Stem cells

[Guest guest]

In a message dated 3/8/99 4:50:36 PM Pacific Standard Time, sasc@...

writes:

<< The only way it will get

to the forefront is if more and more people hear about it and demand it.

>>

Dang and I wanted to be your room mate in the hospital when we went and

got our brain stems transplanted. Now I shall have to be happy with the

antibiotics....LOL

[Guest guest]

In a message dated 3/8/99 11:11:17 PM Pacific Standard Time,

denisej@... writes:

<< Brain stem transplants are

when they remove your brain so you can believe in stuff like methotrexate.

j >>

Yes but when you wake up after the operation are you a drunk Texan named Buba

who drove to fast and didn't know Texas' body parts deal or are you? LOL

[Guest guest]

Money, what's that Jerry? LOL Genny

[Guest guest]

I`ve heard of money but I`m not real sure I know what it looks like....

Money, what's that Jerry? LOL Genny

[Guest guest]

A friend of mine in A.A. passed this on to me....I thought some of you

may be interested.

NEW YORK--(BW HealthWire)---- Nov. 1, 2000----- Scientists from

StemCells, Inc., in an article published today in Nature Medicine

disclosed data demonstrating the production of mature liver cells from

rigorously purified hematopoietic ( blood ))

stem cells in mice. Dr. Lagasse, principal author of the study and

Director of Liver Stem Cell Research at StemCells commented that " this

study provides the first demonstration that liver function can be

RESTORED from bone marrow cells in mice with a virulent form of liver

failure and that highly purified blood stem cells can efficiently give

rise to normal liver cells. "

bone marrow is known to contain many cell types including both

mesenchymal (bone and tissue forming) and hematopoietic (blood forming)

stem cells. Different subsets of bone marrow cels were purified and each

subst was tested by transplantation into mice. Only the subsets

containing blood stem cells wer able to produce HEPATOCYTES.

Furthermore, normal liver cells could be produced by as FEW as 50 of

these highly purified hematopoietic stem cells. " These remarkable

results indicate that the hemopoietic stem cells are the only cells in

the bone marrow responsible for the RESTORATION of live functions, "

added Dr. Lagasse.

The results further scientific understanding of stem cells and how they

might be used in the treatment and/or CURE of a variety of diseases.

They offer the hope of future treatments for diseases of the liver (

such as CIRRHOSIS or HEPATITIS damage or GENETIC metabolic disorders)

using blood stem cells, which are relatively easy to obtain compared to

liver stem cells. If such cells came from the patients` own bone marrow,

problems----- such as tissue REJECTION and the NECESSITY for

IMMUNOSUPPRESSION, which are currently encountered with organ

transplants, could be AVOIDED. Furthermore , because the blood stem

cells appear more versatile than expected,

the experiments reprted by Dr. Lagasse and colleagues suggests that the

hematopoietic stem cell may be more multipotent than previously thought.

The caps are mine... My oncologist has told me they are already using

stem cell harvesting as treatment and possible cure in my other disease

...... multiple myeloma (bone marrow cancer) Cheer up every one and hang

in there--help may be on the way. Think positively and dn`t sweat the

small stuff. By the way this company`s stock (Nasdaq: STEM)

may be worth investing in.....that is if any of us had any money.

love and serenity jerry

[Guest guest]

Thank you for your response and certainly your expertise. This is my

understanding of the pressure and protocol issues based on what I've learned

from Dr. Harch.

I had hoped I made clear that there are certainly different pressures for

different conditions. Hopefully more recent posts make this clear, but I'll

send this one just in case.

The 6ATM protocol for those who are " dead " has been used successfully,

clinically verified in animal models and reported. Van Meter's pig study

was 20 minutes post cardiac arrest. That is a significant period of time,

and certainly far longer than the 4 minutes of conventional wisdom. That

this was an " accidental " protocol originally applied to a dead diver in a

Mississippi river diving accident is one of those serendipitous wonders of

medical discovery, I believe close to being on par with Pasteur's chicken

vaccination accident. Pasteur's genius, of course, was in recognizing what

he'd done. The modern medical establishment has to make the same leap. The

Diver is now alive, well, and making custom cabinets in Louisiana (no wonder

that he chose not to dive any more. :-))

I am going to be including this protocol in the Emergency Preparedness

Hyperbaric Oxygen plan I'm preparing for Health and Human Services as one of

the protocols that could be used in a natural disaster when they're bringing

in all of these dead and dying public officials after a major terrorist

strike. It is most remarkable, and we should be using it in emergency rooms

around the world in appropriate cases.

