Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 I just saw that and was about to post as well, this is crazy. ________________________________ From: S <RobRose@...> Sent: Tue, May 17, 2011 2:56:08 PM Subject: Teri Cerda I haven't posted here in years, but when I saw the story on News http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition I felt compelled to inquire here to find out if anybody knows about this family (they are members of the list) and knows what is currently going on. I live in a state that is a hot bed for false accusations of medical abuse (aka Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are targeted. While the tendency of the general public is to assume they must be guilty of something, I do not make the assumption, because in the cases I know of, the parents were guilty of nothing. I am currently in the process of arranging for a training for parents in my city led by lawyers who are expert in this area, so that parents know how to protect themselves from this type of accusation and/or defend themselves when it happens. I am wondering if this family has reached out to the PID community or if they have gotten proper legal council. Thx, ------------------------------------ This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? Byrd ________________________________________________________________________________\ ___________________ ________________________________ From: <bluetaelon@...> Sent: Tue, May 17, 2011 5:57:29 PM Subject: Re: Teri Cerda I just saw that and was about to post as well, this is crazy. ________________________________ From: S <RobRose@...> Sent: Tue, May 17, 2011 2:56:08 PM Subject: Teri Cerda I haven't posted here in years, but when I saw the story on News http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition I felt compelled to inquire here to find out if anybody knows about this family (they are members of the list) and knows what is currently going on. I live in a state that is a hot bed for false accusations of medical abuse (aka Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are targeted. While the tendency of the general public is to assume they must be guilty of something, I do not make the assumption, because in the cases I know of, the parents were guilty of nothing. I am currently in the process of arranging for a training for parents in my city led by lawyers who are expert in this area, so that parents know how to protect themselves from this type of accusation and/or defend themselves when it happens. I am wondering if this family has reached out to the PID community or if they have gotten proper legal council. Thx, ------------------------------------ This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? Byrd ________________________________________________________________________________\ ___________________ ________________________________ From: <bluetaelon@...> Sent: Tue, May 17, 2011 5:57:29 PM Subject: Re: Teri Cerda I just saw that and was about to post as well, this is crazy. ________________________________ From: S <RobRose@...> Sent: Tue, May 17, 2011 2:56:08 PM Subject: Teri Cerda I haven't posted here in years, but when I saw the story on News http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition I felt compelled to inquire here to find out if anybody knows about this family (they are members of the list) and knows what is currently going on. I live in a state that is a hot bed for false accusations of medical abuse (aka Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are targeted. While the tendency of the general public is to assume they must be guilty of something, I do not make the assumption, because in the cases I know of, the parents were guilty of nothing. I am currently in the process of arranging for a training for parents in my city led by lawyers who are expert in this area, so that parents know how to protect themselves from this type of accusation and/or defend themselves when it happens. I am wondering if this family has reached out to the PID community or if they have gotten proper legal council. Thx, ------------------------------------ This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 When it comes to child protective services, it doesn't matter. They often just call in a psychologist to diagnose the parents with MSBP. From that evaluation alone, the children are placed into foster care. In my state, there is often no medical evaluation of the children once they are in foster care. Sometimes the kids die in " care, " because all medical supports are removed. To quote an attorney who takes these cases, " even if you are found innocent of all charges, it will take a minimum of 18 months and $50K to get your children back. " > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > Byrd > > > ________________________________________________________________________________\ ___________________ > > > > > > > > > > ________________________________ > From: <bluetaelon@...> > > Sent: Tue, May 17, 2011 5:57:29 PM > Subject: Re: Teri Cerda > > > > I just saw that and was about to post as well, this is crazy. > > > > > > ________________________________ > From: S <RobRose@...> > > Sent: Tue, May 17, 2011 2:56:08 PM > Subject: Teri Cerda > > I haven't posted here in years, but when I saw the story on News > http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition > > > I felt compelled to inquire here to find out if anybody knows about this family > (they are members of the list) and knows what is currently going on. > > > I live in a state that is a hot bed for false accusations of medical abuse (aka > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are > targeted. While the tendency of the general public is to assume they must be > guilty of something, I do not make the assumption, because in the cases I know > of, the parents were guilty of nothing. I am currently in the process of > arranging for a training for parents in my city led by lawyers who are expert in > > this area, so that parents know how to protect themselves from this type of > accusation and/or defend themselves when it happens. I am wondering if this > family has reached out to the PID community or if they have gotten proper legal > council. > > Thx, > > > > ------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the sole > responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 This is terrible. The system is wrong here. We have to be advocates for our children and someone had to believe her or she wouldn't have all that medical stuff. You have to have diagnosis to get it paid for through insurance etc... Is this mom on our group? I hope she knows she can find support. Byrd ________________________________________________________________________________\ ___________________ ________________________________ From: S <RobRose@...> Sent: Tue, May 17, 2011 6:23:14 PM Subject: Re: Teri Cerda When it comes to child protective services, it doesn't matter. They often just call in a psychologist to diagnose the parents with MSBP. From that evaluation alone, the children are placed into foster care. In my state, there is often no medical evaluation of the children once they are in foster care. Sometimes the kids die in " care, " because all medical supports are removed. To quote an attorney who takes these cases, " even if you are found innocent of all charges, it will take a minimum of 18 months and $50K to get your children back. " > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > Byrd > > >_______________________________________________________________________________\ ____________________ >_ > > > > > > > > > > ________________________________ > From: <bluetaelon@...> > > Sent: Tue, May 17, 2011 5:57:29 PM > Subject: Re: Teri Cerda > > > > I just saw that and was about to post as well, this is crazy. > > > > > > ________________________________ > From: S <RobRose@...