Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 - I am so sorry about Devin- so horribly sad that his life here on earth ended so soon. I am praying for your family. Lori > > I finally have the courage to write this email. My amazing son Devin, 17 years, 7 months and 11 days passed away on July 1st in his sleep. Devin had hypogammaglobunemia but even after starting IVIG at 12 years old he continued to have ongoing chronic pain that he struggled with. Despite that he was an extremely popular amazing young man. He was an excellent basketball player and had been scheduled to play in several national tournaments for college coaches this summer. Due to severe and mysterious pain that began in the beginning of May in his back then his chest and along his left side that was finally determined to be some sort of nerve problem or neuralgia he was unable to do this. He spent 5 days in the hospital in early June, was released with instructions to see a pain management specialist, receive ivig and steroid facet injections to determine the the source of the pain and then was diagnosed with the flu on June 29th. He passed away in his sleep sometime in the early morning of July 1st. I had thought he was just sleeping in as he had called me at work the evening before and complained of a severe headache, my husband came home and was with him and went to the pharmacy to give him zomig, he had never taken this particular medication before. He watched tv with him, he had a friend downstairs and other than not feeling well and being sick of all the pain he seemed in no danger. He was taking tamiflu, neurontin, prednisone and the zomig that night. When I went to check on him that late morning he was not breathing and had not been for several hours. The cause is still undetermined and toxicology reports will not be back for 2-3 more weeks. > > He truly was an amazing young man, the day he passed away we had close to 100 kids on our front lawn that evening with candles. His car adorned with flowers and a teddy bears, a us flag. He had over 350 people at his funeral and had received 37 pages of postings on his facebook all thanking him for helping them and his beautiful contagious smile and the life of the party. He was very funny, very outgoing, and truly the light of our life. I am lost without him, miss everything about him and see him wherever I go. He was a beautiful boy and despite his hardships lived a full incredible life. He touched and impacted hundreds of people in his short time here. Of course my husband and I knew he was all that and more when he was here. This certainly didn't have to happen to show us that. If you would like to see his facebook you may request to be added as a friend as I check his facebook several times a day to read all the comments. He was our only child, and this was by absolute worst nightmare come true. I only wish to know he is ok. I will miss him for the rest of my life and it will never be okay. I thank you for being part of this group, give your kids a hug. I will request to be taken out of the group list within a week as it's too hard to see the posts but please know this group has helped my son and I when we needed in the past. > > To see pictures of Devin - http://s1030.photobucket.com/albums/y362/tereos/Devin/?albumview=slideshow > > > Sincerely, > Eos > > Quote Link to comment Share on other sites More sharing options...
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