For acute cases, the 2.4 ATM 90-minute protocols are standard for current

UHMS indications. This does deal with reperfusion injury, in the brain or

extremities. Thus in the surgical protocol (3 treatments is the theoretical

number, I believe, 1 within 23 hours of surgery, and two shortly after)

prevents the reperfusion reaction and gets to the injury from surgery and

hypoxic damage to the body, without toxically overloading the brain. It

also clears the anesthetics from the body. A friend was just reminding me

of the problem she'd had after surgery just having normal body functions

work again. She was told that the drugs from the surgery still in her body

were causing the problems.

It has to be remembered that the brain is sensitive to excess oxygen. Thus,

it is in the chronic cases where the 1.5 atmospheres for 1 hour treatments

rather than the usual 2.4 for 90 minutes as in acute cases, are appropriate.

Even there, exceeding the 40 treatment protocol for the first round of

treatments is problematic because of the oxygen toxicity problems. There

are some conditions, like MS, were 1.25 have been used successfully.

Hopefully this clarifies the pressure protocol issue, and certainly the old

model that the brain cells don't regenerate has been thrown out the window,

though many are still stuck on what they learned in school. Bill

----------

From: Philip [sMTP:p.b.james@...]

Sent: Thursday, January 24, 2002 7:56 AM

medicaid

Subject: [ ] Stem cells

Dr Bill Duncan wrote

This is a major breakthrough in the stem cell arena that I've been

hearing about and has now been confirmed. This will lead to a way

to add stem cells to an area. It is clear from discussions with a

PhD brain physiologist that HBOT is actually stimulating stem cells

in the brain to begin their functioning. This is why 1.3 to 2.0

works, but over 2.0 doesn't, and why 1.5 atmospheres seems to work

the most effectively, in my opinion.

Dear Dr Duncan

The prevailing opinion in neurology has been that the brain

is formed in the first few years of life and has no regenerative

capability. Hence the constant reiteration that recovery from, for

example from head injury or stroke is reallocation of function other

areas of the brain usually termed plasticity. I have felt for many

years that this is not the explanation. In 1962 a famous racing

driver - Stirling Moss had a massive accident. It was thought first

that he would die, then he would survive but be a vegetable or be

unable to walk. He is now over 70 and is still racing! Blood flow

in the CNS is increased by activity - even by passive movement and

so the effort made by individuals is critical to recovery by

improving oxygen availability. It appears likely that stem cells are

regularly repairing damage in the body provided the cellular

environment and particularly the local oxygen tension is adequate.

Rather than 'stimulating stem cells in the brain to begin

functioning' high dosages of oxygen may simply be creating normal

conditions.

Reports of the discovery of stem cells in

the adult brain of other mammals appeared more than five years ago.

A

NEJM paper reported this month finding stem cells in female hearts

transplanted into male recipients. This indicates that recovery

from

heart attacks probably involves the formation of new muscle cells.

The same investigation will not be possible in the brain for two

reasons. Firstly transplantation of the brain is not possible and

secondly ...........

As to the inspired partial pressure required, it is not correct

to state that 2 atm abs does not work. A pressure of 6 atm abs may

restore consciouness in the acute phase of cerebral edema. It must

be

remembered that the final cellular oxygen tension/concentration

depends on the resistances to oxygen transport from the lung to the

mitochondria. There are very large variations caused by

ventilation/perfusion mismatch in the lung and even larger changes

caused by variations in tissue perfusion and watre content.

Breathing on a well fitting mask at 2 atm abs the arterial oxygen

tension has been found to range from 850 to 1140 Torr (mm Hg) which

is 1.13 to 1.52 atm abs. Some of this will of course be due to mask

leakage. However, atmospheric pressure (the 1 added to the gauge

pressure) varies by more than a tenth of an atmosphere at sea level

here in Scotland and more in other areas of the World. That is from

693 to 791 Torr (mm Hg) or 0.925 to 1.054 atm abs.

Life is not simple.

Best wishes

Philip

Wolfson Hyperbaric Medicine Unit

University of Dundee

Ninewells Hospital and Medical School

Dundee DD1 9SY

[Guest guest]

Dear Dr. Duncan, colleague,

It is quite encouraging for our field that you have seen fit to include

HBO in

the emergency guidelines for such events.

Your important posting in response to Dr.' amerits at least four

remarks, in my opinion.

1) Dr.Harch's quite correctly defined concept has been christened oxygen

toxicity, but such name may bring about disgraceful connotations and

negative practical effects,

that could be changed to much more positive ones by calling it oxygen

SENSITIVITY.

Thus, the stress falls on the rare individuals that display it, and/or

the special conditions that produce the condition, and not on the

innocent substance.