> > > Sent: Tue, May 17, 2011 2:56:08 PM > Subject: Teri Cerda > > I haven't posted here in years, but when I saw the story on News >http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-m\ akeover-dubious-claims-edition >n > > > I felt compelled to inquire here to find out if anybody knows about this family > > (they are members of the list) and knows what is currently going on. > > > I live in a state that is a hot bed for false accusations of medical abuse (aka > > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are > targeted. While the tendency of the general public is to assume they must be > guilty of something, I do not make the assumption, because in the cases I know > of, the parents were guilty of nothing. I am currently in the process of > arranging for a training for parents in my city led by lawyers who are expert >in > > > this area, so that parents know how to protect themselves from this type of > accusation and/or defend themselves when it happens. I am wondering if this > family has reached out to the PID community or if they have gotten proper legal > > council. > > Thx, > > > > ------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the sole > > responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Don't they have abnormal labwork that shows the immune deficiency? ...sue From: S <RobRose@...> Subject: Teri Cerda Date: Tuesday, May 17, 2011, 9:56 PM  I haven't posted here in years, but when I saw the story on News http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition I felt compelled to inquire here to find out if anybody knows about this family (they are members of the list) and knows what is currently going on. I live in a state that is a hot bed for false accusations of medical abuse (aka Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are targeted. While the tendency of the general public is to assume they must be guilty of something, I do not make the assumption, because in the cases I know of, the parents were guilty of nothing. I am currently in the process of arranging for a training for parents in my city led by lawyers who are expert in this area, so that parents know how to protect themselves from this type of accusation and/or defend themselves when it happens. I am wondering if this family has reached out to the PID community or if they have gotten proper legal council. Thx, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Don't they have abnormal labwork that shows the immune deficiency? ...sue From: S <RobRose@...> Subject: Teri Cerda Date: Tuesday, May 17, 2011, 9:56 PM  I haven't posted here in years, but when I saw the story on News http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition I felt compelled to inquire here to find out if anybody knows about this family (they are members of the list) and knows what is currently going on. I live in a state that is a hot bed for false accusations of medical abuse (aka Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are targeted. While the tendency of the general public is to assume they must be guilty of something, I do not make the assumption, because in the cases I know of, the parents were guilty of nothing. I am currently in the process of arranging for a training for parents in my city led by lawyers who are expert in this area, so that parents know how to protect themselves from this type of accusation and/or defend themselves when it happens. I am wondering if this family has reached out to the PID community or if they have gotten proper legal council. Thx, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 How awful! From: S <RobRose@...> Subject: Re: Teri Cerda Date: Tuesday, May 17, 2011, 10:23 PM  When it comes to child protective services, it doesn't matter. They often just call in a psychologist to diagnose the parents with MSBP. From that evaluation alone, the children are placed into foster care. In my state, there is often no medical evaluation of the children once they are in foster care. Sometimes the kids die in " care, " because all medical supports are removed. To quote an attorney who takes these cases, " even if you are found innocent of all charges, it will take a minimum of 18 months and $50K to get your children back. " > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > Byrd > > > __________________________________________________________ > > > > > > > > > > ________________________________ > From: <bluetaelon@...> > > Sent: Tue, May 17, 2011 5:57:29 PM > Subject: Re: Teri Cerda > > > > I just saw that and was about to post as well, this is crazy. > > > > > > ________________________________ > From: S <RobRose@...> > > Sent: Tue, May 17, 2011 2:56:08 PM > Subject: Teri Cerda > > I haven't posted here in years, but when I saw the story on News > http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition > > > I felt compelled to inquire here to find out if anybody knows about this family > (they are members of the list) and knows what is currently going on. > > > I live in a state that is a hot bed for false accusations of medical abuse (aka > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are > targeted. While the tendency of the general public is to assume they must be > guilty of something, I do not make the assumption, because in the cases I know > of, the parents were guilty of nothing. I am currently in the process of > arranging for a training for parents in my city led by lawyers who are expert in > > this area, so that parents know how to protect themselves from this type of > accusation and/or defend themselves when it happens. I am wondering if this > family has reached out to the PID community or if they have gotten proper legal > council. > > Thx, > > > > ------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the sole > responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 How awful! From: S <RobRose@...> Subject: Re: Teri Cerda Date: Tuesday, May 17, 2011, 10:23 PM  When it comes to child protective services, it doesn't matter. They often just call in a psychologist to diagnose the parents with MSBP. From that evaluation alone, the children are placed into foster care. In my state, there is often no medical evaluation of the children once they are in foster care. Sometimes the kids die in " care, " because all medical supports are removed. To quote an attorney who takes these cases, " even if you are found innocent of all charges, it will take a minimum of 18 months and $50K to get your children back. " > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > Byrd > > > __________________________________________________________ > > > > > > > > > > ________________________________ > From: <bluetaelon@...> > > Sent: Tue, May 17, 2011 5:57:29 PM > Subject: Re: Teri Cerda > > > > I just saw that and was about to post as well, this is crazy. > > > > > > ________________________________ > From: S <RobRose@...> > > Sent: Tue, May 17, 2011 2:56:08 PM > Subject: Teri Cerda > > I haven't posted here in years, but when I saw the story on News > http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition > > > I felt compelled to inquire here to find out if anybody knows about this family > (they are members of the list) and knows what is currently going on. > > > I live in a state that is a hot bed for false accusations of medical abuse (aka > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are > targeted. While the tendency of the general public is to assume they must be > guilty of something, I do not make the assumption, because in the cases I know > of, the parents were guilty of nothing. I am currently in the process of > arranging for a training for parents in my city led by lawyers who are expert in > > this area, so that parents know how to protect themselves from this type of > accusation and/or defend themselves when it happens. I am wondering if this > family has reached out to the PID community or if they have gotten proper legal > council. > > Thx, > > > > ------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the sole > responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 I saw something she had posted way back, about Mito....I think a lot of people whose kids have mito get accused of that von Munchausen by proxy......so perhaps it's that they are accusing her for not the PID? I suppose because it's an illness that is just being understood, and not many doctors know about it? Either way, it's sad. From: S <RobRose@...> Subject: Re: Teri Cerda Date: Tuesday, May 17, 2011, 10:23 PM  When it comes to child protective services, it doesn't matter. They often just call in a psychologist to diagnose the parents with MSBP. From that evaluation alone, the children are placed into foster care. In my state, there is often no medical evaluation of the children once they are in foster care. Sometimes the kids die in " care, " because all medical supports are removed. To quote an attorney who takes these cases, " even if you are found innocent of all charges, it will take a minimum of 18 months and $50K to get your children back. " > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > Byrd > > > __________________________________________________________ > > > > > > > > > > ________________________________ > From: <bluetaelon@...