Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 Can you please post my questions? I do not seem able to post, only to receive... I am working with a family whose child was recently diagnosed with plagiocephaly. We are working with the peds doctor to arrange for them to go to the W of WA craniofacial clinic. I am having a terrible time trying to get any information on what to expect, how to navigate in the Seattle area, etc. It will take at least 2 full days' travel for the family to get there from their extremely remote location, so I'm tying to find out things that would be useful in venturing to an urban area to deal with this condition for their baby. Is there any parent support group there who could provide support? What exactly happens in a clinic visit? What is involved in a helmet fitting? Can the child go home immediately after it is made (we were told it takes a week) or do they need to stay near medical services to be sure it fits okay? What should they watch out for once they return home? Has anyone been to this clinic? Can you provide tips on how to get from the c-f clinic to where the helmet is molded? Please and thanks for any info and help any of you can provide. Thanks, ---------- >From: " Warner " <twarner@...> >Plagiocephalyegroups >Subject: Re: what's DOB? >Date: Tue, Sep 12, 2000, 5:30 AM > > > Sikorski, > > I'm glad to hear that you have produced a helmet that is working well! > > In your first posting you said that you were here mostly for feedback > on you helmet since you were positive many parents here are using > it. You said you weren't interested in DOBs. And, of course, that > you were not here for promotion. So where are your questions to > parents using your helmet? And if your interest is not in DOBs (or > promotion), why are you addressing (and disparaging) them? (Aside > from those who asked about it for clarification.) > > I hope you read the introduction for this plagiocephaly group when > you subscribed. It is to bring together parents of children with > plagiocephaly. Parents of children with plagiocephaly are allowed to > criticise the product they are using or have actually used on their > children. While I understand you have experience in this area, I > hope you consider that this is not a marketing platform. And, please > be clear when you talk about DOBs - be more specific. Describe your > DOB from orthomerica or say DOC band or some other banding device. > Don't lump them all together. > > So, keeping that in mind, please refrain from criticising other > products on the market. Until your wonderful helmet is available in > all 50 states and Canada, in every locality, you are inadvertently > criticising parents who had few choices (if any) in getting treatment > for their children. (Hey, if it is available everywhere, let us > know!) Most of the parents here have had a heck of a time getting > band or helmets for their children. The last thing they come here > for is criticism for what they have chosen, or more accurately, what > was available for their children. > > I welcome you here with your expertise. But please keep in mind that > this is a parent's group and we all do not have the same options > available to us, outside of repositioning, surgery, or deciding that > no orthotic treatment will be used. > > Tami > > > > >> | > The Velcro band on the DOC band is NOT tightened to increase >> | pressure. This >> | > information is false, and while I cannot state that the > prominent >> | > information is false as well, I've not come across ANY research > in >> | it, nor >> | > have I seen any posting in the last 8 months about this > phenomenon >> | from DOC >> | > band graduate parents. >> | > >> | > There are hundreds of helmet manufacturers. We have parents > here >> | using all >> | > types of treatment, and are here to learn and support each > other. >> | Parents >> | > are trying what they can to help their children. Some have had >> | marvelous >> | > success with helmet therapy. Some have gone from helmet to DOC > for >> | better >> | > results. I've not seen anyone truly unhappy with cranial >> | technologies' >> | > product, but I have seen people very upset with their helmet > makers. >> | > >> | > Please feel free to add to the Links section any articles that >> | discuss the >> | > phenomenon which you describe. >> | > >> | > Horstmann >> | > Mother of Quinn, 12 weeks into DOC band. (Scaphocephalic band, >> | which >> | is made >> | > differently) >> | > >> | > >> | > -----Original Message----- >> | > From: idoe11@g... [mailto:idoe11@g...] >> | > Sent: Sunday, September 10, 2000 6:40 PM >> | > Plagiocephalyegroups >> | > Subject: what's DOB? >> | > >> | > >> | > >> | > >> | > My Groups | Plagiocephaly Main Page | Start a new group! >> | > >> | > >> | > DOB stands for dynamic orthotic band. it's registered trade > mark of >> | > cranial technologies and, under a different name, but the same >> | > principle, it is now central fabricated by orthamerica. (cranial >> | > remodeling band, or something like that) orthamerica, >> | > i believe, is the only company that has it FDA approved, but i > might >> | > be wrong. anyway, if you'll take a look at the shape of a head > FROM >> | > THE TOP, you will notice that some sides are more prominent > than the >> | > others. draw imaginary cross through the top of the head, > bisecting >> | > head from nose to the small indentattion where the neck muscles >> | > attach >> | > to the head; then draw a perpendicular to this line, using the >> | > closest >> | > to the nose ear as a reference mark. it's much easier to > observe, >> | if >> | > you will pull a sock or stocking on the head.now you have 4 >> | > quadrents, >> | > and you can see what i am trying to say. usually, it's a bigger >> | > flattening on left or right BACK side and lesser flattening on > the >> | > opposing FRONT side. (respectively - periatal and frontal > bones). >> | > dob >> | > is a plastic ring, padded inside, that wraps around the > PROMINENT >> | > parts of the head, but has relieves for DEPRESSED areas. it is > slit >> | > somewhere on the side of the head, where the head has no > deformity, >> | > and slit is covered with elastic corrugated material. a velcro > strap >> | > is applied on the top of the slit, to hold it tight. i believe, >> | > cranial technologies use strap to TIGHTEN THE DOB ON THE HEAD, > just >> | > to >> | > keep it in place. to my best knowledge, dob is applying , as of >> | > designer, low pressure to the prominences, thus forcing head > bones >> | > (cranial bones) to grow into the relieves. (thus - DYNAMIC > band) if >> | > anybody is interested, remind me at my email, idoe11@g... and i >> | > will post a picture of a band and forces applied. >> | > did i answer the question? thank you for asking. always yours >> | > sikorski >> | > >> | > >> | > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 - I sent you an earlier message, you must not have gotten it. It's happened to me several times also.. Anyway, my son went through helmet therapy with Dr. Clarren at Children's Hospital in Seattle. We are very pleased with the results. I'll try to answer most of your questions, but please let me know if I've missed anything or you need more info. Our first appointment was with Dr. Clarren at Children's Hospital in north Seattle. At that appointment he asked lots of questions, took some measurements, felt Ethan's head and neck area and then explained our options. We did not require a cat scan or MRI as we had a classic case of plagio/torticollis, however, I know of children who've had to have one or the other before a helmet would be fitted. From there we made an appointment at the Children's Hospital Orthotics Dept. to be cast for the helmet. The orthotics department has been moved out of Children's Hospital and is now in Madison tower - in the heart of downtown Seattle (right next to Virginia Mason hospital). Since your family is coming from out of town - I would call the orthotics dept. directly and speak with Antoinette 206/386-6100. I've spoken with parents who initially met with Dr. Clarren at Madison Tower and were then cast