Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 I originally joined this group to find information, resources and support for my oldest son who has Asperger's Autism. But now things are coming up with my younger son that I need some advice with or help with. I thought I would post my questions here in hopes that maybe some of you out there have gone thru something similar and can guide me through what I need to do or something else I can try. Here is the situation..... (it's a bit long, so please bear with me) My 5 year old has had eczema hid whole life. The places that he breaks out the most and the worst is in his hair and on his bottom. The breakout on his bottom flares up so fast that is still amazes me. He will be a little red at first and I will put cream on it (hydrocortisone) and the next day he will be chapped, scaley, and to the point that it is about to bleed. The hydrocortisone used to work pretty well, but now it doesn't really work at all anymore. I have also tried Aquaphor, and that works a little too but not too good. We have to get a prescription cream from the Dr. to make it go away completely. Anyway, recently he has started having allergic reactions to things, and not the common things either. He had a breakout for laundry detergent (not mine, my grandmothers) back in October. He broke out everywhere clothes were touching his skin. I rewashed all of his clothes that had been washed in the other detergent, but the rash still did not go away. Two weeks later he still had the rash all over his body. I had to take him to the Doctor and get a sterroid antibiotic to finally get rid of it. The newest one, back in mid-January he ate a new cookie at school (an apple-cinnamon graham cookie) that they just started putting in the grab bag lunches at school.About an hour after I got him home from school he broke out all over his face in one great big welt. He looked like he had a full moustache and beard, this is how much area it covered. It was bright red and raised. I went to school with him the next day and noticed the cookie and he ate it that day too, when he got home the welt was a deeper red and covered more area (it went down/underneath his chin. I gave him benadryl and put hydrocortisone cream on it and asked his teachers not to let him have anything cinnamon until i figured this out. (He is a very picky eater, probably from watching my older Autistic son, so I know when he has something new). They gave me some fits about it , but eventually did agree to give him an alternate cookie until I could confirm or deny the culprit. I took him to the doctor and the agreed that it was an allergic reaction and agreed to do an allergy profile on him. I told the Doctor that I thought it was from the cinnamon. He had the profile done and the Doctor called me and told me that he wasn't allergic to dairy, eggs, or cats -- he has a very small elevation to dogs and dust mites (but nothing to be too concerned about). He said nothing about cinnamon. Now I know that they can't test for everything in these profiles, but when I TELL him that I think it is from cinnamon, can't they at least test for that???!!! Anyway, Dr. told me to give him Benadryl and put cortisone on it... The rash still is not gone! I took him back to the Dr. on Tuesday and then I also took him to a dermatologist yesterday. We saw the PA this time (on Tues.) She said that the rash on his face is still from the initial breakout back in mid-Jan. She said that his body produces so many histamines when he reacts that they will just stay in his body and his body will keep producing the histamines and he will keep reacting until he gets Prednisone to force the reaction to stop. He also has delayed type IV allergic reaction. He doesn't react right away, it takes several hours before you will see a reaction. The dermatologist said the same thngs the PA did. My question and concern is that because his reaction is delayed and he has such a strong reaction that will not go away with out an antibiotic is there some way that I can have him thoroughly tested to find out what exactly he is allergic to? The initial allergy profile only tested for the more common allergies, I want him tested for the not so common allergins. He will eventually start eating better the older he gets and it will be more difficult to pinpoint what it was that caused the reaction. He also has some behavior issues too and I read that some reactions come out as behaviors. Is there another kind of test I can request from his Dr to test for other things that are not so common???? Thanks in advance for all of your help! Dani Marks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 Dani, My husband has severe eczema & lots of allergies. When my husband is under a lot of stress it all gets worse & takes much longer for his breakouts to heal. Some areas never completely heal. My husband sees his dermatologist on a regular basis. He's on several different types of creams. When it gets really bad he has to take half a steroid pill every other day. He also has to take antibiotics every once in awhile because some of the breakouts get infected. As for his allergies, they are not common allergies. His dermatoligist tested him for over 50 different things. A lot of the things he tested for were ingedients found in shampoo, soap, laundry detergent, etc. He tested positive for about 25 different things. All of which are in most cleaning products. He now uses a prescription shampoo. We now have to buy organic laundry detergent, soap, etc. It has helped, but he still gets some bad breakouts. The dermatologist believes it's due to his stress level from work. Anyway I don't know if our story will help you or