Re: Ot Venting

[Guest guest]

Dear Kelley,

So many times it seems that everything in our lives is all jumbled up,

and we live in this painful *dark* place where the *light* won't ever shine

again...and we are so frustrated it makes us almost too dizzy to think.

Why the Neurontin? I have been put on that by my doctor at the " pain

clinic " for Periphial Neuropathy. Nerve damage from having Stills for

what seems like forever. It has been prescribed for me to take before

going to bed, and if I took it during the day, I'm not sure I could stay

awake. I used to have severe pain in my hands & feet every night,

and so wasn't sleeping much...the Neurontin has helped that very

much. (unless I get insomnia...screeeam!) BUT...there are others who

are taking the Neurontin for a variety of reasons, and during the day.

I think it depends on the person and the dose.

Oh Kelley...I feel so bad for you! Perhaps it would be in your best

interests in the long run to not work for awhile. ...if it is financially

possible. Just focus on you and feeling better. They say that when

one door closes another opens, and you know what? I for one truly

believe that to be true. It may not look like it now, but somewhere

in the future you will look back and you will know that whatever the

outcome of the job thing...it will have been for the best.

One thing I don't inderstand though...is how come they can post your

job so quickly...is this legal? This doesn't sound legal to me.

(((((((((((((((((((((((Kelley)))))))))))))))))))))))))))))))))

Love you sweetheart!

~~tricia~~

& & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & &

-- Ot Venting

Good Morning all.. I just needed to vent.. sorry.. Well I think I am

officially on Unpaid Medial Leave of Absence.. (not by choice) lol.. This

has been

bothering me all night, and haven't been able to sleep.. I was out sick the

last

couple of weeks in pain.. My dr went on vacation last week, so he was unable

to fill out my FMLA and ADA paperwork.. the on call dr put me on Neurontin

(sp)

supposed to take three times a day, ya right.. makes me soo tired, can only

take twice a day lol.. So, first they tell me I am allowed to go back if I

get

a release from the dr to go back, so I get one to go back part time from the

on call dr.. Well that is not good enough, as he doesn't know my case.. So I

call and leave a message to get one from my dr yesterday to go back.. Then I

get

a call yesterday afternoon from Human Resources telling me that is now not

good enough either, I need to get them the paperwork from the Dr before I

can go

back to work.. To top it off, they have already posted my position and have

given it up. So if and when I go back, I have no job to go back to.. Part

of

me just wants to give in and quit, cash in on my retirement money and pay

off

all my bills any pay my cobra.. I am just so frustrated and I know it is not

good for me right now..

I go see the dr in Denver Tuesday, the 23rd, to start on the Kineret.. I am

keeping a diary this week for him. Have to do some tests this week, urine

and

freeze it to take with me.. Woo hoo what fun.. lol.. I am really trying to

keep my spirits up right now.. I just needed to vent, I am sorry.. Thank you

all

for listening..

Love you all and hope everyone is having a somewhat good day..

Kelley in Colorado..

[Guest guest]

Dear Kelley,

So many times it seems that everything in our lives is all jumbled up,

and we live in this painful *dark* place where the *light* won't ever shine

again...and we are so frustrated it makes us almost too dizzy to think.

Why the Neurontin? I have been put on that by my doctor at the " pain

clinic " for Periphial Neuropathy. Nerve damage from having Stills for

what seems like forever. It has been prescribed for me to take before

going to bed, and if I took it during the day, I'm not sure I could stay

awake. I used to have severe pain in my hands & feet every night,

and so wasn't sleeping much...the Neurontin has helped that very

much. (unless I get insomnia...screeeam!) BUT...there are others who

are taking the Neurontin for a variety of reasons, and during the day.

I think it depends on the person and the dose.

Oh Kelley...I feel so bad for you! Perhaps it would be in your best

interests in the long run to not work for awhile. ...if it is financially

possible. Just focus on you and feeling better. They say that when

one door closes another opens, and you know what? I for one truly

believe that to be true. It may not look like it now, but somewhere

in the future you will look back and you will know that whatever the

outcome of the job thing...it will have been for the best.

One thing I don't inderstand though...is how come they can post your

job so quickly...is this legal? This doesn't sound legal to me.

(((((((((((((((((((((((Kelley)))))))))))))))))))))))))))))))))

Love you sweetheart!