2) Post-surgical anaesthesia problems can be ameliorated with HBO, as

you mention: it optimizes

hepatic metabolism, and helps clearing toxic substances as anaesthetics,

organophosphorates, etc.,

and prevents toxic cirrhosis.

But some pre- and post-operative measures are much more cost-effective:

-abstention of pre-anaesthesia consumption of Solanaceae-derived foods

(potatoes, tomatoes,

eggplanta, sweet pepper and chili).

-post-surgical administration of 10 drops of a homeopathic remedy,

-Phosphorus D5 (1x10-5)- awakens a drowsy,

overanesthetized patient in no time. It also lowers hepatic

transaminases, to boot.

(Alternative and complementary medicines are currently being studied by

the NCCAM, after almost a century

of unfortunate contempt.)

3) A window of opportunity of about six hours is open to treat case of

anoxia,

be it cerebral or cardiac, etc.,

but it would be of paramount importance to remember that every minute

counts,

and that evacuation/transport HBO chambers are there to be used before

addmision to an ER.

A precocious use of HBO chambers will bring about a notorious dwindling

of the number and severity of sequelae.

And last, but not least,

4) The short lapses involved in the HBO-elicited modifications of

the natural history of brain trauma,

heart infarct, and other conditions might preclude the stem cell theory

of action, in favour of a modification of matrix conditions, circulatory

factors, oedema resolution, etc.

Thank you for your sensible opinions, and your exceptional and operative

commitment to these matters.

Ignacio Fojgel, M.D.

Buenos Aires, Argentina.

" Duncan, " wrote:

>

> Thank you for your response and certainly your expertise. This is my

> understanding of the pressure and protocol issues based on what I've learned

> from Dr. Harch.

>

> I had hoped I made clear that there are certainly different pressures for

> different conditions. Hopefully more recent posts make this clear, but I'll

> send this one just in case.

>

> The 6ATM protocol for those who are " dead " has been used successfully,

> clinically verified in animal models and reported. Van Meter's pig study

> was 20 minutes post cardiac arrest. That is a significant period of time,

> and certainly far longer than the 4 minutes of conventional wisdom. That

> this was an " accidental " protocol originally applied to a dead diver in a

> Mississippi river diving accident is one of those serendipitous wonders of

> medical discovery, I believe close to being on par with Pasteur's chicken

> vaccination accident. Pasteur's genius, of course, was in recognizing what

> he'd done. The modern medical establishment has to make the same leap. The

> Diver is now alive, well, and making custom cabinets in Louisiana (no wonder

> that he chose not to dive any more. :-))

>

> I am going to be including this protocol in the Emergency Preparedness

> Hyperbaric Oxygen plan I'm preparing for Health and Human Services as one of

> the protocols that could be used in a natural disaster when they're bringing

> in all of these dead and dying public officials after a major terrorist

> strike. It is most remarkable, and we should be using it in emergency rooms

> around the world in appropriate cases.

>

> For acute cases, the 2.4 ATM 90-minute protocols are standard for current

> UHMS indications. This does deal with reperfusion injury, in the brain or

> extremities. Thus in the surgical protocol (3 treatments is the theoretical

> number, I believe, 1 within 23 hours of surgery, and two shortly after)

> prevents the reperfusion reaction and gets to the injury from surgery and

> hypoxic damage to the body, without toxically overloading the brain. It

> also clears the anesthetics from the body. A friend was just reminding me

> of the problem she'd had after surgery just having normal body functions

> work again. She was told that the drugs from the surgery still in her body

> were causing the problems.

>

> It has to be remembered that the brain is sensitive to excess oxygen. Thus,

> it is in the chronic cases where the 1.5 atmospheres for 1 hour treatments

> rather than the usual 2.4 for 90 minutes as in acute cases, are appropriate.

> Even there, exceeding the 40 treatment protocol for the first round of

> treatments is problematic because of the oxygen toxicity problems. There

> are some conditions, like MS, were 1.25 have been used successfully.

>

> Hopefully this clarifies the pressure protocol issue, and certainly the old

> model that the brain cells don't regenerate has been thrown out the window,

> though many are still stuck on what they learned in school. Bill

>

> ----------

> From: Philip [sMTP:p.b.james@...]

> Sent: Thursday, January 24, 2002 7:56 AM

> medicaid

> Subject: [ ] Stem cells

>

> Dr Bill Duncan wrote

> This is a major breakthrough in the stem cell arena that I've been

> hearing about and has now been confirmed. This will lead to a way

> to add stem cells to an area. It is clear from discussions with a

> PhD brain physiologist that HBOT is actually stimulating stem cells

>

> in the brain to begin their functioning. This is why 1.3 to 2.0

> works, but over 2.0 doesn't, and why 1.5 atmospheres seems to work

> the most effectively, in my opinion.

