Re: Re: school refusal update/mom's health....

[Guest guest]

,

I'm turning 40 this year, that's why I ask. ;-) I hope you don't have

any complications. I wouldn't have even guessed at heart trouble with

the low cholesterol, I would have thought I was having heartburn or

something. So glad you caught it.

Dina

[Guest guest]

,

I'm turning 40 this year, that's why I ask. ;-) I hope you don't have

any complications. I wouldn't have even guessed at heart trouble with

the low cholesterol, I would have thought I was having heartburn or

something. So glad you caught it.

Dina

[Guest guest]

,

I agree with you about the association of OCD to auto-immune disorders - it is

very interesting. I have wondered about it myself. My niece, who I strongly

suspect also has OCD, also has Ehlers-Danlos a disorder of the connective

tissue, and most of the medical conditions in our family are auto-immune

disorders. Two other nieces, in their early twenties and from different

families, have just been diagnosed with rheumatoid arthritis. The more I read

about OCD (including in this group) the more convinced I am that OCD is a

inherited medical condition like any other. I have given up looking for things

we could have done differently to prevent this disease.

Please do take good care of yourself above all else now. Is your husband able to

take over primary care of the kids while you recover? I hope so.

Best wishes for your recovery,

Sinead

Re: school refusal update/mom's health....

This is so true , and I will never so foolishly drive myself

again (and fortunately our ER is only 5 minutes away). It also

postpones precious time in getting treated b/c if you walk in you are

not as " emgcy " as someone who comes in by ambulance.

The condition is called " spontaneous coronary artery dissection " ,

btw. I am curious about the possibility of autoimmune component (in

connective tissue realm, so I'd think spectrums of fibro, lupus, and

RA, all in my family- could maybe figure in-though all I've ever had

is raynauds syndrome which causes icy fingers).

I've always thought auoimmune conditions and ocd/anxiety run

together. Maybe the heart symptoms you hear of in anxious people,

that are attributed to just anxiety or panic, could be something more

possibly- but not necessarily materializing as actual heart attack.

(I consider myself an anxious/worrier type, though recovered from ocd

and social anxiety). But now I could be adding heart disease

concerns to the list for people who are already worrying about alot

of ocd stuff!

At any rate it is extremly rae so don't want to alarm anyone.

nancy grace

>

> ,

> We're glad you're still alive too! What a story! I'd never heard of

your condition before, but I'm glad I know it now (although I'm too

old for the postpartum or " young women " worries). I'd just like to

add that if any of us, heaven forbid, should ever have your symptoms,

please DON'T drive yourself to the ER. Call an ambulance if nobody

else is around to drive you, because you could pass out and not only

endanger your own life even more, but endanger the lives of others.

>

> Anyway, thanks for the forewarnings about stress.

>

>

>

>

> ------------ --------- --------- ---

> Sick sense of humor? Visit TV's Comedy with an Edge to see

what's on, when.

>

>

[Guest guest]

,

Thank you for the information on EDS. That is very interesting. I can understand

your concern about a possible connection between the two. As I mentioned in my

previous post, my niece who suffers from EDS also suffers from an anxiety

disorder which I suspect may be OCD. Don't you wish you could visit a future

time when these disorders are fully understood and easily treated? I hope that

your recent diagnosis is helpful to you in maintaining your health.

Sinead

Re: school refusal update/mom's health....

Hi Sinead,

As I mentioned in an earlier response to , EDS is not auto immune, but a

genetic

defect. I really wonder if there isn't a connection between EDS and OCD...EDS

seems to

affect many tissues of the body...I wouldn't be surprised if it has a

psychological impact as

well. My recent diagnosis of EDS has answered many questions about my own

health, and

I'm hoping that it will give us a direction for figuring my children's health

issues out as

well.

> >

> > ,

> > We're glad you're still alive too! What a story! I'd never heard of

> your condition before, but I'm glad I know it now (although I'm too

> old for the postpartum or " young women " worries). I'd just like to

> add that if any of us, heaven forbid, should ever have your symptoms,

> please DON'T drive yourself to the ER. Call an ambulance if nobody

> else is around to drive you, because you could pass out and not only

> endanger your own life even more, but endanger the lives of others.

> >

> > Anyway, thanks for the forewarnings about stress.

> >

> >

> >

> >

> > ------------ --------- --------- ---

> > Sick sense of humor? Visit TV's Comedy with an Edge to see

> what's on, when.

> >

> >

[Guest guest]

Wow! I'm glad you are okay! What are the chances of this occuring in other

arteries? (aorta for example). Will you have to be monitored for reoccurance?