> > > Sent: Tue, May 17, 2011 5:57:29 PM > Subject: Re: Teri Cerda > > > > I just saw that and was about to post as well, this is crazy. > > > > > > ________________________________ > From: S <RobRose@...> > > Sent: Tue, May 17, 2011 2:56:08 PM > Subject: Teri Cerda > > I haven't posted here in years, but when I saw the story on News > http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition > > > I felt compelled to inquire here to find out if anybody knows about this family > (they are members of the list) and knows what is currently going on. > > > I live in a state that is a hot bed for false accusations of medical abuse (aka > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are > targeted. While the tendency of the general public is to assume they must be > guilty of something, I do not make the assumption, because in the cases I know > of, the parents were guilty of nothing. I am currently in the process of > arranging for a training for parents in my city led by lawyers who are expert in > > this area, so that parents know how to protect themselves from this type of > accusation and/or defend themselves when it happens. I am wondering if this > family has reached out to the PID community or if they have gotten proper legal > council. > > Thx, > > > > ------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the sole > responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 I saw something she had posted way back, about Mito....I think a lot of people whose kids have mito get accused of that von Munchausen by proxy......so perhaps it's that they are accusing her for not the PID? I suppose because it's an illness that is just being understood, and not many doctors know about it? Either way, it's sad. From: S <RobRose@...> Subject: Re: Teri Cerda Date: Tuesday, May 17, 2011, 10:23 PM  When it comes to child protective services, it doesn't matter. They often just call in a psychologist to diagnose the parents with MSBP. From that evaluation alone, the children are placed into foster care. In my state, there is often no medical evaluation of the children once they are in foster care. Sometimes the kids die in " care, " because all medical supports are removed. To quote an attorney who takes these cases, " even if you are found innocent of all charges, it will take a minimum of 18 months and $50K to get your children back. " > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > Byrd > > > __________________________________________________________ > > > > > > > > > > ________________________________ > From: <bluetaelon@...> > > Sent: Tue, May 17, 2011 5:57:29 PM > Subject: Re: Teri Cerda > > > > I just saw that and was about to post as well, this is crazy. > > > > > > ________________________________ > From: S <RobRose@...> > > Sent: Tue, May 17, 2011 2:56:08 PM > Subject: Teri Cerda > > I haven't posted here in years, but when I saw the story on News > http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition > > > I felt compelled to inquire here to find out if anybody knows about this family > (they are members of the list) and knows what is currently going on. > > > I live in a state that is a hot bed for false accusations of medical abuse (aka > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are > targeted. While the tendency of the general public is to assume they must be > guilty of something, I do not make the assumption, because in the cases I know > of, the parents were guilty of nothing. I am currently in the process of > arranging for a training for parents in my city led by lawyers who are expert in > > this area, so that parents know how to protect themselves from this type of > accusation and/or defend themselves when it happens. I am wondering if this > family has reached out to the PID community or if they have gotten proper legal > council. > > Thx, > > > > ------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the sole > responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Its not always clear cut and it looks like she wasn't able to show it with medical records according to this http://www.oregonlive.com/clackamascounty/index.ssf/2011/05/clackamas_county_a_c\ ase_of_med.html Teri is or at least was a long time member here but hasn't posted since Oct of last year, maybe she can clarify things. My bet is if they did test the children while in " care " it may have been to soon after stopping IG in which case they would appear to be " normal " . Its also possible the children outgrew their PID since the last testing but mom didn't know. I know life was hell the first 5 years with my dd until we started IG and now at almost 11 she's like a normal kid (as long as she gets her IG, if she misses one she's sick and fast) but 2-3 years ago? No way, she needed to live in a bubble. Am I willing to stop IG? NO! Its possible she could be outgrowing it but at this point I'm not willing to retest her. I can understand if the mom was in the same situation. ________________________________ From: Sue Bordelon <sudubo@...> Sent: Tue, May 17, 2011 3:28:45 PM Subject: Re: Teri Cerda Don't they have abnormal labwork that shows the immune deficiency? ...sue From: S <RobRose@...> Subject: Teri Cerda Date: Tuesday, May 17, 2011, 9:56 PM I haven't posted here in years, but when I saw the story on News http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition I felt compelled to inquire here to find out if anybody knows about this family (they are members of the list) and knows what is currently going on. I live in a state that is a hot bed for false accusations of medical abuse (aka Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are targeted. While the tendency of the general public is to assume they must be guilty of something, I do not make the assumption, because in the cases I know of, the parents were guilty of nothing. I am currently in the process of arranging for a training for parents in my city led by lawyers who are expert in this area, so that parents know how to protect themselves from this type of accusation and/or defend themselves when it happens. I am wondering if this family has reached out to the PID community or if they have gotten proper legal council. Thx, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Its not always clear cut and it looks like she wasn't able to show it with medical records according to this http://www.oregonlive.com/clackamascounty/index.ssf/2011/05/clackamas_county_a_c\ ase_of_med.html Teri is or at least was a long time member here but hasn't posted since Oct of last year, maybe she can clarify things. My bet is if they did test the children while in " care " it may have been to soon after stopping IG in which case they would appear to be " normal " . Its also possible the children outgrew their PID since the last testing but mom didn't know. I know life was hell the first 5 years with my dd until we started IG and now at almost 11 she's like a normal kid (as long as she gets her IG, if she misses one she's sick and fast) but 2-3 years ago? No way, she needed to live in a bubble. Am I willing to stop IG? NO! Its possible she could be outgrowing it but at this point I'm not willing to retest her. I can understand if the mom was in the same situation. ________________________________ From: Sue Bordelon <sudubo@...> Sent: Tue, May 17, 2011 3:28:45 PM Subject: Re: Teri Cerda Don't they have abnormal labwork that shows the immune deficiency? ...sue From: S <RobRose@...