~~tricia~~

& & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & &

-- Ot Venting

Good Morning all.. I just needed to vent.. sorry.. Well I think I am

officially on Unpaid Medial Leave of Absence.. (not by choice) lol.. This

has been

bothering me all night, and haven't been able to sleep.. I was out sick the

last

couple of weeks in pain.. My dr went on vacation last week, so he was unable

to fill out my FMLA and ADA paperwork.. the on call dr put me on Neurontin

(sp)

supposed to take three times a day, ya right.. makes me soo tired, can only

take twice a day lol.. So, first they tell me I am allowed to go back if I

get

a release from the dr to go back, so I get one to go back part time from the

on call dr.. Well that is not good enough, as he doesn't know my case.. So I

call and leave a message to get one from my dr yesterday to go back.. Then I

get

a call yesterday afternoon from Human Resources telling me that is now not

good enough either, I need to get them the paperwork from the Dr before I

can go

back to work.. To top it off, they have already posted my position and have

given it up. So if and when I go back, I have no job to go back to.. Part

of

me just wants to give in and quit, cash in on my retirement money and pay

off

all my bills any pay my cobra.. I am just so frustrated and I know it is not

good for me right now..

I go see the dr in Denver Tuesday, the 23rd, to start on the Kineret.. I am

keeping a diary this week for him. Have to do some tests this week, urine

and

freeze it to take with me.. Woo hoo what fun.. lol.. I am really trying to

keep my spirits up right now.. I just needed to vent, I am sorry.. Thank you

all

for listening..

Love you all and hope everyone is having a somewhat good day..

Kelley in Colorado..

[Guest guest]

Dearest Kelley; let me first say this is not off topic. It couldn't be

more on topic. I agree with everything Tricia said and would like to say

you should apply for your social security benefits. You can just call them

at an 800 number and over the phone that will be your application date, even

if it takes you a while to fill out the forms.

I really know how you feel and send lots of love your way so that you don't

have to worry so much.

I take Neurontin, 4 a day. Two in the morning and two before bed. Mine is

prescribed for pain. I think it helps the brain block pain through the

nervous system. Just let your doctor know how you feel so he can find the

right dose for you. You may need more rest right now dear. A couple of

times in my early years I was hospitalized so they could make sure I had

peace and rest so this darn disease would let up a bit.

Best of luck with your testing and maybe the doctor in Denver can write you

the documentation that you need. If not, maybe it is best for you right

now.

Much love to you Kel, till soon, Melt

----- Original Message -----

From: <Kelleyak31@...>

> Good Morning all.. I just needed to vent.. sorry.. Well I think I am

> officially on Unpaid Medial Leave of Absence.. (not by choice) lol..

[Guest guest]

Dearest Kelley; let me first say this is not off topic. It couldn't be

more on topic. I agree with everything Tricia said and would like to say

you should apply for your social security benefits. You can just call them

at an 800 number and over the phone that will be your application date, even

if it takes you a while to fill out the forms.

I really know how you feel and send lots of love your way so that you don't

have to worry so much.

I take Neurontin, 4 a day. Two in the morning and two before bed. Mine is

prescribed for pain. I think it helps the brain block pain through the

nervous system. Just let your doctor know how you feel so he can find the

right dose for you. You may need more rest right now dear. A couple of

times in my early years I was hospitalized so they could make sure I had

peace and rest so this darn disease would let up a bit.

Best of luck with your testing and maybe the doctor in Denver can write you

the documentation that you need. If not, maybe it is best for you right

now.

Much love to you Kel, till soon, Melt

----- Original Message -----

From: <Kelleyak31@...>

> Good Morning all.. I just needed to vent.. sorry.. Well I think I am

> officially on Unpaid Medial Leave of Absence.. (not by choice) lol..

[Guest guest]

-

Oh Kel!!

I am sorry thngs are so rough. Please try and do something to bring

yourself some peace.

You are in my thoughts!

-- In Stillsdisease , Kelleyak31@a... wrote:

> Good Morning all.. I just needed to vent.. sorry.. Well I think I

am

> officially on Unpaid Medial Leave of Absence.. (not by choice)

lol.. This has been

> bothering me all night, and haven't been able to sleep.. I was out

sick the last

> couple of weeks in pain.. My dr went on vacation last week, so he

was unable

> to fill out my FMLA and ADA paperwork.. the on call dr put me on

Neurontin (sp)

> supposed to take three times a day, ya right.. makes me soo tired,

can only

> take twice a day lol.. So, first they tell me I am allowed to go

back if I get

> a release from the dr to go back, so I get one to go back part time

from the

> on call dr.. Well that is not good enough, as he doesn't know my

case.. So I

> call and leave a message to get one from my dr yesterday to go

back.. Then I get

> a call yesterday afternoon from Human Resources telling me that is

now not

> good enough either, I need to get them the paperwork from the Dr

before I can go

> back to work.. To top it off, they have already posted my position

and have

> given it up. So if and when I go back, I have no job to go back

to.. Part of

> me just wants to give in and quit, cash in on my retirement money

and pay off

> all my bills any pay my cobra.. I am just so frustrated and I know

it is not

> good for me right now..