>

> Dear Dr Duncan

> The prevailing opinion in neurology has been that the brain

> is formed in the first few years of life and has no regenerative

> capability. Hence the constant reiteration that recovery from, for

> example from head injury or stroke is reallocation of function other

>

> areas of the brain usually termed plasticity. I have felt for many

> years that this is not the explanation. In 1962 a famous racing

> driver - Stirling Moss had a massive accident. It was thought first

>

> that he would die, then he would survive but be a vegetable or be

> unable to walk. He is now over 70 and is still racing! Blood flow

> in the CNS is increased by activity - even by passive movement and

> so the effort made by individuals is critical to recovery by

> improving oxygen availability. It appears likely that stem cells are

>

> regularly repairing damage in the body provided the cellular

> environment and particularly the local oxygen tension is adequate.

> Rather than 'stimulating stem cells in the brain to begin

> functioning' high dosages of oxygen may simply be creating normal

> conditions.

>

> Reports of the discovery of stem cells in

> the adult brain of other mammals appeared more than five years ago.

> A

> NEJM paper reported this month finding stem cells in female hearts

> transplanted into male recipients. This indicates that recovery

> from

> heart attacks probably involves the formation of new muscle cells.

> The same investigation will not be possible in the brain for two

> reasons. Firstly transplantation of the brain is not possible and

> secondly ...........

>

> As to the inspired partial pressure required, it is not correct

> to state that 2 atm abs does not work. A pressure of 6 atm abs may

> restore consciouness in the acute phase of cerebral edema. It must

> be

> remembered that the final cellular oxygen tension/concentration

> depends on the resistances to oxygen transport from the lung to the

> mitochondria. There are very large variations caused by

> ventilation/perfusion mismatch in the lung and even larger changes

> caused by variations in tissue perfusion and watre content.

> Breathing on a well fitting mask at 2 atm abs the arterial oxygen

> tension has been found to range from 850 to 1140 Torr (mm Hg) which

> is 1.13 to 1.52 atm abs. Some of this will of course be due to mask

> leakage. However, atmospheric pressure (the 1 added to the gauge

> pressure) varies by more than a tenth of an atmosphere at sea level

>

> here in Scotland and more in other areas of the World. That is from

> 693 to 791 Torr (mm Hg) or 0.925 to 1.054 atm abs.

>

> Life is not simple.

> Best wishes

> Philip

>

> Wolfson Hyperbaric Medicine Unit

> University of Dundee

> Ninewells Hospital and Medical School

> Dundee DD1 9SY

>

>

[Guest guest]

Hello, Elaine!

I've asked this question here before and never learned of anyone in our

group who has undergone or discussed with their rheumatologist any sort

of stem cell therapy. Maybe someone will offer up some previously

undisclosed information.

I do believe that although the risks are high, it is expensive, and it

should be used only in severe, treatment-resistant cases, stem cell

therapy currently holds the most promise for those with life-threatening

disease.

In my area at Northwestern University, the stem cell transplantation

therapy they have performed in a very small number of lupus patients has

produced remarkable results. Of course, more study needs to be done on

greater numbers of subjects and for longer periods of time.

[ ] Stem cells

> Has anyone had stem cell treatment for RA or discussed it as a

> treatment option with your RD?

>

> Elaine

[Guest guest]

I have never mentioned stem cells to my Rheumy, but I did see an article about a

girl in Canada who had an operation that involved stem cells and she has been in

entire remission! I think it was in Womans' World magazine a few years back.

It seems as if it might be a very good idea for rheumatoids, but it did have a

very bad risk to the procedure.

elainho <demarn@...> wrote:Has anyone had stem cell treatment for RA or

discussed it as a

treatment option with your RD?

Elaine

[Guest guest]

,

Thanks. Do you know if the group in your area is using cells

harvested from the patient or if they are using umbilical cells?

I'm going back to UCLA tomorrow and my RD from here wants me to talk

with the UCLA ghru about stem cell therapy. I'd asked him about it

because my daughter is soon to give birth and it presents a familial

source of umbilical cells if that treatment would be feasible and if

they used umbilical cells. A lot of " ifs " .

My RD did say the mortality rate is extremely high. However, I'm

running out of options and they are fighting to keep me alive on the

meds I'm on and they aren't as effective in the dose I can tolerate

as they need to be.

We're hoping tomorrow will bring fresh thoughts of plausible

treatments.

As to stem cell, my RD said most of what he was familiar with they

used the patients own cells as they are the most perfect match. My

grandchild would potentially be only a 25% match. But he also said

the " big guys " will have the most current and accurate info.

Elaine

> Hello, Elaine!