> Subject: Teri Cerda Date: Tuesday, May 17, 2011, 9:56 PM I haven't posted here in years, but when I saw the story on News http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition I felt compelled to inquire here to find out if anybody knows about this family (they are members of the list) and knows what is currently going on. I live in a state that is a hot bed for false accusations of medical abuse (aka Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are targeted. While the tendency of the general public is to assume they must be guilty of something, I do not make the assumption, because in the cases I know of, the parents were guilty of nothing. I am currently in the process of arranging for a training for parents in my city led by lawyers who are expert in this area, so that parents know how to protect themselves from this type of accusation and/or defend themselves when it happens. I am wondering if this family has reached out to the PID community or if they have gotten proper legal council. Thx, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 This was happening to another family on this group I believe either last year or in 2009. She had moved and was having trouble getting records and she was being accused of making the kids SICK since she had NO documentation and labs were good. The docs would not prescribe the gamma . The old doctor was retired or something and she could not get records. I know that for the FIRST time my sons life his labs are NORMAL but he has been on IVIG or SubQ for over 12 years. I am trying to get Psych care for him and it is HUGE struggle so I went to a Immunologist to get help due to the severe reactions he has had on his immune system related to Psych drugs in the past. I can see if I took the current labs and moved and went to a new state and a new Dr. that I could be making all this up.In particular with mental illness because he could say ANYTHING It is SCARY especially with CPS because they do not ask questions but the laws allow them to ACT and then ask questions. It is important in the REAL cases where there is documented history and abuse But when a " NORMAL " family case come along( not low socioeconomic or drugs etc involved families)they are all over it since there is so much MORE press and drama around the cases and they found a " unusual one " . I feel like I am ALWAYS walking a tightrope with the medical profession even though I am a Nurse. There are SO many differing opinions and practices across this country. I am GLAD the IDF is there since it truly helps to bring validity to things and a way to measure NORMAL in the field. You can get a Dr. to diagnose ANYTHING for the money and things can be turned to account for whatever if you want to make it happen. It is IMPORTANT to keep copies of records and also to stay in good communication with your medical staff . If you do not like someone keep looking til you do find someone you can work with to document and follow your child through the years. I was told in Oklahoma by our immunologist that if I did not MAKE my son do his Sub Q that I could be brought up on charges with CPS for neglect. My son is mentally ill and I could not MAKE him and could not find treatment . My only option was to take him to the ER when he refused. (had to call the police to escort him since I could not get him into the car. This was a doctor I LOVED and we had GREAT relations. It was HORRIBLE. BARBIE ________________________________ From: S <RobRose@...> Sent: Tue, May 17, 2011 3:23:14 PM Subject: Re: Teri Cerda When it comes to child protective services, it doesn't matter. They often just call in a psychologist to diagnose the parents with MSBP. From that evaluation alone, the children are placed into foster care. In my state, there is often no medical evaluation of the children once they are in foster care. Sometimes the kids die in " care, " because all medical supports are removed. To quote an attorney who takes these cases, " even if you are found innocent of all charges, it will take a minimum of 18 months and $50K to get your children back. " > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > Byrd > > > __________________________________________________________ > > > > > > > > > > ________________________________ > From: <bluetaelon@...> > > Sent: Tue, May 17, 2011 5:57:29 PM > Subject: Re: Teri Cerda > > > > I just saw that and was about to post as well, this is crazy. > > > > > > ________________________________ > From: S <RobRose@...> > > Sent: Tue, May 17, 2011 2:56:08 PM > Subject: Teri Cerda > > I haven't posted here in years, but when I saw the story on News >http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-m\ akeover-dubious-claims-edition >n > > > I felt compelled to inquire here to find out if anybody knows about this family > > (they are members of the list) and knows what is currently going on. > > > I live in a state that is a hot bed for false accusations of medical abuse (aka > > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are > targeted. While the tendency of the general public is to assume they must be > guilty of something, I do not make the assumption, because in the cases I know > of, the parents were guilty of nothing. I am currently in the process of > arranging for a training for parents in my city led by lawyers who are expert >in > > > this area, so that parents know how to protect themselves from this type of > accusation and/or defend themselves when it happens. I am wondering if this > family has reached out to the PID community or if they have gotten proper legal > > council. > > Thx, > > > > ------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the sole > > responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 This was happening to another family on this group I believe either last year or in 2009. She had moved and was having trouble getting records and she was being accused of making the kids SICK since she had NO documentation and labs were good. The docs would not prescribe the gamma . The old doctor was retired or something and she could not get records. I know that for the FIRST time my sons life his labs are NORMAL but he has been on IVIG or SubQ for over 12 years. I am trying to get Psych care for him and it is HUGE struggle so I went to a Immunologist to get help due to the severe reactions he has had on his immune system related to Psych drugs in the past. I can see if I took the current labs and moved and went to a new state and a new Dr. that I could be making all this up.In particular with mental illness because he could say ANYTHING It is SCARY especially with CPS because they do not ask questions but the laws allow them to ACT and then ask questions. It is important in the REAL cases where there is documented history and abuse But when a " NORMAL " family case come along( not low socioeconomic or drugs etc involved families)they are all over it since there is so much MORE press and drama around the cases and they found a " unusual one " . I feel like I am ALWAYS walking a tightrope with the medical profession even though I am a Nurse. There are SO many differing opinions and practices across this country. I am GLAD the IDF is there since it truly helps to bring validity to things and a way to measure NORMAL in the field. You can get a Dr. to diagnose ANYTHING for the money and things can be turned to account for whatever if you want to make it happen. It is IMPORTANT to keep copies of records and also to stay in good communication with your medical staff . If you do not like someone keep looking til you do find someone you can work with to document and follow your child through the years. I was told in Oklahoma by our immunologist that if I did not MAKE my son do his Sub Q that I could be brought up on charges with CPS for neglect. My son is mentally ill and I could not MAKE him and could not find treatment . My only option was to take him to the ER when he refused. (had to call the police to escort him since I could not get him into the car. This was a doctor I LOVED and we had GREAT relations. It was HORRIBLE. BARBIE ________________________________ From: S <RobRose@...> Sent: Tue, May 17, 2011 3:23:14 PM Subject: Re: Teri Cerda When it comes to child protective services, it doesn't matter. They often just call in a psychologist to diagnose the parents with MSBP. From that evaluation alone, the children are placed into foster care. In my state, there is often no medical evaluation of the children once they are in foster care. Sometimes the kids die in " care, " because all medical supports are removed. To quote an attorney who takes these cases, " even if you are found innocent of all charges, it will take a minimum of 18 months and $50K to get your children back. " > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > Byrd > > > __________________________________________________________ > > > > > > > > > > ________________________________ > From: <bluetaelon@...> > > Sent: Tue, May 17, 2011 5:57:29 PM > Subject: Re: Teri Cerda > > > > I just saw that and was about to post as well, this is crazy. > > > > > > ________________________________ > From: S <RobRose@...