Help with OCD/PANDAS

[Guest guest]

Hi all,

I'm having a really bad time with Callum at the moment - the last three days

have seem him beside himself with obsessive thoughts and anxiety. It's ruined

our weekend with behaviour he has been compelled to do which involvesr repeating

the same thing over and over again to DH.

He has been up all night wanting to do this with DH, and I've had to stand vigil

to try and let him get to sleep so he can work today - I'm exhausted.

Anyway, even though he has always had OCD tendencies this is really outtrageous

behaviour for him and I am really worried. There has been stresses at home

which I thought might impact on this, but I am now wondering if it could be

PANDAS.

He's vomited twice over the last couple of days, been really lethargic and above

all complaining of a sore throat.

Can anybody throw a bit more light on PANDAS, and give me some advice - it came

to me in the night so not had much chance to look up - but a course of

antibiotics looks like it could be our first course of action?

Thanks, and look forward to some replies, and maybe sleep ......:-(

Elaine

[Guest guest]

became extrememly obsessive/OCD and we found LDM100 absolutely brilliant addressing this issue, then we put him on Inositol which is often used for OCD and he now is not going through these non stop obsessions.

HTH

Vicky In a message dated 02/08/2010 13:26:57 GMT Daylight Time, simondavis@... writes:

Hi Tracey,

Thanks for this - TST is on my list of things to do.

All the best,

Elaine

On 2 Aug 2010, at 10:25, Tracey Clewer wrote:

Hi Elaine

Not a PANDAS thought.. however just an observation at this time of the year

Our kids go through big growth periods over the summer.. If they do not sleep properly ( proper REM sleep) and they are growing and going through other developmental changes, they can end up with Hyper behaviour... this is worstened when the do not have properly developed diaphramatic breathing which the vast majority of ou r kids seem to have as an underlying problem.

Many families are having huge gains with the TST therapy developed by linda Scotson.. Until our babes can maintain oxygen levels on their own, they will have very wakeful sleep as they are often woken when the body senses oxygen levels are too low.

Sleep improvement is one of the most common early gains with TST.. as many on the group may be willing to share.

My sense is that their is a structural issue here... If he is complaining of a sore throat.. the best remedy we have found is putting a tiny pinch of bicarb of soda under the tongue every couple of hours.. it alkalises the blood and in an alkaline medium bacteria and viruses cannot survive.

Wishing you a few hours of quality sleep soon

Tracey

On Mon, Aug 2, 2010 at 6:32 A M, Simon <simondavismoose (DOT) co.uk> wrote:

Hi all,I'm having a really bad time with Callum at the moment - the last three days have seem him beside himself with obsessive thoughts and anxiety. It's ruined our weekend with behaviour he has been compelled to do which involvesr repeating the same thing over and over again to DH.He has been up all night wanting to do this with DH, and I've had to stand vigil to try and let him get to sleep so he can work today - I'm exhausted.Anyway, even though he has always had OCD tendencies this is really outtrageous behaviour fo r him and I am really worried. There has been stresses at home which I thought might impact on this, but I am now wondering if it could be PANDAS.He's vomited twice over the last couple of days, been really lethargic and above all complaining of a sore throat.Can anybody throw a bit more light on PANDAS, and give me some advice - it came to me in the night so not had much chance to look up - but a course of antibiotics looks like it could be our first course of action?Thanks, and look forward to some replies, and maybe sleep ......:-(Elaine

checked for viruses and spam by CanIt.http://www.canit4.3d.net.uk/

[Guest guest]

Hi Elaine

 

Not a PANDAS thought.. however just an observation at this time of the year

 

Our kids go through big growth periods over the summer.. If they do not sleep properly ( proper REM sleep) and they are growing and going through other developmental changes, they can end up with Hyper behaviour... this is worstened when the do not have properly developed diaphramatic breathing which the vast majority of our kids seem to have as an underlying problem.

 

Many families are having huge gains with the TST therapy developed by linda Scotson.. Until our babes can maintain oxygen levels on their own, they will have very wakeful sleep as they are often woken when the body senses oxygen levels are too low.