>

> I've asked this question here before and never learned of anyone in

our

> group who has undergone or discussed with their rheumatologist any

sort

> of stem cell therapy. Maybe someone will offer up some previously

> undisclosed information.

>

> I do believe that although the risks are high, it is expensive, and

it

> should be used only in severe, treatment-resistant cases, stem cell

> therapy currently holds the most promise for those with life-

threatening

> disease.

>

> In my area at Northwestern University, the stem cell transplantation

> therapy they have performed in a very small number of lupus

patients has

> produced remarkable results. Of course, more study needs to be done

on

> greater numbers of subjects and for longer periods of time.

>

>

>

>

>

> [ ] Stem cells

>

>

> > Has anyone had stem cell treatment for RA or discussed it as a

> > treatment option with your RD?

> >

> > Elaine

[Guest guest]

Tania,

Thank you so much for your response. My RD and I spoke about stem

cell therapy and he did say the mortality rate was extremely high. He

wants me to talk about it with the RD ghru at UCLA when I go

(tomorrow).

My last visit (to UCLA) the two doctors examining me mentioned it

briefly but to be honest I was so ignorant about the topic and so

taken by surprise that I couldn't react/think fast enough to ask

questions. But it is on my list of questions for tomorrow for sure.

Very interesting and encouraging that the girl in Canada went into

complete remission. Wouldn't that be wonderful!!!!

Between my appointment with the RD and my bronchosopy with biopsies

and washings Tuesday morning, we are hopeful the next month brings a

few more answers and a few less questions. Please, friends, add a

prayer for me to your list. I'm also in a high risk situation right

now because I had to go off my coumadin for the bronchosopy ---- and

having to travel while not taking coumadin is not good. So I'd

appreciate a prayer that goes well with that also.

Thank you.

Elaine

Has anyone had stem cell treatment for

RA or discussed it as a

> treatment option with your RD?

>

> Elaine

>

>

>

[Guest guest]

Elaine:

Prayers are with you - best of luck on all of your

tests.

Kathe in CA

--- elainho <demarn@...> wrote:

> Tania,

> Thank you so much for your response. My RD and I

> spoke about stem

> cell therapy and he did say the mortality rate was

> extremely high. He

> wants me to talk about it with the RD ghru at UCLA

> when I go

> (tomorrow).

>

> My last visit (to UCLA) the two doctors examining me

> mentioned it

> briefly but to be honest I was so ignorant about the

> topic and so

> taken by surprise that I couldn't react/think fast

> enough to ask

> questions. But it is on my list of questions for

> tomorrow for sure.

>

> Very interesting and encouraging that the girl in

> Canada went into

> complete remission. Wouldn't that be wonderful!!!!

>

> Between my appointment with the RD and my

> bronchosopy with biopsies

> and washings Tuesday morning, we are hopeful the

> next month brings a

> few more answers and a few less questions. Please,

> friends, add a

> prayer for me to your list. I'm also in a high risk

> situation right

> now because I had to go off my coumadin for the

> bronchosopy ---- and

> having to travel while not taking coumadin is not

> good. So I'd

> appreciate a prayer that goes well with that also.

>

> Thank you.

>

> Elaine

>

>

> Has anyone had stem

> cell treatment for

> RA or discussed it as a

> > treatment option with your RD?

> >

> > Elaine

> >

> >

> >

[Guest guest]

Best of luck tomorrow, Elaine! Yes, ask lots of questions.

They are learning more with each stem cell trial, so it would be worth

investigating if there are any good options for you. There are many

different approaches emerging.

Of course, your stem cells would be a perfect match for you. One of the

possible problems with your own stem cells though is that they aren't

sure if, in a disease such as rheumatoid arthritis, there is an inherent

defect in them that would cause the original problem to resurface later

and you would relapse. There are other problems with some of the

methods, too. They're doing a lot of guessing right now. It really boils

down to, as usual, not knowing exactly what goes wrong in the first

place.

If you don't use your own stem cells, cord blood cells are generally

easier to get a match from than trying to get a bone marrow stem cell

match from another donor. I don't know of any cases of cord blood cells

used to treat RA, but someone in the world has probably tried it. If I

see anything, I'll send it along.

Most, but not all, of the studies I read about done here at Northwestern

were autologous (the patient's own) stem cell transplants. They have

treated MS, scleroderma, and RA patients, too, but the lupus results

stand out in my mind as being the most impressive.

Here's a good article from an early 2002 issue of Biology of Blood and

Marrow Transplantation entitled, " High-Dose Immunosuppression and

Hematopoietic Stem Cell Transplantation in Autoimmune Disease: Clinical

Review " :

http://static.cjp.com/gems/bbmt/BBMT.8.5.Openshaw.PDF

Have a safe, productive trip! Let us know what happens if you feel like

it and are up to it sometime after you get back.