> > > Sent: Tue, May 17, 2011 2:56:08 PM > Subject: Teri Cerda > > I haven't posted here in years, but when I saw the story on News >http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-m\ akeover-dubious-claims-edition >n > > > I felt compelled to inquire here to find out if anybody knows about this family > > (they are members of the list) and knows what is currently going on. > > > I live in a state that is a hot bed for false accusations of medical abuse (aka > > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are > targeted. While the tendency of the general public is to assume they must be > guilty of something, I do not make the assumption, because in the cases I know > of, the parents were guilty of nothing. I am currently in the process of > arranging for a training for parents in my city led by lawyers who are expert >in > > > this area, so that parents know how to protect themselves from this type of > accusation and/or defend themselves when it happens. I am wondering if this > family has reached out to the PID community or if they have gotten proper legal > > council. > > Thx, > > > > ------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the sole > > responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 I'm telling you it doesn't matter. In these cases, here is what you are up against... States receive federal dollars for children placed in foster care -- there is a $ incentive. On top of what they get, they no longer have to pay for medical care (this family was on Medicaid at the time of the video) because they claim the symptoms are fabricated. Yes, they will go as far as to claim that labs are fabricated too -- I've heard it all. In 2 current cases in my state, they are claiming that a total of 6 children with autism diagnoses don't really have autism (this involves 2 separate families, BTW). The State's expert testified that their autistic behaviors were caused by the effect of having disturbed parents who pretend that their children are disabled (ie: learned helplessness). In one case, the " expert " claimed that an accused woman was able to cause herself to go into early labor in order to cause prematurity in one of her babies. She was in the hospital, being treated for preterm labor, when she was supposedly able to pull off this stunt. These are psychologists testifying, yet they are treated as if they have medical degrees. As far as PID, 4 kids currently in our state's care were on IVIG for ID and also one had the further case of Henoch-Schonlein Purpura. Their immunologist testified on their behalf. He was so upset by this case, he had a heart attack after it was over. The other incentive is for the psychologists I have mentioned. A small group of them in this country (15-20) have the desire to see MSBP listed in the DSM as a stand-alone diagnosis. In order to achieve that, they must show an increase in the amount of times it is diagnosed. These psychs are paid well. One that is currently being investigated by our state's psych board made $250K in part-time work diagnosing and testifying that parents have MSBP. Her contract with the state makes it clear what is going on. An attorney involved told me he has never seen such a contract before -- it pretty much states that her job is to find that both the mothers and fathers who are brought to her by CPS have MSBP. She has no problem with that as this person has no soul. > > From: S <RobRose@...> > Subject: Teri Cerda > > Date: Tuesday, May 17, 2011, 9:56 PM > > > > > > > >  > > > > > > > > > > I haven't posted here in years, but when I saw the story on News http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition > > I felt compelled to inquire here to find out if anybody knows about this family (they are members of the list) and knows what is currently going on. > > > > I live in a state that is a hot bed for false accusations of medical abuse (aka Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are targeted. While the tendency of the general public is to assume they must be guilty of something, I do not make the assumption, because in the cases I know of, the parents were guilty of nothing. I am currently in the process of arranging for a training for parents in my city led by lawyers who are expert in this area, so that parents know how to protect themselves from this type of accusation and/or defend themselves when it happens. I am wondering if this family has reached out to the PID community or if they have gotten proper legal council. > > > > Thx, > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 This is one of my fears, I want to move out of state but it would mean leaving our Dr's and after the hell of getting dx'd I do not want to have to repeat it. My kid is one of those who are not clear cut when just looking at labs and I worry what we would have to go though getting a new Dr to order IG. ________________________________ From: Barbara Jimenez <mother5590@...> Sent: Tue, May 17, 2011 3:46:03 PM Subject: Re: Re: Teri Cerda This was happening to another family on this group I believe either last year or in 2009. She had moved and was having trouble getting records and she was being accused of making the kids SICK since she had NO documentation and labs were good. The docs would not prescribe the gamma . The old doctor was retired or something and she could not get records. I know that for the FIRST time my sons life his labs are NORMAL but he has been on IVIG or SubQ for over 12 years. I am trying to get Psych care for him and it is HUGE struggle so I went to a Immunologist to get help due to the severe reactions he has had on his immune system related to Psych drugs in the past. I can see if I took the current labs and moved and went to a new state and a new Dr. that I could be making all this up.In particular with mental illness because he could say ANYTHING It is SCARY especially with CPS because they do not ask questions but the laws allow them to ACT and then ask questions. It is important in the REAL cases where there is documented history and abuse But when a " NORMAL " family case come along( not low socioeconomic or drugs etc involved families)they are all over it since there is so much MORE press and drama around the cases and they found a " unusual one " . I feel like I am ALWAYS walking a tightrope with the medical profession even though I am a Nurse. There are SO many differing opinions and practices across this country. I am GLAD the IDF is there since it truly helps to bring validity to things and a way to measure NORMAL in the field. You can get a Dr. to diagnose ANYTHING for the money and things can be turned to account for whatever if you want to make it happen. It is IMPORTANT to keep copies of records and also to stay in good communication with your medical staff . If you do not like someone keep looking til you do find someone you can work with to document and follow your child through the years. I was told in Oklahoma by our immunologist that if I did not MAKE my son do his Sub Q that I could be brought up on charges with CPS for neglect. My son is mentally ill and I could not MAKE him and could not find treatment . My only option was to take him to the ER when he refused. (had to call the police to escort him since I could not get him into the car. This was a doctor I LOVED and we had GREAT relations. It was HORRIBLE. BARBIE ________________________________ From: S <RobRose@...> Sent: Tue, May 17, 2011 3:23:14 PM Subject: Re: Teri Cerda When it comes to child protective services, it doesn't matter. They often just call in a psychologist to diagnose the parents with MSBP. From that evaluation alone, the children are placed into foster care. In my state, there is often no medical evaluation of the children once they are in foster care. Sometimes the kids die in " care, " because all medical supports are removed. To quote an attorney who takes these cases, " even if you are found innocent of all charges, it will take a minimum of 18 months and $50K to get your children back. " > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > Byrd > > > __________________________________________________________ > > > > > > > > > > ________________________________ > From: <bluetaelon@...> > > Sent: Tue, May 17, 2011 5:57:29 PM > Subject: Re: Teri Cerda > > > > I just saw that and was about to post as well, this is crazy. > > > > > > ________________________________ > From: S <RobRose@...