done no research nor do I care to. I'm just thinking out

> loud. Please feel free to email me privately with any comments.

>

> Finally I have to say that I see little value in focusing too

much

> on this conspiracy theory. I recommend spending all of our

energies

> focusing on getting well.

>

> Be well,

>

>

[Guest guest]

are we talking about going on disability in Canada or the USA????

disability

Someone wrote about going on disability and how they were turned down the

first time. It's common to be turned down the first time from what I've

heard. It's almost a standard that the first time you apply you WILL be

turned down. Keep trying! You're not alone.

Christie

[Guest guest]

Oh, sorry; USA.

Christie

IAN R ALBERT <ian.albert@...> wrote:

are we talking about going on disability in Canada or the USA????

disability

Someone wrote about going on disability and how they were turned down the

first time. It's common to be turned down the first time from what I've

heard. It's almost a standard that the first time you apply you WILL be

turned down. Keep trying! You're not alone.

Christie

[Guest guest]

I've never had any luck at it. It seems a very hard thing to prove

unless you've had to be put in a hospital or something.

[Guest guest]

Marti,

I have been thinking of applying for disability...There are several things I

have questions about and was wondering if you could help? I was diagnosed a

year ago with p and pa...although I have had p since childhood...and believe I

have had pa for a few years...I have only been diagnosed for a short while...

My rhemy recently moved to another town and am having problems tracking her

down...She had no doubts that this is what I have....since she is gone I have

started seeing another rheumy in the same office...thought it would be less

complicated...He is saying he is unsure that this is pa... he is sure I have

p...He is saying that my hand and feet xrays look good yet this is not what the

other rheumy says? I questioned him about this and he said he is just unsure

right now because I did not have any lesions or nodules...I have them on my

knees but he did not xray them...Should I see another rheumy? Also I can still

walk and half way take care of my family on most days...but

there are days that I cant...There are days that it is noon before I can get

off the sofa...Then there are days I almost feel " Normal " . I always have

morning stiffness that last at least an hour...so if I have an early appointment

I have to get up extra early to ensure I can make it...I have missed many

morning appointments because of this...Also My husband has a good job and I do

not have to work although it would help if I could such as planning for kids

education and such....Without me working we can not do that...I currently work 2

days a week but just barely can get there....There are times I cant get

there...My question is...Would I qualify for full benefits including a monthly

income? You may not can answer that question but just thought I was see if you

knew...I am from Mississippi. and unsure if the laws differ by state.

Thanks in advance,

Vickey from Mississippi

snowbound22003 <mlw402@...> wrote:

Hi Laurie,

I applied successfully for SSDI and would be happy to answer

questions. We've seen many people on this list apply over the few

years I've been here so you might want to check the archives also.

There is good info there.

Several short words of advice I was given that helped me: always

write as if it were one of your worst days..the beaurocracy doesn't

understand good days and bad days and you would still have to work on

your bad days.

and: Detail everything about your daily life that is hard or

impossible for you to do. for example: do you need to use elastic

shoe laces or slip on shoes because you are unable to tie laces? Do

you need to altar your morning routine because it takes an hour to be

able to walk well enough to get into the shower? etc..

You might also check out www.psoriasis.org. They have basic info on

this process specifically for p and pa.

Good luck and let me know if I can be of further help to your

project.

Marti

[Guest guest]

Hi Vickey,

Applying for SSDI is the same in every state since it is a federal

program. I know some states and judges interpret the rules more

harshly but the basic idea is the same for all of us in the U.S.

It sounds like you are currently disabled. You have a part time

job which you are unable to even keep well because of your illnesses.

You will need a doctor's support and backing as Mike pointed out and

if you have 2-3 doctor's support all the better. Perhaps you could

explain your situation to your current rheum and ask him if he would

be supportive. Even if he doesn't have a firm diagnosis at this point

he will hopefully understand your dilemna.

If you are approved for disability you will receive a monthly check

based on how much money you have paid in over the years you worked.I

think it ranges from about 400 dollars a month to about 1200 a month.

Most checks are small. You would need to quit the part time job you

have while trying to get it since they wouldn't believe you that you

are unable to work if you are working.Just some things to consider

while making your decision.

If your new rheum doesn't have a firm diagnosis for you is he still

treating your symptoms? I hope he offering medications such as MTX

or enbrel. If he doesn't after a few appts. you may need to consider

trying another rheum.

Hope some of this helps..it is a hard decision and one I put off

for years.

best wishes,

marti

> Hi Laurie,

>

> I applied successfully for SSDI and would be happy to answer

> questions. We've seen many people on this list apply over the few

> years I've been here so you might want to check the archives also.

> There is good info there.

>

> Several short words of advice I was given that helped me: always

> write as if it were one of your worst days..the beaurocracy doesn't

> understand good days and bad days and you would still have to work

on

> your bad days.

>

> and: Detail everything about your daily life that is hard or

> impossible for you to do. for example: do you need to use elastic

> shoe laces or slip on shoes because you are unable to tie laces?

Do

> you need to altar your morning routine because it takes an hour to

be

> able to walk well enough to get into the shower? etc..

