Re: KIB500 - Success (attn Lucinda & listmates)

[Guest guest]

Hi, Just really wanted to share our success with KIB500.

Norman has had a " chronic " UTI infection since Aug 2009 caused by a

difficult to treat bacteria and which has proven unresponsive to

antibiotics. His infection has been ongoing without any break at all

for a whole year and this whole duration his wee smelled so bad. We

came to an agreement with both the GP and hospital to have his urine

tested every 3 weeks and each and every time the results came back

positive with the bacteria, leukocytes, nitrites, protein and from time

to time blood. Different antibiotics were prescribed - these never

worked at all!!!! rather they destroyed his gut flora causing

constipation and a chain reaction of problems. I also did my own urine

dipstick at home every few days and all the indicators would always be

positive.

We tried oxysilver, bicarb, uva ursi, d-mannose, cranberry extract,

fresh garlic, OoO, OLE, nothing seemed to help. Then we tried

Pycnogenol, Epicor and high doses of Biokult and this was the only time

the symptoms seemed to subside or what appears to me like the infection

was being suppressed as the awful " ammonia " smell would stop. But each

time we relaxed the regime of pycnogenol etc. the symptoms would

reappear in full force, it really was a desperate situation and we

didn't seem to be getting anywhere with mainstream treatment.

Now, after a few doses of KIB500, the urine tests have come back clear,

no bacteria, no leukocytes, no nitrites, no protein. Initially did 3

doses KIB and urine tested couple days later still indicated bacteria

but symptoms were not there and urine dipstick was negative. So we did

some more KIB, I don't exactly understand the full mechanism of KIB but

what I think happened was that when we tested after the first 3 doses

the KIB had not yet finished doing its job and would likely have been

enough to clear it. Anyway all I can say is that I am over the

moon, getting rid of this infection and KIB is really BRILLIANT!!

Also want to say thank you to Lucinda for the help.

Question now is, due to all this we were referred to a urologist. He

did some ultrasounds and xrays. We're due to see him on Monday for

results. Is it best to steer clear of mentioning using KIB500? How

would we explain getting rid of the infection otherwise?

From the urologists explanation and discussion previously, if he is to

find no abnormality in the kidneys, no sign of urine reflux or anything

unusual with the urinary system from the scans then he seemed to agree

with the possibility that the infection was likely to do with a

poor/under-functioning immune system. I think this is likely the

reason, and ideally would want to press for further investigation into

his immune function but I'm scared that now the infection is not there

they will close the case.

Any advice on how best to proceed with regards immune tests and dealing

with docs would be much appreciated.

emily

p.s sorry for overstretched post.

>

>

> Ok, so i've been convinced enough by what i've read and the good

reports i've heard about this product, to go ahead and give it a try..

>

> did other's buy from benchmark health - £54?

>

> i know its expensive but is it best to do this as a course? a few

doses together? weekly? monthly?

>

> thanks

>

> .

>

[Guest guest]

Do folks get the leg exercises at different points relating to their progress? and Norman were at Advance when I went for my first set and I saw them learning some of the leg exerices, seemed to me that Sam would tolerate this bit much better, from me at least, than working on ribcage

TIA

Mandi x

In a message dated 03/10/2010 09:12:32 GMT Daylight Time, thelifechangers@... writes:

This has really improved since August when we added all the leg exercises... initially there were more seizures with legs added, however I think that it was improved circulation clearing toxins from her brain... a reason that I think she is so much more alert now.

[Guest guest]

Do folks get the leg exercises at different points relating to their progress? and Norman were at Advance when I went for my first set and I saw them learning some of the leg exerices, seemed to me that Sam would tolerate this bit much better, from me at least, than working on ribcage

TIA

Mandi x

In a message dated 03/10/2010 09:12:32 GMT Daylight Time, thelifechangers@... writes:

This has really improved since August when we added all the leg exercises... initially there were more seizures with legs added, however I think that it was improved circulation clearing toxins from her brain... a reason that I think she is so much more alert now.