> > > Sent: Tue, May 17, 2011 2:56:08 PM > Subject: Teri Cerda > > I haven't posted here in years, but when I saw the story on News >http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-m\ akeover-dubious-claims-edition > >n > > > I felt compelled to inquire here to find out if anybody knows about this family > > > (they are members of the list) and knows what is currently going on. > > > I live in a state that is a hot bed for false accusations of medical abuse (aka > > > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are > targeted. While the tendency of the general public is to assume they must be > guilty of something, I do not make the assumption, because in the cases I know > of, the parents were guilty of nothing. I am currently in the process of > arranging for a training for parents in my city led by lawyers who are expert >in > > > this area, so that parents know how to protect themselves from this type of > accusation and/or defend themselves when it happens. I am wondering if this > family has reached out to the PID community or if they have gotten proper legal > > > council. > > Thx, > > > > ------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the sole > > > responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 This is one of my fears, I want to move out of state but it would mean leaving our Dr's and after the hell of getting dx'd I do not want to have to repeat it. My kid is one of those who are not clear cut when just looking at labs and I worry what we would have to go though getting a new Dr to order IG. ________________________________ From: Barbara Jimenez <mother5590@...> Sent: Tue, May 17, 2011 3:46:03 PM Subject: Re: Re: Teri Cerda This was happening to another family on this group I believe either last year or in 2009. She had moved and was having trouble getting records and she was being accused of making the kids SICK since she had NO documentation and labs were good. The docs would not prescribe the gamma . The old doctor was retired or something and she could not get records. I know that for the FIRST time my sons life his labs are NORMAL but he has been on IVIG or SubQ for over 12 years. I am trying to get Psych care for him and it is HUGE struggle so I went to a Immunologist to get help due to the severe reactions he has had on his immune system related to Psych drugs in the past. I can see if I took the current labs and moved and went to a new state and a new Dr. that I could be making all this up.In particular with mental illness because he could say ANYTHING It is SCARY especially with CPS because they do not ask questions but the laws allow them to ACT and then ask questions. It is important in the REAL cases where there is documented history and abuse But when a " NORMAL " family case come along( not low socioeconomic or drugs etc involved families)they are all over it since there is so much MORE press and drama around the cases and they found a " unusual one " . I feel like I am ALWAYS walking a tightrope with the medical profession even though I am a Nurse. There are SO many differing opinions and practices across this country. I am GLAD the IDF is there since it truly helps to bring validity to things and a way to measure NORMAL in the field. You can get a Dr. to diagnose ANYTHING for the money and things can be turned to account for whatever if you want to make it happen. It is IMPORTANT to keep copies of records and also to stay in good communication with your medical staff . If you do not like someone keep looking til you do find someone you can work with to document and follow your child through the years. I was told in Oklahoma by our immunologist that if I did not MAKE my son do his Sub Q that I could be brought up on charges with CPS for neglect. My son is mentally ill and I could not MAKE him and could not find treatment . My only option was to take him to the ER when he refused. (had to call the police to escort him since I could not get him into the car. This was a doctor I LOVED and we had GREAT relations. It was HORRIBLE. BARBIE ________________________________ From: S <RobRose@...> Sent: Tue, May 17, 2011 3:23:14 PM Subject: Re: Teri Cerda When it comes to child protective services, it doesn't matter. They often just call in a psychologist to diagnose the parents with MSBP. From that evaluation alone, the children are placed into foster care. In my state, there is often no medical evaluation of the children once they are in foster care. Sometimes the kids die in " care, " because all medical supports are removed. To quote an attorney who takes these cases, " even if you are found innocent of all charges, it will take a minimum of 18 months and $50K to get your children back. " > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > Byrd > > > __________________________________________________________ > > > > > > > > > > ________________________________ > From: <bluetaelon@...> > > Sent: Tue, May 17, 2011 5:57:29 PM > Subject: Re: Teri Cerda > > > > I just saw that and was about to post as well, this is crazy. > > > > > > ________________________________ > From: S <RobRose@...> > > Sent: Tue, May 17, 2011 2:56:08 PM > Subject: Teri Cerda > > I haven't posted here in years, but when I saw the story on News >http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-m\ akeover-dubious-claims-edition > >n > > > I felt compelled to inquire here to find out if anybody knows about this family > > > (they are members of the list) and knows what is currently going on. > > > I live in a state that is a hot bed for false accusations of medical abuse (aka > > > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are > targeted. While the tendency of the general public is to assume they must be > guilty of something, I do not make the assumption, because in the cases I know > of, the parents were guilty of nothing. I am currently in the process of > arranging for a training for parents in my city led by lawyers who are expert >in > > > this area, so that parents know how to protect themselves from this type of > accusation and/or defend themselves when it happens. I am wondering if this > family has reached out to the PID community or if they have gotten proper legal > > > council. > > Thx, > > > > ------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the sole > > > responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 The populations especially at risk (according to the attorneys who take these cases) are mito, autism and GI (any GI condition -- even reflux). If you have an ID, you generally have GI issues, so ID is not identified specifically. It's not too much of a stretch to say that if you have a child who has a chronic condition, you are at risk. > > > > > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > > > > > > > > > Byrd > > > > > > > > > __________________________________________________________ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > From: <bluetaelon@> > > > > > > Sent: Tue, May 17, 2011 5:57:29 PM > > > Subject: Re: Teri Cerda > > > > > > > > > > > > I just saw that and was about to post as well, this is crazy. > > > > > > > > > > > > > > > > > > ________________________________ > > > From: S <RobRose@> > > > > > > Sent: Tue, May 17, 2011 2:56:08 PM > > > Subject: Teri Cerda > > > > > > I haven't posted here in years, but when I saw the story on News > > > http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition > > > > > > > > > I felt compelled to inquire here to find out if anybody knows about this family > > > (they are members of the list) and knows what is currently going on. > > > > > > > > > I live in a state that is a hot bed for false accusations of medical abuse (aka > > > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are > > > targeted. While the tendency of the general public is to assume they must be > > > guilty of something, I do not make the assumption, because in the cases I know > > > of, the parents were guilty of nothing. I am currently in the process of > > > arranging for a training for parents in my city led by lawyers who are expert in > > > > > > this area, so that parents know how to protect themselves from this type of > > > accusation and/or defend themselves when it happens. I am wondering if this > > > family has reached out to the PID community or if they have gotten proper legal > > > council. > > > > > > Thx, > > > > > > > > > > > > ------------------------------------ > > > > > > This forum is open to parents and caregivers of children diagnosed with a > > > Primary Immune Deficiency. Opinions or medical advice stated here are the sole > > > responsibility of the poster and should not be taken as professional advice. > > > > > > To unsubscribe -unsubscribegroups (DOT) > > > To search group archives go to: > > > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 The populations especially at risk (according to the attorneys who take these cases) are mito, autism and GI (any GI condition -- even reflux). If you have an ID, you generally have GI issues, so ID is not identified specifically. It's not too much of a stretch to say that if you have a child who has a chronic condition, you are at risk. > > > > > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > > > > > > > > > Byrd > > > > > > > > > __________________________________________________________ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > From: <bluetaelon@> > > > > > > Sent: Tue, May 17, 2011 5:57:29 PM > > > Subject: Re: Teri Cerda > > > > > > > > > > > > I just saw that and was about to post as well, this is crazy. > > > > > > > > > > > > > > > > > > ________________________________ > > > From: S <RobRose@> > > > > > > Sent: Tue, May 17, 2011 2:56:08 PM > > > Subject: Teri Cerda > > > > > > I haven't posted here in years, but when I saw the story on News > > > http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition > > > > > > > > > I felt compelled to inquire here to find out if anybody knows about this family > > > (they are members of the list) and knows what is currently going on. > > > > > > > > > I live in a state that is a hot bed for false accusations of medical abuse (aka > > > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are > > > targeted. While the tendency of the general public is to assume they must be > > > guilty of something, I do not make the assumption, because in the cases I know > > > of, the parents were guilty of nothing. I am currently in the process of > > > arranging for a training for parents in my city led by lawyers who are expert in > > > > > > this area, so that parents know how to protect themselves from this type of > > > accusation and/or defend themselves when it happens. I am wondering if this > > > family has reached out to the PID community or if they have gotten proper legal > > > council. > > > > > > Thx, > > > > > > > > > > > > ------------------------------------ > > > > > > This forum is open to parents and caregivers of children diagnosed with a > > > Primary Immune Deficiency. Opinions or medical advice stated here are the sole > > > responsibility of the poster and should not be taken as professional advice. > > > > > > To unsubscribe -unsubscribegroups (DOT) > > > To search group archives go to: > > > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 should be ASHAMED of themselves for telling only part of the story. your article is MUCH better. I wish we could contact Teri and support her. This is a possibility for ALL of us. I have similar problems with Drs. especially if I disagree with them. It can make you CRAZY> IDF needs to stand up and write a response to this. it is AWFUL BARBIE ________________________________ From: <bluetaelon@...> Sent: Tue, May 17, 2011 3:45:02 PM Subject: Re: Teri Cerda Its not always clear cut and it looks like she wasn't able to show it with medical records according to this http://www.oregonlive.com/clackamascounty/index.ssf/2011/05/clackamas_county_a_c\ ase_of_med.html Teri is or at least was a long time member here but hasn't posted since Oct of last year, maybe she can clarify things. My bet is if they did test the children while in " care " it may have been to soon after stopping IG in which case they would appear to be " normal " . Its also possible the children outgrew their PID since the last testing but mom didn't know. I know life was hell the first 5 years with my dd until we started IG and now at almost 11 she's like a normal kid (as long as she gets her IG, if she misses one she's sick and fast) but 2-3 years ago? No way, she needed to live in a bubble. Am I willing to stop IG? NO! Its possible she could be outgrowing it but at this point I'm not willing to retest her. I can understand if the mom was in the same situation. ________________________________ From: Sue Bordelon <sudubo@...> Sent: Tue, May 17, 2011 3:28:45 PM Subject: Re: Teri Cerda Don't they have abnormal labwork that shows the immune deficiency? ...sue From: S <RobRose@...> Subject: Teri Cerda Date: Tuesday, May 17, 2011, 9:56 PM I haven't posted here in years, but when I saw the story on News http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition I felt compelled to inquire here to find out if anybody knows about this family (they are members of the list) and knows what is currently going on. I live in a state that is a hot bed for false accusations of medical abuse (aka Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are targeted. While the tendency of the general public is to assume they must be guilty of something, I do not make the assumption, because in the cases I know of, the parents were guilty of nothing. I am currently in the process of arranging for a training for parents in my city led by lawyers who are expert in this area, so that parents know how to protect themselves from this type of accusation and/or defend themselves when it happens. I am wondering if this family has reached out to the PID community or if they have gotten proper legal council. Thx, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 should be ASHAMED of themselves for telling only part of the story. your article is MUCH better. I wish we could contact Teri and support her. This is a possibility for ALL of us. I have similar problems with Drs. especially if I disagree with them. It can make you CRAZY> IDF needs to stand up and write a response to this. it is AWFUL BARBIE ________________________________ From: <bluetaelon@...> Sent: Tue, May 17, 2011 3:45:02 PM Subject: Re: Teri Cerda Its not always clear cut and it looks like she wasn't able to show it with medical records according to this http://www.oregonlive.com/clackamascounty/index.ssf/2011/05/clackamas_county_a_c\ ase_of_med.html Teri is or at least was a long time member here but hasn't posted since Oct of last year, maybe she can clarify things. My bet is if they did test the children while in " care " it may have been to soon after stopping IG in which case they would appear to be " normal " . Its also possible the children outgrew their PID since the last testing but mom didn't know. I know life was hell the first 5 years with my dd until we started IG and now at almost 11 she's like a normal kid (as long as she gets her IG, if she misses one she's sick and fast) but 2-3 years ago? No way, she needed to live in a bubble. Am I willing to stop IG? NO! Its possible she could be outgrowing it but at this point I'm not willing to retest her. I can understand if the mom was in the same situation. ________________________________ From: Sue Bordelon <sudubo@...> Sent: Tue, May 17, 2011 3:28:45 PM Subject: Re: Teri Cerda Don't they have abnormal labwork that shows the immune deficiency? ...sue From: S <RobRose@...> Subject: Teri Cerda Date: Tuesday, May 17, 2011, 9:56 PM I haven't posted here in years, but when I saw the story on News http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition I felt compelled to inquire here to find out if anybody knows about this family (they are members of the list) and knows what is currently going on. I live in a state that is a hot bed for false accusations of medical abuse (aka Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are targeted. While the tendency of the general public is to assume they must be guilty of something, I do not make the assumption, because in the cases I know of, the parents were guilty of nothing. I am currently in the process of arranging for a training for parents in my city led by lawyers who are expert in this area, so that parents know how to protect themselves from this type of accusation and/or defend themselves when it happens. I am wondering if this family has reached out to the PID community or if they have gotten proper legal council. Thx, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 could you maybe put together some ideas of what we should be doing to protect ourselves. Like keeping records, etc etc. BARBIE ________________________________ From: S <RobRose@...