 

Sleep improvement is one of the most common early gains with TST.. as many on the group may be willing to share.

 

My sense is that their is a structural issue here... If he is complaining of a sore throat.. the best remedy we have found is putting a tiny pinch of bicarb of soda under the tongue every couple of hours.. it alkalises the blood and in an alkaline medium bacteria and viruses cannot survive.

 

 

Wishing you a few hours of quality sleep soon

 

 

Tracey

On Mon, Aug 2, 2010 at 6:32 AM, Simon <simondavis@...> wrote:

 

Hi all,I'm having a really bad time with Callum at the moment - the last three days have seem him beside himself with obsessive thoughts and anxiety. It's ruined our weekend with behaviour he has been compelled to do which involvesr repeating the same thing over and over again to DH.

He has been up all night wanting to do this with DH, and I've had to stand vigil to try and let him get to sleep so he can work today - I'm exhausted.Anyway, even though he has always had OCD tendencies this is really outtrageous behaviour for him and I am really worried. There has been stresses at home which I thought might impact on this, but I am now wondering if it could be PANDAS.

He's vomited twice over the last couple of days, been really lethargic and above all complaining of a sore throat.Can anybody throw a bit more light on PANDAS, and give me some advice - it came to me in the night so not had much chance to look up - but a course of antibiotics looks like it could be our first course of action?

Thanks, and look forward to some replies, and maybe sleep ......:-(Elaine

[Guest guest]

Hi Tracey,Thanks for this - TST is on my list of things to do.All the best,Elaine On 2 Aug 2010, at 10:25, Tracey Clewer wrote:Hi Elaine Not a PANDAS thought.. however just an observation at this time of the year Our kids go through big growth periods over the summer.. If they do not sleep properly ( proper REM sleep) and they are growing and going through other developmental changes, they can end up with Hyper behaviour... this is worstened when the do not have properly developed diaphramatic breathing which the vast majority of our kids seem to have as an underlying problem. Many families are having huge gains with the TST therapy developed by linda Scotson.. Until our babes can maintain oxygen levels on their own, they will have very wakeful sleep as they are often woken when the body senses oxygen levels are too low. Sleep improvement is one of the most common early gains with TST.. as many on the group may be willing to share. My sense is that their is a structural issue here... If he is complaining of a sore throat.. the best remedy we have found is putting a tiny pinch of bicarb of soda under the tongue every couple of hours.. it alkalises the blood and in an alkaline medium bacteria and viruses cannot survive. Wishing you a few hours of quality sleep soon TraceyOn Mon, Aug 2, 2010 at 6:32 AM, Simon <simondavis@...> wrote: Hi all,I'm having a really bad time with Callum at the moment - the last three days have seem him beside himself with obsessive thoughts and anxiety. It's ruined our weekend with behaviour he has been compelled to do which involvesr repeating the same thing over and over again to DH.He has been up all night wanting to do this with DH, and I've had to stand vigil to try and let him get to sleep so he can work today - I'm exhausted.Anyway, even though he has always had OCD tendencies this is really outtrageous behaviour for him and I am really worried. There has been stresses at home which I thought might impact on this, but I am now wondering if it could be PANDAS.He's vomited twice over the last couple of days, been really lethargic and above all complaining of a sore throat.Can anybody throw a bit more light on PANDAS, and give me some advice - it came to me in the night so not had much chance to look up - but a course of antibiotics looks like it could be our first course of action?Thanks, and look forward to some replies, and maybe sleep ......:-(Elaine checked for viruses and spam by CanIt.http://www.canit4.3d.net.uk/