[Guest guest]

Yep that's what I was taught and I have mostly forgotten given Sam's aggressive behaviour in hols, is working on first set which they taught her at same time I did second. Hoping I can arrange for her to go up for the day for a refresh on seconds and then in New Year for 3rd set and we'll both be working the same then and my trigger thumb and carpal tunnel should be sorted and ready for proper action, at present I have numbness of hand and up over wrist after 5 mins set

He giggles all the way through Liver ones for me but is doing them on him without issues

Mandi x

In a message dated 03/10/2010 13:34:11 GMT Daylight Time, thelifechangers@... writes:

second moves onto thyroid and venus return... getting blood flow from legs back to heart. for some I think they may get liver exercises too.

[Guest guest]

Yep that's what I was taught and I have mostly forgotten given Sam's aggressive behaviour in hols, is working on first set which they taught her at same time I did second. Hoping I can arrange for her to go up for the day for a refresh on seconds and then in New Year for 3rd set and we'll both be working the same then and my trigger thumb and carpal tunnel should be sorted and ready for proper action, at present I have numbness of hand and up over wrist after 5 mins set

He giggles all the way through Liver ones for me but is doing them on him without issues

Mandi x

In a message dated 03/10/2010 13:34:11 GMT Daylight Time, thelifechangers@... writes:

second moves onto thyroid and venus return... getting blood flow from legs back to heart. for some I think they may get liver exercises too.

[Guest guest]

Hi Mandi

 

we got leg exercises with our second set.. however I stupidly opted out of them as each time tash did legs she had more seizures... On reflection it was the benefit of the additional blood flow which was clearing her brain.. and I wish I had done the full prescription.

 

First Set gets diaphragm and lungs .. improves blood flow capacity and the actual functioning of both of them, second moves onto thyroid and venus return... getting blood flow from legs back to heart. for some I think they may get liver exercises too.

 

The actual exercises given to patient from set two onwards is very child specific.. so could not be certain of what Sam will be prescribed.

 

Tracey

On Sun, Oct 3, 2010 at 11:22 AM, <Mum231ASD@...> wrote:

 

Do folks get the leg exercises at different points relating to their progress? and Norman were at Advance when I went for my first set and I saw them learning some of the leg exerices, seemed to me that Sam would tolerate this bit much better, from me at least, than working on ribcage

 

TIA

 

Mandi x

 

In a message dated 03/10/2010 09:12:32 GMT Daylight Time, thelifechangers@... writes:

This has really improved since August when we added all the leg exercises... initially there were more seizures with legs added, however I think that it was improved circulation clearing toxins from her brain... a reason that I think she is so much more alert now.

[Guest guest]

Hi Mandi

 

we got leg exercises with our second set.. however I stupidly opted out of them as each time tash did legs she had more seizures... On reflection it was the benefit of the additional blood flow which was clearing her brain.. and I wish I had done the full prescription.

 

First Set gets diaphragm and lungs .. improves blood flow capacity and the actual functioning of both of them, second moves onto thyroid and venus return... getting blood flow from legs back to heart. for some I think they may get liver exercises too.

 

The actual exercises given to patient from set two onwards is very child specific.. so could not be certain of what Sam will be prescribed.

 

Tracey

On Sun, Oct 3, 2010 at 11:22 AM, <Mum231ASD@...> wrote:

 

Do folks get the leg exercises at different points relating to their progress? and Norman were at Advance when I went for my first set and I saw them learning some of the leg exerices, seemed to me that Sam would tolerate this bit much better, from me at least, than working on ribcage

 

TIA

 

Mandi x

 

In a message dated 03/10/2010 09:12:32 GMT Daylight Time, thelifechangers@... writes:

This has really improved since August when we added all the leg exercises... initially there were more seizures with legs added, however I think that it was improved circulation clearing toxins from her brain... a reason that I think she is so much more alert now.

[Guest guest]

Hi Natasa,

Thanks for your reply, I very much appreciate your comment. Been

really struggling with this but the more I think about it, have decided

I won't mention the KiB500, probably best not to cause ripples, more

than likely to spread!!