> I go see the dr in Denver Tuesday, the 23rd, to start on the

Kineret.. I am

> keeping a diary this week for him. Have to do some tests this

week, urine and

> freeze it to take with me.. Woo hoo what fun.. lol.. I am really

trying to

> keep my spirits up right now.. I just needed to vent, I am sorry..

Thank you all

> for listening..

> Love you all and hope everyone is having a somewhat good day..

>

> Kelley in Colorado..

>

>

>

[Guest guest]

After being diagnosed with stills, and after I perked up I applied for a job

within 5 minutes of my home.

The company agreed to me working Mon, Wed & Fri. I enjoyed what I was doing

although. It was way out of my field - Accountant. I was taking catalog

phone orders.

The bosses just couldn't understand why I had to go home early some days.

One day my husband came to get me with my wheel chair and I think their light

bulbs went off.

Some days I was so tired I slep all the next day, then pushed myself to go in

to work again.

You must be persistant with what you can do and stop when it becomes to much

- you have to live with your pain and lack of strength - they don't. Go to the

web sight and print out all the articles and put in a folder and give it to

your boss - then he/she/ they will know more about your disease. This is what

I did. They had no clue what was going on with me.

Good Luck

Blessings

E

[Guest guest]

Thats terrible maybe this will work out to ur advantage in the long run i

sure hope soo.You kno i was kinda in a similar situation with my medical

unemployment they tried to tell me that it was either medical unemployment or

regular unemployment no in between well that was just stupid cause i wanted to

work a little bit and they couldnt understand how i could be ok to work 1 day

and couldnt the next.Evenually they saw things my way and it has worked out,hope

they work out for u too and kinernet is the wonder drug for u take care.

d.Canada PS never had prob with the company tho the way u are soo it is

different

Ot Venting

Good Morning all.. I just needed to vent.. sorry.. Well I think I am

officially on Unpaid Medial Leave of Absence.. (not by choice) lol.. This has

been

bothering me all night, and haven't been able to sleep.. I was out sick the

last

couple of weeks in pain.. My dr went on vacation last week, so he was unable

to fill out my FMLA and ADA paperwork.. the on call dr put me on Neurontin

(sp)

supposed to take three times a day, ya right.. makes me soo tired, can only

take twice a day lol.. So, first they tell me I am allowed to go back if I get

a release from the dr to go back, so I get one to go back part time from the

on call dr.. Well that is not good enough, as he doesn't know my case.. So I

call and leave a message to get one from my dr yesterday to go back.. Then I

get

a call yesterday afternoon from Human Resources telling me that is now not

good enough either, I need to get them the paperwork from the Dr before I can

go

back to work.. To top it off, they have already posted my position and have

given it up. So if and when I go back, I have no job to go back to.. Part of

me just wants to give in and quit, cash in on my retirement money and pay off

all my bills any pay my cobra.. I am just so frustrated and I know it is not

good for me right now..

I go see the dr in Denver Tuesday, the 23rd, to start on the Kineret.. I am

keeping a diary this week for him. Have to do some tests this week, urine and

freeze it to take with me.. Woo hoo what fun.. lol.. I am really trying to

keep my spirits up right now.. I just needed to vent, I am sorry.. Thank you

all

for listening..

Love you all and hope everyone is having a somewhat good day..

Kelley in Colorado..

[Guest guest]

Thats terrible maybe this will work out to ur advantage in the long run i

sure hope soo.You kno i was kinda in a similar situation with my medical

unemployment they tried to tell me that it was either medical unemployment or

regular unemployment no in between well that was just stupid cause i wanted to

work a little bit and they couldnt understand how i could be ok to work 1 day

and couldnt the next.Evenually they saw things my way and it has worked out,hope

they work out for u too and kinernet is the wonder drug for u take care.

d.Canada PS never had prob with the company tho the way u are soo it is

different

Ot Venting

Good Morning all.. I just needed to vent.. sorry.. Well I think I am

officially on Unpaid Medial Leave of Absence.. (not by choice) lol.. This has

been

bothering me all night, and haven't been able to sleep.. I was out sick the

last

couple of weeks in pain.. My dr went on vacation last week, so he was unable

to fill out my FMLA and ADA paperwork.. the on call dr put me on Neurontin

(sp)

supposed to take three times a day, ya right.. makes me soo tired, can only

take twice a day lol.. So, first they tell me I am allowed to go back if I get

a release from the dr to go back, so I get one to go back part time from the

on call dr.. Well that is not good enough, as he doesn't know my case.. So I

call and leave a message to get one from my dr yesterday to go back.. Then I

get

a call yesterday afternoon from Human Resources telling me that is now not

good enough either, I need to get them the paperwork from the Dr before I can

go

back to work.. To top it off, they have already posted my position and have

given it up. So if and when I go back, I have no job to go back to.. Part of

me just wants to give in and quit, cash in on my retirement money and pay off

all my bills any pay my cobra.. I am just so frustrated and I know it is not

good for me right now..

