Guest guest Posted November 17, 2004 Report Share Posted November 17, 2004 > Let me verify what you are saying...a nurse practitioner gave your son a > CARS and a CHAT? Yes, that's correct. She's a nurse practitioner specializing in developmental pediatrics, however, recommended by Barnhill (the director of the now-defunct TCART). > apparently from the other diagnoses, there WERE > issues... Is this correct? Yes, sensory and motor-planning issues. ~ Flapping, but no toe-walking; walked at 25 months, spoke at 26 months; seems incapable of choosing hand dominance. He also has low tone, but we knew that going in. > Hmmm...I wasn't aware that PNP's were allowed to " diagnose " anything...I > thought they were allowed to write " some " prescriptions but had to pass > diagnoses in front of a licensed doctor (but I could be wrong). I think you're right. The actual diagnosis came in the mail from an M.D. associated with a different clinic...who then tried to charge me $20! I was comfortable with a PNP, however, as most of Evan's " routine " care in the NICU was handled by the NNP staff (blood draws, sonograms, x-rays, spinal tap, up on feeds, down on feeds, etc. for 6 weeks) and I grew to trust them very much. I was also told that " nurses " (probably PNP's but I never got clarification) see most of the patients at City Of Hope (developmental pediatrics clinic at UTSAHSC) in San . > Had your child already been diagnosed with autism prior to that visit? No. We saw a TOTALLY INAPPROPRIATE (for a preschooler) neuro in San who said " not CP but probably PDD-NOS " and who ordered a bunch of tests that the geneticist a) had already ordered and was about to order so I threw away the lab slip and we never went back. > I would (if I were still concerned that there are > " issues " ) take the child to a psychologist or developmental pediatrician who > SPECIALIZES in ASD's to have any rule in or out testing done. Not a neurologist? LOL We are (or had been until the past couple of weeks for various reasons) confident in the PNP's assesment...if it wasn't an actual diagnosis. Can you recommend one (or more) of these professionals in the San /Austin area? > Unless this > PNP has training well above that of most doctors and psychologists, I > wouldn't think she would be even remotely qualified to do this sort of > testing that requires much training and expertise. She didn't present us with any credentials, but assured us we were seeing a dev. ped without the 6-9 month wait. C & P from correspondence with Barnhill (TCART director): " she works from a strict DSM IV diagnostic criteria, so that you will be very clear on your son's developmental position at the time of her evaluation. " and " She is a conservative and highly skilled practitioner. " Thanks very much for your opinions and assistance!! BTW I'm on this list because my 8yo. nephew has Aspergers. Love, Diane. http://www.babiesonline.com/babies/e/evankyle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2004 Report Share Posted November 17, 2004 > Let me verify what you are saying...a nurse practitioner gave your son a > CARS and a CHAT? Yes, that's correct. She's a nurse practitioner specializing in developmental pediatrics, however, recommended by Barnhill (the director of the now-defunct TCART). > apparently from the other diagnoses, there WERE > issues... Is this correct? Yes, sensory and motor-planning issues. ~ Flapping, but no toe-walking; walked at 25 months, spoke at 26 months; seems incapable of choosing hand dominance. He also has low tone, but we knew that going in. > Hmmm...I wasn't aware that PNP's were allowed to " diagnose " anything...I > thought they were allowed to write " some " prescriptions but had to pass > diagnoses in front of a licensed doctor (but I could be wrong). I think you're right. The actual diagnosis came in the mail from an M.D. associated with a different clinic...who then tried to charge me $20! I was comfortable with a PNP, however, as most of Evan's " routine " care in the NICU was handled by the NNP staff (blood draws, sonograms, x-rays, spinal tap, up on feeds, down on feeds, etc. for 6 weeks) and I grew to trust them very much. I was also told that " nurses " (probably PNP's but I never got clarification) see most of the patients at City Of Hope (developmental pediatrics clinic at UTSAHSC) in San . > Had your child already been diagnosed with autism prior to that visit? No. We saw a TOTALLY INAPPROPRIATE (for a preschooler) neuro in San who said " not CP but probably PDD-NOS " and who ordered a bunch of tests that the geneticist a) had already ordered and was about to order so I threw away the lab slip and we never went back. > I would (if I were still concerned that there are > " issues " ) take the child to a psychologist or developmental pediatrician who > SPECIALIZES in ASD's to have any rule in or out testing done. Not a neurologist? LOL We are (or had been until the past couple of weeks for various reasons) confident in the PNP's assesment...if it wasn't an actual diagnosis. Can you recommend one (or more) of these professionals in the San /Austin area? > Unless this > PNP has training well above that of most doctors and