In terms of other effects, we had a few days on the first 3 doses with

better sleep for about a week and then went back to usual pattern of not

sleeping.

On the most recent doses he's had, we didn't get this effect, but mind

as we are having some troublesome unstable patches of increased

seizures, it's always difficult to get a clear picture of effects in

terms of behaviour, as the effects of the seizures really cloud anything

else that may be going on. I am certain though that the increased

seizures is not an effect from KiB500 because Norman is usually very

unstable around this time of year (Sept thru to Nov/Dec) never really

understand why except maybe change in light conditions, perhaps

something to do with Vit D levels.

I guess this might be a good reason to go away somewhere warm and sunny,

come Sept next year ;-))

cheers,

emily

> >> >

> >> >

> >> > Ok, so i've been convinced enough by what i've read and the good

> > reports i've heard about this product, to go ahead and give it a

try..

> >> >

> >> > did other's buy from benchmark health - £54?

> >> >

> >> > i know its expensive but is it best to do this as a course? a few

> > doses together? weekly? monthly?

> >> >

> >> > thanks

> >> >

> >> > .

> >> >

> >

> >

> >

> >

> >

>

[Guest guest]

Hi Natasa,

Thanks for your reply, I very much appreciate your comment. Been

really struggling with this but the more I think about it, have decided

I won't mention the KiB500, probably best not to cause ripples, more

than likely to spread!!

In terms of other effects, we had a few days on the first 3 doses with

better sleep for about a week and then went back to usual pattern of not

sleeping.

On the most recent doses he's had, we didn't get this effect, but mind

as we are having some troublesome unstable patches of increased

seizures, it's always difficult to get a clear picture of effects in

terms of behaviour, as the effects of the seizures really cloud anything

else that may be going on. I am certain though that the increased

seizures is not an effect from KiB500 because Norman is usually very

unstable around this time of year (Sept thru to Nov/Dec) never really

understand why except maybe change in light conditions, perhaps

something to do with Vit D levels.

I guess this might be a good reason to go away somewhere warm and sunny,

come Sept next year ;-))

cheers,

emily

> >> >

> >> >

> >> > Ok, so i've been convinced enough by what i've read and the good

> > reports i've heard about this product, to go ahead and give it a

try..

> >> >

> >> > did other's buy from benchmark health - £54?

> >> >

> >> > i know its expensive but is it best to do this as a course? a few

> > doses together? weekly? monthly?

> >> >

> >> > thanks

> >> >

> >> > .

> >> >

> >

> >

> >

> >

> >

>

[Guest guest]

Interesting with the liver.  Every time Tash went to osteo and they worked in her liver area she used to squirm because she is so ticklish.. Since doing TST this has stopped.. I think it is because she has detoxed such a lot that this is not a hyper senstive area any more..

 

Re your problems - have you been doing the basic exercises on yourself? or even the second..?  We are on set 5 or 6 now and I have become so much more flexible again ( gymnast in youth!!!) and noticeable my right thumb which used to lock is now nicely mobile again..  So I am wondering as your own circulation improves if you might be able to notice improvements too.

 

 

Best Wishes

 

 

 

Tracey

On Sun, Oct 3, 2010 at 1:39 PM, <Mum231ASD@...> wrote:

 

Yep that's what I was taught and I have mostly forgotten given Sam's aggressive behaviour in hols, is working on first set which they taught her at same time I did second. Hoping I can arrange for her to go up for the day for a refresh on seconds and then in New Year for 3rd set and we'll both be working the same then and my trigger thumb and carpal tunnel should be sorted and ready for proper action, at present I have numbness of hand and up over wrist after 5 mins set

 

He giggles all the way through Liver ones for me but is doing them on him without issues

 

Mandi x

 

In a message dated 03/10/2010 13:34:11 GMT Daylight Time, thelifechangers@... writes:

second moves onto thyroid and venus return... getting blood flow from legs back to heart. for some I think they may get liver exercises too.