I go see the dr in Denver Tuesday, the 23rd, to start on the Kineret.. I am

keeping a diary this week for him. Have to do some tests this week, urine and

freeze it to take with me.. Woo hoo what fun.. lol.. I am really trying to

keep my spirits up right now.. I just needed to vent, I am sorry.. Thank you

all

for listening..

Love you all and hope everyone is having a somewhat good day..

Kelley in Colorado..

[Guest guest]

Wow, Kelley, sounds like it is all falling in on you at once, hunh? I

understand, I really do. Just remember, it is ok to vent here if you

need to, so don't worry yourself about that. As far as the Neurontin,

I tried it once for a few nights; just one before bed. I was so sick

and goofy-headed that I ended up staying in bed for the better part

of the whole 3-4 days I took the stuff. I don't know how anyone can

take that stuff and still function, but I guess we all react

differently to each medicine. Anyway, do you have to take the urine

in still frozen? I was thinking it would be funny to buy a popsicle

tray with cute little shapes like animals or something and use that

to freeze your urine in. Then you could have something to laugh about

with the new doctor and staff when they see your cute little pee-pee

popsicles, lol. I can just imagine Logan's reaction if he saw me

peeing (or pouring pee) into his popsicle trays, lol. Poor kid would

surely think his Mommy has finally lost it, lol. Well, enough goofing

around for now, my puter is acting up and the words I am typing are

showing up so slow that I have to type four or five letters then stop

and let it catch up. I think Caroline R. had said something about

hers doing the same, and I have never had any problems like this

before, so it is really freaking me out, lol.

I hope things start looking up for you, and I hope you can find a

way to have some fun with your pee-pee popsicles, lol. Let me know if

you need someone to have a chat with.

Love and hugs.....Traci

> Good Morning all.. I just needed to vent.. sorry.. Well I think I

am

> officially on Unpaid Medial Leave of Absence.. (not by choice)

lol.. This has been

> bothering me all night, and haven't been able to sleep.. I was out

sick the last

> couple of weeks in pain.. My dr went on vacation last week, so he

was unable

> to fill out my FMLA and ADA paperwork.. the on call dr put me on

Neurontin (sp)

> supposed to take three times a day, ya right.. makes me soo tired,

can only

> take twice a day lol.. So, first they tell me I am allowed to go

back if I get

> a release from the dr to go back, so I get one to go back part time

from the

> on call dr.. Well that is not good enough, as he doesn't know my

case.. So I

> call and leave a message to get one from my dr yesterday to go

back.. Then I get

> a call yesterday afternoon from Human Resources telling me that is

now not

> good enough either, I need to get them the paperwork from the Dr

before I can go

> back to work.. To top it off, they have already posted my position

and have

> given it up. So if and when I go back, I have no job to go back

to.. Part of

> me just wants to give in and quit, cash in on my retirement money

and pay off

> all my bills any pay my cobra.. I am just so frustrated and I know

it is not

> good for me right now..

> I go see the dr in Denver Tuesday, the 23rd, to start on the

Kineret.. I am

> keeping a diary this week for him. Have to do some tests this

week, urine and

> freeze it to take with me.. Woo hoo what fun.. lol.. I am really

trying to

> keep my spirits up right now.. I just needed to vent, I am sorry..

Thank you all

> for listening..

> Love you all and hope everyone is having a somewhat good day..

>

> Kelley in Colorado..

>

>

>

[Guest guest]

Thank you all.. it has helped me alot..

Traci, you gave me a big laugh.. I bet the dr would really think I was nuts

if I took my urine in popsicle trays.. lol.. I really needed that.. Thank

you...

Love you all.. I hope everyone has fun in Vegas. Wish I was going, but maybe

next time..

Kelley in Colorado

[Guest guest]

Thank you all.. it has helped me alot..

Traci, you gave me a big laugh.. I bet the dr would really think I was nuts

if I took my urine in popsicle trays.. lol.. I really needed that.. Thank

you...

Love you all.. I hope everyone has fun in Vegas. Wish I was going, but maybe

next time..

Kelley in Colorado