C-Diff again, longer treatment this time

[Guest guest]

That horrendous c diff came back (if it ever was really cured) a week after I finished the vancomycin. I'm now almost through with two weeks of vancomycin again. This seems like a stubborn case, so my doctor is going to keep me on four vancomycin a day for two more weeks, then three a day for a week, two a day for a week, and one a day for a week. I think someone on here posted that he was given that tapering off treatment when he had it.

Has anyone on here had one or more recurrences? The bummer is, that I just had fat put into my face recently, and since I got sick with this I've dropped about 15 lbs. It kind of goes from the face first.

Anyway, any info you can share would be helpful, and supportive.

Thanks in advance,

Charlie

[Guest guest]

Sorry to hear that, I posted about thetapering, ask your doctor to taper longer one more week one every other day and one week one every 3 daysand take 3 Florastor a day few oursa part from the Vancomicyn and stay on Florastor 2 a day for few months after you are finished the CancomicynDon't worry about your face the fat will come back fast after you sto the dhiarrea Mark BSent from my iPhoneOn Jul 14, 2012, at 12:02 AM, WEBcfm@... wrote:

That horrendous c diff came back (if it ever was really cured) a week after I finished the vancomycin. I'm now almost through with two weeks of vancomycin again. This seems like a stubborn case, so my doctor is going to keep me on four vancomycin a day for two more weeks, then three a day for a week, two a day for a week, and one a day for a week. I think someone on here posted that he was given that tapering off treatment when he had it.

Has anyone on here had one or more recurrences? The bummer is, that I just had fat put into my face recently, and since I got sick with this I've dropped about 15 lbs. It kind of goes from the face first.

Anyway, any info you can share would be helpful, and supportive.

Thanks in advance,

Charlie

=

[Guest guest]

Sorry to hear that, I posted about thetapering, ask your doctor to taper longer one more week one every other day and one week one every 3 daysand take 3 Florastor a day few oursa part from the Vancomicyn and stay on Florastor 2 a day for few months after you are finished the CancomicynDon't worry about your face the fat will come back fast after you sto the dhiarrea Mark BSent from my iPhoneOn Jul 14, 2012, at 12:02 AM, WEBcfm@... wrote:

That horrendous c diff came back (if it ever was really cured) a week after I finished the vancomycin. I'm now almost through with two weeks of vancomycin again. This seems like a stubborn case, so my doctor is going to keep me on four vancomycin a day for two more weeks, then three a day for a week, two a day for a week, and one a day for a week. I think someone on here posted that he was given that tapering off treatment when he had it.

Has anyone on here had one or more recurrences? The bummer is, that I just had fat put into my face recently, and since I got sick with this I've dropped about 15 lbs. It kind of goes from the face first.

Anyway, any info you can share would be helpful, and supportive.

Thanks in advance,

Charlie

=

[Guest guest]

I

would worry about long courses of Vancomycin therapy. It is very disruptive to

beneficial gut bacteria.

I

had a patient with several recurrent bouts of C-Dif. The man, about 45, was

also low in body fat, and has both HIV and HCV, so his immune system is always

busier.

Several

2 week Vanco treatments didn’t work, and he was also losing weight he could not

stand to part with.

I had discussed the case Sherwood

Gorbach, MD, editor in chief of Clinical Infectious Disease) about what else

might be done for this patient. Gorbach warned to not over-treat with Vanco, as

this will too much disrupt the gut flora, needed for colon cell repair. He

suggested using Bismuth (Pepto Bismol) after the Vanco if needed, for bouts of

diarrhea and cramps.

When

people are taking Vanco for C Dif., I

urge them to

take 10 grams (1 Tablespoon

of powder) L-glutamine, twice a day. This is important lymphocyte fuel for the

cells of the small and large intestine.

I also have them take Culturelle, probiotic, twice a day. Many docs around here suggest Florastore

(saccharomyces bulardi). The Florastore company seems to have some data that

gives their product a slight edge

over Culturelle in C. Dif therapy. However, there was a poster at CROI this

spring, detailing nice GALT (Gut-associate Lymph Tissue) T cell re-population

in

HIV+ people taking Culturelle.

(Lactobacillus GG).

Charlie

Smigelski, RD

Charlienutrition.com

Re: C-Diff again, longer treatment this time

Sorry to hear that, I posted about the

tapering, ask your doctor to taper longer one more week one every other day and one week one every 3 days

and take 3 Florastor a day few ours

a part from the Vancomicyn

and stay on Florastor 2 a day for few months

after you are finished the Cancomicyn

Don't worry about your face the fat will come back fast after you sto the dhiarrea

Mark B

Sent from my iPhone

On Jul 14, 2012, at 12:02 AM, WEBcfm@... wrote:

That horrendous c diff came back (if it ever was really cured) a week after I finished the vancomycin. I'm now almost through with two weeks of vancomycin again. This seems like a stubborn case, so my doctor is going to keep me on four vancomycin a day for two more weeks, then three a day for a week, two a day for a week, and one a day for a week. I think someone on here posted that he was given that tapering off treatment when he had it.