[Guest guest]

Interesting with the liver.  Every time Tash went to osteo and they worked in her liver area she used to squirm because she is so ticklish.. Since doing TST this has stopped.. I think it is because she has detoxed such a lot that this is not a hyper senstive area any more..

 

Re your problems - have you been doing the basic exercises on yourself? or even the second..?  We are on set 5 or 6 now and I have become so much more flexible again ( gymnast in youth!!!) and noticeable my right thumb which used to lock is now nicely mobile again..  So I am wondering as your own circulation improves if you might be able to notice improvements too.

 

 

Best Wishes

 

 

 

Tracey

On Sun, Oct 3, 2010 at 1:39 PM, <Mum231ASD@...> wrote:

 

Yep that's what I was taught and I have mostly forgotten given Sam's aggressive behaviour in hols, is working on first set which they taught her at same time I did second. Hoping I can arrange for her to go up for the day for a refresh on seconds and then in New Year for 3rd set and we'll both be working the same then and my trigger thumb and carpal tunnel should be sorted and ready for proper action, at present I have numbness of hand and up over wrist after 5 mins set

 

He giggles all the way through Liver ones for me but is doing them on him without issues

 

Mandi x

 

In a message dated 03/10/2010 13:34:11 GMT Daylight Time, thelifechangers@... writes:

second moves onto thyroid and venus return... getting blood flow from legs back to heart. for some I think they may get liver exercises too.

[Guest guest]

Hi Tracey,

Yes, I'm really pleased being clear of the UTI's as it was not only

affecting Norman but it was really getting me down too. In fact I

can almost take a breather now (were it not for these dreaded seizures

(()

Thank you for the advice & information, it makes sense. As you say I

don't think I'd want to treat with medication. What I want is to find

out the reason why he gets the UTI's continuously, also the type of

bacteria causing them is not the " usual " one (it is patients with

catheters, stones or immune problems that get this). So if there is

nothing unusual found on the scans and xray then I'd like to get his

immunoglobulin levels checked.

As it stands now the paediatrician only turns a blind eye to the problem

and for a whole year, all the urine tests we've done she excuses the

results away, saying it's contaminated urine each time. How can

leukocytes and blood show up if it was just contaminated urine?

About the increased seizures (7 tonic clonics some days and other days

lots of clusters), this is Norman's usual pattern during Sept-Dec, he

gets very unstable, so I'd not put it down to TST. We've had some very

positive gains from TST but they are tiny and this is what I'd expect

with the extent of N's difficulties coupled with age. Though changes

are tiny, it does make me realise that there is a lot TST is addressing

at a deeper level which I can't see (just wish I could dedicate enough

time to do them).

To share the gains we have from TST:- N used to yawn ALL day long and

everyone used to comment about it - this has stopped. Also when he

coughed before he would always yawn along with it - now he is able to

just cough without any yawning to follow. Before his arms were clamped

tight to his body and he had difficulty raising arms, it was very hard

to dress him or put deodorant - he is now able to raise his arms up and

can stretch well after sleep. He had very prominent veins in the

temple area - they are gone now and the very noticeable pulsing is gone

too. His left eye used to go red a lot - since we started TST it has

cleared and does not happen anymore. His chest looks different but

still has a very long way to go but the thing that he can stretch both

arms up in the morning when he yawns shows the change with the

diaphragm!

The remarkable thing is prior to our last visit to Advance Norman was

struggling to move his legs when trying to walk, he'd move his upper

body forward but the legs would get stuck behind and we would have to

hold him up and carry him. I was really worried thought he was losing

his walking skill or a side effect of high P5P doses, but then

gave us the leg exercises and exercises to work crossing the midline

and very soon after the problem with his legs resolved, I think what she

said was that this was a problem with his left and right side

communicating and there was an upper and lower body breakdown.

We've not had any reduction with seizures or any improvement with sleep

but again I think I need to put in more work and more consistency. I'm

still struggling to do the excercises, the legs are dificult as does not

like stretching them out and when you want them bent at the knees he

doesn't want this either - just can't win but I WILL, as I did with the

chest excercises which he was resistant to initially.