[Guest guest]

cheers Vicky - I have these on my list of things to try..ElaineOn 2 Aug 2010, at 13:47, MaddiganV@... wrote: became extrememly obsessive/OCD and we found LDM100 absolutely brilliant addressing this issue, then we put him on Inositol which is often used for OCD and he now is not going through these non stop obsessions.HTHVicky In a message dated 02/08/2010 13:26:57 GMT Daylight Time, simondavis@... writes:Hi Tracey,Thanks for this - TST is on my list of things to do.All the best,Elaine On 2 Aug 2010, at 10:25, Tracey Clewer wrote:Hi Elaine Not a PANDAS thought.. however just an observation at this time of the year Our kids go through big growth periods over the summer.. If they do not sleep properly ( proper REM sleep) and they are growing and going through other developmental changes, they can end up with Hyper behaviour... this is worstened when the do not have properly developed diaphramatic breathing which the vast majority of ou r kids seem to have as an underlying problem. Many families are having huge gains with the TST therapy developed by linda Scotson.. Until our babes can maintain oxygen levels on their own, they will have very wakeful sleep as they are often woken when the body senses oxygen levels are too low. Sleep improvement is one of the most common early gains with TST.. as many on the group may be willing to share. My sense is that their is a structural issue here... If he is complaining of a sore throat.. the best remedy we have found is putting a tiny pinch of bicarb of soda under the tongue every couple of hours.. it alkalises the blood and in an alkaline medium bacteria and viruses cannot survive. Wishing you a few hours of quality sleep soon TraceyOn Mon, Aug 2, 2010 at 6:32 A M, Simon <simondavismoose (DOT) co.uk> wrote: Hi all,I'm having a really bad time with Callum at the moment - the last three days have seem him beside himself with obsessive thoughts and anxiety. It's ruined our weekend with behaviour he has been compelled to do which involvesr repeating the same thing over and over again to DH.He has been up all night wanting to do this with DH, and I've had to stand vigil to try and let him get to sleep so he can work today - I'm exhausted.Anyway, even though he has always had OCD tendencies this is really outtrageous behaviour fo r him and I am really worried. There has been stresses at home which I thought might impact on this, but I am now wondering if it could be PANDAS.He's vomited twice over the last couple of days, been really lethargic and above all complaining of a sore throat.Can anybody throw a bit more light on PANDAS, and give me some advice - it came to me in the night so not had much chance to look up - but a course of antibiotics looks like it could be our first course of action?Thanks, and look forward to some replies, and maybe sleep ......:-(Elaine checked for viruses and spam by CanIt.http://www.canit4.3d.net.uk/ checked for viruses and spam by CanIt.http://www.canit4.3d.net.uk/

[Guest guest]

There are a number of conditions linked to ASD that result in 'craniofacial dysmorphogenesis' resulting in snoring. Some of these can be screened for genetically and this may help to narrow down the options for you.Let me know if you need further info on this.Ken

Hi is

Sleep deprivation, or poor quality sleep really affects mental states. You have previously mentioned that your jaw is small or teeth not straight I think.. and if this has affected your airway, then is may be that the disturbed sleep is simply your body waking you to get more oxygen. It is common in adults as well as children.

i have an overbite of the top jaw that's quite large. ive just gone back on 5htp 150mg and considering going dairy free again.Does that mean i could have sleep apnea? im a big snorer.

Poor breathing influences negatively the thyroid and this in turn can impact on other hormonal levels in the body.. so it may indirectly affect hormones such as growth hormones.

Now this is making sense and encouraging me to sort out my sleeping patterns once and for all.

Yes Bicarb will work well with colds too and any other viral/ bacterial infection

Whats the best cure for erm ............ thrush?

Best Wishes

Thank you. -- isPS i fully understand this isnt a diagnosis just an idea of what to do next.

[Guest guest]

Sam hardly snores now since TST, it was quite alarming before

Mandi x

In a message dated 04/08/2010 16:53:01 GMT Daylight Time, drken.aitken@... writes:

There are a number of conditions linked to ASD that result in 'craniofacial dysmorphogenesis' resulting in snoring.

[Guest guest]

I agree that various things can help to reduce snoring when it occurs by things like improving lung capacity, breathing and better positioning to keep the airway open.The point I was making is that there are a range of conditions that are more commonly associated with ASD (like Goldenhars syndrome and Sotos syndrome) where there are structural differences that make issues such as snoring more likely.Ken

Sam hardly snores now since TST, it was quite alarming before

Mandi x

In a message dated 04/08/2010 16:53:01 GMT Daylight Time, drken.aitken@ btinternet. com writes:

There are a number of conditions linked to ASD that result in 'craniofacial dysmorphogenesis' resulting in snoring.