Has anyone on here had one or more recurrences? The bummer is, that I just had fat put into my face recently, and since I got sick with this I've dropped about 15 lbs. It kind of goes from the face first.

Anyway, any info you can share would be helpful, and supportive.

Thanks in advance,

Charlie

=

[Guest guest]

I

would worry about long courses of Vancomycin therapy. It is very disruptive to

beneficial gut bacteria.

I

had a patient with several recurrent bouts of C-Dif. The man, about 45, was

also low in body fat, and has both HIV and HCV, so his immune system is always

busier.

Several

2 week Vanco treatments didn’t work, and he was also losing weight he could not

stand to part with.

I had discussed the case Sherwood

Gorbach, MD, editor in chief of Clinical Infectious Disease) about what else

might be done for this patient. Gorbach warned to not over-treat with Vanco, as

this will too much disrupt the gut flora, needed for colon cell repair. He

suggested using Bismuth (Pepto Bismol) after the Vanco if needed, for bouts of

diarrhea and cramps.

When

people are taking Vanco for C Dif., I

urge them to

take 10 grams (1 Tablespoon

of powder) L-glutamine, twice a day. This is important lymphocyte fuel for the

cells of the small and large intestine.

I also have them take Culturelle, probiotic, twice a day. Many docs around here suggest Florastore

(saccharomyces bulardi). The Florastore company seems to have some data that

gives their product a slight edge

over Culturelle in C. Dif therapy. However, there was a poster at CROI this

spring, detailing nice GALT (Gut-associate Lymph Tissue) T cell re-population

in

HIV+ people taking Culturelle.

(Lactobacillus GG).

Charlie

Smigelski, RD

Charlienutrition.com

Re: C-Diff again, longer treatment this time

Sorry to hear that, I posted about the

tapering, ask your doctor to taper longer one more week one every other day and one week one every 3 days

and take 3 Florastor a day few ours

a part from the Vancomicyn

and stay on Florastor 2 a day for few months

after you are finished the Cancomicyn

Don't worry about your face the fat will come back fast after you sto the dhiarrea

Mark B

Sent from my iPhone

On Jul 14, 2012, at 12:02 AM, WEBcfm@... wrote:

That horrendous c diff came back (if it ever was really cured) a week after I finished the vancomycin. I'm now almost through with two weeks of vancomycin again. This seems like a stubborn case, so my doctor is going to keep me on four vancomycin a day for two more weeks, then three a day for a week, two a day for a week, and one a day for a week. I think someone on here posted that he was given that tapering off treatment when he had it.

Has anyone on here had one or more recurrences? The bummer is, that I just had fat put into my face recently, and since I got sick with this I've dropped about 15 lbs. It kind of goes from the face first.

Anyway, any info you can share would be helpful, and supportive.

Thanks in advance,

Charlie

=

[Guest guest]

As suggested by the poster with the infection and by my previous posts the trick is not to repeat 2 week treatments of Vancomicyn but instead a longer taper off treatment ,I suspectthis might be necessary to also preventre infection from one own bathroomsince C difficile is very hard to killand for personal experience Florastordoes help but in my case Florastor alonedid not cure C difficile It is now how ever very important for me to take Florastor when taking antibioticsto prevent dhiarrea due to antibiotic usesome thing I did not had to do before C difficileI have also found that for me it works to use a large initial dose of Florastor.On another note now that I have madeFlorastor once a day and vitamin D plus calciuma part if my dailysupplements intake I have finally gone backto a regular bowel movements after years ofHIV medications caused Dhiarrea.Mark BSent from my iPhoneOn Jul 16, 2012, at 4:17 PM, charlie <nutrishn@...> wrote:

I

would worry about long courses of Vancomycin therapy. It is very disruptive to

beneficial gut bacteria.

I

had a patient with several recurrent bouts of C-Dif. The man, about 45, was

also low in body fat, and has both HIV and HCV, so his immune system is always

busier.

Several

2 week Vanco treatments didn’t work, and he was also losing weight he could not

stand to part with.

I had discussed the case Sherwood

Gorbach, MD, editor in chief of Clinical Infectious Disease) about what else

might be done for this patient. Gorbach warned to not over-treat with Vanco, as

this will too much disrupt the gut flora, needed for colon cell repair. He

suggested using Bismuth (Pepto Bismol) after the Vanco if needed, for bouts of

diarrhea and cramps.

When

people are taking Vanco for C Dif., I

urge them to

take 10 grams (1 Tablespoon

of powder) L-glutamine, twice a day. This is important lymphocyte fuel for the

cells of the small and large intestine.