immediately following. The important thing is to have the appointment at Madison Tower as they do not cast at Children's Hospital. We were cast on a Friday and went back the next Thursday to have the helmet fitted, however, again I have spoken with another parent that was cast on Tuesday and was able to have the helmet fitted on Thursday. The casting lasted about 10 minutes - they covered Ethan's head with a stocking that had a hole cut out for his eyes, nose and mouth. They then covered his head with many pieces of plaster. Once the plaster was on, they let it sit for a couple minutes and then took it off. It was messy and Ethan wasn't too happy, but I think more because he had to sit still than anything. A week later we had the helmet fitted, Dr. Clarren made a few adjustments, but the whole appointment took less than 30 minutes. From what I was told by Dr. Clarren - he has rarely had problems with red/pressure spots, but I would ask him about whether they should maybe stay another night before going home?? I'm unable to give any info about travel, directions, hotels, etc. as I live in a suburb 30 miles north. You may want to ask Antoinette - she is always very helpful. Here is the number for the Family Resource Center at Children's 206/526-2201. I also have a list of Motels that give discounts for Children's families along with the # to the Mc House, however, I believe these would be close to Children's Hospital not the orthotics clinic. Let me know if you're still interested and I'd be glad to get them to you. If it's easier for you, you can email me directly at WMDacar@... Please let me know if there is anything I can do to help out or give/get more information. Best of luck to your family. ----- Original Message ----- From: " Kallen-Brown " <kallen-brown@...> <Plagiocephalyegroups> Sent: Tuesday, September 12, 2000 7:26 PM Subject: Re: Please help! > > Can you please post my questions? I do not seem able to post, only to > receive... > > I am working with a family whose child was recently diagnosed with > plagiocephaly. We are working with the peds doctor to arrange for them to > go to the W of WA craniofacial clinic. I am having a terrible time trying > to get any information on what to expect, how to navigate in the Seattle > area, etc. It will take at least 2 full days' travel for the family to get > there from their extremely remote location, so I'm tying to find out things > that would be useful in venturing to an urban area to deal with this > condition for their baby. > > Is there any parent support group there who could provide support? > > What exactly happens in a clinic visit? What is involved in a helmet > fitting? Can the child go home immediately after it is made (we were told > it takes a week) or do they need to stay near medical services to be sure it > fits okay? What should they watch out for once they return home? > > Has anyone been to this clinic? Can you provide tips on how to get from the > c-f clinic to where the helmet is molded? > > Please and thanks for any info and help any of you can provide. Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2000 Report Share Posted September 14, 2000 Thank you! I sent a message directly to you with more questions. The family I'm asking for will be thrilled to read your note. :-) ---------- >From: " Wade and Dacar " <WMDacar@...> ><Plagiocephalyegroups> >Subject: Re: Please help! >Date: Wed, Sep 13, 2000, 10:19 AM > > > - I sent you an earlier message, you must not have gotten it. It's > happened to me several times also.. > > Anyway, my son went through helmet therapy with Dr. Clarren at Children's > Hospital in Seattle. We are very pleased with the results. I'll try to > answer most of your questions, but please let me know if I've missed > anything or you need more info. > > Our first appointment was with Dr. Clarren at Children's Hospital in north > Seattle. At that appointment he asked lots of questions, took some > measurements, felt Ethan's head and neck area and then explained our > options. We did not require a cat scan or MRI as we had a classic case of > plagio/torticollis, however, I know of children who've had to have one or > the other before a helmet would be fitted. From there we made an > appointment at the Children's Hospital Orthotics Dept. to be cast for the > helmet. The orthotics department has been moved out of Children's Hospital > and is now in Madison tower - in the heart of downtown Seattle (right next > to Virginia Mason hospital). Since your family is coming from out of town - > I would call the orthotics dept. directly and speak with Antoinette > 206/386-6100. I've spoken with parents who initially met with Dr. Clarren > at Madison Tower and were then cast immediately following. The important > thing is to have the appointment at Madison Tower as they do not cast at > Children's Hospital. We were cast on a Friday and went back the next > Thursday to have the helmet fitted, however, again I have spoken with > another parent that was cast on Tuesday and was able to have the helmet > fitted on Thursday. > > The casting lasted about 10 minutes - they covered Ethan's head with a > stocking that had a hole cut out for his eyes, nose and mouth. They then > covered his head with many pieces of plaster. Once the plaster was on, they > let it sit for a couple minutes and then took it off. It was messy and > Ethan wasn't too happy, but I think more because he had to sit still than > anything. A week later we had the helmet fitted, Dr. Clarren made a few > adjustments, but the whole appointment took less than 30 minutes. From what > I was told by Dr. Clarren - he has rarely had problems with red/pressure > spots, but I would ask him about whether they should maybe stay another > night before going home?? > > I'm unable to give any info about travel, directions, hotels, etc. as I live > in a suburb 30 miles north. You may want to ask Antoinette - she is always > very helpful. Here is the number for the Family Resource Center at > Children's 206/526-2201. I also have a list of Motels that give discounts > for Children's families along with the # to the Mc House, > however, I believe these would be close to Children's Hospital not the > orthotics clinic. Let me know if you're still interested and I'd be glad to > get them to you. > > If it's easier for you, you can email me directly at WMDacar@... > > Please let me know if there is anything I can do to help out or give/get > more information. > > Best of luck to your family. > > > > > > ----- Original Message ----- > From: " Kallen-Brown " <kallen-brown@...> > <Plagiocephalyegroups> > Sent: Tuesday, September 12, 2000 7:26 PM > Subject: Re: Please help! > > >> >> Can you please post my questions? I do not seem able to post, only to >> receive... >> >> I am working with a family whose child was recently diagnosed with >> plagiocephaly. We are working with the peds doctor to arrange for them to >> go to the W of WA craniofacial clinic. I am having a terrible time trying >> to get any information on what to expect, how to navigate in the Seattle >> area, etc. It will take at least 2 full days' travel for the family to > get >> there from their extremely remote location, so I'm tying to find out > things >> that would be useful in venturing to an urban area to deal with this >> condition for their baby. >> >> Is there any parent support group there who could provide support? >> >> What exactly happens in a clinic visit? What is involved in a helmet >> fitting? Can the child go home immediately after it is made (we were told >> it takes a week) or do they need to stay near medical services to be sure > it >> fits okay? What should they watch out for once they return home? >> >> Has anyone been to this clinic? Can you provide tips on how to get from > the >> c-f clinic to where the helmet is molded? >> >> Please and thanks for any info and help any of you can provide. Thanks, >> >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2000 Report Share Posted September 14, 2000 Thank you for posting my questions. I've received some helpful replies. :-) ---------- >From: " Kallen-Brown " <kallen-brown@...