I'm also interested in the autoimmune conditions. I've had Raynauds since I

was eleven, and have had an assortment of odd physical conditions, including

needing a procedure to manage cardiac arrythmias.

Laurie

nancy grace <nmlinnen@...> wrote:

This is so true , and I will never so foolishly drive myself

again (and fortunately our ER is only 5 minutes away). It also

postpones precious time in getting treated b/c if you walk in you are

not as " emgcy " as someone who comes in by ambulance.

The condition is called " spontaneous coronary artery dissection " ,

btw. I am curious about the possibility of autoimmune component (in

connective tissue realm, so I'd think spectrums of fibro, lupus, and

RA, all in my family- could maybe figure in-though all I've ever had

is raynauds syndrome which causes icy fingers).

I've always thought auoimmune conditions and ocd/anxiety run

together. Maybe the heart symptoms you hear of in anxious people,

that are attributed to just anxiety or panic, could be something more

possibly- but not necessarily materializing as actual heart attack.

(I consider myself an anxious/worrier type, though recovered from ocd

and social anxiety). But now I could be adding heart disease

concerns to the list for people who are already worrying about alot

of ocd stuff!

At any rate it is extremly rae so don't want to alarm anyone.

nancy grace

>

> ,

> We're glad you're still alive too! What a story! I'd never heard of

your condition before, but I'm glad I know it now (although I'm too

old for the postpartum or " young women " worries). I'd just like to

add that if any of us, heaven forbid, should ever have your symptoms,

please DON'T drive yourself to the ER. Call an ambulance if nobody

else is around to drive you, because you could pass out and not only

endanger your own life even more, but endanger the lives of others.

>

> Anyway, thanks for the forewarnings about stress.

>

>

>

>

> ---------------------------------

> Sick sense of humor? Visit TV's Comedy with an Edge to see

what's on, when.

>

>

[Guest guest]

Wow! I'm glad you are okay! What are the chances of this occuring in other

arteries? (aorta for example). Will you have to be monitored for reoccurance?

I'm also interested in the autoimmune conditions. I've had Raynauds since I

was eleven, and have had an assortment of odd physical conditions, including

needing a procedure to manage cardiac arrythmias.

Laurie

nancy grace <nmlinnen@...> wrote:

This is so true , and I will never so foolishly drive myself

again (and fortunately our ER is only 5 minutes away). It also

postpones precious time in getting treated b/c if you walk in you are

not as " emgcy " as someone who comes in by ambulance.

The condition is called " spontaneous coronary artery dissection " ,

btw. I am curious about the possibility of autoimmune component (in

connective tissue realm, so I'd think spectrums of fibro, lupus, and

RA, all in my family- could maybe figure in-though all I've ever had

is raynauds syndrome which causes icy fingers).

I've always thought auoimmune conditions and ocd/anxiety run

together. Maybe the heart symptoms you hear of in anxious people,

that are attributed to just anxiety or panic, could be something more

possibly- but not necessarily materializing as actual heart attack.

(I consider myself an anxious/worrier type, though recovered from ocd

and social anxiety). But now I could be adding heart disease

concerns to the list for people who are already worrying about alot

of ocd stuff!

At any rate it is extremly rae so don't want to alarm anyone.

nancy grace

>

> ,

> We're glad you're still alive too! What a story! I'd never heard of

your condition before, but I'm glad I know it now (although I'm too

old for the postpartum or " young women " worries). I'd just like to

add that if any of us, heaven forbid, should ever have your symptoms,

please DON'T drive yourself to the ER. Call an ambulance if nobody

else is around to drive you, because you could pass out and not only

endanger your own life even more, but endanger the lives of others.

>

> Anyway, thanks for the forewarnings about stress.

>

>

>

>

> ---------------------------------

> Sick sense of humor? Visit TV's Comedy with an Edge to see

what's on, when.

>

>

[Guest guest]

Yes, I do see a cardiologist, and fortunately, my arrythmias were finally caught

on ECG. The worst episode happened when I collapsed in Target and was taken by

ambulence to the ER. By the time they got there, the arrhythmia had resolved.

I had a procedure in which my heart was electrically stimulated to go into the

abnormaly rhythm, and then the cardiologist " killed off " that part by freezing

it. I still had residual problems with heart racing, but that was caught on ECG

too, and I chose meds rather than another, more stressful, procedure.

I've actually been tested for all kinds of autoimmune diseases. I had surgery

for endometriosis several years ago, and by accident, it was discovered that I

had very serious liver damage. It looked like I'd been drinking for years, when

i hardly ever drink. I saw a gastroenterologist who looked at the pictures and

said, " I'm sorry, but in a few years you'll need a liver transplant. " Very

scary!