>

> You might also check out www.psoriasis.org. They have basic info

on

> this process specifically for p and pa.

>

> Good luck and let me know if I can be of further help to your

> project.

>

> Marti

>

[Guest guest]

Marti,

Thank you so much for your input!!! One of the reasons I decided to do this

is because I tried to read the email's in the archive BUT it's like reading one

really, really long run-on sentence

I hope that once I start posing the questions you will feel free to add your 2

cents

I think this info would be invaluable for many!

Thank you for the advise you gave. I'm glad to hear that you were successful

in your attempt. How many times did you have to apply? It's such a shame that

people who feel like we do have to go through such a process.

I look foward to hearing more from you! THANKS again...

Laurie and the four-foots

snowbound22003 <mlw402@...> wrote:

Hi Laurie,

I applied successfully for SSDI and would be happy to answer

questions. We've seen many people on this list apply over the few

years I've been here so you might want to check the archives also.

There is good info there.

Several short words of advice I was given that helped me: always

write as if it were one of your worst days..the beaurocracy doesn't

understand good days and bad days and you would still have to work on

your bad days.

and: Detail everything about your daily life that is hard or

impossible for you to do. for example: do you need to use elastic

shoe laces or slip on shoes because you are unable to tie laces? Do

you need to altar your morning routine because it takes an hour to be

able to walk well enough to get into the shower? etc..

You might also check out www.psoriasis.org. They have basic info on

this process specifically for p and pa.

Good luck and let me know if I can be of further help to your

project.

Marti

[Guest guest]

Hi Jan,

I just got my disability determination letter Friday. It said approved based on the health factors. I think the depression and suicidal ideation went a long way toward that, though. I got a good friend to do the questionnaire on quality of life and she was brutal. I wouldn't want to be my friend the way she put it down. Good thing I don't have to, huh?

I wish you very much luck! Who will they allow to be there on your behalf? What all health issues did you claim? I had like 7. HepC and cirrhosis being two of them, and then diabetes, neuropathy, obstructive sleep apnea, severe depression and suicidal tendencies. I think that was all of them. Hey, you can always have come up with more diagnoses. I added on 2 after my first application, when the questionnaires came in. And then another when I went in to re-apply for SSI after all my savings was gone.

Sally

-----Original Message-----From: [mailto: ] On Behalf Of Janet Sent: Sunday, December 04, 2005 6:30 PM Subject: [ ] Disability

Hey everyone I got a letter today stating I have a hearing on the 13th of this month..If any of you have any pointers please let me know ok?? I am really trying to get it..If the damn judge saw me try to get out of bed in the morning then maybe he'd grant it..You know...they have no idea what we are going through..How can you measure pain..One's measurement may be a 6 and the other a 12..Depends on your tolerance..Well my tolerance has went from 7 to 0..Now how's that?? I hate pain!! I am sick and tired of it..Besides that crap now I have a damn head cold!! I have to get up at 6 to get my daughter to the dentist 45 miles from here to be there for 8..That means I need to get up first time the clock rings and not hit it like I usually do..It is still raining here..The wind is blowing pretty hard too..Damn weather made me sick..My daughter has the sneezes and sniffles too..My son asked what was wrong with us and I said we are sick son..He said yall better not make me sick..I said start taking something and spray!!I guess everyone is hibernating tonight..Terry how is the new house and the job hunting going?? To all the newbies please stay in touch with us..We love to try and help you and just be here to listen to people bitch like I'm doing now!! LOL

Jan

PersonalsSingle? There's someone we'd like you to meet.Lots of someones, actually. Personals

[Guest guest]

just be honest with disability i was 3 yrs ago,and i been on disability

since.

>From: Janet <jfw4359@...>

>Reply-

>

>Subject: [ ] Disability

>Date: Sun, 4 Dec 2005 18:30:28 -0800 (PST)

>

>Hey everyone I got a letter today stating I have a hearing on the 13th of

>this month..If any of you have any pointers please let me know ok?? I am

>really trying to get it..If the damn judge saw me try to get out of bed in

>the morning then maybe he'd grant it..You know...they have no idea what we

>are going through..How can you measure pain..One's measurement may be a 6

>and the other a 12..Depends on your tolerance..Well my tolerance has went

>from 7 to 0..Now how's that?? I hate pain!! I am sick and tired of

>it..Besides that crap now I have a damn head cold!! I have to get up at 6

>to get my daughter to the dentist 45 miles from here to be there for

>8..That means I need to get up first time the clock rings and not hit it

>like I usually do..It is still raining here..The wind is blowing pretty

>hard too..Damn weather made me sick..My daughter has the sneezes and

>sniffles too..My son asked what was wrong with us and I said we are sick

>son..He said yall better not make me sick..I said start

> taking something and spray!!I guess everyone is hibernating

>tonight..Terry how is the new house and the job hunting going?? To all the

>newbies please stay in touch with us..We love to try and help you and just

>be here to listen to people bitch like I'm doing now!! LOL

>

>

>

>Jan

>

>

>---------------------------------

> Personals

> Single? There's someone we'd like you to meet.