[ ] Re: Stem cells

> ,

> Thanks. Do you know if the group in your area is using cells

> harvested from the patient or if they are using umbilical cells?

>

> I'm going back to UCLA tomorrow and my RD from here wants me to talk

> with the UCLA ghru about stem cell therapy. I'd asked him about it

> because my daughter is soon to give birth and it presents a familial

> source of umbilical cells if that treatment would be feasible and if

> they used umbilical cells. A lot of " ifs " .

>

> My RD did say the mortality rate is extremely high. However, I'm

> running out of options and they are fighting to keep me alive on the

> meds I'm on and they aren't as effective in the dose I can tolerate

> as they need to be.

>

> We're hoping tomorrow will bring fresh thoughts of plausible

> treatments.

>

> As to stem cell, my RD said most of what he was familiar with they

> used the patients own cells as they are the most perfect match. My

> grandchild would potentially be only a 25% match. But he also said

> the " big guys " will have the most current and accurate info.

>

> Elaine

>

>

>

> > Hello, Elaine!

> >

> > I've asked this question here before and never learned of anyone in

> our

> > group who has undergone or discussed with their rheumatologist any

> sort

> > of stem cell therapy. Maybe someone will offer up some previously

> > undisclosed information.

> >

> > I do believe that although the risks are high, it is expensive, and

> it

> > should be used only in severe, treatment-resistant cases, stem cell

> > therapy currently holds the most promise for those with life-

> threatening

> > disease.

> >

> > In my area at Northwestern University, the stem cell transplantation

> > therapy they have performed in a very small number of lupus

> patients has

> > produced remarkable results. Of course, more study needs to be done

> on

> > greater numbers of subjects and for longer periods of time.

> >

> >

> >

[Guest guest]

Elaine,

I hope UCLA can answer some of your questions and maybe there is some hope

that your grandbaby could help you get better. You will be in my prayers

tomorrow, and I still have some of that special clove candle that will be

burning for you. Have a safe trip.

a

[Guest guest]

a,

Thank you so much.

I'm feeling very positive, but I know that whatever the outcome I'll

have given it my best effort. The doctors there are so fantastic, and

so smart that we feel if anyone can help it will be them. We just

have great confidence in everyone we've worked with at UCLA. Can't

say enough good things.

Like I say, with their expertise working for me, I'm bound to get

some benefit from something. I'm really looking forward to hearing

what all the RD has to say. I won't get any " lung " news until my

follow-up in May. It takes a week or two to get all of the pathology

reports in.

Thanks again.

Elaine

> Elaine,

> I hope UCLA can answer some of your questions and maybe there is

some hope

> that your grandbaby could help you get better. You will be in my

prayers

> tomorrow, and I still have some of that special clove candle that

will be

> burning for you. Have a safe trip.

> a

[Guest guest]

Hi Ladies. PLEASE let me know how the stem cells work for you!!!!

You can contact me off line if you would like.

Thank you,

Pat Vosberg

Tucker Rocky

Accounts Payable

817/258-9209

817/258-9035- fax

pvosberg@...

" Castle " <castletowery@...>

Sent by: medicaid

08/15/2005 02:09 PM

Please respond to

medicaid

To

medicaid

cc

Subject

[ ] Re: stemcells and HBO

There are overall very few patients who have done both HBO and stem

cells...so there is very little information on the effectiveness of

stem cells with or without HBO.

The thought is (and yes this is just what the scientist 'think') that

stem cells attract to areas of low oxygen so it would be best to not

force oxygen to the areas that you want the stem cells to find.

Therefor not doing HBO for 3 months after stem cells is recommended by

The Steenblock Reasearch Institute.

But, there is really very little data on this. They have come to this

conclusion by looking at what areas the stem cells attract to and

knowing that HBO privides oxygen to those areas.

I hope this made since?!?!

BTW, Cayden is going for stem cells in a week and a half....and we are

finishing up this round of HBO wednesday.

Castle

http://caydentowery.tripod.com/

rdbadge@a... wrote:

> I am looking at doing stem cells with my son in Oct. I have heard

that you

> should wait 4 months before doing HBO after receiving them. I have

also heard

> the sooner you get the HBO the better the stem cells will do. Any

help would

> be great.