psychologists, I > wouldn't think she would be even remotely qualified to do this sort of > testing that requires much training and expertise. She didn't present us with any credentials, but assured us we were seeing a dev. ped without the 6-9 month wait. C & P from correspondence with Barnhill (TCART director): " she works from a strict DSM IV diagnostic criteria, so that you will be very clear on your son's developmental position at the time of her evaluation. " and " She is a conservative and highly skilled practitioner. " Thanks very much for your opinions and assistance!! BTW I'm on this list because my 8yo. nephew has Aspergers. Love, Diane. http://www.babiesonline.com/babies/e/evankyle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 >BTW I'm on this list > because my 8yo. nephew has Aspergers. What a wonderfully supportive relative you are!! It's always so inspiring for me to see the dedication of all the grandparents, aunts, uncles, friends of those with autism unselfishly giving of their time and efforts to help their loved ones. I salute you all!!!! a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 >BTW I'm on this list > because my 8yo. nephew has Aspergers. What a wonderfully supportive relative you are!! It's always so inspiring for me to see the dedication of all the grandparents, aunts, uncles, friends of those with autism unselfishly giving of their time and efforts to help their loved ones. I salute you all!!!! a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 > What a wonderfully supportive relative you are!! Thanks, a. My sister & I noticed about the same time that Evan seemed a lot like his older cousin with Aspergers...thankfully he seems to be as NT as a child with OTHER neurological stuff going on can be... LOL Love, Diane. http://www.babiesonline.com/babies/e/evankyle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 In a message dated 11/17/2004 11:00:55 PM Central Standard Time, hast_gsm@... writes: > Let me verify what you are saying...a nurse practitioner gave your son a > CARS and a CHAT? Yes, that's correct. She's a nurse practitioner specializing in developmental pediatrics, however, recommended by Barnhill (the director of the now-defunct TCART). > apparently from the other diagnoses, there WERE > issues... Is this correct? Yes, sensory and motor-planning issues. ~ Flapping, but no toe-walking; walked at 25 months, spoke at 26 months; seems incapable of choosing hand dominance. He also has low tone, but we knew that going in. > Hmmm...I wasn't aware that PNP's were allowed to " diagnose " anything...I > thought they were allowed to write " some " prescriptions but had to pass > diagnoses in front of a licensed doctor (but I could be wrong). I think you're right. The actual diagnosis came in the mail from an M.D. associated with a different clinic...who then tried to charge me $20! I was comfortable with a PNP, however, as most of Evan's " routine " care in the NICU was handled by the NNP staff (blood draws, sonograms, x-rays, spinal tap, up on feeds, down on feeds, etc. for 6 weeks) and I grew to trust them very much. I was also told that " nurses " (probably PNP's but I never got clarification) see most of the patients at City Of Hope (developmental pediatrics clinic at UTSAHSC) in San . > Had your child already been diagnosed with autism prior to that visit? No. We saw a TOTALLY INAPPROPRIATE (for a preschooler) neuro in San who said " not CP but probably PDD-NOS " and who ordered a bunch of tests that the geneticist a) had already ordered and was about to order so I threw away the lab slip and we never went back. > I would (if I were still concerned that there are > " issues " ) take the child to a psychologist or developmental pediatrician who > SPECIALIZES in ASD's to have any rule in or out testing done. Not a neurologist? LOL We are (or had been until the past couple of weeks for various reasons) confident in the PNP's assesment...if it wasn't an actual diagnosis. Can you recommend one (or more) of these professionals in the San /Austin area? > Unless this > PNP has training well above that of most doctors and psychologists, I > wouldn't think she would be even remotely qualified to do this sort of > testing that requires much training and expertise. She didn't present us with any credentials, but assured us we were seeing a dev. ped without the 6-9 month wait. C & P from correspondence with Barnhill (TCART director): " she works from a strict DSM IV diagnostic criteria, so that you will be very clear on your son's developmental position at the time of her evaluation. " and " She is a conservative and highly skilled practitioner. " Thanks very much for your opinions and assistance!! BTW I'm on this list because my 8yo. nephew has Aspergers. Love, Diane. http://www.babiesonline.com/babies/e/evankyle ------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2004 Report Share Posted November 20, 2004 > Dr Harkins Thank you ! I'm sorry you got BS too. Makes it hard to be trusting, huh... Love, Diane. http://www.babiesonline.com/babies/e/evankyle Quote Link to comment Share on other sites More sharing options...
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