not, but I hope it does. If you like your dermatologist I would see if they would do a more comprehensive allergy test on your son. If not then find someone who will. If your son is displaying negative behaviors it may be because he's so miserable & uncomfortable. I know my husband gets very antsy when he has breakouts & sometime he'll get very snappy. My husband has told me when it's bad he can't get one second of relief & it makes him want to scream. I just can't imagine how horrible it must feel. Good luck! Wendie > > I originally joined this group to find information, resources and > support for my oldest son who has Asperger's Autism. But now things > are coming up with my younger son that I need some advice with or help > with. I thought I would post my questions here in hopes that maybe > some of you out there have gone thru something similar and can guide > me through what I need to do or something else I can try. Here is the > situation..... (it's a bit long, so please bear with me) > > My 5 year old has had eczema hid whole life. The places that he breaks > out the most and the worst is in his hair and on his bottom. The > breakout on his bottom flares up so fast that is still amazes me. He > will be a little red at first and I will put cream on it > (hydrocortisone) and the next day he will be chapped, scaley, and to > the point that it is about to bleed. The hydrocortisone used to work > pretty well, but now it doesn't really work at all anymore. I have > also tried Aquaphor, and that works a little too but not too good. We > have to get a prescription cream from the Dr. to make it go away > completely. > > Anyway, recently he has started having allergic reactions to things, > and not the common things either. He had a breakout for laundry > detergent (not mine, my grandmothers) back in October. He broke out > everywhere clothes were touching his skin. I rewashed all of his > clothes that had been washed in the other detergent, but the rash > still did not go away. Two weeks later he still had the rash all over > his body. I had to take him to the Doctor and get a sterroid > antibiotic to finally get rid of it. > > The newest one, back in mid-January he ate a new cookie at school (an > apple-cinnamon graham cookie) that they just started putting in the > grab bag lunches at school.About an hour after I got him home from > school he broke out all over his face in one great big welt. He > looked like he had a full moustache and beard, this is how much area > it covered. It was bright red and raised. I went to school with him > the next day and noticed the cookie and he ate it that day too, when > he got home the welt was a deeper red and covered more area (it went > down/underneath his chin. I gave him benadryl and put hydrocortisone > cream on it and asked his teachers not to let him have anything > cinnamon until i figured this out. (He is a very picky eater, probably > from watching my older Autistic son, so I know when he has something > new). They gave me some fits about it , but eventually did agree to > give him an alternate cookie until I could confirm or deny the > culprit. I took him to the doctor and the agreed that it was an > allergic reaction and agreed to do an allergy profile on him. I told > the Doctor that I thought it was from the cinnamon. He had the profile > done and the Doctor called me and told me that he wasn't allergic to > dairy, eggs, or cats -- he has a very small elevation to dogs and dust > mites (but nothing to be too concerned about). He said nothing about > cinnamon. Now I know that they can't test for everything in these > profiles, but when I TELL him that I think it is from cinnamon, can't > they at least test for that???!!! Anyway, Dr. told me to give him > Benadryl and put cortisone on it... The rash still is not gone! I > took him back to the Dr. on Tuesday and then I also took him to a > dermatologist yesterday. We saw the PA this time (on Tues.) She said > that the rash on his face is still from the initial breakout back in > mid-Jan. She said that his body produces so many histamines when he > reacts that they will just stay in his body and his body will keep > producing the histamines and he will keep reacting until he gets > Prednisone to force the reaction to stop. He also has delayed type IV > allergic reaction. He doesn't react right away, it takes several hours > before you will see a reaction. The dermatologist said the same thngs > the PA did. My question and concern is that because his reaction is > delayed and he has such a strong reaction that will not go away with > out an antibiotic is there some way that I can have him thoroughly > tested to find out what exactly he is allergic to? The initial > allergy profile only tested for the more common allergies, I want him > tested for the not so common allergins. He will eventually start > eating better the older he gets and it will be more difficult to > pinpoint what it was that caused the reaction. He also has some > behavior issues too and I read that some reactions come out as > behaviors. Is there another kind of test I can request from his Dr to > test for other things that are not so common???? > > Thanks in advance for all of your help! > > Dani Marks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 Dani, My husband has severe eczema & lots of allergies. When my husband is under a lot of stress it all gets worse & takes much longer for his breakouts to heal. Some areas never completely heal. My husband sees his dermatologist on a regular basis. He's on several different types of creams. When it gets really bad he has to take half a steroid pill every other day. He also has to take antibiotics every