>

> Thanks

> Rita

>

>

>

[Guest guest]

, My opinion is that there may be some hope to the stem cell issue, but there are many different avenues being explored. In Holland they are taking a person's own stem cells (however that is done), doing something to them (stemcells) and putting them back in. A friend of mine had this done April 1st, and she really believes she is getting better. I would hope that the USA would look into this. I have wondered though that if my body is attacking itself, why would I want my own stemcells? I'm sure there is something that I don't understand. Someone brought up the issue of unused embryos being discarded rather than being used for medical science. That's a political/ethical issue where I don't want to go! And with that said, it does deserve something different in the way in which it is handled, but I don't have the answers. As far as

CNN goes, I don't care which network takes notice of LDN and puts the information out to the public. When a person gets a dreaded diagnosis, the option should be there. I've written them all. So far no response from any of them. The first one on the ball enough to do so will get lots of credit. Marciekeith kowalis <wescokk@...> wrote: everyone,listening to CNN? Yea that's reliable. The biggest lieout there is telling people that embyronic stem cellsare going to cure all

our diseases. At this time adultstem cells are even more promising.I can't even walk with this disease, and I have a sonwho has a terrible neurological disease with seizureshis whole life. We pray for cures every day. But atwhat cost. That's everybodies individual decision, butwe don't need our government paying for it.keith

[Guest guest]

That website is interesting. I couldn't find out where they are from their

site or how much it would cost [we'll tell you later] even though they have a

pricing link.

I also found _http://www.cellmedicine.com/_ (http://www.cellmedicine.com/)

which is in Costa Rica and Mexico and the following site in Agoura Hills CA

that will give you a treatment for a mere $25,000

_http://www.stemcellbiotherapy.com/_ (http://www.stemcellbiotherapy.com/)

Elinor

[Guest guest]

My neurologist said that this is a scam. Not sure myself because most doctors

that I talk to don't know about the mega doses of E & C.

So I take it all with a grain of salt (though I guess I should take it with

mineral water and a banana ).

If this works I would love to know.

Good health,

Chris

--- Elinor17@... wrote:

> That website is interesting. I couldn't find out

> where they are from their site or how much it would

> cost [we'll tell you later] even though they have a

> pricing link.

>

> I also found _http://www.cellmedicine.com/_

> (http://www.cellmedicine.com/)

> which is in Costa Rica and Mexico and the following

> site in Agoura Hills CA

> that will give you a treatment for a mere $25,000

> _http://www.stemcellbiotherapy.com/_

> (http://www.stemcellbiotherapy.com/)

>

> Elinor

>

[Guest guest]

In a message dated 5/1/2007 4:43:41 P.M. Pacific Daylight Time,

patkiss@... writes:

Now you know as much as I do. I will keep you informed when I know more.

Penny

Penny,

Thank you so much. Your information was fantastic!

I read a bit about stem cell research in China. It doesn't seem to be

working on ALS so I doubt it would work for CMT at this point.

************************************** See what's free at http://www.aol.com.

[Guest guest]

Hello,

I did some investigating of the site that was forwarded to about stem cell

injections. It seems that stem cell therapy is NOT approved for use in the USA.

The link you posted is to a company run by a doctor who lives in Hawaii. One

flies to San Diego , is provided a hotel there, is taken by shuttle to a

hospital, returned to the hospital.

The treatment is " Individualized, but is IV treatment of concentrated stem cells

with blood cells removed (?) and perhaps some neck injections " . I can only

surmise that the hospital is in Mexico since the treatment is not approved in

the US.

The Mayo clinic provided info from a physician at UC San Diego who basically

said that there are a lot of charlatans preying on people with disabilities out

there. There IS a lot of valid research going on on using adult and cord-blood

stem cells for diseases such as MS, diabetes, and certain types of leukemia.

Now you know as much as I do. I will keep you informed when I know more.

Penny

[Guest guest]

Dear Tom,

That has been my since so far as well. However, if you have the chance look up U-tub videos where people document their stem cell treatment therapies. That might be a very good way to get a since of whether this is a viable treatment for the money. Many people have found it much, much cheaper to do out of the country.

My best

Aletha

[Guest guest]

I am not an expert in anyway but I would like to bring

up an important point about stem cells and ...if

our kids have autoimmune or any immune dysfunction

that isn't taken care of first before implantation of

stem cells I believe that it may be for naught. I

have heard of people going for more and more

treatments and they don't take and it can cost

thousands.

I think stem cells are so promising! But I wonder if

they will do good in our kiddos with .

What do ya'll think?

-

--- Kristy Nardini <knardini@...> wrote:

> HI Gabby,

>

>

>

> Do you have direct experience with stem cells? My

> friend's son has CP and

> was one of the first to be implanted with them (his

> own) last Thanksgiving,

> through a Duke U. study. So far he still has CP.

> They said 6-8 months for

> noticeable changes. My son has CP as well as the " A "

> word, so I would LOVE

> it if stem cells could help him.