> >Plagiocephalyegroups >Subject: Re: Please help! >Date: Tue, Sep 12, 2000, 6:26 PM > > > Can you please post my questions? I do not seem able to post, only to > receive... > > I am working with a family whose child was recently diagnosed with > plagiocephaly. We are working with the peds doctor to arrange for them to > go to the W of WA craniofacial clinic. I am having a terrible time trying > to get any information on what to expect, how to navigate in the Seattle > area, etc. It will take at least 2 full days' travel for the family to get > there from their extremely remote location, so I'm tying to find out things > that would be useful in venturing to an urban area to deal with this > condition for their baby. > > Is there any parent support group there who could provide support? > > What exactly happens in a clinic visit? What is involved in a helmet > fitting? Can the child go home immediately after it is made (we were told > it takes a week) or do they need to stay near medical services to be sure it > fits okay? What should they watch out for once they return home? > > Has anyone been to this clinic? Can you provide tips on how to get from the > c-f clinic to where the helmet is molded? > > Please and thanks for any info and help any of you can provide. Thanks, > > > ---------- >>From: " Warner " <twarner@...> >>Plagiocephalyegroups >>Subject: Re: what's DOB? >>Date: Tue, Sep 12, 2000, 5:30 AM >> > >> >> Sikorski, >> >> I'm glad to hear that you have produced a helmet that is working well! >> >> In your first posting you said that you were here mostly for feedback >> on you helmet since you were positive many parents here are using >> it. You said you weren't interested in DOBs. And, of course, that >> you were not here for promotion. So where are your questions to >> parents using your helmet? And if your interest is not in DOBs (or >> promotion), why are you addressing (and disparaging) them? (Aside >> from those who asked about it for clarification.) >> >> I hope you read the introduction for this plagiocephaly group when >> you subscribed. It is to bring together parents of children with >> plagiocephaly. Parents of children with plagiocephaly are allowed to >> criticise the product they are using or have actually used on their >> children. While I understand you have experience in this area, I >> hope you consider that this is not a marketing platform. And, please >> be clear when you talk about DOBs - be more specific. Describe your >> DOB from orthomerica or say DOC band or some other banding device. >> Don't lump them all together. >> >> So, keeping that in mind, please refrain from criticising other >> products on the market. Until your wonderful helmet is available in >> all 50 states and Canada, in every locality, you are inadvertently >> criticising parents who had few choices (if any) in getting treatment >> for their children. (Hey, if it is available everywhere, let us >> know!) Most of the parents here have had a heck of a time getting >> band or helmets for their children. The last thing they come here >> for is criticism for what they have chosen, or more accurately, what >> was available for their children. >> >> I welcome you here with your expertise. But please keep in mind that >> this is a parent's group and we all do not have the same options >> available to us, outside of repositioning, surgery, or deciding that >> no orthotic treatment will be used. >> >> Tami >> >> >> >> >>> | > The Velcro band on the DOC band is NOT tightened to increase >>> | pressure. This >>> | > information is false, and while I cannot state that the >> prominent >>> | > information is false as well, I've not come across ANY research >> in >>> | it, nor >>> | > have I seen any posting in the last 8 months about this >> phenomenon >>> | from DOC >>> | > band graduate parents. >>> | > >>> | > There are hundreds of helmet manufacturers. We have parents >> here >>> | using all >>> | > types of treatment, and are here to learn and support each >> other. >>> | Parents >>> | > are trying what they can to help their children. Some have had >>> | marvelous >>> | > success with helmet therapy. Some have gone from helmet to DOC >> for >>> | better >>> | > results. I've not seen anyone truly unhappy with cranial >>> | technologies' >>> | > product, but I have seen people very upset with their helmet >> makers. >>> | > >>> | > Please feel free to add to the Links section any articles that >>> | discuss the >>> | > phenomenon which you describe. >>> | > >>> | > Horstmann >>> | > Mother of Quinn, 12 weeks into DOC band. (Scaphocephalic band, >>> | which >>> | is made >>> | > differently) >>> | > >>> | > >>> | > -----Original Message----- >>> | > From: idoe11@g... [mailto:idoe11@g...] >>> | > Sent: Sunday, September 10, 2000 6:40 PM >>> | > Plagiocephalyegroups >>> | > Subject: what's DOB? >>> | > >>> | > >>> | > >>> | > >>> | > My Groups | Plagiocephaly Main Page | Start a new group! >>> | > >>> | > >>> | > DOB stands for dynamic orthotic band. it's registered trade >> mark of >>> | > cranial technologies and, under a different name, but the same >>> | > principle, it is now central fabricated by orthamerica. (cranial >>> | > remodeling band, or something like that) orthamerica, >>> | > i believe, is the only company that has it FDA approved, but i >> might >>> | > be wrong. anyway, if you'll take a look at the shape of a head >> FROM >>> | > THE TOP, you will notice that some sides are more prominent >> than the >>> | > others. draw imaginary cross through the top of the head, >> bisecting >>> | > head from nose to the small indentattion where the neck muscles >>> | > attach >>> | > to the head; then draw a perpendicular to this line, using the >>> | > closest >>> | > to the nose ear as a reference mark. it's much easier to >> observe, >>> | if >>> | > you will pull a sock or stocking on the head.now you have 4 >>> | > quadrents, >>> | > and you can see what i am trying to say. usually, it's a bigger >>> | > flattening on left or right BACK side and lesser flattening on >> the >>> | > opposing FRONT side. (respectively - periatal and frontal >> bones). >>> | > dob >>> | > is a plastic ring, padded inside, that wraps around the >> PROMINENT >>> | > parts of the head, but has relieves for DEPRESSED areas. it is >> slit >>> | > somewhere on the side of the head, where the head has no >> deformity, >>> | > and slit is covered with elastic corrugated material. a velcro >> strap >>> | > is applied on the top of the slit, to hold it tight. i believe, >>> | > cranial technologies use strap to TIGHTEN THE DOB ON THE HEAD, >> just >>> | > to >>> | > keep it in place. to my best knowledge, dob is applying , as of >>> | > designer, low pressure to the prominences, thus forcing head >> bones >>> | > (cranial bones) to grow into the relieves. (thus - DYNAMIC >> band) if >>> | > anybody is interested, remind me at my email, idoe11@g... and i >>> | > will post a picture of a band and forces applied. >>> | > did i answer the question? thank you for asking. always yours >>> | > sikorski >>> | > >>> | > >>> | > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 In a message dated 11/10/00 9:45:11 PM Pacific Standard Time, cmorgan@... writes: << Is 15 weeks too early to get a referral to get a DOC band?!?! >> Not at all! My specialist told me that they do it as late as 18 mos. The earlier the quicker the results but my daughter is 7 mos old and getting hers Monday. Do not beat yourself up. It is fixable. Tell your ped you want to see a specialist and you guys will be fine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 I know exactly how you feel --- only this same situation has occurred with my THIRD child; so, don't feel bad and blame yourself for not knowing as much being a first time Mom. I brought my son's head shape to the attention of my ped at his 4 mos. check up. He agreed with me that he had a " plagio " problem and we both agreed to try repositioning and reevaluate at his 6 mos. check up. I had already started repositioning him earlier on because the 1st thing I noticed with him was his 1 ear looking distinctly different than the other. After