once in awhile because some of the breakouts get infected. As for his allergies, they are not common allergies. His dermatoligist tested him for over 50 different things. A lot of the things he tested for were ingedients found in shampoo, soap, laundry detergent, etc. He tested positive for about 25 different things. All of which are in most cleaning products. He now uses a prescription shampoo. We now have to buy organic laundry detergent, soap, etc. It has helped, but he still gets some bad breakouts. The dermatologist believes it's due to his stress level from work. Anyway I don't know if our story will help you or not, but I hope it does. If you like your dermatologist I would see if they would do a more comprehensive allergy test on your son. If not then find someone who will. If your son is displaying negative behaviors it may be because he's so miserable & uncomfortable. I know my husband gets very antsy when he has breakouts & sometime he'll get very snappy. My husband has told me when it's bad he can't get one second of relief & it makes him want to scream. I just can't imagine how horrible it must feel. Good luck! Wendie > > I originally joined this group to find information, resources and > support for my oldest son who has Asperger's Autism. But now things > are coming up with my younger son that I need some advice with or help > with. I thought I would post my questions here in hopes that maybe > some of you out there have gone thru something similar and can guide > me through what I need to do or something else I can try. Here is the > situation..... (it's a bit long, so please bear with me) > > My 5 year old has had eczema hid whole life. The places that he breaks > out the most and the worst is in his hair and on his bottom. The > breakout on his bottom flares up so fast that is still amazes me. He > will be a little red at first and I will put cream on it > (hydrocortisone) and the next day he will be chapped, scaley, and to > the point that it is about to bleed. The hydrocortisone used to work > pretty well, but now it doesn't really work at all anymore. I have > also tried Aquaphor, and that works a little too but not too good. We > have to get a prescription cream from the Dr. to make it go away > completely. > > Anyway, recently he has started having allergic reactions to things, > and not the common things either. He had a breakout for laundry > detergent (not mine, my grandmothers) back in October. He broke out > everywhere clothes were touching his skin. I rewashed all of his > clothes that had been washed in the other detergent, but the rash > still did not go away. Two weeks later he still had the rash all over > his body. I had to take him to the Doctor and get a sterroid > antibiotic to finally get rid of it. > > The newest one, back in mid-January he ate a new cookie at school (an > apple-cinnamon graham cookie) that they just started putting in the > grab bag lunches at school.About an hour after I got him home from > school he broke out all over his face in one great big welt. He > looked like he had a full moustache and beard, this is how much area > it covered. It was bright red and raised. I went to school with him > the next day and noticed the cookie and he ate it that day too, when > he got home the welt was a deeper red and covered more area (it went > down/underneath his chin. I gave him benadryl and put hydrocortisone > cream on it and asked his teachers not to let him have anything > cinnamon until i figured this out. (He is a very picky eater, probably > from watching my older Autistic son, so I know when he has something > new). They gave me some fits about it , but eventually did agree to > give him an alternate cookie until I could confirm or deny the > culprit. I took him to the doctor and the agreed that it was an > allergic reaction and agreed to do an allergy profile on him. I told > the Doctor that I thought it was from the cinnamon. He had the profile > done and the Doctor called me and told me that he wasn't allergic to > dairy, eggs, or cats -- he has a very small elevation to dogs and dust > mites (but nothing to be too concerned about). He said nothing about > cinnamon. Now I know that they can't test for everything in these > profiles, but when I TELL him that I think it is from cinnamon, can't > they at least test for that???!!! Anyway, Dr. told me to give him > Benadryl and put cortisone on it... The rash still is not gone! I > took him back to the Dr. on Tuesday and then I also took him to a > dermatologist yesterday. We saw the PA this time (on Tues.) She said > that the rash on his face is still from the initial breakout back in > mid-Jan. She said that his body produces so many histamines when he > reacts that they will just stay in his body and his body will keep > producing the histamines and he will keep reacting until he gets > Prednisone to force the reaction to stop. He also has delayed type IV > allergic reaction. He doesn't react right away, it takes several hours > before you will see a reaction. The dermatologist said the same thngs > the PA did. My question and concern is that because his reaction is > delayed and he has such a strong reaction that will not go away with > out an antibiotic is there some way that I can have him thoroughly > tested to find out what exactly he is allergic to? The initial > allergy profile only tested for the more common allergies, I want him > tested for the not so common allergins. He will eventually start > eating better the older he gets and it will be more difficult to > pinpoint what it was that caused the reaction. He also has some > behavior issues too and I read that some reactions come out as > behaviors. Is there