> Lots of someones, actually. Personals

_________________________________________________________________

Express yourself instantly with MSN Messenger! Download today - it's FREE!

http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

[Guest guest]

Good luck Jan. When Susy had her hearing last year, she was in & out in less then 5 minutes. The SS doctor look at Susy's charts & said, that she could not work full time. The Judge awarded her, her binfits. She didn't have to say amything. I thank they make you go through this, to see if you are willing to fight for them. TerryJanet <jfw4359@...> wrote: Hey everyone I got a letter today stating I have a hearing on the 13th of this month..If any of you have any pointers please let me know ok?? I am really trying to get it..If the damn judge saw me try to get out of bed in the morning then maybe he'd grant it..You know...they have no idea what we are going through..How can you measure pain..One's measurement may be a 6 and the other a 12..Depends on your tolerance..Well my tolerance has went

from 7 to 0..Now how's that?? I hate pain!! I am sick and tired of it..Besides that crap now I have a damn head cold!! I have to get up at 6 to get my daughter to the dentist 45 miles from here to be there for 8..That means I need to get up first time the clock rings and not hit it like I usually do..It is still raining here..The wind is blowing pretty hard too..Damn weather made me sick..My daughter has the sneezes and sniffles too..My son asked what was wrong with us and I said we are sick son..He said yall better not make me sick..I said start taking something and spray!!I guess everyone is hibernating tonight..Terry how is the new house and the job hunting going?? To all the newbies please stay in touch with us..We love to try and help you and just be here to listen to people bitch like I'm doing now!! LOL Jan

PersonalsSingle? There's someone we'd like you to meet.Lots of someones, actually. Personals

DSL Something to write home about. Just $16.99/mo. or less

[Guest guest]

Oh I'm gonna fight!!!Terry Long <pawpawto3@...> wrote: Good luck Jan. When Susy had her hearing last year, she was in & out in less then 5 minutes. The SS doctor look at Susy's charts & said, that she could not work full time. The Judge awarded her, her binfits. She didn't have to say amything. I thank they make you go through this, to see if you are willing to fight for them. TerryJanet <jfw4359@...> wrote: Hey everyone I got a letter today stating I have a hearing on the 13th of this month..If any of you have any pointers please let me know ok?? I am really trying to get it..If the damn judge saw me try to get out of bed in the morning

then maybe he'd grant it..You know...they have no idea what we are going through..How can you measure pain..One's measurement may be a 6 and the other a 12..Depends on your tolerance..Well my tolerance has went from 7 to 0..Now how's that?? I hate pain!! I am sick and tired of it..Besides that crap now I have a damn head cold!! I have to get up at 6 to get my daughter to the dentist 45 miles from here to be there for 8..That means I need to get up first time the clock rings and not hit it like I usually do..It is still raining here..The wind is blowing pretty hard too..Damn weather made me sick..My daughter has the sneezes and sniffles too..My son asked what was wrong with us and I said we are sick son..He said yall better not make me sick..I said start taking something and spray!!I guess everyone is hibernating tonight..Terry how is the new house and the job hunting going?? To all the newbies please stay in touch with us..We love to try and help you and just be here to listen to

people bitch like I'm doing now!! LOL Jan PersonalsSingle? There's someone we'd like you to meet.Lots of someones, actually. Personals DSL Something to write home about. Just $16.99/mo. or less Jan

Personals Skip the bars and set-ups and start using Personals for free

[Guest guest]

I don't think that is what I said at all. If someone needs

disability, I think it is a good thing that we have it.

In , " C " <granscot@c...> wrote:

>

> ,

> " taking advantage of disability " I will admit some or few do but

there are

> among us that are really disabled 24/7. Do you think people who are

on

> disability just set around and have nothing to do but make trouble.

I bet it

> doesn't take you 3 hrs to do something it takes a normal person

less than an

> hour to do. Why does it take 3 hrs, because of all the breaks one

has to

> take because of the fatigue. IF someone is on disability brecause

of Lyme

> disease they aren't faking

> Coleen

> [ ] Re: lyme angel

>

>

> > Are you a licensed MD? Your messages are not very appropriate. Do

you

> > work full-time or do you take advantage of disability? The reason

I am

> > asking is that sometimes people that do not work have little to

do and

> > are not able to really handle the down time. Just my opinion only.

[Guest guest]

> I don't think that is what I said at all. If someone needs

> disability, I think it is a good thing that we have it.

It took me a couple of years after my dx to apply, Dr pushed me and I am

glad he did. I was in denial and just knew that this wasnt going to be my

life. Good thing is I have good days, which I take advantage of, going to

the store or even better, riding. Of course people see me those days and

ass'ume that this is me 24/7. Have gotten a few rude commentsbut then I

just tell them, well, you should see me the other 90% of the time when

vacuuming one room wears me out.

There are people who take advantage of the system, of any system. Have a

guy up the road who is wheelchair bound and nearly blind. However I have

seen him digging post holes and using heavy equipment on the very days I

have seen him bumbling about in his wheelchair. Go figure.