about 1 1/2 mos., I realized his head really wasn't improving much at all, and went back to my pediatrician --- who thank God, was supportive and agreed that my son should get fitted for a helmet. So, at 6 mos. he was fitted and got his band on 10/23. My son's head if memory serves me right was nice and round at birth. We've discovered he has a mild case of torticollis -- mild, but I guess enough to lead to plagio. I didn't do anything different with my other 2 children -- put them all to sleep on their sides, and my 2nd child had a bad case of tort and didn't develop plagio. I also felt guilty about my son's head and thought maybe I didn't do something right or notice it soon enough, etc. Your child is young, it will all work out fine. You obviously are a good, observing and MOST importantly loving Mom (otherwise you wouldn't feel the guilt all of us Mom's face with 1 situation or another). Try the repositioning for a while, it may work; and also make sure you get your child evaluated for torticollis. My son's was so mild, both my pediatrician (although he won't admit it now) and I missed it. Sorry for rambling. Best of luck to you and your child. Michele and Kenny 4/19/00 PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Hi cmorgan: I am glad that you found this group. Please, please don't feel so guilty and angry about your daughter's head shape (easier said than done, I know!). Most of us can totally relate to those feelings, but have found that we have to deal with where we are, and do the best thing(s) we can to help our children. As a first time mom, there was no one to tell you the importance of rotating your child's sleep position. Just today I saw an ad for the SIDS alliance that recommends " tummy time during the day - put to sleep on back " . No mention of need to turn to prevent plagio. I have written them several times since we became involved with plagio and have not gotten a response. Believe me, I applaud their efforts to prevent SIDS deaths, but think parents need to be told " the rest of the story " . To me, the important things are: * your daughter is only 15 weeks old and you are aware of the head shape * you have already begun repositioning * you have found this group for support * you want to do what is best for your child. I think that repositioning can still be effective for you. Don't give up on it yet. It may not correct all of the flatness, but your daughter is certainly young enough to gain benefit. We used rolled receiving blankets to prop into a half turned position in his sleep and also used them under his shoulder while he was sitting in a car seat or swing. When you mention side preference, does your daughter turn her head to one side? That sounds like torticollis, a tightening of the neck muscles and needs physical therapy. As long as the tort is present, the plagio will continue to worsen. Have you discussed this with your ped? It is very important to resolve this. Many, many peds want to wait and see. Ours did. He had me convinced up to about 6 months that would get better on his own. We resolved the tort, but he was rolling over in his sleep and wouldn't stay in any one position we put him in. In the end, we went around our ped to a specialist to get the DOC band. It worked wonders this summer and has about 95% correction (including moving his ear back into line). You can contact Cranial Technologies (www.cranialtech.com) directly to see if they would see a child as young as yours. I think they wait until 5 months or so (I could be wrong). I found the company to be wonderfully caring, dedicated professionals who helped me make sense of a worrisome time. As far as ammunition for your ped, pull some of the articles from our FILES section or from the Cranial Tech site. Become as familiar as you can with the terminology and present these to your ped. Cranial Tech provided a wonderful info pack when I asked. Also under the FILES section is a list of Frequently Asked Questions. This may also be of some help for you. By the way, I also had a spouse that was doubtful that treatment was needed. There were many family members and friends who thought we were crazy to get the band. But, moms have instincts for a reason. Go with yours. Best of luck, Keep the questions coming and keep us posted. Sue Luck mom to , DOC band graduate ----- Original Message ----- From: <cmorgan@...> <Plagiocephalyegroups> Sent: Saturday, November 11, 2000 12:44 AM Subject: Please Help! > I am sitting here at almost 1:00AM sick to my stomach. I feel upset, > guilty, and angry. I first noticed my daughter's unusual shaped head > when she was just 3 weeks. I started AGGRESSIVE repositioning at 5 > weeks. She is now 15 weeks and her head hasn't changed a bit! It > actually seems to be growing in that same shape! You can't tell from > the front (her facial features are fine), and any person on the > street wouldn't notice it, but you can definately tell from the top. > I just bought her an exersaucer (another attempt to help her head > round out), and I was alarmed when I looked down on her head. It > makes one of her ears stick out a bit and it is soooo slanted on one > side of her head. > > I feel like crying. I know her head was NOT like this when she was > born (she was a c-section and we all commented how perfectly round > her head was!). I feel so guilty. If I would have known, I would > have watched for her side preference earlier. I'm a first time mom > and I thought I was doing good by putting her on her back! I just > can't believe that it got so misshaped in just 3 short little weeks. > > I have been doing so much research about plagio and this site has > really helped. Is 15 weeks too early to get a referral to get a DOC > band?!?! The repositioning has NOT helped. I am completely > desperate. I feel so alone - my spouse is reluctant to buy into this > whole band thing. He thinks that it " will round out with time " b/c > that is what everyone has been telling us. You know what? I have > this mother instinct that it is not going to get any better and it > makes me want to scream b/c I could have prevented this! I am going > to my second pediatrician appt. to discuss (again) my daughter's head > shape. Any tips on getting her attention about how serious I am. I > am sick of hearing the " when she starts sitting up it will round out " > bit. > > Thank you for letting me vent. Has anyone else felt this same way? > Is it too early? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 My son, Jaxen, was 6 months when we finally received the DOC Band. His father noticed at birth that his head was a tiny bit askew (he was natural birth, no forceps or suction) and every visit to the pediatrician we monitored it. Our Pediatrician said it should correct itself by 6 months and to keep trying to reposition (which, of course, didn't work). At his 4 month visit I was in the waiting room and saw the article for the DOC Band in a magazine and I knew immediately (mother's instinct?) that's what we needed to help reshape his head. Our Pediatrician referred us to an internal neurologist (we had to wait 3 weeks to see her) and it took 2 months to get the band because she wanted a full set of head x-rays (to rule out Cranio). Those came back (2 weeks later) as inconclusive and she then wanted a CT Scan -- we said no way -- no general anesthesia. That's when I decided to call Cranial Technologies myself. They were great and referred us to several specialists in our area. We saw another neurologist within 2 days for a second opinion and she did a clinical exam right there in her office and diagnosed Plagio and a small amount of Tort. She immediately gave us the prescription for the DOC Band and we were casted that week, approved by insurance and got the band fitted a week later. I only wish we could have started as early as you (which would have been at 4 months) because he probably would only have to wear it a few months as opposed to the average of about 5 months. As a side note, I sent an email to my relatives letting them know what was going on with our son and my Aunt wrote back to say that my Uncle (in his mid-40's) has a very flat spot