another kind of test I can request from his Dr to > test for other things that are not so common???? > > Thanks in advance for all of your help! > > Dani Marks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 You may have to approach through someone who is more specialized in terms of allergies, such as an allergist/immunologist rather than his primary care doctor or dermatologist. Here's a great explanation of what an allergist/immunologist does and a checklist of when you should see one. http://allergies.about.com/od/allergies101/a/shouldiseemd.htm Beasley Home Interiors & Gifts 770-603-0325 www.homeinteriors.com/wendybeasley February 2008 -- Home Interiors Red Rose Event -- Fragrance Items are 20% Off. For a limited time, join Home Interiors as a Consultant for $99 and choose your starter showcase from the new Spring catalog. (some item exclusions do apply) Home Interiors also offers fundraising with a 50% profit for the group holding the fundraiser. For more information, see fundraising on the website or contact me at (770) 603-0325 for a fundraising package. autism From: Dani0342@...Date: Thu, 14 Feb 2008 14:44:35 +0000Subject: Allergies.... I originally joined this group to find information, resources andsupport for my oldest son who has Asperger's Autism. But now thingsare coming up with my younger son that I need some advice with or helpwith. I thought I would post my questions here in hopes that maybesome of you out there have gone thru something similar and can guideme through what I need to do or something else I can try. Here is thesituation..... (it's a bit long, so please bear with me)My 5 year old has had eczema hid whole life. The places that he breaksout the most and the worst is in his hair and on his bottom. Thebreakout on his bottom flares up so fast that is still amazes me. Hewill be a little red at first and I will put cream on it(hydrocortisone) and the next day he will be chapped, scaley, and tothe point that it is about to bleed. The hydrocortisone used to workpretty well, but now it doesn't really work at all anymore. I havealso tried Aquaphor, and that works a little too but not too good. Wehave to get a prescription cream from the Dr. to make it go awaycompletely.Anyway, recently he has started having allergic reactions to things,and not the common things either. He had a breakout for laundrydetergent (not mine, my grandmothers) back in October. He broke outeverywhere clothes were touching his skin. I rewashed all of hisclothes that had been washed in the other detergent, but the rashstill did not go away. Two weeks later he still had the rash all overhis body. I had to take him to the Doctor and get a sterroidantibiotic to finally get rid of it. The newest one, back in mid-January he ate a new cookie at school (anapple-cinnamon graham cookie) that they just started putting in thegrab bag lunches at school.About an hour after I got him home fromschool he broke out all over his face in one great big welt. Helooked like he had a full moustache and beard, this is how much areait covered. It was bright red and raised. I went to school with himthe next day and noticed the cookie and he ate it that day too, whenhe got home the welt was a deeper red and covered more area (it wentdown/underneath his chin. I gave him benadryl and put hydrocortisonecream on it and asked his teachers not to let him have anythingcinnamon until i figured this out. (He is a very picky eater, probablyfrom watching my older Autistic son, so I know when he has somethingnew). They gave me some fits about it , but eventually did agree togive him an alternate cookie until I could confirm or deny theculprit. I took him to the doctor and the agreed that it was anallergic reaction and agreed to do an allergy profile on him. I toldthe Doctor that I thought it was from the cinnamon. He had the profiledone and the Doctor called me and told me that he wasn't allergic todairy, eggs, or cats -- he has a very small elevation to dogs and dustmites (but nothing to be too concerned about). He said nothing aboutcinnamon. Now I know that they can't test for everything in theseprofiles, but when I TELL him that I think it is from cinnamon, can'tthey at least test for that???!!! Anyway, Dr. told me to give himBenadryl and put cortisone on it... The rash still is not gone! Itook him back to the Dr. on Tuesday and then I also took him to adermatologist yesterday. We saw the PA this time (on Tues.) She saidthat the rash on his face is still from the initial breakout back inmid-Jan. She said that his body produces so many histamines when hereacts that they will just stay in his body and his body will keepproducing the histamines and he will keep reacting until he getsPrednisone to force the reaction to stop. He also has delayed type IVallergic reaction. He doesn't react right away, it takes several hoursbefore you will see a reaction. The dermatologist said the same thngsthe PA did. My question and concern is that because his reaction isdelayed and he has such a strong reaction that will not go away without an antibiotic is there some way that I can have him thoroughlytested to find out what exactly he is allergic to? The initialallergy profile only tested for the more common allergies, I want himtested for the not so common allergins. He will eventually starteating better the older he gets and it will be more difficult topinpoint what it was that caused the reaction. He also has somebehavior issues too and I read that some reactions come out asbehaviors. Is there another kind of test I can request from his Dr totest for other things that are not so common????Thanks in advance for all of your help!Dani Marks Connect and share in new ways with