Brilliant to hear how well Tash is doing - 8 wks without major events is

amazing, well done to you both :-))).

emily xx

> > >

> > >

> > > Ok, so i've been convinced enough by what i've read and the good

> > reports i've heard about this product, to go ahead and give it a

try..

> > >

> > > did other's buy from benchmark health - £54?

> > >

> > > i know its expensive but is it best to do this as a course? a few

> > doses together? weekly? monthly?

> > >

> > > thanks

> > >

> > > .

> > >

> >

> >

> >

> >

> >

> >

> >

> >

>

[Guest guest]

Hi Tracey,

We use Bicarb too, has been the best to control the BO in a teenage boy!

Can I ask though have you noticed any bleaching effect with it? Normans

armpit hairs have turned ginger ..... v. strange?

Afraid to say we still use the disposables provided by NHS. Recently

found out I can also get dry wipes (as those used in hospitals) provided

as well!! It's been 16 yrs and didn't know I could get them, it really

is pot luck on the NHS. I'd been using the baby wipes on the market

which are really full of chemicals ...oops!! I must try and find some

nappy liner to use, if you have any ideas where to source them from, I'd

be grateful.

Lovely to hear how Tash is doing, with the boxing is this something that

suggested for her? Also thanks for all the encouragement...

emily xx

> > > > >

> > > > >

> > > > > Ok, so i've been convinced enough by what i've read and the

good

> > > > reports i've heard about this product, to go ahead and give it a

> > try..

> > > > >

> > > > > did other's buy from benchmark health - £54?

> > > > >

> > > > > i know its expensive but is it best to do this as a course? a

few

> > > > doses together? weekly? monthly?

> > > > >

> > > > > thanks

> > > > >

> > > > > .

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

Hi Tracey,

We use Bicarb too, has been the best to control the BO in a teenage boy!

Can I ask though have you noticed any bleaching effect with it? Normans

armpit hairs have turned ginger ..... v. strange?

Afraid to say we still use the disposables provided by NHS. Recently

found out I can also get dry wipes (as those used in hospitals) provided

as well!! It's been 16 yrs and didn't know I could get them, it really

is pot luck on the NHS. I'd been using the baby wipes on the market

which are really full of chemicals ...oops!! I must try and find some

nappy liner to use, if you have any ideas where to source them from, I'd

be grateful.

Lovely to hear how Tash is doing, with the boxing is this something that

suggested for her? Also thanks for all the encouragement...

emily xx

> > > > >

> > > > >

> > > > > Ok, so i've been convinced enough by what i've read and the

good

> > > > reports i've heard about this product, to go ahead and give it a

> > try..

> > > > >

> > > > > did other's buy from benchmark health - £54?

> > > > >

> > > > > i know its expensive but is it best to do this as a course? a

few

> > > > doses together? weekly? monthly?

> > > > >

> > > > > thanks

> > > > >

> > > > > .

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

Hi

 

We have the waitrose organic baby wipes in the house and they are low toxic load and have been fine with her.  I have spoken to the person at this company http://www.thecottonnappycompany.co.uk  They do washable wipes which can be machine washed at 60% and I think probably safely bleached with ecover bleach, and they also do fleece and paper nappy liners, which would put a barrier between Norman and the chemicals in the nappy. I think that you have mentioned before how warm Norman gets. if he is also wearing plastic nappies, his manly bits are not getting good clean air to then and this can increase likelihood of infections.. warm, damp, acidic environment. I think that there are some places that do cotton reusable incontinence pants which do not have PVC or plastic in them which may help too.

 

I have not noticed any bleaching effect with the bicarb.. definately the best deo on this planet !! I wonder if he is detoxing through his sweat and the combination of the bicarb and some heavy metals or toxins creates this unique colouring.

 

Yes suggested the boxing. I did it for a few weeks and really should do it again as I noticed a redefinition of my waist within a week of doing the boxing regularly..