>

>

>

> Kristy

>

>

>

> From:

> [mailto: ] On Behalf Of

> a DeVelbiss

> Sent: Monday, March 30, 2009 9:29 AM

>

> Subject: Re: NO AUTISM In Never-Vaccinated

> Children

>

>

>

> And that is because... you can take all the poison

> out of their bodies...

> but they are left with a brain-injury... for that

> you may need stem cells!!!

> It is like the analogy of the child being hit by a

> bus... you can heal

> certain wounds but the child may never be the same

> again (because of the

> extent of the damage left behind!!!)...

>

> Love, Gabby. :0)

> http://stemcellforautism.blogspot.com/

>

> " I know of nobody who is purely Autistic or purely

> neurotypical. Even God

> had some Autistic moments, which is why the planets

> all spin. " ~ Jerry

> Newport

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

May the Lord bless you and keep you!

Visit my blog

http://bloominwhereyourplanted.blogspot.com/

[Guest guest]

You know stem cell trasplant requires 1 yr. chemotherapy to kill off all cells,

good or bad, The child is hospitalized for months and cannot attend school or be

around children for about a year....no guarantee it works or even know exactly

what you are trying to use them for specifically.

It is very complicated and requires immunosuppressive meds.....etc....

Just wanted to throw a few facts out there..

 Sincerely Noel

> HI Gabby,

>

>

>

> Do you have direct experience with stem cells? My

> friend's son has CP and

> was one of the first to be implanted with them (his

> own) last Thanksgiving,

> through a Duke U. study. So far he still has CP.

> They said 6-8 months for

> noticeable changes. My son has CP as well as the " A "

> word, so I would LOVE

> it if stem cells could help him.

>

>

>

> Kristy

>

>

>

> From: groups (DOT) com

> [mailto:groups (DOT) com] On Behalf Of

> a DeVelbiss

> Sent: Monday, March 30, 2009 9:29 AM

> groups (DOT) com

> Subject: Re: NO AUTISM In Never-Vaccinated

> Children

>

>

>

> And that is because... you can take all the poison

> out of their bodies...

> but they are left with a brain-injury. .. for that

> you may need stem cells!!!

> It is like the analogy of the child being hit by a

> bus... you can heal

> certain wounds but the child may never be the same

> again (because of the

> extent of the damage left behind!!!).. .

>

> Love, Gabby. :0)

> http://stemcellfora utism.blogspot. com/

>

> " I know of nobody who is purely Autistic or purely

> neurotypical. Even God

> had some Autistic moments, which is why the planets

> all spin. " ~ Jerry

> Newport

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

May the Lord bless you and keep you!

Visit my blog

http://bloominwhere yourplanted. blogspot. com/

[Guest guest]

That's not what my friend's son went through. Not even close. Are you saying

his procedure(s) won't work?

Kristy

From: [mailto: ] On Behalf Of NOEL

SCHNEIDER

Sent: Monday, March 30, 2009 12:24 PM

Subject: Re: Re: Stem Cells

You know stem cell trasplant requires 1 yr. chemotherapy to kill off all

cells, good or bad, The child is hospitalized for months and cannot attend

school or be around children for about a year....no guarantee it works or

even know exactly what you are trying to use them for specifically.

It is very complicated and requires immunosuppressive meds.....etc....

Just wanted to throw a few facts out there..

Sincerely Noel

> HI Gabby,

>

>

>

> Do you have direct experience with stem cells? My

> friend's son has CP and

> was one of the first to be implanted with them (his

> own) last Thanksgiving,

> through a Duke U. study. So far he still has CP.

> They said 6-8 months for

> noticeable changes. My son has CP as well as the " A "

> word, so I would LOVE

> it if stem cells could help him.

>

>

>

> Kristy

>

>

>

> From: groups (DOT) com

> [mailto:groups (DOT) com] On Behalf Of

> a DeVelbiss

> Sent: Monday, March 30, 2009 9:29 AM

> groups (DOT) com

> Subject: Re: NO AUTISM In Never-Vaccinated

> Children

>

>

>

> And that is because... you can take all the poison

> out of their bodies...

> but they are left with a brain-injury. .. for that

> you may need stem cells!!!

> It is like the analogy of the child being hit by a

> bus... you can heal

> certain wounds but the child may never be the same

> again (because of the

> extent of the damage left behind!!!).. .

>

> Love, Gabby. :0)

> http://stemcellfora utism.blogspot. com/

>

> " I know of nobody who is purely Autistic or purely

> neurotypical. Even God

> had some Autistic moments, which is why the planets

> all spin. " ~ Jerry

> Newport

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

May the Lord bless you and keep you!

Visit my blog

http://bloominwhere yourplanted. blogspot. com/