I had no reason to have cirrhosis. No drinking, drugs, hepatitis. So I was

tested for autoimmune diseases. Nothing. Ten years ago, I had a positive ANA

test, when my dr. did blook work due to my Raynauds.

This past year, I had my gallbladder out, and that surgeon said my liver was

much, much better! I felt like my life had been given back to me!

My list of issues are: mitral valve prolapse, Raynauds, endometriosis, liver

damage, migraines, bipolar, and OCD. I think that's it. Anyway, I keep

thinking I have some disorder that just hasn't been named yet!

Laurie

nancy grace <nmlinnen@...> wrote:

I think there will be lab testing for possible contributing factors,

and I'm concerned about similar things that could turn up in my kids

(and twin sister) if there is (likely) a genetic factor. I will be

seeing a cardiologist but not sure what they will do, monitor meds

for one thing. I think the important thing is the protocol for a

repeat attack, if I end up in emgcy there are different approaches

for a coronary spasm (I had this as second heart attack while in

hospital) or a coronary dissection (was my first heart attack) than

for atherosclerotic related attacks. Are you still monitored by a

cardiologist? Do you have actual chest pain or only arrythmias? I

think it would be helpful to seen DURING any episode rather than

after the pain has subsided, they can check troponin levels to know

if there has been any obstruction in the arteries. Good Luck, I think

with the raynauds etc you should get it checked out. Here is a link

which mentions raynauds.

http://www.medscape.com/viewarticle/405942

nancy grace

> >

> > ,

> > We're glad you're still alive too! What a story! I'd never heard

of

> your condition before, but I'm glad I know it now (although I'm too

> old for the postpartum or " young women " worries). I'd just like to

> add that if any of us, heaven forbid, should ever have your

symptoms,

> please DON'T drive yourself to the ER. Call an ambulance if nobody

> else is around to drive you, because you could pass out and not

only

> endanger your own life even more, but endanger the lives of others.

> >

> > Anyway, thanks for the forewarnings about stress.

> >

> >

> >

> >

> > ---------------------------------

> > Sick sense of humor? Visit TV's Comedy with an Edge to see

> what's on, when.

> >

> >

[Guest guest]

Laurie,

I've had the ablation done to my heart too. Just an FYI.

Dina

[Guest guest]

were you conscious for it? I wasn't, but I was told that the next time I would

have to be, since the remaining problem remains in my ventricle instead of my

atrium. I have a " rogue cell " that seems to fire off and is a bad influence on

the cells around it.

This hospital stuff really stresses out my dd too. One of the docs in her

hospital stay chewed me out for letting her know what was going on. He called

it enmeshment. I told him I really couldn't hide having the ambulance come to

my house. Or her having to come to the ER with me because she was too young to

be left alone at that time, and I couldn't exactly get a sitter on a spur of the

moment when I'm wondering if I'm going to die or not. I have my priorities, and

dd's OCD sort of took the back seat. I figured dieing would be harder on her!

Laurie

Dina <dina.n.jones@...> wrote:

Laurie,

I've had the ablation done to my heart too. Just an FYI.

Dina

Our list archives, bookmarks, files, and chat feature may be accessed at:

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Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.

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. Subscription issues or suggestions may be addressed to Louis Harkins,

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louisharkins@... .

[Guest guest]

were you conscious for it? I wasn't, but I was told that the next time I would

have to be, since the remaining problem remains in my ventricle instead of my

atrium. I have a " rogue cell " that seems to fire off and is a bad influence on

the cells around it.

This hospital stuff really stresses out my dd too. One of the docs in her

hospital stay chewed me out for letting her know what was going on. He called

it enmeshment. I told him I really couldn't hide having the ambulance come to

my house. Or her having to come to the ER with me because she was too young to

be left alone at that time, and I couldn't exactly get a sitter on a spur of the

moment when I'm wondering if I'm going to die or not. I have my priorities, and

dd's OCD sort of took the back seat. I figured dieing would be harder on her!

Laurie

Dina <dina.n.jones@...> wrote:

Laurie,

I've had the ablation done to my heart too. Just an FYI.

Dina

Our list archives, bookmarks, files, and chat feature may be accessed at:

/ .

Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), Tamar

Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.

(http://massgeneral.org/pediatricpsych/staff/geller.html ),Aureen Pinto Wagner,

Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are

Birkhan, Castle, Joye, Kathy Mac, Gail Pesses, and Kathy

. Subscription issues or suggestions may be addressed to Louis Harkins,

list owner, at louisharkins@... , louisharkins@... ,

louisharkins@... .