 

Best Wishes

 

 

Tracey

On Wed, Oct 6, 2010 at 1:44 AM, emilyscorer <emilyscorer@...> wrote:

 

Hi Tracey,We use Bicarb too, has been the best to control the BO in a teenage boy!Can I ask though have you noticed any bleaching effect with it? Normansarmpit hairs have turned ginger ..... v. strange?

Afraid to say we still use the disposables provided by NHS. Recentlyfound out I can also get dry wipes (as those used in hospitals) providedas well!! It's been 16 yrs and didn't know I could get them, it really

is pot luck on the NHS. I'd been using the baby wipes on the marketwhich are really full of chemicals ...oops!! I must try and find somenappy liner to use, if you have any ideas where to source them from, I'd

be grateful.Lovely to hear how Tash is doing, with the boxing is this something that suggested for her? Also thanks for all the encouragement... emily xx

> > > > >> > > > >> > > > > Ok, so i've been convinced enough by what i've read and thegood> > > > reports i've heard about this product, to go ahead and give it a

> > try..> > > > >> > > > > did other's buy from benchmark health - £54?> > > > >> > > > > i know its expensive but is it best to do this as a course? a

few> > > > doses together? weekly? monthly?> > > > >> > > > > thanks> > > > >> > > > > .> > > > >> > > >

> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > >> >> >> >>

[Guest guest]

Thanks for this Tracey, I'll give them a call tomorrow.

emily

Autism Treatment , Tracey Clewer

<thelifechangers@...> wrote:

>

> Hi

>

> We have the waitrose organic baby wipes in the house and they are low

toxic

> load and have been fine with her. I have spoken to the person at this

> company http://www.thecottonnappycompany.co.uk They do washable wipes

which

> can be machine washed at 60% and I think probably safely bleached with

> ecover bleach, and they also do fleece and paper nappy liners, which

would

> put a barrier between Norman and the chemicals in the nappy. I think

that

> you have mentioned before how warm Norman gets. if he is also wearing

> plastic nappies, his manly bits are not getting good clean air to then

and

> this can increase likelihood of infections.. warm, damp, acidic

environment.

> I think that there are some places that do cotton reusable

incontinence

> pants which do not have PVC or plastic in them which may help too.

>

> I have not noticed any bleaching effect with the bicarb.. definately

the

> best deo on this planet !! I wonder if he is detoxing through his

sweat and

> the combination of the bicarb and some heavy metals or toxins creates

this

> unique colouring.

>

> Yes suggested the boxing. I did it for a few weeks and really

should

> do it again as I noticed a redefinition of my waist within a week of

doing

> the boxing regularly..

>

> Best Wishes

>

>

> Tracey

>

> On Wed, Oct 6, 2010 at 1:44 AM, emilyscorer emilyscorer@... wrote:

>

> >

> >

> >

> > Hi Tracey,

> >

> > We use Bicarb too, has been the best to control the BO in a teenage

boy!

> > Can I ask though have you noticed any bleaching effect with it?

Normans

> > armpit hairs have turned ginger ..... v. strange?

> >

> > Afraid to say we still use the disposables provided by NHS. Recently

> > found out I can also get dry wipes (as those used in hospitals)

provided

> > as well!! It's been 16 yrs and didn't know I could get them, it

really

> > is pot luck on the NHS. I'd been using the baby wipes on the market

> > which are really full of chemicals ...oops!! I must try and find

some

> > nappy liner to use, if you have any ideas where to source them from,

I'd

> > be grateful.

> >

> > Lovely to hear how Tash is doing, with the boxing is this something

that

> > suggested for her? Also thanks for all the encouragement...

> >

> >

> > emily xx

> >

> >

> > > > > > >

> > > > > > >

> > > > > > > Ok, so i've been convinced enough by what i've read and

the

> > good

> > > > > > reports i've heard about this product, to go ahead and give

it a

> > > > try..

> > > > > > >

> > > > > > > did other's buy from benchmark health - £54?

> > > > > > >

> > > > > > > i know its expensive but is it best to do this as a

course? a

> > few

> > > > > > doses together? weekly? monthly?

> > > > > > >

> > > > > > > thanks

> > > > > > >

> > > > > > > .

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>