Re: Re: Toddler/Preschooler SCIG Infusions

May 1, 2011

We tried a couple different tubes of Hi-Tech brand and none worked for us. Are

you using NuFactor for your pharmacy? I know they send out the Hi-Tech stuff,

you might want to try name brand if you can get your hands on a tube of it. I'm

going to call a local pharmacy and see if they stock it and figure out how to

get it covered becasue were on our last tube of EMLA and its been back ordered

for months with NuFactor.

________________________________

From: April <n2katz2003@...>

Sent: Sat, April 30, 2011 11:57:02 AM

Subject: Re: Toddler/Preschooler SCIG Infusions

I will definitely go ahead and get a refill of the EMLA and see if that makes a

difference. The tube we have now is Hi-Tech, I guess it is the generic for

EMLA?

I am not sure what kind of counseling we could do for him, but look into that

option. He has language delays so doesn't completely comprehend everything that

is said to him which makes general communication difficult. He does have tons

of tantrums and frustration (comes out in anger or aggression) because of this.

He has a genetic disorder which has caused his various delays.

I thought about trying to figure out a way to have somebody else do the

infusions so I am not the bad guy and can try to comfort him, but just haven't

thought of any possible ways. Unfortunately, my husband gets queasy with

needles (he can't even watch me put my insulin pump needle in) and we don't have

any family close by. Our insurance will not cover at-home nurse (did first

infusion in Immunology clinic with the nurse practitioner). Also, he has issues

with being touched by people he doesn't know (part of his sensory and lack of

social skills) so I think it might be more traumatic having somebody else do it.

Today he did much better. He didn't run away from me. My husband is out of

town so my best friend (his godmother who we lived with for a year so he knows

well) came to help. I am realizing maybe my husband's uneasiness with needles

gets my son worked up. He did still scream as the needle went in though. I

really appreciate everyone's advice and suggestions!!

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