on the back of his head that he is very self-conscious about - his main concern about losing hair is that the flat spot will be very noticeable. She doesn't know if it was caused by forceps delivery or sleeping on his back. But she is glad we're doing whatever we can for Jaxen since Medical stuff is so much better now!!! Good luck, - (Jaxen's momma) At 05:44 AM 11/11/00 +0000, you wrote: I am sitting here at almost 1:00AM sick to my stomach. I feel upset, guilty, and angry. I first noticed my daughter's unusual shaped head when she was just 3 weeks. I started AGGRESSIVE repositioning at 5 weeks. She is now 15 weeks and her head hasn't changed a bit! It actually seems to be growing in that same shape! You can't tell from the front (her facial features are fine), and any person on the street wouldn't notice it, but you can definately tell from the top. I just bought her an exersaucer (another attempt to help her head round out), and I was alarmed when I looked down on her head. It makes one of her ears stick out a bit and it is soooo slanted on one side of her head. I feel like crying. I know her head was NOT like this when she was born (she was a c-section and we all commented how perfectly round her head was!). I feel so guilty. If I would have known, I would have watched for her side preference earlier. I'm a first time mom and I thought I was doing good by putting her on her back! I just can't believe that it got so misshaped in just 3 short little weeks. I have been doing so much research about plagio and this site has really helped. Is 15 weeks too early to get a referral to get a DOC band?!?! The repositioning has NOT helped. I am completely desperate. I feel so alone - my spouse is reluctant to buy into this whole band thing. He thinks that it " will round out with time " b/c that is what everyone has been telling us. You know what? I have this mother instinct that it is not going to get any better and it makes me want to scream b/c I could have prevented this! I am going to my second pediatrician appt. to discuss (again) my daughter's head shape. Any tips on getting her attention about how serious I am. I am sick of hearing the " when she starts sitting up it will round out " bit. Thank you for letting me vent. Has anyone else felt this same way? Is it too early? -------------------------- eGroups Sponsor -------------------------~-~> eLerts It's Easy. It's Fun. Best of All, it's Free! 1/9699/2/_/689409/_/973921472/ --------------------------------------------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 > I am sitting here at almost 1:00AM sick to my stomach. I feel upset, > guilty, and angry. I first noticed my daughter's unusual shaped head > when she was just 3 weeks. I started AGGRESSIVE repositioning at 5 > weeks. She is now 15 weeks and her head hasn't changed a bit! It > actually seems to be growing in that same shape! You can't tell from > the front (her facial features are fine), and any person on the > street wouldn't notice it, but you can definately tell from the top. > I just bought her an exersaucer (another attempt to help her head > round out), and I was alarmed when I looked down on her head. It > makes one of her ears stick out a bit and it is soooo slanted on one > side of her head. > > I feel like crying. I know her head was NOT like this when she was > born (she was a c-section and we all commented how perfectly round > her head was!). I feel so guilty. If I would have known, I would > have watched for her side preference earlier. I'm a first time mom > and I thought I was doing good by putting her on her back! I just > can't believe that it got so misshaped in just 3 short little weeks. > > I have been doing so much research about plagio and this site has > really helped. Is 15 weeks too early to get a referral to get a DOC > band?!?! The repositioning has NOT helped. I am completely > desperate. I feel so alone - my spouse is reluctant to buy into this > whole band thing. He thinks that it " will round out with time " b/c > that is what everyone has been telling us. You know what? I have > this mother instinct that it is not going to get any better and it > makes me want to scream b/c I could have prevented this! I am going > to my second pediatrician appt. to discuss (again) my daughter's head > shape. Any tips on getting her attention about how serious I am. I > am sick of hearing the " when she starts sitting up it will round out " > bit. > > Thank you for letting me vent. Has anyone else felt this same way? > Is it too early? It's not too early!!! Don't beat yourself up over it either! Believe me, you're damned if you do, damned if you don't (pardon my french). I beat myself up over the same exact situation for 7 + mos - I prayed and prayed it would round itself out a little by the time our daughter was sitting up. It never did. She's my first too and we just got her band 5 days ago (at age 8 mos.) Now I'm beating myself up for getting it. She's doing great in it, but I feel so bad. I know it's for the better but it still bothers me. My hubby disagrees with it too, but like you, I have that whole mother's instinct thing going and I would NEVER forgive myself if she was picked on her life. Go with your gut. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Don't beat yourself up--I didn't catch my daughter's torticollis and plagio and this is my second child. I think since there were no problems with my first, I was a little ignorant to anything like this. You are still way ahead of the game time wise, and listen to your instinct. We waited to see if her head would " round out " , but it didn't and I am so glad we made the decision to do the band. Neither of us wanted to put her through it, but she is oblivious and no worse for the wear. The earlier you can start the better and hopefully the less time she will have to wear it. My daughter will be 6 months on Monday, and we've had the band 3 weeks now. Be persistent with your doctor for a referral and keep listening to that " mother " instinct!! Good luck with your decision and don't feel guilty!! cmorgan@... wrote: > I am sitting here at almost 1:00AM sick to my stomach. I feel upset, > guilty, and angry. I first noticed my daughter's unusual shaped head > when she was just 3 weeks. I started AGGRESSIVE repositioning at 5 > weeks. She is now 15 weeks and her head hasn't changed a bit! It > actually seems to be growing in that same shape! You can't tell from > the front (her facial features are fine), and any person on the > street wouldn't notice it, but you can definately tell from the top. > I just bought her an exersaucer (another attempt to help her head > round out), and I was alarmed when I looked down on her head. It > makes one of her ears stick out a bit and it is soooo slanted on one > side of her head. > > I feel like crying. I know her head was NOT like this when she was > born (she was a c-section and we all commented how perfectly round > her head was!). I feel so guilty. If I would have known, I would > have watched for her side preference earlier. I'm a first time mom > and I thought I was doing good by putting her on her back! I just > can't believe that it got so misshaped in just 3 short little weeks. > > I have been doing so much research about plagio and this site has > really helped. Is 15 weeks too early to get a referral to get a DOC > band?!?! The repositioning has NOT helped. I am completely > desperate. I feel so alone - my spouse is reluctant to buy into this > whole band thing. He thinks that it " will round out with time " b/c > that is what everyone has been telling us. You know what? I have > this mother instinct that it is not going to get any better and it > makes me want to scream b/c I could have prevented this! I am going > to my second pediatrician appt. to discuss (again) my daughter's head > shape. Any tips on getting her attention about how serious I am. I > am sick of hearing the " when she starts sitting up it will round out " > bit. > > Thank you for letting me vent. Has anyone else felt this same way? > Is it too early? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 cmorgan, Don't feel bad. Many members on this group have heard the same thing! You have plenty of time to find help. I didn't get my daughter's 12 mth. picture taken because I was " Still waiting for it to round out. " The professions not only hurt me, but they hurt my feelings for acknowledging it. Keep your chin up, look to this group for support. You are being a great mommy for seeking help outside the practice! Your daughter is still very young. Mention eyes, ears, jaw, what would she look like when she goes swimming, can they guarantee it will round out? and Can you have that in writing? If they cannot answer your questions, you are entitled to a second opinion from a Cranial Specialist. Good Luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2000 Report Share Posted November 12, 2000 Hi! My name is Kim and my son just turned 7 months. I know exactly how you feel. I was up until 4:30 crying - feeling that I am a terrible mother. I wanted so badly to be the best mom ever (first time mom). I feel that 's head is all my fault. I layed him on his back because that is what the doctors said to do. We were casted for a STAR band yesterday and it broke my heart. 's head slopes in the back to one side. We tried repositioning him - making him lay on the other side at night, putting toys on the opposite side so he would not lay on the slanted side, and do you know what....now his whole head is flat in the back and now both ears stick out! The other day someone said to me, " Oh look - a little Yoda! " I noticed his head around 6 weeks. I immediately called the doctor and took him in. By 3 1/2 months, I insisted that the repositioning was not helping. She said to keep him off his head all the time and it would round out on its own. By 5 months I was insistent that it was not working. I begged for a referral to get a helmet. It took over a month to get the appt. When we finally got in Oct 10th, they wanted to do a CT scan to make sure the bones were not fused, which we could not get done until Oct 25. Finally, we went yesterday for the casting. What makes me really mad, is that now because we waited so long - they said to only expect 40% change. My son is moderate/severe. If you feel your child needs the band - fight for it. Now is the best time. Their little heads go through a huge growth spurt between 3 and 6 months. After 6 months, the head growth slows way down. I will never forgive myself for not fighting harder to get the band earlier. Keep getting opinions until you are happy. If you want to talk more, you can email me directly at justbryandkim@... These groups really do help with gathering information and relieving stress! -----Original Message----- From: cmorgan@... [mailto:cmorgan@...] Sent: Saturday, November 11, 2000 12:44 AM Plagiocephalyegroups Subject: Please Help! I am sitting here at almost 1:00AM sick to my stomach. I feel upset, guilty, and angry. I first noticed my daughter's unusual shaped head when she was just 3 weeks. I started AGGRESSIVE repositioning at 5 weeks. She is now 15 weeks and her head hasn't changed a bit! It actually seems to be growing in that same shape! You can't tell from the front (her facial features are fine), and any person on the street wouldn't notice it, but you can definately tell from the top. I just bought her an exersaucer (another attempt to help her head round out), and I was alarmed when I looked down on her head. It makes one of her ears stick out a bit and it is soooo slanted on one side of her head. I feel like crying. I know her head was NOT like this when she was born (she was a c-section and we all commented how perfectly round her head was!). I feel so guilty. If I would have known, I would have watched for her side preference earlier. I'm a first time mom and I thought I was doing good by putting her on her back! I just can't believe that it got so misshaped in just 3 short little weeks. I have been doing so much research about plagio and this site has really helped. Is 15 weeks too early to get a referral to get a DOC band?!?! The repositioning has NOT helped. I am completely desperate. I feel so alone - my spouse is reluctant to buy into this whole band thing. He thinks that it " will round out with time " b/c that is what everyone has been telling us. You know what? I have this mother instinct that it is not going to get any better and it makes me want to scream b/c I could have prevented this! I am going to my second pediatrician appt. to discuss (again) my daughter's head shape. Any tips on getting her attention about how serious I am. I am sick of hearing the " when she starts sitting up it will round out " bit. Thank you for letting me vent. Has anyone else felt this same way? Is it too early? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 Please don't do this to yourself... First of all let me say that I am NOT a first time mom. With my first, I did everything " right. " Tummy time while awake, on his back to sleep. I figured that if I did the same with my second, all's well. Not so. At least you noticed it. It wasn't until Riley's 4 month check that the doctor pointed it out to me. I never looked at her from the top down. I always looked at her straight on. You'd never be able to tell. Sure she slept on one side, but as long as she didn't sleep on her tummy... I never even heard of Plagio. I have had nights of guilt like you wouldn't beieve. The only thing that makes it better is that no matter how we got here, we're here now and Riley's doing great. She's been in her band for jus about 3 weeks now and doing well. At 15 weeks, you're on a great path. Please just give yourself a break. (I had to.) You're here now and that's what matters. Go with your mother's instincts and you'll never do wrong by your child. Good luck to you. Keep us posted. Sue (Riley's mom) > I am sitting here at almost 1:00AM sick to my stomach. I feel upset, > guilty, and angry. I first noticed my daughter's unusual shaped head > when she was just 3 weeks. I started AGGRESSIVE repositioning at 5 > weeks. She is now 15 weeks and her head hasn't changed a bit! It > actually seems to be growing in that same shape! You can't tell from > the front (her facial features are fine), and any person on the > street wouldn't notice it, but you can definately tell from the top. > I just bought her an exersaucer (another attempt to help her head > round out), and I was alarmed when I looked down on her head. It > makes one of her ears stick out a bit and it is soooo slanted on one > side of her head. > > I feel like crying. I know her head was NOT like this when she was > born (she was a c-section and we all commented how perfectly round > her head was!). I feel so guilty. If I would have known, I would > have watched for her side preference earlier. I'm a first time mom > and I thought I was doing good by putting her on her back! I just > can't believe that it got so misshaped in just 3 short little weeks. > > I have been doing so much research about plagio and this site has > really helped. Is 15 weeks too early to get a referral to get a DOC > band?!?! The repositioning has NOT helped. I am completely > desperate. I feel so alone - my spouse is reluctant to buy into this > whole band thing. He thinks that it " will round out with time " b/c > that is what everyone has been telling us. You know what? I have > this mother instinct that it is not going to get any better and it > makes me want to scream b/c I could have prevented this! I am going > to my second pediatrician appt. to discuss (again) my daughter's head > shape. Any tips on getting her attention about how serious I am. I > am sick of hearing the " when she starts sitting up it will round out " > bit. > > Thank you for letting me vent. Has anyone else felt this same way? > Is it too early? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 Kim: they said to only expect 40% change. I disagree with this statement. I'm no expert, but if is only 7 months old, I don't see why you wouldn't see more correction than 40%. My daughter was 6 months old when she got her band. She wore it 5 months and got about 75-85% correction. Her case was severe. From what I understand the STARband works a lot like the DOC band. Don't expect perfection, of course, but I think you'll get better than the 40%! Kendra & Kim wrote: Hi! My name is Kim and my son just turned 7 months. I know exactly how you feel. I was up until 4:30 crying - feeling that I am a terrible mother. I wanted so badly to be the best mom ever (first time mom). I feel that 's head is all my fault. I layed him on his back because that is what the doctors said to do. We were casted for a STAR band yesterday and it broke my heart. 's head slopes in the back to one side. We tried repositioning him - making him lay on the other side at night, putting toys on the opposite side so he would not lay on the slanted side, and do you know what....now his whole head is flat in the back and now both ears stick out! The other day someone said to me, "Oh look - a little Yoda!" I noticed his head around 6 weeks. I immediately called the doctor and took him in. By 3 1/2 months, I insisted that the repositioning was not helping. She said to keep him off his head all the time and it would round out on its own. By 5 months I was insistent that it was not working. I begged for a referral to get a helmet. It took over a month to get the appt. When we finally got in Oct 10th, they wanted to do a CT scan to make sure the bones were not fused, which we could not get done until Oct 25. Finally, we went yesterday for the casting. What makes me really mad, is that now because we waited so long - they said to only expect 40% change. My son is moderate/severe. If you feel your child needs the band - fight for it. Now is the best time. Their little heads go through a huge growth spurt between 3 and 6 months. After 6 months, the head growth slows way down. I will never forgive myself for not fighting harder to get the band earlier. Keep getting opinions until you are happy. If you want to talk more, you can email me directly at justbryandkim@... These groups really do help with gathering information and relieving stress! -----Original Message----- From: cmorgan@... [mailto:cmorgan@...] Sent: Saturday, November 11, 2000 12:44 AM Plagiocephalyegroups Subject: Please Help! I am sitting here at almost 1:00AM sick to my stomach. I feel upset, guilty, and angry. I first noticed my daughter's unusual shaped head when she was just 3 weeks. I started AGGRESSIVE repositioning at 5 weeks. She is now 15 weeks and her head hasn't changed a bit! It actually seems to be growing in that same shape! You can't tell from the front (her facial features are fine), and any person on the street wouldn't notice it, but you can definately tell from the top. I just bought her an exersaucer (another attempt to help her head round out), and I was alarmed when I looked down on her head. It makes one of her ears stick out a bit and it is soooo slanted on one side of her head. I feel like crying. I know her head was NOT like this when she was born (she was a c-section and we all commented how perfectly round her head was!). I feel so guilty. If I would have known, I would have watched for her side preference earlier. I'm a first time mom and I thought I was doing good by putting her on her back! I just can't believe that it got so misshaped in just 3 short little weeks. I have been doing so much research about plagio and this site has really helped. Is 15 weeks too early to get a referral to get a DOC band?!?! The repositioning has NOT helped. I am completely desperate. I feel so alone - my spouse is reluctant to buy into this whole band thing. He thinks that it "will round out with time" b/c that is what everyone has been telling us. You know what? I have this mother instinct that it is not going to get any better and it makes me want to scream b/c I could have prevented this! I am going to my second pediatrician appt. to discuss (again) my daughter's head shape. Any tips on getting her attention about how serious I am. I am sick of hearing the "when she starts sitting up it will round out" bit. Thank you for letting me vent. Has anyone else felt this same way? Is it too early? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 I felt the EXACT same way. My ped told us at 4 months that the head would round out on its own. At 7 months there was very little change. I have gone through feelings of guilt - I am also a first time Mom. I have gone from guilt to action and now I am trying to do all I can to get the word out about this condition. Ped's have got to start stressing not only " back to sleep " , but " tummy to play " as well. When your ped says put them on their back to sleep you don't even question. They need to start telling new parents to have supervised tummy time as well. None of the peds I have seen have ever said even ONE word about tummy time. My daughter got her helmet at 9 months so I don't know about 15 weeks. I believe there are a number of people in this group that have started that early. Best of luck and try not to be too hard on yourself - you only did what you thought was right according to what you were told by a professional. Marci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 I know exactly how you feel!!!! I first noticed my son's flat spot when he was 4 weeks old. I did every thing I could to make him change the way he slept, but he is very stubborn. When we got the excersaucer i did notice some improvement, but it is still very flat. My pediatrician get telling us to wait and see. Now he is 9 mos old and I am wishing we had done something sooner because it will take longer now with the band to be corrected. I wish I had known about all this sooner. Don't you think that if they sent every mom home with info about plagio and bands/helmets that there would be fewer cases of this? I am very upset that it has taken me this long to get information and treatment. Anyway, I would be more aggressive now than wait. Good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2000 Report Share Posted December 17, 2000 Hi, I am from Indiana and it has been found by Dr. Straus that I have toxic mold in my home. I had a company out of another state that had promised me per conversations and e-mail for over 1 month now that they would test my home and they were the pefect company to do it. They said they felt the people who damaged my mobile home were at fault because they caused the water damage that led to the problem. They were to have come in 2 days from today to do the testing which had been confirmed for weeks now. I just received e-mail (not a professional call) to let me know they talked with their attorney and decided they would not test my home afterall...sorry for any inconvenience. This is quite an inconvenience for my family's health because most doctors will not see us until the testing is done... the doctors who would do testing expect $300.00 or more cash in order to do blood testing on my children ages 7 and 4 being still affected even when out of the home. As you might guess, I do not have much money left to offer anyone. I do not have $300.00 cash for anything at this point. I have nearly lost everything. Any suggestions of an environmental company who might care enough to do the testing. I was not even told in the message why they changed their mind. I have no idea what I did or said wrong to make this decision change with them. My 4 yr. old son is still not in good health, as well as many of us. What can a person do? Please offer any suggestions and let me know you're replying directly to this message in particular as soon as you can. We really need help...I hate to beg....but I am begging for help of any ideas. I do not have much access to internet right now. I don't know if I'm allowed to post a phone # to this group so I won't yet. I will do my best to check messages on Monday 12/18/00. Thanks for any help or ideas! Beverly W. Indiana __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2000 Report Share Posted December 18, 2000 Beverly, Where are you located in Indiana? I also live in Indiana and have had toxic mold problems in my home. >>> enviromom2000@... 