> Sent: Tue, May 17, 2011 3:55:10 PM Subject: Re: Teri Cerda The populations especially at risk (according to the attorneys who take these cases) are mito, autism and GI (any GI condition -- even reflux). If you have an ID, you generally have GI issues, so ID is not identified specifically. It's not too much of a stretch to say that if you have a child who has a chronic condition, you are at risk. > > > > > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > > > > > > > > > Byrd > > > > > > > > > __________________________________________________________ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > From: <bluetaelon@> > > > > > > Sent: Tue, May 17, 2011 5:57:29 PM > > > Subject: Re: Teri Cerda > > > > > > > > > > > > I just saw that and was about to post as well, this is crazy. > > > > > > > > > > > > > > > > > > ________________________________ > > > From: S <RobRose@> > > > > > > Sent: Tue, May 17, 2011 2:56:08 PM > > > Subject: Teri Cerda > > > > > > I haven't posted here in years, but when I saw the story on News > > > >http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-m\ akeover-dubious-claims-edition > > > > > > > > > > I felt compelled to inquire here to find out if anybody knows about this >family > > > > (they are members of the list) and knows what is currently going on. > > > > > > > > > I live in a state that is a hot bed for false accusations of medical abuse >(aka > > > > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids >are > > > > targeted. While the tendency of the general public is to assume they must be > > > guilty of something, I do not make the assumption, because in the cases I >know > > > > of, the parents were guilty of nothing. I am currently in the process of > > > arranging for a training for parents in my city led by lawyers who are expert >in > > > > > > > this area, so that parents know how to protect themselves from this type of > > > accusation and/or defend themselves when it happens. I am wondering if this > > > family has reached out to the PID community or if they have gotten proper >legal > > > > council. > > > > > > Thx, > > > > > > > > > > > > ------------------------------------ > > > > > > This forum is open to parents and caregivers of children diagnosed with a > > > Primary Immune Deficiency. Opinions or medical advice stated here are the >sole > > > > responsibility of the poster and should not be taken as professional advice. > > > > > > To unsubscribe -unsubscribegroups (DOT) > > > To search group archives go to: > > > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 could you maybe put together some ideas of what we should be doing to protect ourselves. Like keeping records, etc etc. BARBIE ________________________________ From: S <RobRose@...> Sent: Tue, May 17, 2011 3:55:10 PM Subject: Re: Teri Cerda The populations especially at risk (according to the attorneys who take these cases) are mito, autism and GI (any GI condition -- even reflux). If you have an ID, you generally have GI issues, so ID is not identified specifically. It's not too much of a stretch to say that if you have a child who has a chronic condition, you are at risk. > > > > > > I dont understand. Wouldn't she had to have had a diagnosis to get the IVIG?? > > > > > > > > > > > > Byrd > > > > > > > > > __________________________________________________________ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > From: <bluetaelon@> > > > > > > Sent: Tue, May 17, 2011 5:57:29 PM > > > Subject: Re: Teri Cerda > > > > > > > > > > > > I just saw that and was about to post as well, this is crazy. > > > > > > > > > > > > > > > > > > ________________________________ > > > From: S <RobRose@> > > > > > > Sent: Tue, May 17, 2011 2:56:08 PM > > > Subject: Teri Cerda > > > > > > I haven't posted here in years, but when I saw the story on News > > > >http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-m\ akeover-dubious-claims-edition > > > > > > > > > > I felt compelled to inquire here to find out if anybody knows about this >family > > > > (they are members of the list) and knows what is currently going on. > > > > > > > > > I live in a state that is a hot bed for false accusations of medical abuse >(aka > > > > Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids >are > > > > targeted. While the tendency of the general public is to assume they must be > > > guilty of something, I do not make the assumption, because in the cases I >know > > > > of, the parents were guilty of nothing. I am currently in the process of > > > arranging for a training for parents in my city led by lawyers who are expert >in > > > > > > > this area, so that parents know how to protect themselves from this type of > > > accusation and/or defend themselves when it happens. I am wondering if this > > > family has reached out to the PID community or if they have gotten proper >legal > > > > council. > > > > > > Thx, > > > > > > > > > > > > ------------------------------------ > > > > > > This forum is open to parents and caregivers of children diagnosed with a > > > Primary Immune Deficiency. Opinions or medical advice stated here are the >sole > > > > responsibility of the poster and should not be taken as professional advice. > > > > > > To unsubscribe -unsubscribegroups (DOT) > > > To search group archives go to: > > > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 That's cold-blooded......anyone can accuse anyone of anything, but accusing a parent who cares about their children of hurting the children, must be especially horrible....God Bless them.... From: S <RobRose@...> Subject: Re: Teri Cerda Date: Tuesday, May 17, 2011, 10:52 PM  I'm telling you it doesn't matter. In these cases, here is what you are up against... States receive federal dollars for children placed in foster care -- there is a $ incentive. On top of what they get, they no longer have to pay for medical care (this family was on Medicaid at the time of the video) because they claim the symptoms are fabricated. Yes, they will go as far as to claim that labs are fabricated too -- I've heard it all. In 2 current cases in my state, they are claiming that a total of 6 children with autism diagnoses don't really have autism (this involves 2 separate families, BTW). The State's expert testified that their autistic behaviors were caused by the effect of having disturbed parents who pretend that their children are disabled (ie: learned helplessness). In one case, the " expert " claimed that an accused woman was able to cause herself to go into early labor in order to cause prematurity in one of her babies. She was in the hospital, being treated for preterm labor, when she was supposedly able to pull off this stunt. These are psychologists testifying, yet they are treated as if they have medical degrees. As far as PID, 4 kids currently in our state's care were on IVIG for ID and also one had the further case of Henoch-Schonlein Purpura. Their immunologist testified on their behalf. He was so upset by this case, he had a heart attack after it was over. The other incentive is for the psychologists I have mentioned. A small group of them in this country (15-20) have the desire to see MSBP listed in the DSM as a stand-alone diagnosis. In order to achieve that, they must show an increase in the amount of times it is diagnosed. These psychs are paid well. One that is currently being investigated by our state's psych board made $250K in part-time work diagnosing and testifying that parents have MSBP. Her contract with the state makes it clear what is going on. An attorney involved told me he has never seen such a contract before -- it pretty much states that her job is to find that both the mothers and fathers who are brought to her by CPS have MSBP. She has no problem with that as this person has no soul. > > From: S <RobRose@...> > Subject: Teri Cerda > > Date: Tuesday, May 17, 2011, 9:56 PM > > > > > > > >  > > > > > > > > > > I haven't posted here in years, but when I saw the story on News http://news./s/yblog_thecutline/20110517/ts_yblog_thecutline/extreme-ma\ keover-dubious-claims-edition > > I felt compelled to inquire here to find out if anybody knows about this family (they are members of the list) and knows what is currently going on. > > > > I live in a state that is a hot bed for false accusations of medical abuse (aka Munchausen Syndrome By Proxy). Generally the parents of GI and Immuno kids are targeted. While the tendency of the general public is to assume they must be guilty of something, I do not make the assumption, because in the cases I know of, the parents were guilty of nothing. I am currently in the process of arranging for a training for parents in my city led by lawyers who are expert in this area, so that parents know how to protect themselves from this type of accusation and/or defend themselves when it happens. I am wondering if this family has reached out to the PID community or if they have gotten proper legal council. > > > > Thx, > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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