I also have them take Culturelle, probiotic, twice a day. Many docs around here suggest Florastore

(saccharomyces bulardi). The Florastore company seems to have some data that

gives their product a slight edge

over Culturelle in C. Dif therapy. However, there was a poster at CROI this

spring, detailing nice GALT (Gut-associate Lymph Tissue) T cell re-population

in

HIV+ people taking Culturelle.

(Lactobacillus GG).

Charlie

Smigelski, RD

Charlienutrition.com

Re: C-Diff again, longer treatment this time

Sorry to hear that, I posted about the

tapering, ask your doctor to taper longer one more week one every other day and one week one every 3 days

and take 3 Florastor a day few ours

a part from the Vancomicyn

and stay on Florastor 2 a day for few months

after you are finished the Cancomicyn

Don't worry about your face the fat will come back fast after you sto the dhiarrea

Mark B

Sent from my iPhone

On Jul 14, 2012, at 12:02 AM, WEBcfm@... wrote:

That horrendous c diff came back (if it ever was really cured) a week after I finished the vancomycin. I'm now almost through with two weeks of vancomycin again. This seems like a stubborn case, so my doctor is going to keep me on four vancomycin a day for two more weeks, then three a day for a week, two a day for a week, and one a day for a week. I think someone on here posted that he was given that tapering off treatment when he had it.

Has anyone on here had one or more recurrences? The bummer is, that I just had fat put into my face recently, and since I got sick with this I've dropped about 15 lbs. It kind of goes from the face first.

Anyway, any info you can share would be helpful, and supportive.

Thanks in advance,

Charlie

=

=

[Guest guest]

As suggested by the poster with the infection and by my previous posts the trick is not to repeat 2 week treatments of Vancomicyn but instead a longer taper off treatment ,I suspectthis might be necessary to also preventre infection from one own bathroomsince C difficile is very hard to killand for personal experience Florastordoes help but in my case Florastor alonedid not cure C difficile It is now how ever very important for me to take Florastor when taking antibioticsto prevent dhiarrea due to antibiotic usesome thing I did not had to do before C difficileI have also found that for me it works to use a large initial dose of Florastor.On another note now that I have madeFlorastor once a day and vitamin D plus calciuma part if my dailysupplements intake I have finally gone backto a regular bowel movements after years ofHIV medications caused Dhiarrea.Mark BSent from my iPhoneOn Jul 16, 2012, at 4:17 PM, charlie <nutrishn@...> wrote:

I

would worry about long courses of Vancomycin therapy. It is very disruptive to

beneficial gut bacteria.

I

had a patient with several recurrent bouts of C-Dif. The man, about 45, was

also low in body fat, and has both HIV and HCV, so his immune system is always

busier.

Several

2 week Vanco treatments didn’t work, and he was also losing weight he could not

stand to part with.

I had discussed the case Sherwood

Gorbach, MD, editor in chief of Clinical Infectious Disease) about what else

might be done for this patient. Gorbach warned to not over-treat with Vanco, as

this will too much disrupt the gut flora, needed for colon cell repair. He

suggested using Bismuth (Pepto Bismol) after the Vanco if needed, for bouts of

diarrhea and cramps.

When

people are taking Vanco for C Dif., I

urge them to

take 10 grams (1 Tablespoon

of powder) L-glutamine, twice a day. This is important lymphocyte fuel for the

cells of the small and large intestine.

I also have them take Culturelle, probiotic, twice a day. Many docs around here suggest Florastore

(saccharomyces bulardi). The Florastore company seems to have some data that

gives their product a slight edge

over Culturelle in C. Dif therapy. However, there was a poster at CROI this

spring, detailing nice GALT (Gut-associate Lymph Tissue) T cell re-population

in

HIV+ people taking Culturelle.

(Lactobacillus GG).

Charlie

Smigelski, RD

Charlienutrition.com

Re: C-Diff again, longer treatment this time

Sorry to hear that, I posted about the

tapering, ask your doctor to taper longer one more week one every other day and one week one every 3 days

and take 3 Florastor a day few ours

a part from the Vancomicyn

and stay on Florastor 2 a day for few months

after you are finished the Cancomicyn

Don't worry about your face the fat will come back fast after you sto the dhiarrea

Mark B

Sent from my iPhone

On Jul 14, 2012, at 12:02 AM, WEBcfm@... wrote:

That horrendous c diff came back (if it ever was really cured) a week after I finished the vancomycin. I'm now almost through with two weeks of vancomycin again. This seems like a stubborn case, so my doctor is going to keep me on four vancomycin a day for two more weeks, then three a day for a week, two a day for a week, and one a day for a week. I think someone on here posted that he was given that tapering off treatment when he had it.

Has anyone on here had one or more recurrences? The bummer is, that I just had fat put into my face recently, and since I got sick with this I've dropped about 15 lbs. It kind of goes from the face first.

Anyway, any info you can share would be helpful, and supportive.

Thanks in advance,

Charlie

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