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Re: Devin Eos

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I am so sorry about Devin- so horribly sad that his life here on earth ended so

soon. I am praying for your family.

Lori

>

> I finally have the courage to write this email. My amazing son Devin, 17

years, 7 months and 11 days passed away on July 1st in his sleep. Devin had

hypogammaglobunemia but even after starting IVIG at 12 years old he continued to

have ongoing chronic pain that he struggled with. Despite that he was an

extremely popular amazing young man. He was an excellent basketball player and

had been scheduled to play in several national tournaments for college coaches

this summer. Due to severe and mysterious pain that began in the beginning of

May in his back then his chest and along his left side that was finally

determined to be some sort of nerve problem or neuralgia he was unable to do

this. He spent 5 days in the hospital in early June, was released with

instructions to see a pain management specialist, receive ivig and steroid facet

injections to determine the the source of the pain and then was diagnosed with

the flu on June 29th. He passed away in his sleep sometime in the early morning

of July 1st. I had thought he was just sleeping in as he had called me at work

the evening before and complained of a severe headache, my husband came home and

was with him and went to the pharmacy to give him zomig, he had never taken this

particular medication before. He watched tv with him, he had a friend

downstairs and other than not feeling well and being sick of all the pain he

seemed in no danger. He was taking tamiflu, neurontin, prednisone and the zomig

that night. When I went to check on him that late morning he was not breathing

and had not been for several hours. The cause is still undetermined and

toxicology reports will not be back for 2-3 more weeks.

>

> He truly was an amazing young man, the day he passed away we had close to 100

kids on our front lawn that evening with candles. His car adorned with flowers

and a teddy bears, a us flag. He had over 350 people at his funeral and had

received 37 pages of postings on his facebook all thanking him for helping them

and his beautiful contagious smile and the life of the party. He was very

funny, very outgoing, and truly the light of our life. I am lost without him,

miss everything about him and see him wherever I go. He was a beautiful boy and

despite his hardships lived a full incredible life. He touched and impacted

hundreds of people in his short time here. Of course my husband and I knew he

was all that and more when he was here. This certainly didn't have to happen to

show us that. If you would like to see his facebook you may request to be added

as a friend as I check his facebook several times a day to read all the

comments. He was our only child, and this was by absolute worst nightmare come

true. I only wish to know he is ok. I will miss him for the rest of my life

and it will never be okay. I thank you for being part of this group, give your

kids a hug. I will request to be taken out of the group list within a week as

it's too hard to see the posts but please know this group has helped my son and

I when we needed in the past.

>

> To see pictures of Devin -

http://s1030.photobucket.com/albums/y362/tereos/Devin/?albumview=slideshow

>

>

> Sincerely,

> Eos

>

>

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