12/17 6:55 PM >>> Hi, I am from Indiana and it has been found by Dr. Straus that I have toxic mold in my home. I had a company out of another state that had promised me per conversations and e-mail for over 1 month now that they would test my home and they were the pefect company to do it. They said they felt the people who damaged my mobile home were at fault because they caused the water damage that led to the problem. They were to have come in 2 days from today to do the testing which had been confirmed for weeks now. I just received e-mail (not a professional call) to let me know they talked with their attorney and decided they would not test my home afterall...sorry for any inconvenience. This is quite an inconvenience for my family's health because most doctors will not see us until the testing is done... the doctors who would do testing expect $300.00 or more cash in order to do blood testing on my children ages 7 and 4 being still affected even when out of the home. As you might guess, I do not have much money left to offer anyone. I do not have $300.00 cash for anything at this point. I have nearly lost everything. Any suggestions of an environmental company who might care enough to do the testing. I was not even told in the message why they changed their mind. I have no idea what I did or said wrong to make this decision change with them. My 4 yr. old son is still not in good health, as well as many of us. What can a person do? Please offer any suggestions and let me know you're replying directly to this message in particular as soon as you can. We really need help...I hate to beg....but I am begging for help of any ideas. I do not have much access to internet right now. I don't know if I'm allowed to post a phone # to this group so I won't yet. I will do my best to check messages on Monday 12/18/00. Thanks for any help or ideas! Beverly W. Indiana __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Tina, I would be happy to help you. Yes, you can seal the duct work naturally and the house. A protocol must be followed exactly as written but we would need to talk by phone because there are so many questions. Have you had an Indoor Air Quality Sample? Please respond, and you can respond directly to me or however you wish to handle it. Take care and know that you are right in not wanting to mask the problems, mold is very serious. DC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 In a message dated 3/19/2001 8:19:49 AM Eastern Standard Time, peechy1_98@... writes: << weeks to come back. If it comes back stachybotrus, can we still save the house, or is it a total loss? What experience do you have with these problems? >> No problem, we have to alter a dilution, that's all. Not to worry and I will go into everything else further, I have to rush out now. Stay in touch. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 In a message dated 3/19/2001 8:19:49 AM Eastern Standard Time, peechy1_98@... writes: << The insurance agent said he was supposed to because our HVAC system is up there and it's full of mold. The tests are supposed to take 3 weeks to come back. If it comes back stachybotrus, can we still save the house, or is it a total loss? What experience do you have with these problems? >> He definitely should have gone into the attic, I will check further with our microbiologist. He may have wanted to know how bad it was in the house and then if the source is the HVAC, he could take another sample. The samples are not cheap and perhaps he wanted to know how bad it was in the house itself. What part of the country do you live in? DC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Thankyou for such a quick response! Yes, our insurance company had Microtec come out last Monday to take air samples and tape samples. The problem is, he didn't go into the attic at all so I'm concerned. The insurance agent said he was supposed to because our HVAC system is up there and it's full of mold. The tests are supposed to take 3 weeks to come back. If it comes back stachybotrus, can we still save the house, or is it a total loss? What experience do you have with these problems? Tina > Tina, > > I would be happy to help you. Yes, you can seal the duct work naturally and > the house. A protocol must be followed exactly as written but we would need > to talk by phone because there are so many questions. > Have you had an Indoor Air Quality Sample? Please respond, and you can > respond directly to me or however you wish to handle it. > > Take care and know that you are right in not wanting to mask the problems, > mold is very serious. > > DC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 There must be a reason why MOST doctors do not want to say MOLD is the reason for all these sick people. If 20 people get asthma for the first time in their lives after all were exposed to mold in the same building....DUH!!!!!!! wouldn't it tell anyone with half a brain it came from your sick building. Where I worked we had 80 people empl oyed there when we discovered we had been exposed to Mold and high levels of CO that we discovered how uncaring doctors can be. One of the girls working there was the daughter of a NOSE, EAR and THROAT doctor and she got deathly sick each time she came into that building and her father told her not to work in that building. He knows what mold can do and the only thing he told his daughter was you are allergic to something in the building. Quit...Great father HUH???? I think we need to find doctors are are willing to come forward and say, this stuff kills...or at least makes you very very sick...Where are they???? All doctors are so afraid of lawsuits they stay behind the scenes and watch people die. KINDNESS IS A LANGUAGE THE DEAF CAN HEAR AND THE BLIND CAN SEE ++++++++++++++++++++ People who get ---ALL WRAPPED UP-- in themselves make a --VERY SMALL PACKAGE> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 It isn't all that hard to figure out. Big employers will drop medical people who aren't working with them and there goes the money ! Do they really want us to be well ? Or is it that it is more lucrative to continue to trat us ? Gosh am I be synical ? --- coolgram@... wrote: > There must be a reason why MOST > doctors do not want to say MOLD is the > reason for all these sick people. If 20 > people get asthma for the first time in > their lives after all were exposed to mold > in the same building....DUH!!!!!!! wouldn't > it tell anyone with half a brain it came > from your sick building. > Where I worked we had 80 people empl > oyed there when we discovered we had > been exposed to Mold and high levels of > CO that we discovered how uncaring > doctors can be. One of the girls working > there was the daughter of a NOSE, EAR > and THROAT doctor and she got deathly > sick each time she came into that building > and her father told her not to work in that > building. He knows what mold can do > and the only thing he told his daughter > was you are allergic to something in the > building. Quit...Great father HUH???? > I think we need to find doctors are are > willing to come forward and say, this > stuff kills...or at least makes you very > very sick...Where are they???? All doctors > are so afraid of lawsuits they stay behind > the scenes and watch people die. > > > > > > > > > > > > > > KINDNESS IS A LANGUAGE THE > DEAF CAN HEAR AND THE BLIND > CAN SEE ++++++++++++++++++++ > > > > > > People who get ---ALL WRAPPED UP-- in themselves > make a --VERY SMALL PACKAGE> > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 In a message dated 3/19/2001 10:44:11 PM Eastern Standard Time, jcferguson99@... writes: << It isn't all that hard to figure out. Big employers will drop medical people who aren't working with them and there goes the money ! Do they really want us to be well ? Or is it that it is more lucrative to continue to trat us ? Gosh am I be synical ? >> I am a researcher, writer, and consultant and I can tell you that you are not synical. There is too much money in illness. Some molds were developed as biological weapons, as you probably know and since they were " developed " , it is planned. Quote Link to comment Share on other sites More sharing options...
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