Windows Live. Get it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 You may have to approach through someone who is more specialized in terms of allergies, such as an allergist/immunologist rather than his primary care doctor or dermatologist. Here's a great explanation of what an allergist/immunologist does and a checklist of when you should see one. http://allergies.about.com/od/allergies101/a/shouldiseemd.htm Beasley Home Interiors & Gifts 770-603-0325 www.homeinteriors.com/wendybeasley February 2008 -- Home Interiors Red Rose Event -- Fragrance Items are 20% Off. For a limited time, join Home Interiors as a Consultant for $99 and choose your starter showcase from the new Spring catalog. (some item exclusions do apply) Home Interiors also offers fundraising with a 50% profit for the group holding the fundraiser. For more information, see fundraising on the website or contact me at (770) 603-0325 for a fundraising package. autism From: Dani0342@...Date: Thu, 14 Feb 2008 14:44:35 +0000Subject: Allergies.... I originally joined this group to find information, resources andsupport for my oldest son who has Asperger's Autism. But now thingsare coming up with my younger son that I need some advice with or helpwith. I thought I would post my questions here in hopes that maybesome of you out there have gone thru something similar and can guideme through what I need to do or something else I can try. Here is thesituation..... (it's a bit long, so please bear with me)My 5 year old has had eczema hid whole life. The places that he breaksout the most and the worst is in his hair and on his bottom. Thebreakout on his bottom flares up so fast that is still amazes me. Hewill be a little red at first and I will put cream on it(hydrocortisone) and the next day he will be chapped, scaley, and tothe point that it is about to bleed. The hydrocortisone used to workpretty well, but now it doesn't really work at all anymore. I havealso tried Aquaphor, and that works a little too but not too good. Wehave to get a prescription cream from the Dr. to make it go awaycompletely.Anyway, recently he has started having allergic reactions to things,and not the common things either. He had a breakout for laundrydetergent (not mine, my grandmothers) back in October. He broke outeverywhere clothes were touching his skin. I rewashed all of hisclothes that had been washed in the other detergent, but the rashstill did not go away. Two weeks later he still had the rash all overhis body. I had to take him to the Doctor and get a sterroidantibiotic to finally get rid of it. The newest one, back in mid-January he ate a new cookie at school (anapple-cinnamon graham cookie) that they just started putting in thegrab bag lunches at school.About an hour after I got him home fromschool he broke out all over his face in one great big welt. Helooked like he had a full moustache and beard, this is how much areait covered. It was bright red and raised. I went to school with himthe next day and noticed the cookie and he ate it that day too, whenhe got home the welt was a deeper red and covered more area (it wentdown/underneath his chin. I gave him benadryl and put hydrocortisonecream on it and asked his teachers not to let him have anythingcinnamon until i figured this out. (He is a very picky eater, probablyfrom watching my older Autistic son, so I know when he has somethingnew). They gave me some fits about it , but eventually did agree togive him an alternate cookie until I could confirm or deny theculprit. I took him to the doctor and the agreed that it was anallergic reaction and agreed to do an allergy profile on him. I toldthe Doctor that I thought it was from the cinnamon. He had the profiledone and the Doctor called me and told me that he wasn't allergic todairy, eggs, or cats -- he has a very small elevation to dogs and dustmites (but nothing to be too concerned about). He said nothing aboutcinnamon. Now I know that they can't test for everything in theseprofiles, but when I TELL him that I think it is from cinnamon, can'tthey at least test for that???!!! Anyway, Dr. told me to give himBenadryl and put cortisone on it... The rash still is not gone! Itook him back to the Dr. on Tuesday and then I also took him to adermatologist yesterday. We saw the PA this time (on Tues.) She saidthat the rash on his face is still from the initial breakout back inmid-Jan. She said that his body produces so many histamines when hereacts that they will just stay in his body and his body will keepproducing the histamines and he will keep reacting until he getsPrednisone to force the reaction to stop. He also has delayed type IVallergic reaction. He doesn't react right away, it takes several hoursbefore you will see a reaction. The dermatologist said the same thngsthe PA did. My question and concern is that because his reaction isdelayed and he has such a strong reaction that will not go away without an antibiotic is there some way that I can have him thoroughlytested to find out what exactly he is allergic to? The initialallergy profile only tested for the more common allergies, I want himtested for the not so common allergins. He will eventually starteating better the older he gets and it will be more difficult topinpoint what it was that caused the reaction. He also has somebehavior issues too and I read that some reactions come out asbehaviors. Is there another kind of test I can request from his Dr totest for other things that are not so common????Thanks in advance for all of your help!Dani Marks Connect and share in new ways with Windows Live. Get it now! Quote Link to comment Share on other sites More sharing options...
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